Freaking Out

[Guest guest]

I have been really ill for a couple of years now. I have +ra factor.

I can't seem to get any answers from the doctors. After all this

time, I have at least come to some minor terms with the fact that I

am ill. My family thinks that I'm " hysterical " and is constantly mad

at me because of episodes where I am ill again and am unable to be at

important events that I would go through any lengths to be at. My

boyfriend doesn't get it. I am disabled for other reasons and am on

medicaid. Just a little tidbit! I got to where it was so bad that I

prepared myself that I was most likely dying. I did notice that

while

on birth control injections that I had a pattern of episodes that

were

more severe and realized that I do have something that features

relapse and remission. The frequency seemed to taper down a bit since

stopping injections and I decided to try to have some sort of life

and

am trying to change my attitude or outlook. I have no positive

support

and just wanted to vent, I guess. Have really been searching for

information and wondered if any of you had to wait years before

finding out anything? I left out specifics because I cant't type

that

long. It is an ordeal.