Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hi Beth...Can you ask to speak to the MD directly and ask him about the descrepency in the reports? Are you in a small town where you can't get another opinion? I sure understand your questions! randee In a message dated 11/24/2007 10:47:19 P.M. Eastern Standard Time, froga1@... writes: I just took my daughter back to the urologist for her 1 month checkup from the urologic dynamic study teast and taking cardura 1mg every night. well i didnt start the cardura-for many reasons(which I will not get into). The cardura is suppose to be used for the blockage in her bladder-not a physical blockage, but from not emptying form the smooth musles and other muslce in the bladders not properly corresponding with each other causeing a blockage--where the urine does not completely empty. ok---the nurse practitioner was fine with me not giving cardura. I asked her about the uro dynamic study. She said Kenzie had some urinary retention. The NP recommended us continuing with the time voids every 3 hours and then repeating the urological dynamic study in three months. She bacially told me that we dont know what her outcome will be. but the main goal is to keep Kenzie from getting any UTI's. she's on bactrim. BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, TC release in May 2007. At 14 months her VCUG and kidney Ultrasounds can back normal. Kidneys shape and function normal and no reflux noted, she did have stage 1 on left and stage 2 on right when she was 6 months but at 14 months resolved. ok!!!! my questions are:::: Is this normal procedures for the uro to follow???? Should I be worried about her kidneys???? or let time tell ???? The urologist in my town mainly see the nurse practitioner- --Do anyone else have this going on??? Im curious what time frame of knowing if she will regain full control of her bladder again??? Im confused---the urodynamic study tech told when about 20ml was inserted Kenzie started feeling the urge to pee, however she did hold it and was continued to fill her to normal capacity of a child her age and weight. She was able to hold it with little leakage. That what the tech said. BUT::::: the Nurse practitioner said she is retaining urine------can someone resolve form this with time????? Any advice!!!!!! Beth **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 I can't tell you what it all means exactly, but here's what I think it means. My urologist did the same thing. Let's try this and wait a few months and see. If there is no evidence of kidney problems, I don't know what else they'd want to do with the kidneys except for periodic ultrasounds and maybe renal blood work. I retained urine, a lot of it, until I finally started cathing. Retention of urine has nothing to do with capacity of the bladder. Retention is just what is left after urination. I think you can have a small bladder and still not be able to empty it all the way, just as I'm sure you can have a large bladder and still be able to get it emptied. My problem with retention will never get better. Some people do regain full bladder function, though, but I have no clue how long it takes. It's scary enough dealing with my own issues. I have no idea how parents handle this with their children. I'd be a wreck. But I don't think what the urologist is doing is unusual, except for maybe how short a time he lets it go between visits. Mine wanted to see me once a year only. > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > TC release in May 2007. At 14 months her VCUG and > kidney Ultrasounds can back normal. Kidneys shape > and > function normal and no reflux noted, she did have > stage 1 on left and stage 2 on right when she was 6 > months but at 14 months resolved. ok!!!! my > questions > are:::: > > Is this normal procedures for the uro to follow???? > > Should I be worried about her kidneys???? or let > time > tell ???? > > The urologist in my town mainly see the nurse > practitioner- --Do anyone else have this going on??? > > Im curious what time frame of knowing if she will > regain full control of her bladder again??? > > Im confused---the urodynamic study tech told when > about 20ml was inserted Kenzie started feeling the > urge to pee, however she did hold it and was > continued > to fill her to normal capacity of a child her age > and > weight. She was able to hold it with little leakage. > That what the tech said. > BUT::::: the Nurse practitioner said she is > retaining > urine------can someone resolve form this with > time????? > > Any advice!!!!!! Beth > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com ________________________________________________________________________________\ ____ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Randee, could you tell me where the discrepancy is in the report? From what I'm reading, it doesn't seem like there is one, but I am admittedly not keeping up with my own urological stuff (cathing fixed it as far as I'm concerned). Her report sounds a lot like mine, except for the tiny bladder. Mine was huge. But if there is something I am not catching here, I need to know. I hate not knowing. Thanks! --- Randeejae@... wrote: > > Hi Beth...Can you ask to speak to the MD directly > and ask him about the > descrepency in the reports? Are you in a small town > where you can't get another > opinion? I sure understand your questions! > > randee > > > In a message dated 11/24/2007 10:47:19 P.M. Eastern > Standard Time, > froga1@... writes: > > > > > I just took my daughter back to the urologist for > her > 1 month checkup from the urologic dynamic study > teast > and taking cardura 1mg every night. well i didnt > start > the cardura-for many reasons(which I will not get > into). The cardura is suppose to be used for the > blockage in her bladder-not a physical blockage, > but > from not emptying form the smooth musles and other > muslce in the bladders not properly corresponding > with > each other causeing a blockage--where the urine does > not completely empty. > ok---the nurse practitioner was fine with me not > giving cardura. I asked her about the uro dynamic > study. She said Kenzie had some urinary retention. > The > NP recommended us continuing with the time voids > every > 3 hours and then repeating the urological dynamic > study in three months. > She bacially told me that we dont know what her > outcome will be. but the main goal is to keep > Kenzie > from getting any UTI's. she's on bactrim. > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > TC release in May 2007. At 14 months her VCUG and > kidney Ultrasounds can back normal. Kidneys shape > and > function normal and no reflux noted, she did have > stage 1 on left and stage 2 on right when she was 6 > months but at 14 months resolved. ok!!!! my > questions > are:::: > > Is this normal procedures for the uro to follow???? > > Should I be worried about her kidneys???? or let > time > tell ???? > > The urologist in my town mainly see the nurse > practitioner- --Do anyone else have this going > on??? > > Im curious what time frame of knowing if she will > regain full control of her bladder again??? > > Im confused---the urodynamic study tech told when > about 20ml was inserted Kenzie started feeling the > urge to pee, however she did hold it and was > continued > to fill her to normal capacity of a child her age > and > weight. She was able to hold it with little > leakage. > That what the tech said. > BUT::::: the Nurse practitioner said she is > retaining > urine------can someone resolve form this with > time????? > > Any advice!!!!!! Beth > > > > > > > > > > **************************************Check out > AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > [Non-text portions of this message have been > removed] > > Check out my blog: http://princessmatildalovestostamp.blogspot.com ________________________________________________________________________________\ ____ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 live in louisville, ky. making an appoitment with the Doctor is months away per the NP. > > > Hi Beth...Can you ask to speak to the MD directly and ask him about the > descrepency in the reports? Are you in a small town where you can't get another > opinion? I sure understand your questions! > > randee > > > In a message dated 11/24/2007 10:47:19 P.M. Eastern Standard Time, > froga1@... writes: > > > > > I just took my daughter back to the urologist for her > 1 month checkup from the urologic dynamic study teast > and taking cardura 1mg every night. well i didnt start > the cardura-for many reasons(which I will not get > into). The cardura is suppose to be used for the > blockage in her bladder-not a physical blockage, but > from not emptying form the smooth musles and other > muslce in the bladders not properly corresponding with > each other causeing a blockage--where the urine does > not completely empty. > ok---the nurse practitioner was fine with me not > giving cardura. I asked her about the uro dynamic > study. She said Kenzie had some urinary retention. The > NP recommended us continuing with the time voids every > 3 hours and then repeating the urological dynamic > study in three months. > She bacially told me that we dont know what her > outcome will be. but the main goal is to keep Kenzie > from getting any UTI's. she's on bactrim. > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > TC release in May 2007. At 14 months her VCUG and > kidney Ultrasounds can back normal. Kidneys shape and > function normal and no reflux noted, she did have > stage 1 on left and stage 2 on right when she was 6 > months but at 14 months resolved. ok!!!! my questions > are:::: > > Is this normal procedures for the uro to follow???? > > Should I be worried about her kidneys???? or let time > tell ???? > > The urologist in my town mainly see the nurse > practitioner- --Do anyone else have this going on??? > > Im curious what time frame of knowing if she will > regain full control of her bladder again??? > > Im confused---the urodynamic study tech told when > about 20ml was inserted Kenzie started feeling the > urge to pee, however she did hold it and was continued > to fill her to normal capacity of a child her age and > weight. She was able to hold it with little leakage. > That what the tech said. > BUT::::: the Nurse practitioner said she is retaining > urine------can someone resolve form this with > time????? > > Any advice!!!!!! Beth > > > > > > > > > > **************************************Check out AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 -- Your not missing anything, the NP did say differnet from the tech. My gut is saying just give it more time. She does good with time voids every three hours BUT I do not know if she is retaining urine. > > I can't tell you what it all means exactly, but here's > what I think it means. > > My urologist did the same thing. Let's try this and > wait a few months and see. If there is no evidence of > kidney problems, I don't know what else they'd want to > do with the kidneys except for periodic ultrasounds > and maybe renal blood work. > > I retained urine, a lot of it, until I finally started > cathing. Retention of urine has nothing to do with > capacity of the bladder. Retention is just what is > left after urination. I think you can have a small > bladder and still not be able to empty it all the way, > just as I'm sure you can have a large bladder and > still be able to get it emptied. My problem with > retention will never get better. Some people do > regain full bladder function, though, but I have no > clue how long it takes. > > It's scary enough dealing with my own issues. I have > no idea how parents handle this with their children. > I'd be a wreck. But I don't think what the urologist > is doing is unusual, except for maybe how short a time > he lets it go between visits. Mine wanted to see me > once a year only. > > > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > > TC release in May 2007. At 14 months her VCUG and > > kidney Ultrasounds can back normal. Kidneys shape > > and > > function normal and no reflux noted, she did have > > stage 1 on left and stage 2 on right when she was 6 > > months but at 14 months resolved. ok!!!! my > > questions > > are:::: > > > > Is this normal procedures for the uro to follow???? > > > > Should I be worried about her kidneys???? or let > > time > > tell ???? > > > > The urologist in my town mainly see the nurse > > practitioner- --Do anyone else have this going on??? > > > > Im curious what time frame of knowing if she will > > regain full control of her bladder again??? > > > > Im confused---the urodynamic study tech told when > > about 20ml was inserted Kenzie started feeling the > > urge to pee, however she did hold it and was > > continued > > to fill her to normal capacity of a child her age > > and > > weight. She was able to hold it with little leakage. > > That what the tech said. > > BUT::::: the Nurse practitioner said she is > > retaining > > urine------can someone resolve form this with > > time????? > > > > Any advice!!!!!! Beth > > > > > > > > > > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com > > > ______________________________________________________________________ ______________ > Be a better pen pal. > Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Grrrrrrrrrrr....No matter how great the NP may be, I know I would like to speak to the MD. We had that issue in Grand Rapids, MI for some reason. One had to wait forever to see any kind of doctor! Atlanta and St. Louis were great in that respect. On the other hand, if the NP was at all concerned, I am sure she would have you speaking to the MD sooner. Hugs and good luck wishes your way, Randee In a message dated 11/25/2007 3:55:31 A.M. Eastern Standard Time, froga1@... writes: live in louisville, ky. making an appoitment with the Doctor is months away per the NP. --- In _tetheredspinalcord@tetheredspintet_ (mailto:tetheredspinalcord ) , Randeejae@.., Ra > > > Hi Beth...Can you ask to speak to the MD directly and ask him about the > descrepency in the reports? Are you in a small town where you can't get another > opinion? I sure understand your questions! > > randee > > > In a message dated 11/24/2007 10:47:19 P.M. Eastern Standard Time, > froga1@... writes: > > > > > I just took my daughter back to the urologist for her > 1 month checkup from the urologic dynamic study teast > and taking cardura 1mg every night. well i didnt start > the cardura-for many reasons(which I will not get > into). The cardura is suppose to be used for the > blockage in her bladder-not a physical blockage, but > from not emptying form the smooth musles and other > muslce in the bladders not properly corresponding with > each other causeing a blockage--where the urine does > not completely empty. > ok---the nurse practitioner was fine with me not > giving cardura. I asked her about the uro dynamic > study. She said Kenzie had some urinary retention. The > NP recommended us continuing with the time voids every > 3 hours and then repeating the urological dynamic > study in three months. > She bacially told me that we dont know what her > outcome will be. but the main goal is to keep Kenzie > from getting any UTI's. she's on bactrim. > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > TC release in May 2007. At 14 months her VCUG and > kidney Ultrasounds can back normal. Kidneys shape and > function normal and no reflux noted, she did have > stage 1 on left and stage 2 on right when she was 6 > months but at 14 months resolved. ok!!!! my questions > are:::: > > Is this normal procedures for the uro to follow???? > > Should I be worried about her kidneys???? or let time > tell ???? > > The urologist in my town mainly see the nurse > practitioner- --Do anyone else have this going on??? > > Im curious what time frame of knowing if she will > regain full control of her bladder again??? > > Im confused---the urodynamic study tech told when > about 20ml was inserted Kenzie started feeling the > urge to pee, however she did hold it and was continued > to fill her to normal capacity of a child her age and > weight. She was able to hold it with little leakage. > That what the tech said. > BUT::::: the Nurse practitioner said she is retaining > urine------can someone resolve form this with > time????? > > Any advice!!!!!! Beth > > > > > > > > > > ************ **** **** ************<WBR>*********<WBR> 2007's hottest > products. > (_http://money.http://money.<WBhttp://money.http:_ (http://money.aol.com/special/hot-products-2007?) NCID=aoltop00030000NCID=ao > > > [Non-text portions of this message have been removed] > **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Beth, One simple test the MD's office (a RN or NP, tech or whoever can do it, it's fairly simple) can do to check for urine retention, is to have her void (however she does it -- on her own or cathing). If she is voiding on her own on a time schedule, then have the MD office ultrasound her bladder. Its not the ultrasound that gives a picture, but there is an ultrasound machine that is specifically designed to give a reading of how much urine is in the bladder. Have the MD (or whoever at the office) ultrasound her bladder before she voids/caths and get the amount that is in her full bladder. Then have her void/cath. Then have the MD/RN/tech ultrasound her " empty " bladder again. This will give you the amount that is still in her bladder after she has " emptied " it. This test is non-invasive. It involves a little egg-shaped thing and some ultrasound gel on the lower abdomen (over the bladder). The MD/RN/tech pushes a button and the egg-shaped thing will make some clicks and if Kenzie has feeling, she may feel some vibrations in her bladder (kinda stinks if you really have to pee). They may also have to kind of push down when they do it to get a good reading. But its not painful. Can just be a bit uncomfortable if you really have to pee to have someone pushing down on your full bladder and having a machine then send sound waves through it. But it is NOTHING like a urodynamics. This test is an easy way to check what Kenzie is retaining after she voids and can be done at her 3 month checkups at the doctors office. Since they have her going in every 3 months, it would be a good measure of her retention problem and if it is resolving or not or staying the same. It is quick (only takes 1 min or so to do), and painless and they can do it right there in the exam room. You might want to suggest it at your next visit. Every urologist I have ever visited had the machine. Hope this helps. Jenn > -- > Your not missing anything, the NP did say differnet from the tech. My > gut is saying just give it more time. She does good with time voids > every three hours BUT I do not know if she is retaining urine. > > > > > I can't tell you what it all means exactly, but here's > > what I think it means. > > > > My urologist did the same thing. Let's try this and > > wait a few months and see. If there is no evidence of > > kidney problems, I don't know what else they'd want to > > do with the kidneys except for periodic ultrasounds > > and maybe renal blood work. > > > > I retained urine, a lot of it, until I finally started > > cathing. Retention of urine has nothing to do with > > capacity of the bladder. Retention is just what is > > left after urination. I think you can have a small > > bladder and still not be able to empty it all the way, > > just as I'm sure you can have a large bladder and > > still be able to get it emptied. My problem with > > retention will never get better. Some people do > > regain full bladder function, though, but I have no > > clue how long it takes. > > > > It's scary enough dealing with my own issues. I have > > no idea how parents handle this with their children. > > I'd be a wreck. But I don't think what the urologist > > is doing is unusual, except for maybe how short a time > > he lets it go between visits. Mine wanted to see me > > once a year only. > > > > > > > > > > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > > > TC release in May 2007. At 14 months her VCUG and > > > kidney Ultrasounds can back normal. Kidneys shape > > > and > > > function normal and no reflux noted, she did have > > > stage 1 on left and stage 2 on right when she was 6 > > > months but at 14 months resolved. ok!!!! my > > > questions > > > are:::: > > > > > > Is this normal procedures for the uro to follow???? > > > > > > Should I be worried about her kidneys???? or let > > > time > > > tell ???? > > > > > > The urologist in my town mainly see the nurse > > > practitioner- --Do anyone else have this going on??? > > > > > > Im curious what time frame of knowing if she will > > > regain full control of her bladder again??? > > > > > > Im confused---the urodynamic study tech told when > > > about 20ml was inserted Kenzie started feeling the > > > urge to pee, however she did hold it and was > > > continued > > > to fill her to normal capacity of a child her age > > > and > > > weight. She was able to hold it with little leakage. > > > That what the tech said. > > > BUT::::: the Nurse practitioner said she is > > > retaining > > > urine------can someone resolve form this with > > > time????? > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com > > > > > > > __________________________________________________________ > ______________ > > Be a better pen pal. > > Text or chat with friends inside Yahoo! Mail. See how. > http://overview.mail.yahoo.com/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Beth, I have seen my doc's PA (my docs seem to have PA's rather than NPs, probably because in GA, NPs have the least amount of " power " - if you will- than any other state. They cannot write Rx. For all their education, they cannot do anything in GA and generally go to other states to practice where they can use all that valuable training)... But, I tend to see my doc's PA's when I request an " emergency " or urgent appointment. All my regular appointments are with my MD. I do have one doc (my physiatrist) where I see his PA virtually every visit. He uses his PA to see his patients that are kind of like his " maintenance " patients. Those that are coming for med refills and really don't have any changes. But as soon as I have a problem and need to see the MD, it is no problem to get in to see him. For example, when I had my compression fracture in April, I called because I developed the extreme pain and got in to to see the MD in 2-3 days (he does not use the PA to treat his " urgent " patients, kind of the reverse situation at his office). Then, I saw the MD for my appointments until things stabilized again and then went back to seeing the PA (who is a GREAT guy -- an army doc, well, PA). I have no problem seeing my doctors PA's or NPs, but I would not want to see them exclusively. I think they have their place. For the docs I see, I think they work well -- either for maintenance -- doing my med refills and making sure everything is still going well (so the MD can keep up with those patients who need more focused attention and are having problems) and with my uro who uses his PA to see " urgent " patients. As you know, when you have a problem and need to be seen soon, the " first available " appointment is usually a month or more away. The PA alleviates this problem. He sees all those people that need to be seen quickly. If he needs to confer with the docs after he sees you, they are in the office and he has done that on occasion with me. Seeing only the doc's assistant is unacceptable -- particularly when you are still trying to figure things out and get things settled. One thing you might try --- At my physiatrist's office, when you check out and schedule your next appointment, they assume you want to see the same person you saw at your current appointment unless you or the doc specifies otherwise. So, I always end up with an appointment with the PA unless I say, " No, I want to see the Dr. next time. " Maybe that office is the same way? Have you tried asking to make an appointment with the MD upon check out? Or asking who your appointment will be with? Perhaps the reason they made the appointment with the PA is simply timing -- they have you coming back so soon that they wanted you back soon, and didn't want you to wait, but, they are one of those offices where appointments are booked out 2 months in advance, and the NP was the only one with an appointment. I would address your concerns with scheduling and say you would like to make your next appointment with the MD. Perhaps you can reschedule your next appointment with the MD. I think the questions you posted are valid, but they need to be answered by the MD. Try calling scheduling and see what kind of response you get. Jenn > live in louisville, ky. making an appoitment with the Doctor is > months away per the NP. > > > > > > > Hi Beth...Can you ask to speak to the MD directly and ask him about > the > > descrepency in the reports? Are you in a small town where you > can't get another > > opinion? I sure understand your questions! > > > > randee > > > > > > In a message dated 11/24/2007 10:47:19 P.M. Eastern Standard Time, > > froga1@... writes: > > > > > > > > > > I just took my daughter back to the urologist for her > > 1 month checkup from the urologic dynamic study teast > > and taking cardura 1mg every night. well i didnt start > > the cardura-for many reasons(which I will not get > > into). The cardura is suppose to be used for the > > blockage in her bladder-not a physical blockage, but > > from not emptying form the smooth musles and other > > muslce in the bladders not properly corresponding with > > each other causeing a blockage--where the urine does > > not completely empty. > > ok---the nurse practitioner was fine with me not > > giving cardura. I asked her about the uro dynamic > > study. She said Kenzie had some urinary retention. The > > NP recommended us continuing with the time voids every > > 3 hours and then repeating the urological dynamic > > study in three months. > > She bacially told me that we dont know what her > > outcome will be. but the main goal is to keep Kenzie > > from getting any UTI's. she's on bactrim. > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > > TC release in May 2007. At 14 months her VCUG and > > kidney Ultrasounds can back normal. Kidneys shape and > > function normal and no reflux noted, she did have > > stage 1 on left and stage 2 on right when she was 6 > > months but at 14 months resolved. ok!!!! my questions > > are:::: > > > > Is this normal procedures for the uro to follow???? > > > > Should I be worried about her kidneys???? or let time > > tell ???? > > > > The urologist in my town mainly see the nurse > > practitioner- --Do anyone else have this going on??? > > > > Im curious what time frame of knowing if she will > > regain full control of her bladder again??? > > > > Im confused---the urodynamic study tech told when > > about 20ml was inserted Kenzie started feeling the > > urge to pee, however she did hold it and was continued > > to fill her to normal capacity of a child her age and > > weight. She was able to hold it with little leakage. > > That what the tech said. > > BUT::::: the Nurse practitioner said she is retaining > > urine------can someone resolve form this with > > time????? > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > **************************************Check out AOL's list of > 2007's hottest > > products. > > (http://money.aol.com/special/hot-products-2007? > NCID=aoltop00030000000001) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 In a message dated 12/4/2007 3:10:23 A.M. Eastern Standard Time, jlbobin@... writes: If she is voiding on her own on a time schedule, then have the MD office ultrasound her bladder. Its not the ultrasound that gives a picture, but there is an ultrasound machine that is specifically designed to give a reading of how much urine is in the bladder. We do this with every six months at his uro visits. In addition, he also voids on their " special potty " that measures the amount of urine, how long it took, how fast different phases of urination were, etc... The uroflow test spits out a computer strip with info on it and the doc can assess how well the urination phase of bladder function works. For , he has an abnormal stream/uroflow that they like to monitor, but they are always happy afterwards when they see that empty bladder. Connie Mom to Sara 16, Nicky 9 (GI issues, megacolon), and 7 (CRS/VACTERLS incl. tethered spinal cord (repaired 9/00, 8/06) perineal fistula imperforate anus (repaired 5/00, managed with daily Exlax), single kidney, PDA (closed on its own), malformed pelvis and hemisacrum, long segment lumbosacral levoscoliosis with hemivertebrae (spinal fusion T11-sacrum 8/06), extra left rib, genital anomalies with hypospadius (repairs 9/00,11/00, 5/01,12/01,12/03), hypoplastic left leg with clubfoot (repaired 5/01) tibial torsion and 4.5cm length discrepancy - wears AFO and 3.5cm lift, SUA, GI reflux, DGE/gastroparesis, mild swallowing dysphagia, eating issues and the most beautiful smile ever) conni60640@... Our website: _http://members.tripod.com/conni60640-ivil/_ (http://members.tripod.com/conni60640-ivil/) VACTERL/VATER support _http://health.groups.yahoo.com/group/VACTERLNetwork/_ (http://health.groups.yahoo.com/group/VACTERLNetwork/) TC support group _http://health.groups.yahoo.com/group/LMC-TCS/_ (http://health.groups.yahoo.com/group/LMC-TCS/) Congenital scoliosis support group _http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/_ (http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/) S. Jersey **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2007 Report Share Posted December 19, 2007 Sorry it so long yo respond been busy with the holidays approaching. Thanks for your input. Beth > > > > > > > > > Hi Beth...Can you ask to speak to the MD directly and ask him about > > the > > > descrepency in the reports? Are you in a small town where you > > can't get another > > > opinion? I sure understand your questions! > > > > > > randee > > > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. Eastern Standard Time, > > > froga1@ writes: > > > > > > > > > > > > > > > I just took my daughter back to the urologist for her > > > 1 month checkup from the urologic dynamic study teast > > > and taking cardura 1mg every night. well i didnt start > > > the cardura-for many reasons(which I will not get > > > into). The cardura is suppose to be used for the > > > blockage in her bladder-not a physical blockage, but > > > from not emptying form the smooth musles and other > > > muslce in the bladders not properly corresponding with > > > each other causeing a blockage--where the urine does > > > not completely empty. > > > ok---the nurse practitioner was fine with me not > > > giving cardura. I asked her about the uro dynamic > > > study. She said Kenzie had some urinary retention. The > > > NP recommended us continuing with the time voids every > > > 3 hours and then repeating the urological dynamic > > > study in three months. > > > She bacially told me that we dont know what her > > > outcome will be. but the main goal is to keep Kenzie > > > from getting any UTI's. she's on bactrim. > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > > > TC release in May 2007. At 14 months her VCUG and > > > kidney Ultrasounds can back normal. Kidneys shape and > > > function normal and no reflux noted, she did have > > > stage 1 on left and stage 2 on right when she was 6 > > > months but at 14 months resolved. ok!!!! my questions > > > are:::: > > > > > > Is this normal procedures for the uro to follow???? > > > > > > Should I be worried about her kidneys???? or let time > > > tell ???? > > > > > > The urologist in my town mainly see the nurse > > > practitioner- --Do anyone else have this going on??? > > > > > > Im curious what time frame of knowing if she will > > > regain full control of her bladder again??? > > > > > > Im confused---the urodynamic study tech told when > > > about 20ml was inserted Kenzie started feeling the > > > urge to pee, however she did hold it and was continued > > > to fill her to normal capacity of a child her age and > > > weight. She was able to hold it with little leakage. > > > That what the tech said. > > > BUT::::: the Nurse practitioner said she is retaining > > > urine------can someone resolve form this with > > > time????? > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > **************************************Check out AOL's list of > > 2007's hottest > > > products. > > > (http://money.aol.com/special/hot-products-2007? > > NCID=aoltop00030000000001) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2007 Report Share Posted December 19, 2007 and Jenn, Rhanks for your replies. Its been awhile since ive been on here. Beth > > > > > > I can't tell you what it all means exactly, but here's > > > what I think it means. > > > > > > My urologist did the same thing. Let's try this and > > > wait a few months and see. If there is no evidence of > > > kidney problems, I don't know what else they'd want to > > > do with the kidneys except for periodic ultrasounds > > > and maybe renal blood work. > > > > > > I retained urine, a lot of it, until I finally started > > > cathing. Retention of urine has nothing to do with > > > capacity of the bladder. Retention is just what is > > > left after urination. I think you can have a small > > > bladder and still not be able to empty it all the way, > > > just as I'm sure you can have a large bladder and > > > still be able to get it emptied. My problem with > > > retention will never get better. Some people do > > > regain full bladder function, though, but I have no > > > clue how long it takes. > > > > > > It's scary enough dealing with my own issues. I have > > > no idea how parents handle this with their children. > > > I'd be a wreck. But I don't think what the urologist > > > is doing is unusual, except for maybe how short a time > > > he lets it go between visits. Mine wanted to see me > > > once a year only. > > > > > > > > > > > > > > > > > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > > > > TC release in May 2007. At 14 months her VCUG and > > > > kidney Ultrasounds can back normal. Kidneys shape > > > > and > > > > function normal and no reflux noted, she did have > > > > stage 1 on left and stage 2 on right when she was 6 > > > > months but at 14 months resolved. ok!!!! my > > > > questions > > > > are:::: > > > > > > > > Is this normal procedures for the uro to follow???? > > > > > > > > Should I be worried about her kidneys???? or let > > > > time > > > > tell ???? > > > > > > > > The urologist in my town mainly see the nurse > > > > practitioner- --Do anyone else have this going on??? > > > > > > > > Im curious what time frame of knowing if she will > > > > regain full control of her bladder again??? > > > > > > > > Im confused---the urodynamic study tech told when > > > > about 20ml was inserted Kenzie started feeling the > > > > urge to pee, however she did hold it and was > > > > continued > > > > to fill her to normal capacity of a child her age > > > > and > > > > weight. She was able to hold it with little leakage. > > > > That what the tech said. > > > > BUT::::: the Nurse practitioner said she is > > > > retaining > > > > urine------can someone resolve form this with > > > > time????? > > > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com > > > > > > > > > > > __________________________________________________________ > > ______________ > > > Be a better pen pal. > > > Text or chat with friends inside Yahoo! Mail. See how. > > http://overview.mail.yahoo.com/ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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