Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 Welcome to the group. As I would say to anyone in your situation, I hope you don't have MS. I would always hope that there is an explanation for what ails you that has a known cause and a cure. Nevertheless, if it is MS, there is treatment and you would have a lot of company, although they say it's rare. I'm not sure it's all the rare anymore and the reason for that no one knows. Congratulations on your pregnancy! -- Jackie > Hi to all, > > Sharon asked me to write an introduction of myself, so here it is! I > am 32, married, pregnant with first child, due in Mar 04. Still not > diagnosed. MRI of brain was clear. Am trying to get spinal tap now, > though at first I was planning on waiting until the baby was here, I > just can't wait anymore and want some answers. Can't get an MRI of > neck/spinal cord until later/after pregnancy. > > I live and work in MA, have a good career going (I work in the > clinical trial industry, go figure, but have never worked w/ MS), and > have an English Springer Spaniel that is about a year and a half. My > husband is fabulous, though he is reluctant to think anything is > wrong with me until I have a diagnosis, and really doesn't talk much > about my symptoms. I think he is trying to keep me sane, which is > hard with this uncertainty! > > Woke up about 4 months ago with numbness in my left arm, and a little > numbness in each leg, and the feeling of an electric current running > through my body (I have heard someone refer to that here as " the > buzzies " ... Finally a way to describe it!) Since then varying areas > of numbness/burning/twitching/tremors. Focal point is definitely > left arm. Just depends on the day! > > Pretty sure this is all MS related, esp. after reading many of your > stories and hearing how much my symptoms match... I am scared, sad, > but also happy that there are drugs available now to help and I hope > to lead a fairly " normal " life... > > Looking forward to knowing you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 I have ms and have 3 kids! I always felt great when I was pregant! It was post patum that was hard for me! But only after my daughter not my sons! I am on avonex and feel good! I am having a flare up now and just finished my steriods!! Get on a therapy, it means sooo much and take care of you!!!! You are #1, don't let the "ms" control you!!!! Good luck with your baby, I am sure we will talk again soon! Here is my address and # 105 van buren ave south Hopkins MN 55343 Call me sometime! TootleIndependent ConsultantClose To My Heart For All Of Your Scrapbooking and Stamping Needs Intro Hi to all,Sharon asked me to write an introduction of myself, so here it is! I am 32, married, pregnant with first child, due in Mar 04. Still not diagnosed. MRI of brain was clear. Am trying to get spinal tap now, though at first I was planning on waiting until the baby was here, I just can't wait anymore and want some answers. Can't get an MRI of neck/spinal cord until later/after pregnancy. I live and work in MA, have a good career going (I work in the clinical trial industry, go figure, but have never worked w/ MS), and have an English Springer Spaniel that is about a year and a half. My husband is fabulous, though he is reluctant to think anything is wrong with me until I have a diagnosis, and really doesn't talk much about my symptoms. I think he is trying to keep me sane, which is hard with this uncertainty! Woke up about 4 months ago with numbness in my left arm, and a little numbness in each leg, and the feeling of an electric current running through my body (I have heard someone refer to that here as "the buzzies"... Finally a way to describe it!) Since then varying areas of numbness/burning/twitching/tremors. Focal point is definitely left arm. Just depends on the day! Pretty sure this is all MS related, esp. after reading many of your stories and hearing how much my symptoms match... I am scared, sad, but also happy that there are drugs available now to help and I hope to lead a fairly "normal" life...Looking forward to knowing you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 "Independent Consultant" what do you independently consult??? Just curious!!! Welcome to the group!! I am trying to accept MS, I feel the same as you on your point...But I am a long way from perfecting that having been DX on 4/24/03 Visit my websitehttp://www.mylivingwithms.bravehost.com/And Sign My Petitionwww.petitiononline.com/mc7620gt Intro Hi to all,Sharon asked me to write an introduction of myself, so here it is! I am 32, married, pregnant with first child, due in Mar 04. Still not diagnosed. MRI of brain was clear. Am trying to get spinal tap now, though at first I was planning on waiting until the baby was here, I just can't wait anymore and want some answers. Can't get an MRI of neck/spinal cord until later/after pregnancy. I live and work in MA, have a good career going (I work in the clinical trial industry, go figure, but have never worked w/ MS), and have an English Springer Spaniel that is about a year and a half. My husband is fabulous, though he is reluctant to think anything is wrong with me until I have a diagnosis, and really doesn't talk much about my symptoms. I think he is trying to keep me sane, which is hard with this uncertainty! Woke up about 4 months ago with numbness in my left arm, and a little numbness in each leg, and the feeling of an electric current running through my body (I have heard someone refer to that here as "the buzzies"... Finally a way to describe it!) Since then varying areas of numbness/burning/twitching/tremors. Focal point is definitely left arm. Just depends on the day! Pretty sure this is all MS related, esp. after reading many of your stories and hearing how much my symptoms match... I am scared, sad, but also happy that there are drugs available now to help and I hope to lead a fairly "normal" life...Looking forward to knowing you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Hey Bill, Thank God I never worried about my age,LOL. Too late now I'll be 62 in June. Never really think about it but when I do I can't believe it. How did this happen??? Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Tom, age comes, no matter what we try to do against it! it just happens! HUGS, Andreia Re: Intro Hey Bill, Thank God I never worried about my age,LOL. Too late now I'll be 62 in June. Never really think about it but when I do I can't believe it. How did this happen??? Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Hi Andreia, Ahh don't worry, never worried about age sure not going to start now LOL. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 are u sure, Tom? lol don´t forget I´m a woman! (men around 40-50 are very good-looking; I don´t say the same about us, women!)lol HUGS, Andreia Re: Intro Hi Andreia, Ahh don't worry, never worried about age sure not going to start now LOL. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 hello, and welcome. Your blood sugar does not need to be ahat high in order to prevent lows. Conting carbs and adjusting your insulin (what kind do you take?) will enable you to get your BS to a more reasonable level, w which will keep you from getting further complications. I have been diabetic for 59 and 1/2 years and although I was considered " brittle " , I managed to get my BS under better control. Thjey told my mother when I was diagnosed in 1944 that I would probably die before I was 30. Wel, I am more than that now-so fooled them! Re: intro Hi Harry, I have been totally blind for 12 years now. I had 13 eye surgeries trying to save my eye sight. The last surgery was done on July 1992 and I had a vitreous hemmorage and my retina detached. I had the top retinal surgeon doing all the surgeries and he cried right along with me when he told me I would never see again. To this day we remian good friends and he always takes my calls when I call to just say hi. Tonights blood sugar at midnight was 154 which is right where my Dr. wants it. He likes me to run between 100-150. I drop to low if under 100. I plan on staying here for awhile and hope to learn more. Things have changed so much since I was diagnosed and they will continue to change as I get older. At 11:57 PM 5/17/2004 -0400, you wrote: >Lynda, >This time I think I spelled your name correctly. >Most likely you are a brittle diabetic because of the abnormal fluctuations >in your glucose levels. This is usually caused by inadequate mastery of >carb counting and inadequate dosing of medication. These two factors lead >one to have large swings in their glucose levels from some very lows to some >very highs. >The blurring of your vision or the loss of your vision is usually the >results of spikes in your glucose levels above 160, where glycation occurs, >causing the formation of sorbitol in the affected cell, and thus its death. >It sounds like you are experiencing some deterioration in your vision due to >a form of neuropathy affecting your retina. In the case of visual >impairment as a result of diabetic complications, I hesitate to tell you >that as far as I know, there is no way to gain back the vision you have >lost. I, on the other hand, am happy to tell you that the prevention of >further loss of vision is quite possible by your mastery and control of >diabetes by having and maintaining normal blood glucose levels. >Unfortunately, and I say this with some regret, most doctors do not know how >to establish and maintain normal glucose levels in a diabetic. I must also >say that there even fewer doctors, even if they know what they are doing, >who take the time and effort to instruct the diabetic on how to do this. >Most doctors are not up on the latest research. Most doctors depend upon >drug representatives to instruct them on what to do, when it comes to >medication for various medical problems, and in the case of a diabetic, most >doctors depend on a dietician or a nutritionist trained and schooled in the >ways of the food exchange system as touted by the American Diabetes >Association, to teach the diabetic about diet. >Well, I hope your physician will listen to you as my doctor listens to me >regarding what I have learned from my fellow listers here. We are the >experts and you are amongst us, and you, too, will soon become an expert on >your treatment and care. We are highly motivated and knowledgeable about >diabetes. Most likely your doctor, if he/she is like most of our doctors, >do not have diabetes themselves. So most of us here view diabetes >management and control with a different view. We do it all or as much of it >as we can. We are the experts. We walk the walk and we talk the talk. We >are always looking out for a better way to do it. We are glad to teach you >and your doctor, if necessary how to do it. >All of your comments are welcomed, and I hope you stick around and post >with us. > Remember this one basic fact. Insulin works on carbohydrates; not fat and >not protein. >Again, >Welcome aboard! > > > intro > > > > First of all thanks to those of you who responded to my earlier > > post. I'm what is known as a brittle diabetic and this has been driving > > my Drs. crazy since I was diagnosed in 1973. > > > > My name is Lynda and I'm 36 and live in Ohio; home of the Dum-Dum > > suckers and The Etch-A-Sketch. I was diagnosed with diabetes after my Mom > > found me lying unconsess on the living room floor. I was three at the >time. > > > > I take 3 shots a day 15 units of 70/30 Humulin and 8 units of Lantis in >the > > a.m. and 8 units of 70/30 Humulin at supper. The Lantis was started this > > April after my hemoblobin went from 7.0 to 9.1 and then back to 8.2. I >had > > been asking my Dr about changing my insulin for several weeks since it > > hadn't been changed since I was 22. > > > > I'm trying to do better with checking my blood sugars and try to get in at > > least 2 a day. Knock on wood; my eye site is the only thing this rotten > > disease has effected which baffels the heck out of my Dr. Talk again >later. > > > > Lynda > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Hi..I have L3 and L4 caressing a bunch of nerves...hurts/burns/itches/parathesia. Mostly dealing with Fibro/myofascial pain with spasms and Osteoarthritis. You can look up online doctors and clinics that specialize in pain...just put it in Google..line " Chronic Pain Treatent fortworth dallas " . You would get advertisements on the clinics or office that treats it. http://www.painfoundation.org/ http://www.pain.com/ Most pain treatment places are in Austin on this site..(above) http://painaid.painfoundation.org/ http://www.doctorsforpain.com/ Some of these have locators for pain docs/clinics. Just an idea. Sometimes you can find something that can help online. *¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬* On the internet, no knows you're a cat. ~StrykerMom~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ --- dream5546_2000 wrote: > Hi all, > I am new here, I have been a chronic pain pt for > over 5 yrs now. I > had surgery for my neck and back and both failed. I > had the fusion > with a plate in c5-6 and a laminectomy l4-5. I was > left with the > normal nerve damage, my left leg and foot is trashed > and I still have > constant pain. I am on Fentanyl 100mcg, neurontin > 3600, norco 10/325 > however many I want up to 180 per month for > breakthru pain, topamax, > flexeril, ultram, and elavil for pain. I also take > lexipro, lotensin > hctz, zocor and nitro as needed. > All that and I am still in pain. My biggest issue > at the moment is > finding a Dr in the Dallas/Ft Worth area that can > write for the > fentanyl. I have been thru a myriad of drs already > and cant find one > that can/WILL write for the fentanyl. If I could > come off this drug, > trust me, I would, but thats just not an option at > this point unless I > want to be dead. Does anyone here know of any pain > Drs in the Dallas > Area? > I had no problems when I was in San Diego and am > glad I moved with a > supply of meds but now I am getting desperate to > find someone since I > cant afford to fly back and forth to San Diego. > If anyone here knows of anyone I would greatly > appreciate the info!! > Hoping all have a pain free day! > Thanks so much, > > > Lotacats >^.^< http://www.cafepress.com/lotacatspix/549000 ________________________________________________________________________________\ ____ Get your own web address. Have a HUGE year through Yahoo! Small Business. http://smallbusiness.yahoo.com/domains/?p=BESTDEAL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2007 Report Share Posted June 2, 2007 Carol what med's do they have him perhaps we can suggest a change or a different dosage for some to get some immediate relief but not long acting is using flexeral 343 it is a arthritis cream and yes it smells like one but it confuses the nerves.. sometimes putting your feet in cool water helps .. a cool cloth and a fan blowing ... anything to contuse the nerves... there are med's that will help.. the covering of the nerves are gone they don't come back its like electric wires have no covering and the wires arc well in this nerves arc and U feel like U are standing in a campfire and cant get out so his pain is very real i know it every day and so do many on here with nerve pain we will do all we can to help but we need to know what he is on. Love to you all God bless and keep you Rose Owner/Moderator Hugs for Pain God determines who walks into your life....it's up to you to decide who you let walk away, who you let stay, and who you refuse to let go. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2007 Report Share Posted June 2, 2007 Thanks. Nice to Meet You. Don. > > hey yall im new to the group. im and im 26 yrs.old yall have > a good day > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Hi: Glad you're here. This is a nice place to be. I just wanted to say do not to let the word " addicting " become a criteria on what meds he uses. Some people get it mixed up with tolerance. Sometimes that can be controlled. Depends on how the doc wants to handle it. I manage to keep mine low. At best maybe 2% of painers on so called " addicting " pain meds may have to make use of a treatment program for it but it is by no means automatic to become addicted. Addiction is phyco/social/ and has nothing to do with the tolerance which follows addiction like a dumb dog. http://www.painlaw.org/opioids.html Just didn't want you to use that as a criteria to his treatment. Confusion about addiction has prevented people from getting proper pain relief due to misunderstanding by some doctors who really aren't very good at diagnosing addiction and families who don't understand it. Some doctors throw the word around to discourage people from having them write an opiate prescription as they don't want to flag the DEA for any reason or risk someone that is not kosher about his/her pain. Taking opiates for pain is a whole different criteria for us as the addict uses it for a high. Painers hardly feel " high " ...crap...we just wanna get the pain within the range of being able to tolerate it and function best we can. I have to use opiates as it closes the " gateway " to a specific myofacial spasm and prevents it's occurance as well as stops it from doing what it does. I have fibromyalgia, myofacial pain syndrome, debilitating osteo arthritis that effected my arms and spine badly and ate thru L3 and L4 and crashed on the nerves causing burning/pain/shooting pains down the from of my left leg..on top and sciatica on the right from an old back injury. The joint damage is progressive. I try to make myself useful by working with internet victims and sending goodies to soldiers and running an online t shirt shop. Keeps me busy and my mind as active as possible for someone with some heavy duty " Fibro Fog " . Trust me...addicts aren't into that. Is he seeing a pain specialist? Sometimes that helps. I use my own family doc as he is good at understanding fibro and pain. The real pain doc is for the birds. You never know who'll work out best. Former substance abuse coucelor/psych nurse rnc. *¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬* On the internet, no knows you're a cat. ~StrykerMom~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ --- carolyn wrote: > Hi!. I just joined this forum on the behalf of my > father-in-law > Bruce whom is 63 years young and has Diabetes > Neuropathy. Please > feel free to call me Carol. > > My purpose of joining this forum is that I have > already lost > personally my mother and father, therefore my > husbands father whom > was already special to me, is even now more special. > He has had > this disease for a about a year or two. I am the > first daugther for > him and his favorite. > > He is in a lot of pain, and the mediciations that > this doctor has > him on is unbelieveable(and I thought my dad was on > a lot of > medicines). There are just days that the pain is > too much and what > he is taking which is addicting is not helping. > I've done my homework, I know that it is not 100% > cureable, but I am > also a firm believer that he is not the only one in > the world that > is going through this and I am bond and determine to > find a > treatment to where he can get some type of relieve > so that he has > the strength to be on this feet to actually do some > walking that is > suppose to help instead of crying in agony pain > because it hurts to > walk just to the bathroom at times. > > And I am also hoping to learn from those that have > had the > experience, the knowledge the stories and can relate > because my > father in law feels that he is alone in this world > with this > disease. Each night I'll be printing and reading to > him(he likes > that...its our special time together) about what I > have learned and > research. I see that small glimmer of light in his > eyes (because I > know that this disease also can cause depression) > that I am going to > fight along with him on this, and it will prove to > him that he is > not alone and that maybe there are suggestions and > stories of how > one lives with it on a day to day basis. > > Sorry for the long post > carol > > Lotacats >^.^< Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/2715248 ________________________________________________________________________________\ ___ You snooze, you lose. Get messages ASAP with AutoCheck in the all-new Yahoo! Mail Beta. http://advision.webevents.yahoo.com/mailbeta/newmail_html.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Bruce is taking the following on a daily basis Cymbalta 60mg Metofmin 1000 mg Wafarin 3 mg(Coumodin) Nizatidine 300 mg Zomig 5 mg Effecor XR 150 Vicodin 7.5 7/50 TBMCK (this is 3 a day but I know that he takes more than he should because he is always running out before his prescription is able to be filled) Gylburide 5mg Thanks Carol starlyin@... wrote: Carol what med's do they have him perhaps we can suggest a change or a different dosage for some to get some immediate relief but not long acting is using flexeral 343 it is a arthritis cream and yes it smells like one but it confuses the nerves.. sometimes putting your feet in cool water helps .. a cool cloth and a fan blowing ... anything to contuse the nerves... there are med's that will help.. the covering of the nerves are gone they don't come back its like electric wires have no covering and the wires arc well in this nerves arc and U feel like U are standing in a campfire and cant get out so his pain is very real i know it every day and so do many on here with nerve pain we will do all we can to help but we need to know what he is on. Love to you all God bless and keep you Rose Owner/Moderator Hugs for Pain God determines who walks into your life....it's up to you to decide who you let walk away, who you let stay, and who you refuse to let go. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Ouch! Someone Chucks my beloved laptop across the room is gonna need pain help for sure... I think a little in-patient avaluation might be order. Getting physical like that can go past an innocent laptop. If he gets violent and becomes a danger to self or others, he may be put into an In_Patient facility against his will. They can order 24hr/48hr/72hr hold pending evaluations. I'm serious about that. It's the law! If you, at anytime, feel you are in fear for your life/safety or you feel he is a high suicidal risk...call the cops to take him in for evaluation and say it loud and clear...you were in fear of your life/safety/his own life. I don't care who he used to be...when he is out of control, you can get someone to get him back in. All you have to do is be in reasonalble fear. Don't give his a pass for this behavior. *¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬* On the internet, no knows you're a cat. ~StrykerMom~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ --- Carolyn Bardell wrote: > Bruce is completely out of pills. Two months in a > row. I haven't been online because he decided that > throwing my laptop I guess would make him feel > better. He's said some very colorful wording those > of which I will spare everyone from reading/hearing. > When he is out of pills he gets nasty, very nasty > and threatening to the point that I was going to > call the cops.....one small problem he used to be a > cop and its not tv folks but it happens to where the > buddies come to have their little chat with him and > those that are trying to understanding, trying to > help him are the ones that caused his outbrusts. > He's been on the pills for 9 years and not all of > those years has he been this bad with the pills. He > has gone to detox back about four years ago because > he got to the point that he is now. Abusive > physically and verbally and he is out of control. > > He knows that there are indivduals that are out > there that have had more pain then him and have to > lose limbs. He also knows that he has to do > something in regards to exercise and diet. When we > cook, my mother in law and I we serve him small > portions and make foods through various diabetic > cookbooks and eat what we cook so that he does not > feel left out. He in turn after not only 10 minutes > of eating I have caught him in several occasions > where he is feeding himself with not one bowl of > cereal but several bowls of cereal. He doesn't eat > right. He is up all night, sleeps all day, gets up > at dinner, eats, sleeps for several hours and in > between when he is not sleeping he is taking his > pills. > > We don't dare try to take the pills from him and > to manage them. Past and recent experiences someone > ends up getting hurt whether physically or mentally. > The anger that he has when he can't have his pills > now and the strength that he all of a sudden has > when he doesn't seem to have strength from anything > else is truly shocking because to look at him in > pain, in the amount that he is in, you would not > think that this man could do some of what he does. > > My brother in law and I do not see eye to eye. He > gave up his script of viocdin that he had for a back > injury just so that Bruce would stop being violent > and hurt one of us in the house. To a point it has > put him back where he was before he ran out of the > pills but at the same time this man whom gets over > 100 pills a month now has an additional 40+ pills. > He stated that he rather live in the pain of his > back then to his my father in law suffer. It's not > that I want him to suffer, I don't I am seriously > concerned for not only his health and safety but for > those that are around him. > > His sugar is 220 and I have only seen it go down > to the lowest of 160 since they have come here. He > knows that he is suppose to walk to help with the > sugar, but by the time that as he says he is feeling > good and looks gray in my eyes its already midnight > and instead of going for a walk even down 6 houses > to the corner he eats cereal instead and goes back > to bed. I've offered to walk, to swim, with him > anything that he might be interested in just so that > it doesn't seem as exercise but is. He didn't know > that the pain could spread until I told him about > this one article that I read and then the mention of > it here on the site. > > My brother in law is taking him to see....and > excuse my spelling because it isnt good on this word > an pedtricist(foot doctor). If it is ok I would > like to be able to send the website to see if anyone > else has heard of it or possibly gone to it. My > brother in law is excited and he says that they will > be able to cure Bruce and from there he will not > want to take the pills anymore. I tried to explain > to him that there really is not a cure but things > that may be able to be done to help ease the pain. > Once my brother in law gave him his vicodin and > talked to him today about this place,it was as if > talking to a kid that is waiting to go to Walt > Disney World. I hope that they have the answers > that he is looking for. > > In the mean time, to answer your question before, > what does he do for the other 15 days that he > doesn't have pills, he gets them from family members > whom feel helpless and rather that he not act in the > way that he does when he doesn't have any pills. He > also has some as he says connections but I don't > know if I am to believe that because I think that is > just the meds talking not him talking. I do know > that he will go to the hospital several times until > he gets his pills just so they give him something at > the hospital to relieve the pain. > > carol > > starlyin@... wrote: > if he is taking so many pills he is out in > 15 days what does he do for the > other 15 days .. until U know nerve pain U cant > possibly tell someone to deal > with it he is using to many to kill the pain because > 3 vicadin's wont touch > it he is addicted to not feeling the pain not the > med's... a addict > couldn't go all those days without med's..those > symptoms U describe sound more like > his sugar then vicadin..there are much better pain > med's then that that he > could use two a day of and if U think he is abusing > get in control of his > med's ..it is hard to NOT take another when U R in > pain... > > and remembering U mentioning it there are people on > this list who have had > there legs removed over nerve pain and it does > travel almost always also and > then U have phantom pains that are there wether your > legs are or not .. > there are pain med's to relieve his pain he just > needs a Dr to handle it > > please remember the suicide rate for people in > chronic pain is 800 percent > above normal and most of them are because there pain > isn't treated properly > > > Love to you all > God bless and keep you > Rose > Owner/Moderator Hugs for Pain > _ > http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086_ > > (http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086) > _ > http://hometown.aol.com/starlyin/HUGS.html_ > (http://hometown.aol.com/starlyin/HUGS.html) > > ************************************** See what's > free at http://www.aol.com. > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > Lotacats >^.^< Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/2715248 ________________________________________________________________________________\ ____ Choose the right car based on your needs. 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Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Hi Welcome to the group. I know how it is to be stressed out with worry about financial things. It's a struggle for me everyday because of the financial worries. Being on a limited income and just barely making ends meet. Just hang in there and do the best that you can. You have your kids and wife to help cheer you up and you also have us here in the group. Hugs Diane-Minnesota > > Greetings fellow pain travelers! > I just joined your group -- thank you for having me. I am a 25 year pain veteran and a stay at home, home schooling dad. I'm now 43, married for 22 years, four kids -- two girls 13 and 12. Two boys 8 and 6. I live near the rainforest on a beautiful 17 acre homestead. I garden and cook (I run the house and do all the house stuff with help from the kids) > > When I was just 19, I was driving to work on the HW when another driver failed to stop and pulled out in front of me. We T- boned at about 50mph. A doctor and a hospital worker saw the accident and did CPR on me (I'm not sure why -- I was toast!). They managed to restart my heart and revived me right there. My body was crushed -- my face and neck, many broken ribs (my heart stopped two more times that day... lived with the crash cart right outside my door for nearly a week). The worst was my rt. leg -- the femur was shattered and poking out through my jeans. They airlifted me to Seattle and did a marathon reconstruction surgery and managed to keep my leg. > I suffer from constant headaches that sometimes go into migraine level, nerve pain in my leg, scar pain and muscle pain. I was denied help for so many years that my pain evolved into a full- blown disease state. Have NO insurace and cruddy care. My biggest struggles are to stay positive in the face of discouraging finacial stuff. I'm having a profoundly BAD go of things right now and really struggling to just keep on going. > I have done a lot of writing and some of you may know me from Pain Aid. > anyway, without boring you into a coma... that is me > Rain > > > --------------------------------- > Don't be flakey. Get Yahoo! Mail for Mobile and > always stay connected to friends. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2007 Report Share Posted October 7, 2007 Hi . I don't know if I have nerve pain or not. All I know is I'm in pain. I've spent the last 4 years trying to figure out what's wrong with me to no avail. Doctors are just clueless and now insist that the best thing for me to do would be to see a University Rheumatologist. Yeah....I told them no! LOL I don't know how you can take 600 mg of Lyrica. I took one dose of 75 mg and I was so messed up, I couldn't go to work the next day. I literally slept the day away and surprise, surprise, still had pain! D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2007 Report Share Posted October 7, 2007 > > Hello everyone, my name is and I am 36, proud parent of a 13 > year old and married to the love of my life for 16 years, I have a > neuromuscular disease, which causes a great deal of overwhelming nerve > pain. In January 2007 taking neurontin 3600mg per day, and suffering > from a kidney stone, with the stint in, I tried very hard to kill > myself, the pain was so OVERWHELMING that I just gave up...I took over > 800 pills, from atenolol to some pink pills my crackhead sister left in > my bathroom. I died, I was on life support for 3 days. I woke up, not > only humiliated, but now my left leg is paralyzed, but stings like it is > in a bucket of icewater 24 hours a day. I spent a few weeks locked in > the mental ward where they discovered that I am not depressed at all, I > AM IN UNTOLORABLE PAIN. So I did get off neurontin (cause I would have > jumped off a roof thinking I could fly). I am now on Lyrica 600mg, I > smoke MMJ(thank god I live in WA), my foot NEVER stops stinging, > everyone treats me as if I did this to myself...serves me right. I just > really need some validation from someone else with this unbelivable > nerve pain. My sciatic nerve was crushed, I have no movement and no > normal sensation, eveything, even a piece of thread feels like a flame > is under my toes. I have gotten one Epidural Steroid injection, it > didn't do squat but the lidocane was nice for a day. I have never > joined a help group, but I know that I need someone who KNOWS it Hurts. > I was told by one of the MA's at my Doc's on Friday to " quit whinning, > you couldn't be in that much pain " my head just about popped off on > that one...I was amazed that just being a human being wouldn't give her > more decientcy than that. > I want to know everything and anything that has ever worked, so far all > I know is that touching it with anything (ie a sock!) makes me vomit, it > hurts so bad. All the doc's want me to wear a brace, but I can't let > anything touch it. > Thanks at least for taking some time to have me in your thoughts. > Hugs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2007 Report Share Posted October 7, 2007 I am so sorry to hear what you are going through. Welcome to the group BTW> We certainly understand what you are going through. I can't believe someone told you to stop whining. That is NOT appropriate at all. Can you go to a new doctor? What type of doctor are you seeing now? Do you go to a pain clinic? If not, you might want to look into that. I am currently on Neurontin (CRPS) but a very low dose of it. I can't take what they want me to because it makes me too groggy. I have been on Lyrica in the past. I also am on Morphine, Zoloft, Nortriptyline and Lidocaine patches. I hope that you are able to get some help SOON! There has to be a doctor around your area that will listen to you and treat this horrible pain you are experiencing. This group is fantastic and is here for you whenever you need us! Hang in there! Intro Hello everyone, my name is and I am 36, proud parent of a 13 year old and married to the love of my life for 16 years, I have a neuromuscular disease, which causes a great deal of overwhelming nerve pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Thank you so much , The MA that told me that was at my PCP, the Doc is wonderful, but I am willing to leave if she allows her team to treat people this way. I have tried all the regular meds, I am on Lyrica 600mg, Effexor XR 300mg, naproxin 1000mg, and others for those side effects atenolol (pain made my BP go way up) Zocor, potassium, and others for muscle aches methocarbinol, flexeril, and vomiting....I have tried other meds (i have had parkinson's for 9 years) so I don't think there is a neuro drug I haven't tried, my weight gain is over 100 pounds, I have been loosing since January, I am down 63 pounds, but with the meds, I know it will return, I have the best neurologist in the country at the UofW (he honestly has no clue about pain, so I am switching to the #2 doc instead) I see the pain clinic (epidural steroids). I use to take morphine, but don't take any narcs now, except the Medical Jane. But after this last week or so, I would smoke crack if someone told me it would help. It is funny that pain will make you so tired of living, and it has nothing to do with depression, so the only comfort they give me is that I am normal, a lot of sucides are from chronic pain.....so shouldn't they do more for the PAIN!! Why try so hard to save someones life...and then leave them in MORE pain...and tell them they are normal. If this is so normal why in the heck aren't they doing more about it, at least understanding that all you want is the pain to go away...but not spend your life sleeping (all the pain meds make me sleep for days). Thanks for allowing me to rant a little. I hope you have a good day , bless you. > > > > I am so sorry to hear what you are going through. Welcome to the group > BTW> We certainly understand what you are going through. I can't > believe someone told you to stop whining. That is NOT appropriate at > all. Can you go to a new doctor? What type of doctor are you seeing > now? Do you go to a pain clinic? If not, you might want to look into > that. I am currently on Neurontin (CRPS) but a very low dose of it. I > can't take what they want me to because it makes me too groggy. I have > been on Lyrica in the past. I also am on Morphine, Zoloft, > Nortriptyline and Lidocaine patches. > > I hope that you are able to get some help SOON! There has to be a > doctor around your area that will listen to you and treat this horrible > pain you are experiencing. This group is fantastic and is here for you > whenever you need us! > > Hang in there! > > > > Intro > > Hello everyone, my name is and I am 36, proud parent of a 13 > year old and married to the love of my life for 16 years, I have a > neuromuscular disease, which causes a great deal of overwhelming nerve > pain. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 OMB! I too have/had kidney stones, and the stent, which is due to be taken out next week, thank goodness. I still have kidney pain, and it hurts when I pee (the kidney itself). I'm on 150mgs Methadone a day for chronic back pain, with 5/325mgs Percocet for breakthru. Years go I tried Neurontin, but 1 pill gave me the dry heaves. Didn't try it again, thank you. in WA Mommy to 9 birds, 1 dog, 1 fish, and 1 husband. ********************************************************** ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 , Welcome to the group. We all can empathize with what you're going through. I fantasize about suicide and how good it would be not to be in pain anymore. Some days I just can't take it. I feel so awful when I get up in the morning (it feels like I'm swimming through water when I move from the arthritis). Suicide is not an option for me though and I know it. I have three boys and a very supportive husband that I just couldn't leave behind. My youngest son is autistic and I couldn't leave my husband to deal with that alone, although I have no doubt that he could. My kids do make my life worth living, for whatever that's worth. I think about suicide every day, but I also think about what that would do to my wonderful kids. I don't want them to grow up without a mother. So for now, I just think about it and write about it in my journal to try to get some of the pain out. I hurt every minute of every day and the only drug I've been able to get for it so far is ultracet. I'm going back to my PCP later this month and ask for a referral to someone who specializes in arthritis and fibromyalgia. Keep fighting. Life is a gift, even though it doesn't usually feel like it. I'm sure there are loved ones who would miss you and this group is a wonderful place to scream about the constant pain we're in. Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 > > Intro > > Hi, > My name is Liz and I have had rsd for two years now. I am, or was, a > executive chef. Two years ago 30 chefs traveled to France and Italy to do some > guest cheffing. In an ancient building now used as a restaurant on the French > Riviera I tripped and fell only a few stone steps. As in slow motion, I felt, > heard and watched my right leg break, followed by my left leg which shattered > my thigh severely. After surgery in France I finally made it home and started > physical therapy. > Just two months after coming home I began to experience severe pain in the > knee of the leg I shattered. The Dr. chalked it up to healing until one Sunday > I woke up and my entire left leg was dark purple. The hospital rushed me in, > expecting to find a clot in the leg, they found nothing. > Soon after, we had hurricane Frances come through. The first sign of > problems was the unbroken ankle blew up like a basketball and I couldn‘t move from > the pain and swelling. > Luckily my first neurologist ran into an RSD specialist at some function and > referred me to him. After numerous caudal and epidural blocks and a year of > living in a fog due to the drugs, we seem to finally have the right > combination. The RSD is now in all four limbs, my face and my brain. Very frustrating > with short term memory loss and the problem of not being able to come up with > the right word all the time. > Right now I am going through a $30,000 makeover of my mouth from the damage > to bone and gums from RSD. This has called for full facial blocks prior to > the dental surgeon. My last visit 10 Lorazapam and numerous injections of > Marcaine barely allowed them to work on me. In that visit they took 10 teeth, cut > all my gums, bone grafted and sutured my gums back. > Currently I am on Gabatril, Elavil, Clonazapam, Lexapro, Lunesta, Tramadol > and Nalbuphine Hydrochloride injections five times a day. > This disease has totally changed everything. I sold my restaurant and have > almost gone through that money between drugs and co Pays. It has cost me both > friends and now a lover. Just two days ago I was informed that they could not > live a life like mine, needing to limit activities to a half day and then > resting. I have stopped trying to explain to my few friends left. The general > reaction I get from people is ‘if I wasn‘t on so many drugs, I‘d be much > better‘.. > I feel as if this disease has com[pletely changed my life and is slowly > turning me into a solitary person who really misses friends and just the company > of others. > Anyway, I doubt I am telling anyone anything new, but hope to find others > who don’t write me off due to my RSD. > > Liz > >Hi Liz, Gosh I feel so that maybe I can really relate to your situation!I Don't chat on here much but it makes me feel better and sometimes reply to certain postings such as yours! What is RSD? I never heard of it before? I suffer from severe emphysema, Chronic Hypertension, R.A., Fibro/CFS and severe osteoarthris along with degenerative Arthritis throughout my spine!?? My Fibro seems to be acting up really bad lately and in new Tender spots Man and I have been in such Pain today?????? Well anyway I gonna go hope ya remember we are not alone if we Keep Christ first and Pray for his Strength!!! God Bless You Hun, your friend, Sherlock!!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Hi Liz...my heart really goes out to you. I too have lost friends and lovers due to my health problems. I am on disability at age 51 because the best I can do most days is lie on the couch or bed. I have a 28 year old mentally challenged daughter who takes care of me. I have tremendous guilt about that but she loves to do it and I think it helps make her feel useful. I spent thirty years being a nurse and taking care of others and I can tell you that this side of the proverbial coin really sucks. It is very hard for me to receive care because I spent so many years giving it. I have horrible feet and leg pain from diabetic neuropathy and the only thing that helps is a combination of 26 pills per day. I have been accused of being a drug addict by friends, family, and doctors. I don't know why addicts take drugs but I suspect they make them feel better. My meds really don't make me feel a whole lot better and they sure don't make me euphoric. They do make the pain tolorable (sometimes) and they keep me from wanting to kill myself because of the horrors of constant pain. Maybe I am an addict but at this point I don't care. It beats the hell out of having to talk myself out of suicide every ten minutes because of intractable pain. I hope you find friends here as I have. You can e-mail me any time and if you want my phone # I will send it to you in private e-mail. It does help me to help others. I too need to feel useful. God bless you. Joanne wrote: > > Intro > > Hi, > My name is Liz and I have had rsd for two years now. I am, or was, a > executive chef. Two years ago 30 chefs traveled to France and Italy to do some > guest cheffing. In an ancient building now used as a restaurant on the French > Riviera I tripped and fell only a few stone steps. As in slow motion, I felt, > heard and watched my right leg break, followed by my left leg which shattered > my thigh severely. After surgery in France I finally made it home and started > physical therapy. > Just two months after coming home I began to experience severe pain in the > knee of the leg I shattered. The Dr. chalked it up to healing until one Sunday > I woke up and my entire left leg was dark purple. The hospital rushed me in, > expecting to find a clot in the leg, they found nothing. > Soon after, we had hurricane Frances come through. The first sign of > problems was the unbroken ankle blew up like a basketball and I couldn‘t move from > the pain and swelling. > Luckily my first neurologist ran into an RSD specialist at some function and > referred me to him. After numerous caudal and epidural blocks and a year of > living in a fog due to the drugs, we seem to finally have the right > combination. The RSD is now in all four limbs, my face and my brain. Very frustrating > with short term memory loss and the problem of not being able to come up with > the right word all the time. > Right now I am going through a $30,000 makeover of my mouth from the damage > to bone and gums from RSD. This has called for full facial blocks prior to > the dental surgeon. My last visit 10 Lorazapam and numerous injections of > Marcaine barely allowed them to work on me. In that visit they took 10 teeth, cut > all my gums, bone grafted and sutured my gums back. > Currently I am on Gabatril, Elavil, Clonazapam, Lexapro, Lunesta, Tramadol > and Nalbuphine Hydrochloride injections five times a day. > This disease has totally changed everything. I sold my restaurant and have > almost gone through that money between drugs and co Pays. It has cost me both > friends and now a lover. Just two days ago I was informed that they could not > live a life like mine, needing to limit activities to a half day and then > resting. I have stopped trying to explain to my few friends left. The general > reaction I get from people is ‘if I wasn‘t on so many drugs, I‘d be much > better‘.. > I feel as if this disease has com[pletely changed my life and is slowly > turning me into a solitary person who really misses friends and just the company > of others. > Anyway, I doubt I am telling anyone anything new, but hope to find others > who don’t write me off due to my RSD. > > Liz > >Hi Liz, Gosh I feel so that maybe I can really relate to your situation!I Don't chat on here much but it makes me feel better and sometimes reply to certain postings such as yours! What is RSD? I never heard of it before? I suffer from severe emphysema, Chronic Hypertension, R.A., Fibro/CFS and severe osteoarthris along with degenerative Arthritis throughout my spine!?? My Fibro seems to be acting up really bad lately and in new Tender spots Man and I have been in such Pain today?????? Well anyway I gonna go hope ya remember we are not alone if we Keep Christ first and Pray for his Strength!!! God Bless You Hun, your friend, Sherlock!!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Welcome to everyone who is new. I agree with whoever said that no one here will tell you to quit whining. We all deal with constant pain to some degree or other and understand as best we can what you are going through. Liz, it sounds like you have had it extra rough. I am sending a prayer your way. I am going through my own personal hell now with my psychiatrist. (Which I guess psychic pain counts as pain???) They have finally found a combination of medications which works for my bipolar disorder and I have been completely stable for several months. Well I was running out of my ambien so I called the pharmacy for a refill. It didn't come in and didn't come in and I finally got ahold of the MD's assistant and she says my chart says we're going to discontinue the ambien and then the klonopin!!!! WHAT?????? I read her the riot act. I have an appointment next Thursday and he agreed to call in enough pills to get me through to that day but that we'll " discuss " it at our visit. Which means he'll decide whether he thinks I should be on it or not. I can't believe it! I keep telling him I feel fine and he decides to tinker around with my life. What is up with these damned doctors? Why do they have to act like they're so superior to us because of that degree? Aren't we the ones experiencing the pain? I should think we're all experts on our given ailments. Why won't they listen to us? This guy is going to get an earful next Thursday and then I'm going to find a new doctor. I had heard he was really good, but it must be relative because he really sucks in my opinion. Anyway, really just wanted to welcome you all. I'm sending some pain free moments your way. Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Hi I know the feeling about having to depend on other people to help take care of you. I'm not use to it either. I was very active until I got sick in April 2005. My illness threw me for a loop and it has been a big adjustment on my part in having to ask for help. I suffer from Autonomic Neuropathy in both my feet and right leg. There isn't a whole lot of meds that they can give me that help without me having allergic reactions to. I'm currently taking Neurontin and Lamictal for the nerve pain and Tylneol #3 at night when the pain is unbearable because I was on my feet too much during the day. Hugs Diane-Minnesota > > Hi Liz...my heart really goes out to you. I too have lost friends and lovers due to my health problems. I am on disability at age 51 because the best I can do most days is lie on the couch or bed. I have a 28 year old mentally challenged daughter who takes care of me. I have tremendous guilt about that but she loves to do it and I think it helps make her feel useful. I spent thirty years being a nurse and taking care of others and I can tell you that this side of the proverbial coin really sucks. It is very hard for me to receive care because I spent so many years giving it. I have horrible feet and leg pain from diabetic neuropathy and the only thing that helps is a combination of 26 pills per day. I have been accused of being a drug addict by friends, family, and doctors. I don't know why addicts take drugs but I suspect they make them feel better. My meds really don't make me feel a whole lot better and they sure don't make me euphoric. They do make the pain tolorable > (sometimes) and they keep me from wanting to kill myself because of the horrors of constant pain. Maybe I am an addict but at this point I don't care. It beats the hell out of having to talk myself out of suicide every ten minutes because of intractable pain. I hope you find friends here as I have. You can e-mail me any time and if you want my phone # I will send it to you in private e-mail. It does help me to help others. I too need to feel useful. God bless you. > Quote Link to comment Share on other sites More sharing options...
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