Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 Dear You would have seen Pierre's sound advice on nutrition and I agree with him completely. For information my Nephrologist gave me a few do's and don'ts. I avoid caffeine, all diet coke type drinks, red meat, cheese and full fat creams and milk, and smoking is a big NO NO. I do have the odd drop of alcohol, usually red wine, but not very often, otherwise I don't drink. Smoking was the hardest thing to cut out, but I have managed it for 12 months now. I do exercise, but because of other health issues I am limited in what I can do, but I am a firm believer in YOGA, and I love to swim. Good luck to you ok. Best wishes Re: Nutrition Thanks for the quick response , I am currently on a low protein and low sodium diet. But that is only b/c of the research I have found pointing me in that direction. Also, w/ my flank pain it seems to come and go but the dul pain is with me on a daily basis. And a few times a month is when I experience the " bend you over into a fetal postion " pain. I will w/o a doubt speak to a nutritionist. And for the record, Thank you Pierre for having created this group. It is the most informative site I have found. It has put an ease in my head and in my heart concerning all of this. It feels nice to not be alone with this disease. Warm regards, -- In iga-nephropathy@y..., " andria Blaelock " <ablaelock@h...> wrote: > Hi ! Definitely find a nutritionist (renal specialist would be good) > with whom you can form an ongoing relationship. Everyone is different, > their lifestyles are different and their Igan moves differently, but I think > every little bit helps. My nutritionist recommends lots of water, lots of > fresh fruit and vegetables and limiting meat and salt. She's quite hard > line and recommends no tea, or coffee, or chocolate or alcohol, so you have > to think about what you are prepared to give up! I have found that my pain > is worse when I eat a lot of meat, but you may be different. Doctors aren't > always a lot of help because the poor loveys seem to know less about it than > us!. > > > ______________________________________________________________________ ___ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Hi . I appreciate your kind words about the site. We have had many messages about diet. If you go to the home page of the group, you can search the message archives to quickly get to messages that might be relevant. For example, you could search for " diet " . There are as many opinions about this as there are people I think, but my feeling is that nothing you do in the way of nutrition will have that much of an effect overall, unless you have very unhealthy dietary habits to begin with. I think it's important to eat a well-balanced diet, with, as said, good fruits and vegetables. I also believe meat is not a problem, unless you were to eat meats excessively. But the same applies even to people without kidney disease. As far as the kidneys go, they don't really care what you eat, until you've lost enough kidney function that they can't process certain things faster than you put them in (which probably isn't your case). After all, it's not the kidneys that digests the food we eat. There may be some advantage in, not a low, but a controlled protein diet. This is lower than the average North American diet, but it ensures enough high quality protein for proper health -- but you really need to have a dietician tailor something for you. It's possible that your nephrologist doesn't believe a controlled protein diet to be necessary. The thinking is that most people don't really need it, and, if my memory is correct, there is at least one study that concluded a low protein diet has no particular benefit when it comes to IgAN specifically (as opposed to kidney disease in general). So, in the end, I suspect that just not going overboard with meat is sufficient. Anyway, if you were eating too much protein, your BUN would be elevated. Nephrologists may sometimes give the impression they don't care, but they can tell just about everything they need to know from that little page-long lab report, and a quick glance at how you look. As for salt, you know, the kidneys have an incredible amount of capacity to regulate salt within the body. Unless you have high blood pressure problems, it's probably not necessary to eliminate sodium completely. In fact, eliminating sodium is probably the easiest task a kidney has to do. Again, it's one of those things, where if a person believes reducing salt is better for health overall, fine, but if it's just for the kidneys, it probably won't make much difference. So once again, less salt may be better for health, but it really isn't necessary to go to extremes about it (except in very specific cases). Moderation and balance in the diet is probably the way to go - and that includes things like coffee, alcohol, meat, salt, etc. Good nutrition helps keep you healthy, and the healthier you are, the better it is for the kidneys, and most other organs too. Add plenty of exercise to the balanced diet, and you are probably doing everything that can be done to ensure you stay healthy as long as possible. Now, I just finished my cheeseburger and chips for lunch, and I'm going to have my afternoon coffee Pierre Re: Nutrition > Thanks for the quick response , > > And for the record, Thank you Pierre for having created this group. > It is the most informative site I have found. It has put an ease in > my head and in my heart concerning all of this. It feels nice to not > be alone with this disease. > Warm regards, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 Well said Pierre! A little of what you fancy does you good, (I found that I started getting a siege mentality and that the baby neph was a bit right when he suggested taking the ACE inhibitor and not worrying too much about the food. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 Thank you so much . As for protein, I try to limit it to 32g a day. For sodium, 1000g. I have one caffeine drink a day. I drink a lot of water. I don't eat red meat. And I too am a firm believer in yoga. As a matter of fact, before I moved I watched this great program called Inhale. It is yoga but to great music and the Yogi is unbelievable. Smoking has been the hardest for me so far. I'm down to barely a pack a week. Ugh, I hate having to give up all my favorite things! A quick question, are all Nephrologist's office hard to get in to? It's like pulling teeth down here. Thanks again for everything. Malt wrote: Dear You would have seen Pierre's sound advice on nutrition and I agree with himcompletely. For information my Nephrologist gave me a few do's and don'ts.I avoid caffeine, all diet coke type drinks, red meat, cheese and full fatcreams and milk, and smoking is a big NO NO. I do have the odd drop ofalcohol, usually red wine, but not very often, otherwise I don't drink.Smoking was the hardest thing to cut out, but I have managed it for 12months now.I do exercise, but because of other health issues I am limited in what I cando, but I am a firm believer in YOGA, and I love to swim.Good luck to you ok.Best wishes-----Original Message-----From: sarahboatrite@... Sent: 09 March 2001 17:09To: iga-nephropathy Subject: Re: NutritionThanks for the quick response ,I am currently on a low protein and low sodium diet. But that isonly b/c of the research I have found pointing me in that direction.Also, w/ my flank pain it seems to come and go but the dul pain iswith me on a daily basis. And a few times a month is when Iexperience the " bend you over into a fetal postion " pain. I will w/oa doubt speak to a nutritionist.And for the record, Thank you Pierre for having created this group.It is the most informative site I have found. It has put an ease inmy head and in my heart concerning all of this. It feels nice to notbe alone with this disease.Warm regards,-- In iga-nephropathy@y..., " andria Blaelock " <ablaelock@h...>wrote:> Hi ! Definitely find a nutritionist (renal specialist wouldbe good)> with whom you can form an ongoing relationship. Everyone isdifferent,> their lifestyles are different and their Igan moves differently,but I think> every little bit helps. My nutritionist recommends lots of water,lots of> fresh fruit and vegetables and limiting meat and salt. She's quitehard> line and recommends no tea, or coffee, or chocolate or alcohol, soyou have> to think about what you are prepared to give up! I have found thatmy pain> is worse when I eat a lot of meat, but you may be different.Doctors aren't> always a lot of help because the poor loveys seem to know lessabout it than> us!.> >>_________________________________________________________________________> Get Your Private, Free E-mail from MSN Hotmail athttp://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 Thank you so much . As for protein, I try to limit it to 32g a day. For sodium, 1000g. I have one caffeine drink a day. I drink a lot of water. I don't eat red meat. And I too am a firm believer in yoga. As a matter of fact, before I moved I watched this great program called Inhale. It is yoga but to great music and the Yogi is unbelievable. Smoking has been the hardest for me so far. I'm down to barely a pack a week. Ugh, I hate having to give up all my favorite things! A quick question, are all Nephrologist's office hard to get in to? It's like pulling teeth down here. Thanks again for everything. Malt wrote: Dear It sounds very much like you are following a very good regime for diet here, so well done on that score. Yes it is hard having to give certain things up, but I take the attitude that if you really really want something, like a glass of wine, or chocolate, then it won’t hurt you in the long term. Depriving yourself completely sometimes makes you want it all the more don’t you think? As for access to a Nephrologist, I have been fortunate in that I have been seen usually within 2 weeks. However I pay for private consultations with Private Medical Insurance, so it seems money talks!!! If I had to wait on our UK NHS system I know I could expect to wait much longer, probably up to 8 weeks for an initial consultation. A sad fact when I pay into the NHS system as well. I am not sure what Country you are in, but I would be banging on a few doors to get myself seen if that is what you need. Be persistent , you have a right to be seen. Good luck ok. Best wishes. -----Original Message----- From: Boatrite Sent: 12 March 2001 14:33 To: iga-nephropathy Subject: RE: Re: Nutrition Dear You would have seen Pierre's sound advice on nutrition and I agree with him completely. For information my Nephrologist gave me a few do's and don'ts. I avoid caffeine, all diet coke type drinks, red meat, cheese and full fat creams and milk, and smoking is a big NO NO. I do have the odd drop of alcohol, usually red wine, but not very often, otherwise I don't drink. Smoking was the hardest thing to cut out, but I have managed it for 12 months now. I do exercise, but because of other health issues I am limited in what I can do, but I am a firm believer in YOGA, and I love to swim. Good luck to you ok. Best wishes Re: Nutrition Thanks for the quick response , I am currently on a low protein and low sodium diet. But that is only b/c of the research I have found pointing me in that direction. Also, w/ my flank pain it seems to come and go but the dul pain is with me on a daily basis. And a few times a month is when I experience the " bend you over into a fetal postion " pain. I will w/o a doubt speak to a nutritionist. And for the record, Thank you Pierre for having created this group. It is the most informative site I have found. It has put an ease in my head and in my heart concerning all of this. It feels nice to not be alone with this disease. Warm regards, -- In iga-nephropathy@y..., " andria Blaelock " <ablaelock@h...> wrote: > Hi ! Definitely find a nutritionist (renal specialist would be good) > with whom you can form an ongoing relationship. Everyone is different, > their lifestyles are different and their Igan moves differently, but I think > every little bit helps. My nutritionist recommends lots of water, lots of > fresh fruit and vegetables and limiting meat and salt. She's quite hard > line and recommends no tea, or coffee, or chocolate or alcohol, so you have > to think about what you are prepared to give up! I have found that my pain > is worse when I eat a lot of meat, but you may be different. Doctors aren't > always a lot of help because the poor loveys seem to know less about it than > us!. > > > ______________________________________________________________________ ___ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
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