Re: A quick update from the oddball

[Guest guest]

This is good news Judi. A caring doctor could make all the difference

in how you feel.

Oh if that injection works and you could have some relief!!!!!

Hopefully he will be a super sleuth and find some answers to this

puzzling disease. I hope your family is well and especially those

grandbabies. We got to see our grandbabies at Disney and it was such a

joy.

I miss them so much. I can't imagine triplets!

a

On Jun 12, 2005, at 2:21 PM, nonny46 wrote:

> Hi everyone,

>

> I haven't been posting much, mostly because when there are questions

> specifically about RA, I really don't have any answers!  I can

> generalize, though, when it comes to how to deal with a health

> condition that is painful and limiting, since Dercum's Disease falls

> into that category!

>

> I saw a new doctor at Indiana U. hospital Friday, and he is

> wonderful.  He is willing to take an active part in finding some

> answers that, if not a cure, could make life a lot better for me and

> others with DD.  As long as I'm willing to be a guinea pig, he is

> willing to try things (within reason, of course.)  As soon as

> pregabalin (Lyrica) is more readily available, he wants to start me

> on that for the pain, and is addressing the genetic possibilities

> that might cause DD.  I have had one injection of xylocaine/steroid

> into one tumor and I have to journal any changes in the size,

> consistency, pain level etc.

>

> I have also found a new family doctor, a very nice and caring woman

> nearby.  My first visit to her will be July 18, but I have heard good

> things about her.

>

> Some of the tumors have caused problems with sciatica, so it makes it

> difficult for me to sit for very long.  But please know that I do try

> to read all the posts, and I think of you all often.  I'm so glad to

> be a part of this family, even if I am an oddball!

>

> Peace,

> Judi

>

>

>

>

>

[Guest guest]

This is good news Judi. A caring doctor could make all the difference

in how you feel.

Oh if that injection works and you could have some relief!!!!!

Hopefully he will be a super sleuth and find some answers to this

puzzling disease. I hope your family is well and especially those

grandbabies. We got to see our grandbabies at Disney and it was such a

joy.

I miss them so much. I can't imagine triplets!

a

On Jun 12, 2005, at 2:21 PM, nonny46 wrote:

> Hi everyone,

>

> I haven't been posting much, mostly because when there are questions

> specifically about RA, I really don't have any answers!  I can

> generalize, though, when it comes to how to deal with a health

> condition that is painful and limiting, since Dercum's Disease falls

> into that category!

>

> I saw a new doctor at Indiana U. hospital Friday, and he is

> wonderful.  He is willing to take an active part in finding some

> answers that, if not a cure, could make life a lot better for me and

> others with DD.  As long as I'm willing to be a guinea pig, he is

> willing to try things (within reason, of course.)  As soon as

> pregabalin (Lyrica) is more readily available, he wants to start me

> on that for the pain, and is addressing the genetic possibilities

> that might cause DD.  I have had one injection of xylocaine/steroid

> into one tumor and I have to journal any changes in the size,

> consistency, pain level etc.

>

> I have also found a new family doctor, a very nice and caring woman

> nearby.  My first visit to her will be July 18, but I have heard good

> things about her.

>

> Some of the tumors have caused problems with sciatica, so it makes it

> difficult for me to sit for very long.  But please know that I do try

> to read all the posts, and I think of you all often.  I'm so glad to

> be a part of this family, even if I am an oddball!

>

> Peace,

> Judi

>

>

>

>

>

[Guest guest]

We have no Oddballs here we all live with pain. I am glad to hear you have found

a new dr.

My prayers will be with you, and your dr to find the right combo of meds for

you.

Trudy

nonny46 <nonny46@...> wrote:

Hi everyone,

I haven't been posting much, mostly because when there are questions

specifically about RA, I really don't have any answers! I can

generalize, though, when it comes to how to deal with a health

condition that is painful and limiting, since Dercum's Disease falls

into that category!

I saw a new doctor at Indiana U. hospital Friday, and he is

wonderful. He is willing to take an active part in finding some

answers that, if not a cure, could make life a lot better for me and

others with DD. As long as I'm willing to be a guinea pig, he is

willing to try things (within reason, of course.) As soon as

pregabalin (Lyrica) is more readily available, he wants to start me

on that for the pain, and is addressing the genetic possibilities

that might cause DD. I have had one injection of xylocaine/steroid

into one tumor and I have to journal any changes in the size,

consistency, pain level etc.

I have also found a new family doctor, a very nice and caring woman

nearby. My first visit to her will be July 18, but I have heard good

things about her.

Some of the tumors have caused problems with sciatica, so it makes it

difficult for me to sit for very long. But please know that I do try

to read all the posts, and I think of you all often. I'm so glad to

be a part of this family, even if I am an oddball!

Peace,

Judi

[Guest guest]

We have no Oddballs here we all live with pain. I am glad to hear you have found

a new dr.

My prayers will be with you, and your dr to find the right combo of meds for

you.

Trudy

nonny46 <nonny46@...> wrote:

Hi everyone,

I haven't been posting much, mostly because when there are questions

specifically about RA, I really don't have any answers! I can

generalize, though, when it comes to how to deal with a health

condition that is painful and limiting, since Dercum's Disease falls

into that category!

I saw a new doctor at Indiana U. hospital Friday, and he is

wonderful. He is willing to take an active part in finding some

answers that, if not a cure, could make life a lot better for me and

others with DD. As long as I'm willing to be a guinea pig, he is

willing to try things (within reason, of course.) As soon as

pregabalin (Lyrica) is more readily available, he wants to start me

on that for the pain, and is addressing the genetic possibilities

that might cause DD. I have had one injection of xylocaine/steroid

into one tumor and I have to journal any changes in the size,

consistency, pain level etc.

I have also found a new family doctor, a very nice and caring woman

nearby. My first visit to her will be July 18, but I have heard good

things about her.

Some of the tumors have caused problems with sciatica, so it makes it

difficult for me to sit for very long. But please know that I do try

to read all the posts, and I think of you all often. I'm so glad to

be a part of this family, even if I am an oddball!

Peace,

Judi