Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Hi it has been a while since i have posted. I do read all of the emails daily. you are all in my prayers at all times. I just need to vent today, I have been off all meds since the end of Feb. I lost my ins and cant afford any meds. I am waiting on ins approval through the state welfare program. They keep telling me they want proof of income and I keep telling them I have applied for Disability. They asked me when my disability checks would start. How would I know I applied in Jan. Got 1 phone call in Feb. and that is the last i have heard from them. Should I call them???????? They never even made a Dr. appt for me. I always thought they sent everyone to their Dr. The 12th will be 4 months. Anyeay without meds all I want to do is sleep. Major Flare, My Dr. wants to see me but I cant afford to go. I keep praying this disability process will go fast but I guess it just doesn't Trudy Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Trudy, I'm so sorry you are in limbo, waiting for disability and not being able to see a doctor. Have you tried Medicaid for temporary assistance? http://jfs.ohio.gov/ohp/consumer.stm Some cities have programs for people in your situation. Your doctor probably knows about these programs and may be able to direct you. It's worth a few phone calls to see what assistance you can get until your disability is approved. I'm assuming you applied for Social security disability. Does your state have temporary disability to hold you over? You can also try clinical trials, in which you'll be able to see a doctor and get meds. Most times, it is at no cost to you and you'll be on the same meds most of us are on. I will keep you in my prayers. a On May 4, 2005, at 2:48 PM, tru0204 wrote: > Hi it has been a while since i have posted. I do read all of the > emails daily. you are all in my prayers at all times. I just need to > vent today, I have been off all meds since the end of Feb. I lost my > ins and cant afford any meds. I am waiting on ins approval through the > state welfare program. They keep telling me they want proof of income > and I keep telling them I have applied for Disability. They asked me > when my disability checks would start. How would I know I applied in > Jan. Got 1 phone call in Feb. and that is the last i have heard from > them. Should I call them???????? They never even made a Dr. appt for > me. I always thought they sent everyone to their Dr. The 12th will be > 4 months. Anyeay without meds all I want to do is sleep. Major Flare, > My Dr. wants to see me but I cant afford to go. I keep praying this > disability process will go fast but I guess it just doesn't > > Trudy > Ohio > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Trudy, I'm sooo sorry you are having such a difficult time right now. Losing your insurance is just one more stress you didn't need. I will keep you in my prayers.....Marina > Hi it has been a while since i have posted. I do read all of the > emails daily. you are all in my prayers at all times. I just need to > vent today, I have been off all meds since the end of Feb. I lost my > ins and cant afford any meds. I am waiting on ins approval through the > state welfare program. They keep telling me they want proof of income > and I keep telling them I have applied for Disability. They asked me > when my disability checks would start. How would I know I applied in > Jan. Got 1 phone call in Feb. and that is the last i have heard from > them. Should I call them???????? They never even made a Dr. appt for > me. I always thought they sent everyone to their Dr. The 12th will be > 4 months. Anyeay without meds all I want to do is sleep. Major Flare, > My Dr. wants to see me but I cant afford to go. I keep praying this > disability process will go fast but I guess it just doesn't > > Trudy > Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Trudy: I am praying that everything sorts itself out for you. I am fortunate enough to live in Canada and not have to worry about paying to see a doctor. I am having trouble with paying for my medications though, so I understand what it's like to go without. I find it very frustrating to fill a prescription, not have it work, then have to try something else. I don't have the money to throw away on meds like that. Wish I had more advice on what to do for help. I am crossing my fingers that things will turn around for you. I am in the middle of a flare right now as well, and wish it would end! Hang in there... > Hi it has been a while since i have posted. I do read all of the > emails daily. you are all in my prayers at all times. I just need to > vent today, I have been off all meds since the end of Feb. I lost my > ins and cant afford any meds. I am waiting on ins approval through the > state welfare program. They keep telling me they want proof of income > and I keep telling them I have applied for Disability. They asked me > when my disability checks would start. How would I know I applied in > Jan. Got 1 phone call in Feb. and that is the last i have heard from > them. Should I call them???????? They never even made a Dr. appt for > me. I always thought they sent everyone to their Dr. The 12th will be > 4 months. Anyeay without meds all I want to do is sleep. Major Flare, > My Dr. wants to see me but I cant afford to go. I keep praying this > disability process will go fast but I guess it just doesn't > > Trudy > Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Congratulations to your mother, Steph. My father had a heart transplant and I always think about the young 18 yr old man who made this possible. I wish her well. in PA On Wed, Oct 27, 2010 at 9:48 AM, ~ Kami ~ <kamilleon@...> wrote: > > > , > > I wish I could reach out and give you a great bug hug right now! I wish I > knew what to say to make you feel better! > > First off, let me say CONGRATS TO YOUR MOM! How lucky your mom is to have > received such a gift. I have a family member who was recently taken off the > liver transplant list and it was (and still is) devastating to deal > with..... I wish her a speedy recovery! > > Go back or call the ER and tell them you are still in pain and need more > meds. Why can’t your rheumy or PCP call something in? I guess they would > probably want to see you however you could have the ER fax over the reports. > > Is there any other DMARD you can take while TTC that will help the Remicade > last longer? > > ((((HUG))))) > > *~ Kami ~* > > From: DeNicola- > Sent: Wednesday, October 27, 2010 8:31 AM > < %40> > Subject: [ ] Need to vent > > Hi everyone, > This is Steph in Virginia. I just wanted to vent. For the newbies on the > list, I've been living with RA for 11 years and have been successfully > treated with Remicade for 10.5 of those 11 years. > First, I wanted to share some remarkable news. My mom had been on the NYC > area lung transplant list for 4 years. Last night she received two brand > spankin' new lungs! I am so humbled by the person whose last, selfless act > was to be an organ donor. > Secondly, my need to vent. In June 2009 I stopped methotrexate because my > hubby & I wanted to try and get pregnant. We started trying in September > 2009 and, despite several attempts at IUI, we are still not pregnant. It is > a very depressing cycle, particularly because of my RA. Since I stopped MTX > I can tell that the Remicade is not as effective. As a result, I'm > constantly exhausted. I leave the house at 6:30am for work, get back at > 6:30pm and just do not have any energy to workout on the treadmill we bought > last year. As a result of not working out, being depressed & all the > hormones I have gained 40 pounds in the past year -- not good for my RA or > for my health overall. > On Monday night, for the first time in a long time I actually felt okay so > I decided to run on the treadmill. BAD IDEA! About 10 minutes into it, I > lost my footing & fell face first into the running treadmill. Hubby brought > me to the ER (my first ER visit since I first got sick 11 years ago) where > the doctors said I had severe road rash -- on my face, right arm from elbow > to wrist & both legs from knees to ankles. And I broke my glasses in half! > Now, my reason for venting -- despite the very nice people in the ER, they > completely ignored my knowledge of my body. Even though my tetanus shot is > current, I advised them to give me antibiotics anyway because of my low > immune system. They said it would be fine. They said they would give me > something for the pain (which was awful). I told them I have a high drug > tolerance. They gave me 10 vicodin tablets, which barely touched the pain. > My rheumy and PCP are 60 miles away so I can't ask them for a refill on my > pain meds. My two options are to take lots of Tylenol or ask my fertility > doc (whose office is across the street from my house.) Decisions, decisions. > > Thanks for letting me vent! > Take care, > Steph in VA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 Dear : Great news about your mother, congrats to her, lots of people wait a long time for lungs and its really scary not being able to breathe properly..... OUCH on the treadmill accident. I know roadrash, ugh, it hurts so bad. I had this before and what I did really works for the pain and healing/BURNING/STINGING of road rash. Get one of those big aloe leafs (they sell them in the supermarkets now). Open it up and scoop out the " scum " from the inside. Place that on all your road rash and cover it for two days with gauze and tape and then do it again until it heals, it is very soothing, it will stop the burning/stinging. What I did was to just cut the leaf to the size of the road rash and taped the inside of the leaf right to the wounds. I hope you feel better soon. OKD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 What wonderful news about your mom! YAAY so nice to hear. I hope you get to feeling better. What a terrible ordeal to have gone through. I would ask your fertility doc since they know your med history. If he won't do it then call your other doc and explain. You have the ER report as proof. Wishing you luck in trying to conceive. I wish I could help. --- In , DeNicola- <stephdenicola@...> wrote: > > Hi everyone, > This is Steph in Virginia. I just wanted to vent. For the newbies on the list, I've been living with RA for 11 years and have been successfully treated with Remicade for 10.5 of those 11 years. > First, I wanted to share some remarkable news. My mom had been on the NYC area lung transplant list for 4 years. Last night she received two brand spankin' new lungs! I am so humbled by the person whose last, selfless act was to be an organ donor. > Secondly, my need to vent. In June 2009 I stopped methotrexate because my hubby & I wanted to try and get pregnant. We started trying in September 2009 and, despite several attempts at IUI, we are still not pregnant. It is a very depressing cycle, particularly because of my RA. Since I stopped MTX I can tell that the Remicade is not as effective. As a result, I'm constantly exhausted. I leave the house at 6:30am for work, get back at 6:30pm and just do not have any energy to workout on the treadmill we bought last year. As a result of not working out, being depressed & all the hormones I have gained 40 pounds in the past year -- not good for my RA or for my health overall. > On Monday night, for the first time in a long time I actually felt okay so I decided to run on the treadmill. BAD IDEA! About 10 minutes into it, I lost my footing & fell face first into the running treadmill. Hubby brought me to the ER (my first ER visit since I first got sick 11 years ago) where the doctors said I had severe road rash -- on my face, right arm from elbow to wrist & both legs from knees to ankles. And I broke my glasses in half! > Now, my reason for venting -- despite the very nice people in the ER, they completely ignored my knowledge of my body. Even though my tetanus shot is current, I advised them to give me antibiotics anyway because of my low immune system. They said it would be fine. They said they would give me something for the pain (which was awful). I told them I have a high drug tolerance. They gave me 10 vicodin tablets, which barely touched the pain. > My rheumy and PCP are 60 miles away so I can't ask them for a refill on my pain meds. My two options are to take lots of Tylenol or ask my fertility doc (whose office is across the street from my house.) Decisions, decisions. > > Thanks for letting me vent! > Take care, > Steph in VA > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " Never underestimate the power of a small, dedicated group of people to change the world -- indeed, it's the only thing that ever has. " (Margaret Mead)AmeriCorps Alums -- Still Getting Things Done > Advice for people living with RA -- www.newwayra.com -- click on Real People, Real Stories and from Virginia to see my videos > > > > > > Quote Link to comment Share on other sites More sharing options...
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