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Mike

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Mike,

Sorry to feel that you are not getting any support from the group. I

hope you're not feeling that way because noone answered this post of

yours. Not everyone checks their computers regularly (especially on

the weekends), I've noticed that everyone has been very quiete lately,

and many of us have no answer for your question so have been hesitant

to answer.

I have never heard of this happening....

As for why your friend got better, I can only think of two possible

reasons (and they are only theories). 1) he was perhaps misdiagnosed

(?) so he has improved since being removed from the meds or 2) he was

having some sort of allergic reaction to the meds that he was on and

being removed from them made him feel better. I'm not sure how likely

either of those two answers are - they are just theories...

Did his doc perhaps increase his pred dose?

Mike, I hope you decide not to leave, but if you do, good luck to

you!!!

McK from VA - curently in NM...

> i have a friend with R.A. he was on enbrel mtx. and pred. and alot

of othe meds. and he started to get bumps all over . his rhuemy took

him off everything but pain meds and pred. 20mg. and he is doing

better. no swelling. just pain. the doc told him everything worked

in reverse on him. DUH!!!!! how is this possible. if my doc done that

to me i'd be in a wheelchair. THANK YOU MIKE

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  • 5 months later...

no i haven't but when i go down there again i'll look and see if i can spot his

name there any where.. i go again in dec. 22. which i'll be glad to go because

my back is actting up now . getting kind of worried about it. it gets pretty

painful anymore. later mike

Bobbi <mom2triplets@...> wrote: Mike: I am also from Indiana and I was

referred to Dr. Batt at the

Arthritus Care Center on Senate Blvd in Indy. It is part of the

Clarian Health (Methodist,IU,Riley). Have you ever heard of him? I

was just curious.

Bobbi

Hi everyone! I've read a

little & am really glad I found this group!

>

> I was diagnosed with MS in 1996, RA in 2004. The RA gives me a run

> for my money! I'm SO tired all the time and my whole body

> hurts...like I'm sure you all experience.

>

> I began using marijuana (illegally - it's not 'allowed' in

Indiana)

> approximately 2 months ago...the pain was too much & they don't

make

> a pain medication that helps. I have found great relief in

smoking!

> I don't use it daily...only once or twice a month...usually when

it

> gets to the point where I want someone to shoot me - seriously.

>

> Ironically, I do not suffer much from the MS...I will occasionally

> get the 'dropsies' & have short-term memory issues. I think my

> numbness, which extends from my left leg toes up through a portion

> of my lower back, might actually be caused from the RA. Does

anyone

> else have this numbness? Drives me insane!! I also have a 'lump'

in

> my left foot...that's how it started. It's a large lump &

sometimes

> it's really painful & always feels 'strange' in my shoe.

>

> I am not currently on any medications - for either illness. I

think

> I'm probably going to have to look into starting some preventative

> med's for the RA...I can't imagine trying to work right now, but I

> can't NOT work either. What does everyone know about the med's,

etc.

> & how have they affected you? I pop Excedrin Tension Headache

pills

> like candy...the arthritis is bad in my neck & I have

> headaches/migraines literally every day.

>

> What about SSI/SSDI? I'm mostly functional with 'bouts' of flare-

up.

> I don't know if I would even qualify for this...but I would

> definitely be interested in checking it out. This

particular 'bout'

> has been with me for over 3 months...it starts to get better for a

> few days, then comes back full force. I'm not sure what they base

> who qualifies and who doesn't on. I've lost two jobs in the past

> year because of RA...missed work, etc. I'm not a 'job hopper' so

> this has been really rough for me to accept.

>

> Anyway, that's my story. Any input would be appreciated! I look

> forward to meeting everyone.

>

> Thanks!

> Cami

>

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