A quick update from the oddball

[Guest guest]

Hi everyone,

I haven't been posting much, mostly because when there are questions

specifically about RA, I really don't have any answers! I can

generalize, though, when it comes to how to deal with a health

condition that is painful and limiting, since Dercum's Disease falls

into that category!

I saw a new doctor at Indiana U. hospital Friday, and he is

wonderful. He is willing to take an active part in finding some

answers that, if not a cure, could make life a lot better for me and

others with DD. As long as I'm willing to be a guinea pig, he is

willing to try things (within reason, of course.) As soon as

pregabalin (Lyrica) is more readily available, he wants to start me

on that for the pain, and is addressing the genetic possibilities

that might cause DD. I have had one injection of xylocaine/steroid

into one tumor and I have to journal any changes in the size,

consistency, pain level etc.

I have also found a new family doctor, a very nice and caring woman

nearby. My first visit to her will be July 18, but I have heard good

things about her.

Some of the tumors have caused problems with sciatica, so it makes it

difficult for me to sit for very long. But please know that I do try

to read all the posts, and I think of you all often. I'm so glad to

be a part of this family, even if I am an oddball!

Peace,

Judi