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Joyce

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  • 2 months later...
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Katharine,

The best of luck to you! My SS is in the final

decision stage anmd I should hear within the next

week. I have been denied 3x and have been fighting for

it since 1996. My Dr helped me fill out all my paper

work this time not just his part and I have gotten

farther this time than I ever got before. I have 5 Drs

and several pts and they all ssay I am disabled so ...

I'll Keep my fingers crossed for you (as well as I

can anyway LOL).

Love,

CEDS

--- Blazey50@... wrote:

> Sue and Happy St Patty's to ye also.

>

> My only problem is having to pay the aty $4000 for a

> couple days work. I

> have been existing on $330 a month now for 2 yrs.

> My son lives with me or I

> would have been out on the streets....actually not

> had I not give him so much

> money in 99...so now he feels trapped....he went to

> the movies today and

> never takes me.

>

> I just want a life of some sort.....I went to the

> library today and

> researched how to get my SS and even that book said

> get get an aty...so I

> will.

>

> What makes me SO MAD is because of my problems In

> the Old Days...I would have

> got my butt out and did my own research...but now I

> seem incapable of doing

> that. I Thought that welfare was suppose to work

> for me...but they didn't

> either. So i would have had my SS 2 yrs ago had I

> had the right info to get

> the drs to sign....while I have 3 drs saying now

> that I am disabled....it

> isn't written Properly for SS/

>

> So all of you that are planning on the SS

> process....do research right off

> the bat....learn how to word you " CONFESSIONS " when

> writing why you are

> disabled so as not to Kill you chances. I have

> learned SO MUCH Now...way too

> late.

>

> We shall see in May....Oh I have EDS IV my sister

> also...who had quadruple

> bypass in May...tells me she has to go back for more

> tests...as another

> artery or something is giving out....What gives me

> the hibby geebees....is

> that where they wired her back together....several

> of the wires pulled out

> and she can feel her sternum moving....they say they

> cannot go back in as it

> would kill her... And she is to the point that she

> doesn't care....but she

> too was denied SS.

> Go Figure Thanks for all the

> support.....Katharine

>

>

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  • 5 years later...

Hi Joyce,

Can you tell me why thry turned you down for a transplant? ( medical wise) My dr wants me to lose 60lbs andf stop smoking then get evulated but I kinda feel like you do. I dont know if I'll even qualify, I too had a heart cath done 3 yrs ago and had a 60% blockage then.

Vicky81856 IPH/pf 4/06

This is exactly what they told me at my evaluation. Except I don't smoke. Well, my Pulm. Dr. said that was a nice way of saying you don't qualify...in his opinion. He wants me to get a 2nd evaluatiin. <shrugs>...who knows? We'll see.

kiss kiss,

Ginger

ipf 9/04

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  • 4 weeks later...

I just had a thought. (scary huh. ) next time your Doc frowns about

increasing your O2 , tell him to keep his mouth closed for one min. then

hold his nose.. He'll get the idea.. Love Ya, Peggy

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