Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 The descrepency is what Beth was told by the tech after the exam was complete versus the report that she received from the Nurse Practitioner. Randee In a message dated 11/24/2007 11:15:49 P.M. Eastern Standard Time, mzw4@... writes: Randee, could you tell me where the discrepancy is in the report? From what I'm reading, it doesn't seem like there is one, but I am admittedly not keeping up with my own urological stuff (cathing fixed it as far as I'm concerned). Her report sounds a lot like mine, except for the tiny bladder. Mine was huge. But if there is something I am not catching here, I need to know. I hate not knowing. Thanks! --- _Randeejae@..._ (mailto:Randeejae@...) wrote: > > Hi Beth...Can you ask to speak to the MD directly > and ask him about the > descrepency in the reports? Are you in a small town > where you can't get another > opinion? I sure understand your questions! > > randee > > > In a message dated 11/24/2007 10:47:19 P.M. Eastern > Standard Time, > _froga1@..._ (mailto:froga1@...) writes: > > > > > I just took my daughter back to the urologist for > her > 1 month checkup from the urologic dynamic study > teast > and taking cardura 1mg every night. well i didnt > start > the cardura-for many reasons(which I will not get > into). The cardura is suppose to be used for the > blockage in her bladder-not a physical blockage, > but > from not emptying form the smooth musles and other > muslce in the bladders not properly corresponding > with > each other causeing a blockage--where the urine does > not completely empty. > ok---the nurse practitioner was fine with me not > giving cardura. I asked her about the uro dynamic > study. She said Kenzie had some urinary retention. > The > NP recommended us continuing with the time voids > every > 3 hours and then repeating the urological dynamic > study in three months. > She bacially told me that we dont know what her > outcome will be. but the main goal is to keep > Kenzie > from getting any UTI's. she's on bactrim. > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > TC release in May 2007. At 14 months her VCUG and > kidney Ultrasounds can back normal. Kidneys shape > and > function normal and no reflux noted, she did have > stage 1 on left and stage 2 on right when she was 6 > months but at 14 months resolved. ok!!!! my > questions > are:::: > > Is this normal procedures for the uro to follow???? > > Should I be worried about her kidneys???? or let > time > tell ???? > > The urologist in my town mainly see the nurse > practitioner- --Do anyone else have this going > on??? > > Im curious what time frame of knowing if she will > regain full control of her bladder again??? > > Im confused---the urodynamic study tech told when > about 20ml was inserted Kenzie started feeling the > urge to pee, however she did hold it and was > continued > to fill her to normal capacity of a child her age > and > weight. She was able to hold it with little > leakage. > That what the tech said. > BUT::::: the Nurse practitioner said she is > retaining > urine------can someone resolve form this with > time????? > > Any advice!!!!!! Beth > > > > > > > > > > ************ ******** ******** ************<WBR>*** > AOL's list of 2007's hottest > products. > (_http://money.http://money.<WBhttp://money.http://monhttp://money.<WBhttp_ (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) ) > > > [Non-text portions of this message have been > removed] > > Check out my blog: _http://princessmatihttp://princessmhttp://prhtt_ (http://princessmatildalovestostamp.blogspot.com/) __________________________________________________________ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. _http://overview.http://overhttp_ (http://overview.mail.yahoo.com/) **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Yes, you are right! Randee In a message dated 11/25/2007 12:02:20 A.M. Eastern Standard Time, mzw4@... writes: Randee, I'm being dense. I know it. I see that the tech told her that her daughter gets a full feeling very quickly, but can hold her urine until her bladder fills to normal capacity, and not leak. And the report the NP gave her said she retains some urine, which is a whole different issue from what the tech brought up. What am I missing? I get obsessive about things like this, and if you think I'm just being difficult, let me know. I really don't mean to be difficult. I seriously don't see that both cases can't be true, and if I'm missing something, I just want to know what. --- _Randeejae@..._ (mailto:Randeejae@...) wrote: > > The descrepency is what Beth was told by the tech > after the exam was > complete versus the report that she received from > the Nurse Practitioner. Randee > > > > In a message dated 11/24/2007 11:15:49 P.M. Eastern > Standard Time, > _mzw4@..._ (mailto:mzw4@...) writes: > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. > Eastern > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 > months, > > TC release in May 2007. At 14 months her VCUG and > > kidney Ultrasounds can back normal. Kidneys shape > > and > > function normal and no reflux noted, she did have > > stage 1 on left and stage 2 on right when she was > 6 > > months but at 14 months resolved. ok!!!! my > > questions > > are:::: > > > > Is this normal procedures for the uro to > follow???? > > > > Should I be worried about her kidneys???? or let > > time > > tell ???? > > > > The urologist in my town mainly see the nurse > > practitioner- --Do anyone else have this going > > on??? > > > > Im curious what time frame of knowing if she will > > regain full control of her bladder again??? > > > > Im confused---the urodynamic study tech told when > > about 20ml was inserted Kenzie started feeling > the > > urge to pee, however she did hold it and was > > continued > > to fill her to normal capacity of a child her age > > and > > weight. She was able to hold it with little > > leakage. > > That what the tech said. > > BUT::::: the Nurse practitioner said she is > > retaining > > urine------can someone resolve form this with > > time????? > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > ************<WBR>*** > > AOL's list of 2007's hottest > > products. > > > (__http://money.http://money._ (http://money.http//money.) <_WBhttp://money.WBhttp://money.WBhttp:/_ (wbhttp://money.http://monhttp://money.) <WBhttp_ > > (_http://money.http://money.<WBhttp://money.http://monhttp://money.<WBhttp_ (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) ) > ) > > > > > > [Non-text portions of this message have been > > removed] > > > > > > Check out my blog: > __http://princessmatihttp://princessmhttp://prince_ (http://princessmatihttp//princessmhttp://prhtt_) > (_http://princessmatihttp://princessmhttp://prhttp_ (http://princessmatildalovestostamp.blogspot.com/) ) > > __________________________________________________________ > Be a better pen pal. > Text or chat with friends inside Yahoo! Mail. See > how. > __http://overview.http://overview._ (http://overview.http//overhttp_) > (_http://overview.http://overhttp_ (http://overview.mail.yahoo.com/) ) > > > > > > > > > ************ ******** ******** ************<WBR>*** > AOL's list of 2007's hottest > products. > (_http://money.http://money.<WBhttp://money.http://monhttp://money.<WBhttp_ (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) ) > > > [Non-text portions of this message have been > removed] > > Check out my blog: _http://princessmatihttp://princessmhttp://prhtt_ (http://princessmatildalovestostamp.blogspot.com/) __________________________________________________________ Never miss a thing. Make Yahoo your home page. _http://www.yahoo.http://w_ (http://www.yahoo.com/r/hs) 39 **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Randee, I'm being dense. I know it. I see that the tech told her that her daughter gets a full feeling very quickly, but can hold her urine until her bladder fills to normal capacity, and not leak. And the report the NP gave her said she retains some urine, which is a whole different issue from what the tech brought up. What am I missing? I get obsessive about things like this, and if you think I'm just being difficult, let me know. I really don't mean to be difficult. I seriously don't see that both cases can't be true, and if I'm missing something, I just want to know what. --- Randeejae@... wrote: > > The descrepency is what Beth was told by the tech > after the exam was > complete versus the report that she received from > the Nurse Practitioner. Randee > > > > In a message dated 11/24/2007 11:15:49 P.M. Eastern > Standard Time, > mzw4@... writes: > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. > Eastern > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 > months, > > TC release in May 2007. At 14 months her VCUG and > > kidney Ultrasounds can back normal. Kidneys shape > > and > > function normal and no reflux noted, she did have > > stage 1 on left and stage 2 on right when she was > 6 > > months but at 14 months resolved. ok!!!! my > > questions > > are:::: > > > > Is this normal procedures for the uro to > follow???? > > > > Should I be worried about her kidneys???? or let > > time > > tell ???? > > > > The urologist in my town mainly see the nurse > > practitioner- --Do anyone else have this going > > on??? > > > > Im curious what time frame of knowing if she will > > regain full control of her bladder again??? > > > > Im confused---the urodynamic study tech told when > > about 20ml was inserted Kenzie started feeling > the > > urge to pee, however she did hold it and was > > continued > > to fill her to normal capacity of a child her age > > and > > weight. She was able to hold it with little > > leakage. > > That what the tech said. > > BUT::::: the Nurse practitioner said she is > > retaining > > urine------can someone resolve form this with > > time????? > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > ************<WBR>*** > > AOL's list of 2007's hottest > > products. > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money.<WBhttp_ > > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > ) > > > > > > [Non-text portions of this message have been > > removed] > > > > > > Check out my blog: > _http://princessmatihttp://princessmhttp://prhtt_ > (http://princessmatildalovestostamp.blogspot.com/) > > __________________________________________________________ > Be a better pen pal. > Text or chat with friends inside Yahoo! Mail. See > how. > _http://overview.http://overhttp_ > (http://overview.mail.yahoo.com/) > > > > > > > > > **************************************Check out > AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > [Non-text portions of this message have been > removed] > > Check out my blog: http://princessmatildalovestostamp.blogspot.com ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 I worry for my own health because there are certain things I just don't feel like dealing with. Urological issues are just one area. I hate seeing doctors, playing the professional patient. When cathing fixed my peeing problem, that was it for me. No more urology stuff. I do get blood work done occasionally to check for renal issues, but I have no desire to let them stick electrodes and probes on me and in me to tell me what I already know - I have no bladder function. But when a child has a chance to get some back, I certainly don't want to be passing along bad info. Thanks for helping me, Randee!! --- Randeejae@... wrote: > > Yes, you are right! Randee > > > > In a message dated 11/25/2007 12:02:20 A.M. Eastern > Standard Time, > mzw4@... writes: > > > > > Randee, I'm being dense. I know it. I see that the > tech told her that her daughter gets a full feeling > very quickly, but can hold her urine until her > bladder > fills to normal capacity, and not leak. And the > report the NP gave her said she retains some urine, > which is a whole different issue from what the tech > brought up. > > What am I missing? I get obsessive about things > like > this, and if you think I'm just being difficult, > let > me know. I really don't mean to be difficult. I > seriously don't see that both cases can't be true, > and > if I'm missing something, I just want to know what. > > > > --- _Randeejae@..._ (mailto:Randeejae@...) > wrote: > > > > > The descrepency is what Beth was told by the tech > > after the exam was > > complete versus the report that she received from > > the Nurse Practitioner. Randee > > > > > > > > In a message dated 11/24/2007 11:15:49 P.M. > Eastern > > Standard Time, > > _mzw4@..._ (mailto:mzw4@...) writes: > > > > > > > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. > > Eastern > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 > > months, > > > TC release in May 2007. At 14 months her VCUG > and > > > kidney Ultrasounds can back normal. Kidneys > shape > > > and > > > function normal and no reflux noted, she did > have > > > stage 1 on left and stage 2 on right when she > was > > 6 > > > months but at 14 months resolved. ok!!!! my > > > questions > > > are:::: > > > > > > Is this normal procedures for the uro to > > follow???? > > > > > > Should I be worried about her kidneys???? or > let > > > time > > > tell ???? > > > > > > The urologist in my town mainly see the nurse > > > practitioner- --Do anyone else have this going > > > on??? > > > > > > Im curious what time frame of knowing if she > will > > > regain full control of her bladder again??? > > > > > > Im confused---the urodynamic study tech told > when > > > about 20ml was inserted Kenzie started feeling > > the > > > urge to pee, however she did hold it and was > > > continued > > > to fill her to normal capacity of a child her > age > > > and > > > weight. She was able to hold it with little > > > leakage. > > > That what the tech said. > > > BUT::::: the Nurse practitioner said she is > > > retaining > > > urine------can someone resolve form this with > > > time????? > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > > ************<WBR>*** > > > AOL's list of 2007's hottest > > > products. > > > > > > (__http://money.http://money._ > (http://money.http//money.) > <_WBhttp://money.WBhttp://money.WBhttp:/_ > (wbhttp://money.http://monhttp://money.) <WBhttp_ > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money.<WBhttp_ > > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > ) > > ) > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > Check out my blog: > > > __http://princessmatihttp://princessmhttp://prince_ > (http://princessmatihttp//princessmhttp://prhtt_) > > > (_http://princessmatihttp://princessmhttp://prhttp_ > (http://princessmatildalovestostamp.blogspot.com/) ) > > > > > > __________________________________________________________ > > Be a better pen pal. > > Text or chat with friends inside Yahoo! Mail. See > > how. > > __http://overview.http://overview._ > (http://overview.http//overhttp_) > > (_http://overview.http://overhttp_ > (http://overview.mail.yahoo.com/) ) > > > > > > > > > > > > > > > > > > ************ ******** ******** > ************<WBR>*** > > AOL's list of 2007's hottest > > products. > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money.<WBhttp_ > > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > ) > > > > > > [Non-text portions of this message have been > > removed] > > > > > > Check out my blog: > _http://princessmatihttp://princessmhttp://prhtt_ > (http://princessmatildalovestostamp.blogspot.com/) > > __________________________________________________________ > Never miss a thing. Make Yahoo your home page. > _http://www.yahoo.http://w_ > (http://www.yahoo.com/r/hs) > > > > > > 39 > > > **************************************Check out > AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > [Non-text portions of this message have been > removed] > > Check out my blog: http://princessmatildalovestostamp.blogspot.com ________________________________________________________________________________\ ____ Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now. http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 --how does our report seem like yours. How long did the uro do testing before you went to cathing???? > > > > > Hi Beth...Can you ask to speak to the MD directly > > and ask him about the > > descrepency in the reports? Are you in a small town > > where you can't get another > > opinion? I sure understand your questions! > > > > randee > > > > > > In a message dated 11/24/2007 10:47:19 P.M. Eastern > > Standard Time, > > _froga1@..._ (mailto:froga1@...) writes: > > > > > > > > > > I just took my daughter back to the urologist for > > her > > 1 month checkup from the urologic dynamic study > > teast > > and taking cardura 1mg every night. well i didnt > > start > > the cardura-for many reasons(which I will not get > > into). The cardura is suppose to be used for the > > blockage in her bladder-not a physical blockage, > > but > > from not emptying form the smooth musles and other > > muslce in the bladders not properly corresponding > > with > > each other causeing a blockage--where the urine does > > not completely empty. > > ok---the nurse practitioner was fine with me not > > giving cardura. I asked her about the uro dynamic > > study. She said Kenzie had some urinary retention. > > The > > NP recommended us continuing with the time voids > > every > > 3 hours and then repeating the urological dynamic > > study in three months. > > She bacially told me that we dont know what her > > outcome will be. but the main goal is to keep > > Kenzie > > from getting any UTI's. she's on bactrim. > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 months, > > TC release in May 2007. At 14 months her VCUG and > > kidney Ultrasounds can back normal. Kidneys shape > > and > > function normal and no reflux noted, she did have > > stage 1 on left and stage 2 on right when she was 6 > > months but at 14 months resolved. ok!!!! my > > questions > > are:::: > > > > Is this normal procedures for the uro to follow???? > > > > Should I be worried about her kidneys???? or let > > time > > tell ???? > > > > The urologist in my town mainly see the nurse > > practitioner- --Do anyone else have this going > > on??? > > > > Im curious what time frame of knowing if she will > > regain full control of her bladder again??? > > > > Im confused---the urodynamic study tech told when > > about 20ml was inserted Kenzie started feeling the > > urge to pee, however she did hold it and was > > continued > > to fill her to normal capacity of a child her age > > and > > weight. She was able to hold it with little > > leakage. > > That what the tech said. > > BUT::::: the Nurse practitioner said she is > > retaining > > urine------can someone resolve form this with > > time????? > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > ************ ******** ******** ************<WBR>*** > > AOL's list of 2007's hottest > > products. > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money.<WB http_ > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) ) > > > > > > [Non-text portions of this message have been > > removed] > > > > > > Check out my blog: _http://princessmatihttp://princessmhttp://prhtt_ > (http://princessmatildalovestostamp.blogspot.com/) > > __________________________________________________________ > Be a better pen pal. > Text or chat with friends inside Yahoo! Mail. See how. > _http://overview.http://overhttp_ (http://overview.mail.yahoo.com/) > > > > > > > > > **************************************Check out AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 The ability to hold urine a long time without leaking and the retention after urinating. Those are both in my report. I went to cathing immediately because by the time I went to see a urologist, my bladder was pretty much gone. It's a LONG story, so grab a cup of coffee if you plan to read it. I found out I had spina bifida when I was 14. I was born with a hemangioma over my lipoma that was bleeding, and was treated for that, but tethered cord wasn't really considered then, not sure if my old family doctor even knew what it was. They didn't even know I had a lipoma. I potty trained early, at 18 months, but I had stress incontinence, if I laughed too hard, I peed. And I laugh a lot, so I wet my pants so often as a child and a young adult. It was AWFUL! I was always embarrassed. If I got scared, I peed. If I laughed, I peed. If I coughed, I peed. No one ever thought to check it out. When I was in 8th grade, the school did a scoliosis check. The nurse thought I had scoliosis, brought in a doctor to check me out, and the doctor figured out my legs were different lengths. That explained the duck walk. ) He sent me for x rays and they found the SB and sent me to a specialist. The specialist never once mentioned tethered cord. He was pretty awesome with me. I really liked him a lot. But no mention of TCS at that point (I was 14 years old). I had my first child at 17, and at 20, my legs went numb. Within two weeks, I was having surgery. I had the lipoma removed, and that's all I knew they were doing. I was so thrilled to be getting rid of the horrible lump on my butt that I don't think I heard another word. Numbness gone, all was well. So fast forward to age 26. I had two more kids by then, and was having constant bladder infections. At that point, I had two bladder infections a month. If I wasn't on antibiotics, I got an infection within a week. I had no clue that anything could be going wrong with my spine. While this wasn't pre-WWW, I didn't even know to look and see what it might be. I just thought it was the joy of living in my body with my weak bladder. After ending up in the ER a couple of times to be cathed and to get pumped with a ton of really, really good drugs (my kidneys spasmed due to urine retention), they finally sent me to a specialist. What they found is I can hold way more urine than a normal person and I couldn't empty my bladder. In fact, I was retaining more urine than most people can ever hold. That's why the constant infections. That was when I was 29. I had surgery a year later due to leg weakness and pain. Neither really were helped, though the weakness did stop progressing. Pain comes and goes. My bladder issues went on so long that I will never get function back. The joy of being blissfully unaware comes with a price, I suppose. Cathing got rid of my infections completely until I got pregnant at 34. I don't know what happened at that point, but since then, I get infections again. Not like before, maybe two a year at most. Anyhow, that's my history in a nutshell. I cath. I don't mind cathing, though I think I might be enticed to get the stim implant if I continue to get UTIs. Aren't you glad you asked? --- beth wrote: > --how does our report seem like yours. How > long did the uro > do testing before you went to cathing???? > > > > > > > > > Hi Beth...Can you ask to speak to the MD > directly > > > and ask him about the > > > descrepency in the reports? Are you in a small > town > > > where you can't get another > > > opinion? I sure understand your questions! > > > > > > randee > > > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. > Eastern > > > Standard Time, > > > _froga1@..._ (mailto:froga1@...) writes: > > > > > > > > > > > > > > > I just took my daughter back to the urologist > for > > > her > > > 1 month checkup from the urologic dynamic study > > > teast > > > and taking cardura 1mg every night. well i > didnt > > > start > > > the cardura-for many reasons(which I will not > get > > > into). The cardura is suppose to be used for the > > > blockage in her bladder-not a physical > blockage, > > > but > > > from not emptying form the smooth musles and > other > > > muslce in the bladders not properly > corresponding > > > with > > > each other causeing a blockage--where the urine > does > > > not completely empty. > > > ok---the nurse practitioner was fine with me > not > > > giving cardura. I asked her about the uro > dynamic > > > study. She said Kenzie had some urinary > retention. > > > The > > > NP recommended us continuing with the time voids > > > every > > > 3 hours and then repeating the urological > dynamic > > > study in three months. > > > She bacially told me that we dont know what her > > > outcome will be. but the main goal is to keep > > > Kenzie > > > from getting any UTI's. she's on bactrim. > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 > months, > > > TC release in May 2007. At 14 months her VCUG > and > > > kidney Ultrasounds can back normal. Kidneys > shape > > > and > > > function normal and no reflux noted, she did > have > > > stage 1 on left and stage 2 on right when she > was 6 > > > months but at 14 months resolved. ok!!!! my > > > questions > > > are:::: > > > > > > Is this normal procedures for the uro to > follow???? > > > > > > Should I be worried about her kidneys???? or let > > > time > > > tell ???? > > > > > > The urologist in my town mainly see the nurse > > > practitioner- --Do anyone else have this going > > > on??? > > > > > > Im curious what time frame of knowing if she > will > > > regain full control of her bladder again??? > > > > > > Im confused---the urodynamic study tech told > when > > > about 20ml was inserted Kenzie started feeling > the > > > urge to pee, however she did hold it and was > > > continued > > > to fill her to normal capacity of a child her > age > > > and > > > weight. She was able to hold it with little > > > leakage. > > > That what the tech said. > > > BUT::::: the Nurse practitioner said she is > > > retaining > > > urine------can someone resolve form this with > > > time????? > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > ************<WBR>*** > > > AOL's list of 2007's hottest > > > products. > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money.<WB > http_ > > (http://money.aol.com/special/hot-products-2007? > NCID=aoltop00030000000001) ) > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > Check out my blog: > _http://princessmatihttp://princessmhttp://prhtt_ > > (http://princessmatildalovestostamp.blogspot.com/) > > > > > > __________________________________________________________ > > Be a better pen pal. > > Text or chat with friends inside Yahoo! Mail. See > how. > > _http://overview.http://overhttp_ > (http://overview.mail.yahoo.com/) > > > > > > > > > > > > > > > > > > **************************************Check out > AOL's list of > 2007's hottest > > products. > > (http://money.aol.com/special/hot-products-2007? > NCID=aoltop00030000000001) > > > > > > [Non-text portions of this message have been > removed] > > > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com ________________________________________________________________________________\ ____ Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now. http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 I forgot to mention something. This won't be a book. Promise. I saw two urologists a year apart. The first guy did the urodynamics test and told me I had a neurogenic bladder and all that, but didn't do anything for me beyond that. He didn't even empty my bladder at the end of the test. The second uro, a woman, was fabulous. She did the test, told me I needed to cath and asked me how I felt about it. At that point, I was happy to be able to get rid of the urine. So I guess I didn't cath immediately. Not cathing for that year cost me a lot of money in trips to the ER and in antibiotics. I was on prophylactic antibiotics (the daily stuff) and still got infections constantly. --- beth wrote: > --how does our report seem like yours. How > long did the uro > do testing before you went to cathing???? > > > > > > > > > Hi Beth...Can you ask to speak to the MD > directly > > > and ask him about the > > > descrepency in the reports? Are you in a small > town > > > where you can't get another > > > opinion? I sure understand your questions! > > > > > > randee > > > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. > Eastern > > > Standard Time, > > > _froga1@..._ (mailto:froga1@...) writes: > > > > > > > > > > > > > > > I just took my daughter back to the urologist > for > > > her > > > 1 month checkup from the urologic dynamic study > > > teast > > > and taking cardura 1mg every night. well i > didnt > > > start > > > the cardura-for many reasons(which I will not > get > > > into). The cardura is suppose to be used for the > > > blockage in her bladder-not a physical > blockage, > > > but > > > from not emptying form the smooth musles and > other > > > muslce in the bladders not properly > corresponding > > > with > > > each other causeing a blockage--where the urine > does > > > not completely empty. > > > ok---the nurse practitioner was fine with me > not > > > giving cardura. I asked her about the uro > dynamic > > > study. She said Kenzie had some urinary > retention. > > > The > > > NP recommended us continuing with the time voids > > > every > > > 3 hours and then repeating the urological > dynamic > > > study in three months. > > > She bacially told me that we dont know what her > > > outcome will be. but the main goal is to keep > > > Kenzie > > > from getting any UTI's. she's on bactrim. > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 > months, > > > TC release in May 2007. At 14 months her VCUG > and > > > kidney Ultrasounds can back normal. Kidneys > shape > > > and > > > function normal and no reflux noted, she did > have > > > stage 1 on left and stage 2 on right when she > was 6 > > > months but at 14 months resolved. ok!!!! my > > > questions > > > are:::: > > > > > > Is this normal procedures for the uro to > follow???? > > > > > > Should I be worried about her kidneys???? or let > > > time > > > tell ???? > > > > > > The urologist in my town mainly see the nurse > > > practitioner- --Do anyone else have this going > > > on??? > > > > > > Im curious what time frame of knowing if she > will > > > regain full control of her bladder again??? > > > > > > Im confused---the urodynamic study tech told > when > > > about 20ml was inserted Kenzie started feeling > the > > > urge to pee, however she did hold it and was > > > continued > > > to fill her to normal capacity of a child her > age > > > and > > > weight. She was able to hold it with little > > > leakage. > > > That what the tech said. > > > BUT::::: the Nurse practitioner said she is > > > retaining > > > urine------can someone resolve form this with > > > time????? > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > ************<WBR>*** > > > AOL's list of 2007's hottest > > > products. > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money.<WB > http_ > > (http://money.aol.com/special/hot-products-2007? > NCID=aoltop00030000000001) ) > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > Check out my blog: > _http://princessmatihttp://princessmhttp://prhtt_ > > (http://princessmatildalovestostamp.blogspot.com/) > > > > > > __________________________________________________________ > > Be a better pen pal. > > Text or chat with friends inside Yahoo! Mail. See > how. > > _http://overview.http://overhttp_ > (http://overview.mail.yahoo.com/) > > > > > > > > > > > > > > > > > > **************************************Check out > AOL's list of > 2007's hottest > > products. > > (http://money.aol.com/special/hot-products-2007? > NCID=aoltop00030000000001) > > > > > > [Non-text portions of this message have been > removed] > > > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 , I totally understand hating feeling like your " job " is being a patient. But realize that most people with SB/SCI/SCD died of renal failure, so urological/kidney issues are not the area to put on the back burner. The blood work is good, but my last visit to the uro, he didn't recommend regular urodynamics (which we all hate), but he did recommend regular kidney ultrasounds every 2 years. That might be something you want to add to your blood work checks just to be sure there are no changes in your kidneys. You are only going to see changes in your blood work once there is a problem. The ultrasound can show changes in your kidneys early, before it has progressed to the point that you can see changes in your blood work. Just something to think about and passing along what my uro said. But I TOTALLY get feeling like you go to " work " everyday seeing docs. I typically have a least 1 doc appointment a week, and with 2 PT appointments each week for 1 1/2 hrs, I really do feel like being a patient is my career as of late. Jenn > I worry for my own health because there are certain > things I just don't feel like dealing with. Urological > issues are just one area. I hate seeing doctors, > playing the professional patient. When cathing fixed > my peeing problem, that was it for me. No more urology > stuff. I do get blood work done occasionally to check > for renal issues, but I have no desire to let them > stick electrodes and probes on me and in me to tell me > what I already know - I have no bladder function. > > But when a child has a chance to get some back, I > certainly don't want to be passing along bad info. > Thanks for helping me, Randee!! > > > > > --- Randeejae@... <Randeejae%40aol.com> wrote: > > > > > Yes, you are right! Randee > > > > > > > > In a message dated 11/25/2007 12:02:20 A.M. Eastern > > Standard Time, > > mzw4@... <mzw4%40yahoo.com> writes: > > > > > > > > > > Randee, I'm being dense. I know it. I see that the > > tech told her that her daughter gets a full feeling > > very quickly, but can hold her urine until her > > bladder > > fills to normal capacity, and not leak. And the > > report the NP gave her said she retains some urine, > > which is a whole different issue from what the tech > > brought up. > > > > What am I missing? I get obsessive about things > > like > > this, and if you think I'm just being difficult, > > let > > me know. I really don't mean to be difficult. I > > seriously don't see that both cases can't be true, > > and > > if I'm missing something, I just want to know what. > > > > > > > > --- _Randeejae@... <_Randeejae%40aol.Ran>_ (mailto:Randeejae@...<Randeejae%40aol.com>) > > > wrote: > > > > > > > > The descrepency is what Beth was told by the tech > > > after the exam was > > > complete versus the report that she received from > > > the Nurse Practitioner. Randee > > > > > > > > > > > > In a message dated 11/24/2007 11:15:49 P.M. > > Eastern > > > Standard Time, > > > _mzw4@... <_mzw4%40yahoo.com>_ (mailto:mzw4@...<mzw4%40yahoo.com>) > writes: > > > > > > > > > > > > > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. > > > Eastern > > > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 > > > months, > > > > TC release in May 2007. At 14 months her VCUG > > and > > > > kidney Ultrasounds can back normal. Kidneys > > shape > > > > and > > > > function normal and no reflux noted, she did > > have > > > > stage 1 on left and stage 2 on right when she > > was > > > 6 > > > > months but at 14 months resolved. ok!!!! my > > > > questions > > > > are:::: > > > > > > > > Is this normal procedures for the uro to > > > follow???? > > > > > > > > Should I be worried about her kidneys???? or > > let > > > > time > > > > tell ???? > > > > > > > > The urologist in my town mainly see the nurse > > > > practitioner- --Do anyone else have this going > > > > on??? > > > > > > > > Im curious what time frame of knowing if she > > will > > > > regain full control of her bladder again??? > > > > > > > > Im confused---the urodynamic study tech told > > when > > > > about 20ml was inserted Kenzie started feeling > > > the > > > > urge to pee, however she did hold it and was > > > > continued > > > > to fill her to normal capacity of a child her > > age > > > > and > > > > weight. She was able to hold it with little > > > > leakage. > > > > That what the tech said. > > > > BUT::::: the Nurse practitioner said she is > > > > retaining > > > > urine------can someone resolve form this with > > > > time????? > > > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > > > ************<WBR>*** > > > > AOL's list of 2007's hottest > > > > products. > > > > > > > > > (__http://money.http://money._ > > (http://money.http//money.) > > <_WBhttp://money.WBhttp://money.WBhttp:/_ > > (wbhttp://money.http://monhttp://money.) <WBhttp_ > > > > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money. > <WBhttp_ > > > > > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > ) > > > ) > > > > > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > Check out my blog: > > > > > __http://princessmatihttp://princessmhttp://prince_ > > (http://princessmatihttp//princessmhttp://prhtt_) > > > > > (_http://princessmatihttp://princessmhttp://prhttp_ > > (http://princessmatildalovestostamp.blogspot.com/) ) > > > > > > > > > > > __________________________________________________________ > > > Be a better pen pal. > > > Text or chat with friends inside Yahoo! Mail. See > > > how. > > > __http://overview.http://overview._ > > (http://overview.http//overhttp_) > > > (_http://overview.http://overhttp_ > > (http://overview.mail.yahoo.com/) ) > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > > ************<WBR>*** > > > AOL's list of 2007's hottest > > > products. > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money. > <WBhttp_ > > > > > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > ) > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > Check out my blog: > > _http://princessmatihttp://princessmhttp://prhtt_ > > (http://princessmatildalovestostamp.blogspot.com/) > > > > > __________________________________________________________ > > Never miss a thing. Make Yahoo your home page. > > _http://www.yahoo.http://w_ > > (http://www.yahoo.com/r/hs) > > > > > > > > > > > > 39 > > > > > > **************************************Check out > > AOL's list of 2007's hottest > > products. > > > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > > > > [Non-text portions of this message have been > > removed] > > > > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com > > __________________________________________________________ > Be a better sports nut! Let your teams follow you > with Yahoo Mobile. Try it now. > http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hey Jenn, My uro's have never done blood work or anything except wanted to perform urodynamics before untetherings for baselines. I feel quite stupid - but what would happen to us, just because we self-cath, that would need ultraounds and blood work - in other words, I thought the cathing stopped the issue of possible renal failure, etc.? No? Should I mention something to my uro the next time I go? I've worked with children who have SB (I teach sp.ed.), but I was never told anything about that part of the health as far as risks except that being told directions for cathing (ie: sent to nurse). Thanks, Kathy Re: urinating questions- , I totally understand hating feeling like your " job " is being a patient. But realize that most people with SB/SCI/SCD died of renal failure, so urological/kidney issues are not the area to put on the back burner. The blood work is good, but my last visit to the uro, he didn't recommend regular urodynamics (which we all hate), but he did recommend regular kidney ultrasounds every 2 years. That might be something you want to add to your blood work checks just to be sure there are no changes in your kidneys. You are only going to see changes in your blood work once there is a problem. The ultrasound can show changes in your kidneys early, before it has progressed to the point that you can see changes in your blood work. Just something to think about and passing along what my uro said. But I TOTALLY get feeling like you go to " work " everyday seeing docs. I typically have a least 1 doc appointment a week, and with 2 PT appointments each week for 1 1/2 hrs, I really do feel like being a patient is my career as of late. Jenn > I worry for my own health because there are certain > things I just don't feel like dealing with. Urological > issues are just one area. I hate seeing doctors, > playing the professional patient. When cathing fixed > my peeing problem, that was it for me. No more urology > stuff. I do get blood work done occasionally to check > for renal issues, but I have no desire to let them > stick electrodes and probes on me and in me to tell me > what I already know - I have no bladder function. > > But when a child has a chance to get some back, I > certainly don't want to be passing along bad info. > Thanks for helping me, Randee!! > > > > > --- Randeejae@... <Randeejae%40aol.com> wrote: > > > > > Yes, you are right! Randee > > > > > > > > In a message dated 11/25/2007 12:02:20 A.M. Eastern > > Standard Time, > > mzw4@... <mzw4%40yahoo.com> writes: > > > > > > > > > > Randee, I'm being dense. I know it. I see that the > > tech told her that her daughter gets a full feeling > > very quickly, but can hold her urine until her > > bladder > > fills to normal capacity, and not leak. And the > > report the NP gave her said she retains some urine, > > which is a whole different issue from what the tech > > brought up. > > > > What am I missing? I get obsessive about things > > like > > this, and if you think I'm just being difficult, > > let > > me know. I really don't mean to be difficult. I > > seriously don't see that both cases can't be true, > > and > > if I'm missing something, I just want to know what. > > > > > > > > --- _Randeejae@... <_Randeejae%40aol.Ran>_ (mailto:Randeejae@...<Randeejae%40aol.com>) > > > wrote: > > > > > > > > The descrepency is what Beth was told by the tech > > > after the exam was > > > complete versus the report that she received from > > > the Nurse Practitioner. Randee > > > > > > > > > > > > In a message dated 11/24/2007 11:15:49 P.M. > > Eastern > > > Standard Time, > > > _mzw4@... <_mzw4%40yahoo.com>_ (mailto:mzw4@...<mzw4%40yahoo.com>) > writes: > > > > > > > > > > > > > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. > > > Eastern > > > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 > > > months, > > > > TC release in May 2007. At 14 months her VCUG > > and > > > > kidney Ultrasounds can back normal. Kidneys > > shape > > > > and > > > > function normal and no reflux noted, she did > > have > > > > stage 1 on left and stage 2 on right when she > > was > > > 6 > > > > months but at 14 months resolved. ok!!!! my > > > > questions > > > > are:::: > > > > > > > > Is this normal procedures for the uro to > > > follow???? > > > > > > > > Should I be worried about her kidneys???? or > > let > > > > time > > > > tell ???? > > > > > > > > The urologist in my town mainly see the nurse > > > > practitioner- --Do anyone else have this going > > > > on??? > > > > > > > > Im curious what time frame of knowing if she > > will > > > > regain full control of her bladder again??? > > > > > > > > Im confused---the urodynamic study tech told > > when > > > > about 20ml was inserted Kenzie started feeling > > > the > > > > urge to pee, however she did hold it and was > > > > continued > > > > to fill her to normal capacity of a child her > > age > > > > and > > > > weight. She was able to hold it with little > > > > leakage. > > > > That what the tech said. > > > > BUT::::: the Nurse practitioner said she is > > > > retaining > > > > urine------can someone resolve form this with > > > > time????? > > > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > > > ************<WBR>*** > > > > AOL's list of 2007's hottest > > > > products. > > > > > > > > > (__http://money.http://money._ > > (http://money.http//money.) > > <_WBhttp://money.WBhttp://money.WBhttp:/_ > > (wbhttp://money.http://monhttp://money.) <WBhttp_ > > > > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money. > <WBhttp_ > > > > > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > ) > > > ) > > > > > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > Check out my blog: > > > > > __http://princessmatihttp://princessmhttp://prince_ > > (http://princessmatihttp//princessmhttp://prhtt_) > > > > > (_http://princessmatihttp://princessmhttp://prhttp_ > > (http://princessmatildalovestostamp.blogspot.com/) ) > > > > > > > > > > > __________________________________________________________ > > > Be a better pen pal. > > > Text or chat with friends inside Yahoo! Mail. See > > > how. > > > __http://overview.http://overview._ > > (http://overview.http//overhttp_) > > > (_http://overview.http://overhttp_ > > (http://overview.mail.yahoo.com/) ) > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > > ************<WBR>*** > > > AOL's list of 2007's hottest > > > products. > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money. > <WBhttp_ > > > > > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > ) > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > Check out my blog: > > _http://princessmatihttp://princessmhttp://prhtt_ > > (http://princessmatildalovestostamp.blogspot.com/) > > > > > __________________________________________________________ > > Never miss a thing. Make Yahoo your home page. > > _http://www.yahoo.http://w_ > > (http://www.yahoo.com/r/hs) > > > > > > > > > > > > 39 > > > > > > **************************************Check out > > AOL's list of 2007's hottest > > products. > > > (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > > > > [Non-text portions of this message have been > > removed] > > > > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com > > __________________________________________________________ > Be a better sports nut! Let your teams follow you > with Yahoo Mobile. Try it now. > http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Kathy, The way I gathered it from my uro was that the reason he does a kidney ultrasound every 2 years as a " maintenance " plan (so-to-speak) for people with SCI/D is that while cathing does " fix " our problems and should prevent/stop/reverse any kidney damage such as reflux, it is not perfect. It's not perfect. It's not your body working perfectly. No one cath's perfectly. It is not sterile. No one goes exactly when they should -- ESPECIALLY if you don't have feeling. In that case, you void on a time schedule. And most people I know kind of skip out on that whole limiting your intake part of cathing. If they are thirsty, they drink. If they feel like a grande-super-duper-quadruple-expresso-shot-full-caff-mochaccino from Starbucks, they indulge themselves. The problem is that it kind of screws the pooch with the whole timed void thing (for those who cannot feel). Basically, cathing is a pretty imperfect science at best when humans are performing it and trying to live their lives as normally as possible. So, the point of the kidney ultrasound it so make sure that there isn't any damage going on undetected -- before you see changes in bloodwork, feel pain, experience changes in cathing, etc. If my uro saw some kind of changes on the kidney ultrasound, then he would send me for a new urodynamic study (among other tests) -- to see if pressures in my bladder were getting higher, if I was no longer emptying fully (or even less not fully than before) -- basically find out if there were some changes in the urodynamics that could have caused the changes in the kidneys that he can correct with a change in the cathing regimine -- or if it is something more involved than that. It seems like uro's that do annual or bi-annual testing either do a renal ultrasound or urodynamic study. Most don't do both. Urodynamic studies do tell the person if the cathing they have been doing has been keeping their bladder pressures in check. But when the doc's see the good results on the urodynamic studies, they assume that the kidneys are equally healthy. While I can see the rationale behind that (good bladder should mean good kidneys upstream), there is no guarantee. There is more than reflux that can damage kidneys. He doesn't draw any regular bloodwork. OxybutinXL isn't one of those " blood level " kind of meds. My cardiologist, PCP draw enough blood that he would be covered anyway. I know some people say that their uro's do an annual lab draw. If you have an annual physical with your PCP, that labwork should cover it. I've only had 2 urodynamic studies -- one after between surgery 1 and 2 and one after surgery 3 right before I was discharged from rehab. I never found much use for either of them. They basically just told me what I already knew (I can't pee!!! LOL). As far as in the school, I don't think any of this would come out. As far as the schools are concerned, it is all about cathing -- and getting kids to cath themselves (when age appropriate) and actually getting them to do it and do it properly. As far as the school, the school RN and say, the parapro assigned to the kids with SB, really all they need to know/focus on is the cathing. Cuz, I think you're right in the sense that if you cath properly, everything should be okay. But as I explained above, there are just way too many variables that go into renal health. Cathing is the only one we have control over. Actually, I guess -- intake. I'm surprised that the RNs are not told to focus on monitoring intake with the kids who have no feeling. ESPECIALLY with kids. I mean, if you're on a timed void schedule and you go and drink 1 can of regular coke -- you can forget it. That caffeine will fill your bladder irregularly. Or, if the child goes and drinks 4 glasses of water (and its not after PE where they lost fluid through sweating) then you can through the value of the timed void out the window again. That is how damage occurs despite a person's best efforts. I imagine it can be especially difficult with children. I never realized how valuable the feeling in my bladder was until I was out with a friend and realizing how she really has to watch every drop of liquid she drinks and the amount of caffeine or alcohol -- she has to completely alter her cathing. So do I, but I know when I have to pee. She doesn't -- it will be a wet mess. I hope I explained this well enough. As always, just ask questions if I didn't. Did you have a good Thanksgiving? I got to spend 3 days at an AWESOME mountain resort -- and only $25! Fully accessible. It was so beautiful. If anyone is interested in a mountain resort that is accessible (for the most part -- it is para accessible) is Brasstown Valley Mountain Resort in the N. GA mountains. They have accessible horseback riding, tennis (need your own tennis chair), golf, (I think they have an accessible cart - double check if you are interested). miles of trails (much is paved or flat dirt -- I didn't go on them b/c these were the 3 days all year that GA had rain when we were up there). Jenn > Hey Jenn, > > My uro's have never done blood work or anything except wanted to perform > urodynamics before untetherings for baselines. > > I feel quite stupid - but what would happen to us, just because we > self-cath, that would need ultraounds and blood work - in other words, I > thought the cathing stopped the issue of possible renal failure, etc.? No? > Should I mention something to my uro the next time I go? > > I've worked with children who have SB (I teach sp.ed.), but I was never > told anything about that part of the health as far as risks except that > being told directions for cathing (ie: sent to nurse). > > Thanks, > > Kathy > > Re: urinating questions- > > , > > I totally understand hating feeling like your " job " is being a patient. > But > realize that most people with SB/SCI/SCD died of renal failure, so > urological/kidney issues are not the area to put on the back burner. The > blood work is good, but my last visit to the uro, he didn't recommend > regular urodynamics (which we all hate), but he did recommend regular > kidney > ultrasounds every 2 years. That might be something you want to add to your > blood work checks just to be sure there are no changes in your kidneys. > You > are only going to see changes in your blood work once there is a problem. > The ultrasound can show changes in your kidneys early, before it has > progressed to the point that you can see changes in your blood work. Just > something to think about and passing along what my uro said. But I TOTALLY > get feeling like you go to " work " everyday seeing docs. I typically have a > least 1 doc appointment a week, and with 2 PT appointments each week for 1 > 1/2 hrs, I really do feel like being a patient is my career as of late. > > Jenn > > On Nov 25, 2007 12:14 AM, Weaver <mzw4@...<mzw4%40yahoo.com>> > wrote: > > > I worry for my own health because there are certain > > things I just don't feel like dealing with. Urological > > issues are just one area. I hate seeing doctors, > > playing the professional patient. When cathing fixed > > my peeing problem, that was it for me. No more urology > > stuff. I do get blood work done occasionally to check > > for renal issues, but I have no desire to let them > > stick electrodes and probes on me and in me to tell me > > what I already know - I have no bladder function. > > > > But when a child has a chance to get some back, I > > certainly don't want to be passing along bad info. > > Thanks for helping me, Randee!! > > > > > > > > > > --- Randeejae@... <Randeejae%40aol.com> <Randeejae%40aol.com> wrote: > > > > > > > > Yes, you are right! Randee > > > > > > > > > > > > In a message dated 11/25/2007 12:02:20 A.M. Eastern > > > Standard Time, > > > mzw4@... <mzw4%40yahoo.com> <mzw4%40yahoo.com> writes: > > > > > > > > > > > > > > > Randee, I'm being dense. I know it. I see that the > > > tech told her that her daughter gets a full feeling > > > very quickly, but can hold her urine until her > > > bladder > > > fills to normal capacity, and not leak. And the > > > report the NP gave her said she retains some urine, > > > which is a whole different issue from what the tech > > > brought up. > > > > > > What am I missing? I get obsessive about things > > > like > > > this, and if you think I'm just being difficult, > > > let > > > me know. I really don't mean to be difficult. I > > > seriously don't see that both cases can't be true, > > > and > > > if I'm missing something, I just want to know what. > > > > > > > > > > > > --- _Randeejae@... <_Randeejae%40aol.Ran> <_Randeejae%40aol.Ran>_ > (mailto:Randeejae@... <Randeejae%40aol.com><Randeejae%40aol.com>) > > > > > wrote: > > > > > > > > > > > The descrepency is what Beth was told by the tech > > > > after the exam was > > > > complete versus the report that she received from > > > > the Nurse Practitioner. Randee > > > > > > > > > > > > > > > > In a message dated 11/24/2007 11:15:49 P.M. > > > Eastern > > > > Standard Time, > > > > _mzw4@... <_mzw4%40yahoo.com> <_mzw4%40yahoo.com>_ (mailto: > mzw4@... <mzw4%40yahoo.com><mzw4%40yahoo.com>) > > > writes: > > > > > > > > > > > > > > > > > > > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. > > > > Eastern > > > > > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 > > > > months, > > > > > TC release in May 2007. At 14 months her VCUG > > > and > > > > > kidney Ultrasounds can back normal. Kidneys > > > shape > > > > > and > > > > > function normal and no reflux noted, she did > > > have > > > > > stage 1 on left and stage 2 on right when she > > > was > > > > 6 > > > > > months but at 14 months resolved. ok!!!! my > > > > > questions > > > > > are:::: > > > > > > > > > > Is this normal procedures for the uro to > > > > follow???? > > > > > > > > > > Should I be worried about her kidneys???? or > > > let > > > > > time > > > > > tell ???? > > > > > > > > > > The urologist in my town mainly see the nurse > > > > > practitioner- --Do anyone else have this going > > > > > on??? > > > > > > > > > > Im curious what time frame of knowing if she > > > will > > > > > regain full control of her bladder again??? > > > > > > > > > > Im confused---the urodynamic study tech told > > > when > > > > > about 20ml was inserted Kenzie started feeling > > > > the > > > > > urge to pee, however she did hold it and was > > > > > continued > > > > > to fill her to normal capacity of a child her > > > age > > > > > and > > > > > weight. She was able to hold it with little > > > > > leakage. > > > > > That what the tech said. > > > > > BUT::::: the Nurse practitioner said she is > > > > > retaining > > > > > urine------can someone resolve form this with > > > > > time????? > > > > > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > > > > ************<WBR>*** > > > > > AOL's list of 2007's hottest > > > > > products. > > > > > > > > > > > > (__http://money.http://money._ > > > (http://money.http//money.) > > > <_WBhttp://money.WBhttp://money.WBhttp:/_ > > > (wbhttp://money.http://monhttp://money.) <WBhttp_ > > > > > > > > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money. > > <WBhttp_ > > > > > > > > ( > http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > ) > > > > ) > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > removed] > > > > > > > > > > > > > > > > > > Check out my blog: > > > > > > > __http://princessmatihttp://princessmhttp://prince_ > > > (http://princessmatihttp//princessmhttp://prhtt_) > > > > > > > (_http://princessmatihttp://princessmhttp://prhttp_ > > > (http://princessmatildalovestostamp.blogspot.com/) ) > > > > > > > > > > > > > > > > __________________________________________________________ > > > > Be a better pen pal. > > > > Text or chat with friends inside Yahoo! Mail. See > > > > how. > > > > __http://overview.http://overview._ > > > (http://overview.http//overhttp_) > > > > (_http://overview.http://overhttp_ > > > (http://overview.mail.yahoo.com/) ) > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > > > ************<WBR>*** > > > > AOL's list of 2007's hottest > > > > products. > > > > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money. > > <WBhttp_ > > > > > > > > ( > http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > ) > > > > > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > Check out my blog: > > > _http://princessmatihttp://princessmhttp://prhtt_ > > > (http://princessmatildalovestostamp.blogspot.com/) > > > > > > > > __________________________________________________________ > > > Never miss a thing. Make Yahoo your home page. > > > _http://www.yahoo.http://w_ > > > (http://www.yahoo.com/r/hs) > > > > > > > > > > > > > > > > > > 39 > > > > > > > > > **************************************Check out > > > AOL's list of 2007's hottest > > > products. > > > > > ( > http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com > > > > __________________________________________________________ > > Be a better sports nut! Let your teams follow you > > with Yahoo Mobile. Try it now. > > http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Hey Jenn, Thanksgiving was great because our son was home from college, but because I just started teaching again, I was sick with the flu, icky eye (conj.), and everything else the kids had the previous week ... these first few months of teaching are so wonderful while you build your immunities back up. What has scared me with cathing is the introduction of a foreign matter to the bladder. The uro that initially diagnosed the neurogenic bladder had told me that although cathing would allow me to empty my bladder, instead of the 3-5 tbls that I was able to force out on my own (and now I can't force anything unless it's over full). But, he had said that the foreign body introduced every day as we do can thicken the bladder wall (due to the bladder fighting the introduction or however you would explain this thickening) and it " can " be the cause of bladder cancer for the same reason. That scared me, but no other doctor, beyond the thickening of the bladder wall has confirmed the cancer statement. I would LOVE to go to that mountain retreat. We have actually been looking for an affordable nice play to go for a weekend in the Blue Ridge mountains (about 45 minutes from our home). Every place that looks nice is over 300 a night. Would you send me the information or is it only for people with physical disabilities way beyond what I have? Thanks for the explanations Jenn - I should take better care of myself given what is wrong with me, but I just get so very tired of all the doctor appts., tests, etc. I've only been doing this for ten/eleven years, I don't know how those that have been doing this for their life continue to keep doctor appts and take such good care of themselves.... Kathy Re: urinating questions- > > , > > I totally understand hating feeling like your " job " is being a patient. > But > realize that most people with SB/SCI/SCD died of renal failure, so > urological/kidney issues are not the area to put on the back burner. The > blood work is good, but my last visit to the uro, he didn't recommend > regular urodynamics (which we all hate), but he did recommend regular > kidney > ultrasounds every 2 years. That might be something you want to add to your > blood work checks just to be sure there are no changes in your kidneys. > You > are only going to see changes in your blood work once there is a problem. > The ultrasound can show changes in your kidneys early, before it has > progressed to the point that you can see changes in your blood work. Just > something to think about and passing along what my uro said. But I TOTALLY > get feeling like you go to " work " everyday seeing docs. I typically have a > least 1 doc appointment a week, and with 2 PT appointments each week for 1 > 1/2 hrs, I really do feel like being a patient is my career as of late. > > Jenn > > On Nov 25, 2007 12:14 AM, Weaver <mzw4@...<mzw4%40yahoo.com>> > wrote: > > > I worry for my own health because there are certain > > things I just don't feel like dealing with. Urological > > issues are just one area. I hate seeing doctors, > > playing the professional patient. When cathing fixed > > my peeing problem, that was it for me. No more urology > > stuff. I do get blood work done occasionally to check > > for renal issues, but I have no desire to let them > > stick electrodes and probes on me and in me to tell me > > what I already know - I have no bladder function. > > > > But when a child has a chance to get some back, I > > certainly don't want to be passing along bad info. > > Thanks for helping me, Randee!! > > > > > > > > > > --- Randeejae@... <Randeejae%40aol.com> <Randeejae%40aol.com> wrote: > > > > > > > > Yes, you are right! Randee > > > > > > > > > > > > In a message dated 11/25/2007 12:02:20 A.M. Eastern > > > Standard Time, > > > mzw4@... <mzw4%40yahoo.com> <mzw4%40yahoo.com> writes: > > > > > > > > > > > > > > > Randee, I'm being dense. I know it. I see that the > > > tech told her that her daughter gets a full feeling > > > very quickly, but can hold her urine until her > > > bladder > > > fills to normal capacity, and not leak. And the > > > report the NP gave her said she retains some urine, > > > which is a whole different issue from what the tech > > > brought up. > > > > > > What am I missing? I get obsessive about things > > > like > > > this, and if you think I'm just being difficult, > > > let > > > me know. I really don't mean to be difficult. I > > > seriously don't see that both cases can't be true, > > > and > > > if I'm missing something, I just want to know what. > > > > > > > > > > > > --- _Randeejae@... <_Randeejae%40aol.Ran> <_Randeejae%40aol.Ran>_ > (mailto:Randeejae@... <Randeejae%40aol.com><Randeejae%40aol.com>) > > > > > wrote: > > > > > > > > > > > The descrepency is what Beth was told by the tech > > > > after the exam was > > > > complete versus the report that she received from > > > > the Nurse Practitioner. Randee > > > > > > > > > > > > > > > > In a message dated 11/24/2007 11:15:49 P.M. > > > Eastern > > > > Standard Time, > > > > _mzw4@... <_mzw4%40yahoo.com> <_mzw4%40yahoo.com>_ (mailto: > mzw4@... <mzw4%40yahoo.com><mzw4%40yahoo.com>) > > > writes: > > > > > > > > > > > > > > > > > > > > > > > > > In a message dated 11/24/2007 10:47:19 P.M. > > > > Eastern > > > > > > > > > > BRIEF HISTORY: my daughter is 3yrs old, IA 4 > > > > months, > > > > > TC release in May 2007. At 14 months her VCUG > > > and > > > > > kidney Ultrasounds can back normal. Kidneys > > > shape > > > > > and > > > > > function normal and no reflux noted, she did > > > have > > > > > stage 1 on left and stage 2 on right when she > > > was > > > > 6 > > > > > months but at 14 months resolved. ok!!!! my > > > > > questions > > > > > are:::: > > > > > > > > > > Is this normal procedures for the uro to > > > > follow???? > > > > > > > > > > Should I be worried about her kidneys???? or > > > let > > > > > time > > > > > tell ???? > > > > > > > > > > The urologist in my town mainly see the nurse > > > > > practitioner- --Do anyone else have this going > > > > > on??? > > > > > > > > > > Im curious what time frame of knowing if she > > > will > > > > > regain full control of her bladder again??? > > > > > > > > > > Im confused---the urodynamic study tech told > > > when > > > > > about 20ml was inserted Kenzie started feeling > > > > the > > > > > urge to pee, however she did hold it and was > > > > > continued > > > > > to fill her to normal capacity of a child her > > > age > > > > > and > > > > > weight. She was able to hold it with little > > > > > leakage. > > > > > That what the tech said. > > > > > BUT::::: the Nurse practitioner said she is > > > > > retaining > > > > > urine------can someone resolve form this with > > > > > time????? > > > > > > > > > > Any advice!!!!!! Beth > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > > > > ************<WBR>*** > > > > > AOL's list of 2007's hottest > > > > > products. > > > > > > > > > > > > (__http://money.http://money._ > > > (http://money.http//money.) > > > <_WBhttp://money.WBhttp://money.WBhttp:/_ > > > (wbhttp://money.http://monhttp://money.) <WBhttp_ > > > > > > > > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money. > > <WBhttp_ > > > > > > > > ( > http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > ) > > > > ) > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > removed] > > > > > > > > > > > > > > > > > > Check out my blog: > > > > > > > __http://princessmatihttp://princessmhttp://prince_ > > > (http://princessmatihttp//princessmhttp://prhtt_) > > > > > > > (_http://princessmatihttp://princessmhttp://prhttp_ > > > (http://princessmatildalovestostamp.blogspot.com/) ) > > > > > > > > > > > > > > > > __________________________________________________________ > > > > Be a better pen pal. > > > > Text or chat with friends inside Yahoo! Mail. See > > > > how. > > > > __http://overview.http://overview._ > > > (http://overview.http//overhttp_) > > > > (_http://overview.http://overhttp_ > > > (http://overview.mail.yahoo.com/) ) > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ************ ******** ******** > > > ************<WBR>*** > > > > AOL's list of 2007's hottest > > > > products. > > > > > > > > > (_http://money.http://money.<WBhttp://money.http://monhttp://money. > > <WBhttp_ > > > > > > > > ( > http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > ) > > > > > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > Check out my blog: > > > _http://princessmatihttp://princessmhttp://prhtt_ > > > (http://princessmatildalovestostamp.blogspot.com/) > > > > > > > > __________________________________________________________ > > > Never miss a thing. Make Yahoo your home page. > > > _http://www.yahoo.http://w_ > > > (http://www.yahoo.com/r/hs) > > > > > > > > > > > > > > > > > > 39 > > > > > > > > > **************************************Check out > > > AOL's list of 2007's hottest > > > products. > > > > > ( > http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > Check out my blog: http://princessmatildalovestostamp.blogspot.com > > > > __________________________________________________________ > > Be a better sports nut! Let your teams follow you > > with Yahoo Mobile. Try it now. > > http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > > > > > > Quote Link to comment Share on other sites More sharing options...
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