Re: Bone Marrow Transplant

June 19, 2009

Hello,

Because of Hannah having mds she was taken off the transplant list

due to toxicity. mds kids can go through transplants just have to watch what

they give them and how much, they follow a different protocol. she handled her

high dose chemo to get her into remission very well and that was too toxic for

an mds patient; her mds diagnosis did not come until the very last drops of the

high dosed chemo were running, so they let her finish it and wrote a paper in

the medical journals on her case. I hope this helps some? she had

MyeloDysplastic syndrome (MDS for short) type of leukemia, What type does your

child have? you might want to ask the oncologist treating your child to look up

Dr. H. Shaw from children's hospital of Pittsburgh, PA. he was Hannah's

main oncologist and we still see him.

Holly Hannum mother of Hannah Jane 9, MDS-MTDS (she also has a Translocation),

Blakely 17, mild adhd

Bone Marrow Transplant

Hi all,

Are there any MDS parents out there that went through bone marrow transplants

with their MDS child? We may be doing that soon and I wanted to find out how MDS

children handle the level of toxicity involved with the procedure, among other

things.

Thanks in advance!

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