Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 The first time I used it factive was like a miracle, I didn't cough for four days. The third time it didn't seem to work at all. The last time he gave me Cipro Ron I was talking to a dr about Azythro...he said certain anti's treat certain ' bugs '..when I used Azythro (( or however you spell it )) I noticed it kept my infection at bay..but I also felt more SOB while using it...and as soon as I was finished the flare up came right back..apparently, this med isnt good for us lungers with bigger problems Sandie in MD My Tears don't comprimise my Strength...They never have... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 My doctors habe been rotating antibiotics, Avelox and Azithromycin, that's been my cocktail for app. 3 years. Years past I was on Cipro, it doesn't help me any longer. Early January I took Avelox, it made me dizzy, I had painful muscle cramps in the leg during the night. The day after finishing the Avelox I was sick again, coughing up more mucous than usual. Next on the menu, Jan. 16, Azithromycin, done that, still sick. Winter isn't even over yet. So many ppl coughing, sneezing on the subway, buses, no wonder I can't get rid of this chest infection. Karin > > > > In a message dated 2/2/2007 2:55:28 P.M. Eastern Standard Time, > jagracin@... writes: > > > > > The first time I used it factive was like a miracle, I didn't cough for four > days. The third time it didn't seem to work at all. The last time he gave > me Cipro > Ron > > > > > > > I was talking to a dr about Azythro...he said certain anti's treat certain ' > bugs '..when I used Azythro (( or however you spell it )) I noticed it kept > my infection at bay..but I also felt more SOB while using it...and as soon as > I was finished the flare up came right back..apparently, this med isnt good > for us lungers with bigger problems > Sandie in MD > > > My Tears don't comprimise my Strength... > They never have... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 Azithromycin is often now used in CF patients not only for its antibiotic properties, but some research has found that it works against inflammation in the lungs. This is significant given the infection and inflammation cycle. Inflammation is thought to lead to or contribute to lung infections. Many with Pseudomonas are taking it on a long terms basis and have had good results, because their PFTs went up or have stayed stable. these are people with mild to moderate lung disease. Unfortunately, my stomach wouldn't tolerate it even with food. However, Azithromycin has been used by children as young as six. Not sure how this might work in the long term for persons with non-CF bronchiectasis and Psuedomonas, but it might still be helpful for some and at least worth asking your specialist about. Even if it does not combat the bacteria the fact that this treatment has been associated with a reduction in inflammation is beneficial. Hugs:0) LizPre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." All new Yahoo! Mail - Get a sneak peak at messages with a handy reading pane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 Azithromycin is often now used in CF patients not only for its antibiotic properties, but some research has found that it works against inflammation in the lungs. This is significant given the infection and inflammation cycle. Inflammation is thought to lead to or contribute to lung infections. Many with Pseudomonas are taking it on a long terms basis and have had good results, because their PFTs went up or have stayed stable. these are people with mild to moderate lung disease. Unfortunately, my stomach wouldn't tolerate it even with food. However, Azithromycin has been used by children as young as six. Not sure how this might work in the long term for persons with non-CF bronchiectasis and Psuedomonas, but it might still be helpful for some and at least worth asking your specialist about. Even if it does not combat the bacteria the fact that this treatment has been associated with a reduction in inflammation is beneficial. Hugs:0) LizPre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." Share your photos with the people who matter at Yahoo! Canada Photos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 I'm sorry to hear this Karin. Winter is actually the best time of the year for me because of the colder air. Summer is the worst with the heat and humidity that often leaves me stuck in the house. Hoping you are feeling better soon. Its so hard to avoid the many viruses going around especially for those living in larger towns and cities. Living in a rural area has the advantages of allowing me to more often avoid larger crowds. My ID specialist says we should not live in a bubble, but its difficult at times I agree to balance getting out when there are so many viruses going around. Norwalk has been the bad one this year for Nova Scotia. My best defense has been hand washing and purell when out and about. When I went to Toronto in 2000 before my brother and sister-in-law had a mini van (pre-children) I thought the public transportation was great, but sometimes cramped. If someone had a bad cold those around them were more likely to get it. Being in confined spaces its so much harder to avoid the colds. I have read that masks may not even always work, although some people who have received transplants are advised by their teams to wear a mask when out in the public. I think if I were to wear one it might be an N-95. Hugs:0) Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." All new Yahoo! Mail Get news delivered. Enjoy RSS feeds right on your Mail page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 Hi , When we had the SARS outbreak in Toronto, many ppl and health care workers got sick wearing the surgical masks. It was then decided to wear the N95 mask. The N95 only works if it fits the face snugly. I get very few colds, this year was an exception, I had a bacteria and a virus. I went to see my GP a couple of days ago, he prescribed Avelox, again, unless I cough up blood, I won't be taking it yet. Instead I am trying oil of oregano, liquid form, it comes with a dropper, I put 2 drops under my tongue, I drink herbal tea with it, not too bad. Along with that, I use Nasonex, to reduce sinus infections, it's a corticostoroid, Schering. I am feeling better, not as congested. You're right about Azithromycin, I wish the doctor had prescribed that rather than the Avelox. He says antibiotics need to be rotated. It's extremely cold and windy here, -16C or 3.1F, I cover my mouth with a scarf, but I can breathe in this crisp, cold air. Karin > > I'm sorry to hear this Karin. Winter is actually the best time of the year for me because of the colder air. Summer is the worst with the heat and humidity that often leaves me stuck in the house. > > Hoping you are feeling better soon. Its so hard to avoid the many viruses going around especially for those living in larger towns and cities. Living in a rural area has the advantages of allowing me to more often avoid larger crowds. My ID specialist says we should not live in a bubble, but its difficult at times I agree to balance getting out when there are so many viruses going around. Norwalk has been the bad one this year for Nova Scotia. My best defense has been hand washing and purell when out and about. > > When I went to Toronto in 2000 before my brother and sister-in-law had a mini van (pre-children) I thought the public transportation was great, but sometimes cramped. If someone had a bad cold those around them were more likely to get it. Being in confined spaces its so much harder to avoid the colds. I have read that masks may not even always work, although some people who have received transplants are advised by their teams to wear a mask when out in the public. I think if I were to wear one it might be an N-95. > > Hugs:0) > Liz > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 Hi Karin, Do you drink green tea? I have about every Celestial Seasonings tea going, LOL ... I enjoy herbal teas. Celestial Seasonings is my favourite brand. Another nice hot drink is Original Hot Apple. Has a lot of sugar, but also is supposed to contain 100% Vitamin C. Its made by Aliments W.T. Lynch Limitee. Happy Weekend:0) Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." Ask a question on any topic and get answers from real people. Go to Yahoo! Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 Azithromycin is often now used in CF patients not only for its antibiotic properties, but some research has found that it works against inflammation in the lungs. This is significant given the infection and inflammation cycle. I've found that Azithro doesn't do much to help me . I find myself more SOB while on it. Leviquin seems to work better. But no anti should be used for too long of a term for fear of resistance. Sandie My Tears don't comprimise my Strength...They never have... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 I'm sorry to hear this Karin. Winter is actually the best time of the year for me because of the colder air. Summer is the worst with the heat and humidity that often leaves me stuck in the house. Winter is the pitts . The cold frigid air makes me very SOB. Then there's summer and the hot humid air..again..extremely SOB. The best times of year for me are spring and fall. Low humidity and mild temps. Another thing to take into consideration on those bad breathing days is the Barometric Pressure. That also can cause havoc with our breathing..take note of that sometime.. Sandie in MD My Tears don't comprimise my Strength...They never have... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 In CF the doctors are often not as concerned (for some reason) about resistance when it comes to long term use of Azithromycin. At the CF conferences discussions have revolved around this med being used for its anti-inflammatory properties. Its been found this Azithromycin works well in doing this and this in turn helps to control Pseudomonas especially in the younger kids who have not been as effected yet by Pseudo. Its a very bad bacteria in CF lungs. Long term Azithromycin is more of a preventative anti-inflammatory med in CF. I was surprised too. My ID specialist was going to place me on long term Azithro, but my stomach could not tolerate this med. Studies started after the med. had been used in Japan with people who had panbronchiolitis. A disease that has some similarities to CF lung disease. Azithro. was found helpful and doctors and researchers wanted to test their hypothesis that it could be a potential CF treatment. Best Wishes:0) Liz Sunniesback55@... wrote: Azithromycin is often now used in CF patients not only for its antibiotic properties, but some research has found that it works against inflammation in the lungs. This is significant given the infection and inflammation cycle. I've found that Azithro doesn't do much to help me . I find myself more SOB while on it. Leviquin seems to work better. But no anti should be used for too long of a term for fear of resistance. Sandie My Tears don't comprimise my Strength...They never have...Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 I drink herbal tee, peppermint grown in my backyard. With every meal I drink chinese green tea. The real one. Another tea is the Chai tea, full of good spices and aromatics. Lowers the cholestoral, mine is very low. Karin -- In bronchiectasis , Holt wrote: > > Hi Karin, > > Do you drink green tea? I have about every Celestial Seasonings tea going, LOL ... I enjoy herbal teas. Celestial Seasonings is my favourite brand. > > Another nice hot drink is Original Hot Apple. Has a lot of sugar, but also is supposed to contain 100% Vitamin C. Its made by Aliments W.T. Lynch Limitee. > > Happy Weekend:0) > Liz > > > > > > > Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) > carepages.com name: maryelizabethholt > > Please watch: Live Life Then Give Life! - UK > http://www.youtube.com/watch?v=Nz33i6prkuQ. > > " Don't take your organs to Heaven, heaven knows we need them here. " > > > --------------------------------- > Ask a question on any topic and get answers from real people. Go to Yahoo! Answers. > Quote Link to comment Share on other sites More sharing options...
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