Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 I have had 2 detetherings. After the first one I could walk around out of bed with some hardship on day 5 after the procedure. Interestingly after the second procedure I could walk on day 3. I varies greatly patient to patient based on what kind of a toll the procedure had on you. From my experience 3-5 days. Day one you still have your dressings on and don't feel like your a member of the planet earth. Day 2 your coming out of the big drug high of surgery and they will make determinations on whether or not you need to continue catherization(if they did put in a cathetar)...day three you basically have the bulk of the drugs out of your system beyond the pain management...and they try to get you to walk as soon as your possibly can but if she can't they should give her time. Also both my recoveries were estimated at a week...but after my second procedure I was discharged on day 5 cause I walked on day 3. I think the goal is to make sure you leave the hospital at the same level of mobility as when you entered. > Hi everyone! My daughter had a tethered cord as an infant due to a > lipoma. Her surgery went great but after recent back and leg pain, > she was diagnosed with a retethered cord by a ns. Her symtoms are > very mild considering that she is 13. My question is about how long > after the detethering surgery were you able to get out of bed and > walk. Her hospital stay is estimated at 1 week. > > Thank you very much for your time and best of luck to all of you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Hello, I have had two detethering surgeries as well. The first at age 12, at Children's Hospital in Boston, MA and the second at age 22, at Beth Israel Med. Center/North div. in NYC. Both surgeries I was in hospital for a week. Since the first one was when I was younger, I do recall that they did not medicate me AS much. Yes, they gave me morphine -- and narcotic pain meds -- but they told my mother to give me Tylenol after discharge. The second surgery oddly enough that afternoon -- after coming out of anesthesia etc. I was awake and talking coherant -- and then the BIG crash came and I was in severe pain for about the next four to five days. I had an infection and high fever after surgery the second time -- so they took lots of blood work. They wanted to get me out of bed around the third day following but I was still in too much pain to walk. I had an MRI on the third day as well to follow up. I was on morphine for much longer than they thought I would be and did not have any appetite so they kept me on IV fluids for much longer the second time around. I was released from the hospital -- 6 days afterwards.. and then stayed with my Aunt for 2 1/2 weeks. I was in a compression garment the second time to reduce swelling/inflammation. It had to to be custom fit and ordered from an Orthopedic specialist at home. I had my running stitch taken out 7 days after being released from the hospital. I was on perocet for a good 6-8 weeks following. The second surgery for me took much more out of me physically and emotionally. The huge mistake that occurred was that I DID NOT receive any PT post-op like I was prescribed to. So, please, please make sure you have your daughter follow up with one -- to get into a walking, re-hab routine asap following her surgery. She is young and that is good. I did finally get to a PT but it wasn't until three months post-op -- and by that time I'd gravely lost sleep and was in so much pain I could not sit, in my college classes etc. BTW I was lucky and fortunate enough to have an extremely caring and wonderful Nsg both times. Now the first one has retired and the second one moved to take up practice in Madison, WI. Hoping you have good experience with yours. If not, it is important to get a second opinion. Side note, because of the second detethering surgery involving more scar-tissue and adhesions -- a Plastic Surgeon closed my incision, because of the complications. I still have recurrent nerve pain in my lower back .. but I manage with yoga etc. it helps. Much luck to you. davidbrian232000 wrote: I have had 2 detetherings. After the first one I could walk around out of bed with some hardship on day 5 after the procedure. Interestingly after the second procedure I could walk on day 3. I varies greatly patient to patient based on what kind of a toll the procedure had on you. From my experience 3-5 days. Day one you still have your dressings on and don't feel like your a member of the planet earth. Day 2 your coming out of the big drug high of surgery and they will make determinations on whether or not you need to continue catherization(if they did put in a cathetar)...day three you basically have the bulk of the drugs out of your system beyond the pain management...and they try to get you to walk as soon as your possibly can but if she can't they should give her time. Also both my recoveries were estimated at a week...but after my second procedure I was discharged on day 5 cause I walked on day 3. I think the goal is to make sure you leave the hospital at the same level of mobility as when you entered. > Hi everyone! My daughter had a tethered cord as an infant due to a > lipoma. Her surgery went great but after recent back and leg pain, > she was diagnosed with a retethered cord by a ns. Her symtoms are > very mild considering that she is 13. My question is about how long > after the detethering surgery were you able to get out of bed and > walk. Her hospital stay is estimated at 1 week. > > Thank you very much for your time and best of luck to all of you! Not Medical Advice. We Are Not Doctors. Need help with the list? Email kathy@...,michelle@..., rick@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Thank you very much for the information. It REALLY helps to hear it from someone other than a doctor! Her only symptoms were back pain that went down the hip with activity, mild scoliosis, and a lipoma (no bladder problems). Would they put her on a cathetar? I'm not familiar with it or if it would be needed. We are so lucky to be going to s Hopkins hospital with a well known neurosurgeon who is wonderful! He said that no physical therapy etc. would be need, or did you mean with follow up check ups by the doctor and MRI scans?The surgery is scheduled for the 23rd of this month. About how long is it until normal activities are resumed or is this completely individual? (in weeks after recovery) She plays a spring sport, but not too much in the fall. This helps so much, I haven't been able to find people with similar experiences at age 13, so thank you for posting. Hope everyone is well! > > Hi everyone! My daughter had a tethered cord as an infant due to a > > lipoma. Her surgery went great but after recent back and leg pain, > > she was diagnosed with a retethered cord by a ns. Her symtoms are > > very mild considering that she is 13. My question is about how long > > after the detethering surgery were you able to get out of bed and > > walk. Her hospital stay is estimated at 1 week. > > > > Thank you very much for your time and best of luck to all of you! > > > > > > Not Medical Advice. We Are Not Doctors. > Need help with the list? Email kathy@t...,michelle@t..., rick@t... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 The reason why I was catherized wasn't because of any nerve function loss(I have no bowel or bladder problems) it was because the anasthesia itself causes an extreme amount of constipation both urinary and otherwise so if they don't use one I think your daughter may be heardpressed to relieve herself the day after surgery...especially since they put you on an iv fluid drip. > > > Hi everyone! My daughter had a tethered cord as an infant due > to a > > > lipoma. Her surgery went great but after recent back and leg > pain, > > > she was diagnosed with a retethered cord by a ns. Her symtoms > are > > > very mild considering that she is 13. My question is about how > long > > > after the detethering surgery were you able to get out of bed > and > > > walk. Her hospital stay is estimated at 1 week. > > > > > > Thank you very much for your time and best of luck to all of you! > > > > > > > > > > > > Not Medical Advice. We Are Not Doctors. > > Need help with the list? Email kathy@t...,michelle@t..., > rick@t... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2005 Report Share Posted August 14, 2005 One of the reasons that they keep you down flat after surgery is to give csf time to regenerate. If you raise your head with low spinal fluid, you get a really terrible headache. So it depends on how much she would lose during the surgery. After that, they sort of ease you up to sitting on the edge of the bed, then onward to walking. Very slowly at first. I wasn't even allowed to turn myself over in bed. I was log rolled on a sheet by the staff every two hours from side to side. As every one has said - it's all individual as to how long it takes to get moving again. And even at 13, your daughter will spring back faster than us adults. V > Hi everyone! My daughter had a tethered cord as an infant due to a > lipoma. Her surgery went great but after recent back and leg pain, > she was diagnosed with a retethered cord by a ns. Her symtoms are > very mild considering that she is 13. My question is about how long > after the detethering surgery were you able to get out of bed and > walk. Her hospital stay is estimated at 1 week. > > Thank you very much for your time and best of luck to all of you! Quote Link to comment Share on other sites More sharing options...
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