Re: Confused Lipomyelomenigocele ect

[Guest guest]

Spina bifida is just a hole in the spine. You can have

spina bifida without the open skin (spina bifida

occulta). Apparently, the lipomeningocele doesn't

have the spinal cord and nerves herniating out into

the opening. Just a lipoma and a hole in the spine

with meninges bulging out (meninges being the spinal

covering, right?>. And saying " just " doesn't mean

it's less damaging, just less words to have to say to

explain it. Lipomyelomeningocele has the hole in the

spine, the lipoma, but it also has the meninges,

spinal cord and/or nerve roots bulging out through the

hole in the spine.

Does that make sense?

--- DK Moulton wrote:

> God, I'm really going to confuse this issue even

> more, but I thought the difference between the two

> lay in the name itself. Lipo " myelomeningocele " is

> when there is a myelomeningocele involved along with

> a lipoma entwined within and around the nerve roots

> and spinal cord " and " the lipoma is intra and extra

> dural (inside and outside of the spinal column.

>

> And, a Lipo " meningocele " does not involves open skin

> (ie: Spina Bifida), but does involve an intra and

> extra dural lipoma.

>

> In other words, Lipomyelomeningocele (sp) is when

> someone has Spina Bifida along with Lipomeningocele

> (intra and extra dural lipoma.)

>

> Ugh..sorry for adding to this confusion. It's

> amazing how we can have these conditions and have

> such little understanding of them, isn't it? But,

> when I read the true definitions of them, they are

> so filled with medical terminology, I get lost and

> before I know it, I've stopped comprehending what

> I'm reading three paragraphs previous to the one I'm

> on.

>

> Kathy

> Re: Re:Confused Lipomyelomenigocele

> ect

>

>

> ,

>

> A lipoma is a fatty tumor. Simple as that. You can

> have a lipoma anywhere on your body. People with

> lipomyelomenigocele and lipomeningocele have

> lipomas

> in their spinal columns. Some sites on the web

> treat

> them as one and the same, but I'm pretty sure they

> are

> different. I have lipomyelomenigocele, a bulging

> (out

> of the spinal column) myelomenigocele with a

> lipoma

> embedded in it, not open to the world. Okay, I

> think

> I just found out the difference. A myelomenigocele

> is

> when the spinal cord and nerve roots are herniated

> into the sac. With meningocele, only the meninges

> are

> herniated through the bony defect (spina bifida):

> http://www.emedicine.com/ped/topic2805.htm.

>

> So one has the spinal cord and/or the nerve roots

> in

> the sac, the other doesn't.

>

>

>

> --- wrote:

>

> > Hi Guys,

> >

> > Well what is a lipoma then??If I have fatty

> filum

> > terminale,lipoma,tethered cord and a

> > tarlov/arachnoid cyst what does

> > all that mean or are some of them the same

> > thing.Could the cyst be the

> > cause of the tether??

> >

> > Regards

> > (Aust)

> >

> >

> > >

> > > I was under the impression that both forms of

> Lipo

> > were closed.

> > > I used to think that both of those were just

> one

> > in the same,

> > > but have learned differently.

> > >

> > > Maybe similar to what I have learned that

> > Lipomyelomenigocele

> > > is similar/conneted to Myelomeningocele, but

> > generally

> > > without the complications, because of the

> > protection of

> > > the Lipoma........?

> > >

> > > Me

> > > Nebraska, USA

> > > mymocha@...

> > >

> > >

> > > >

> > > > I believe though that Lipomylomeningocele is

> a

> > bit of a different

> > > animal, although how it is different I'm not

> 100%

> > certain but I believe

> > >

> > > it's connected to or part of a meningocele.

> > > >

> > >

> >

> >

> >

>

> --Artificial Intelligence is no match for Natural

> Stupidity

>

>

>

__________________________________________________________Be

> a better Globetrotter. Get better travel answers

> from someone who knows. Yahoo! Answers - Check it

> out.

>

>

http://answers.yahoo.com/dir/?link=list & sid=396545469

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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________________________________________________________________________________\

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[Guest guest]

Do you know how long it took me to figure out how to

write it? If it took you four paragraphs worth of

time to say it, you can believe it took me about 3

times longer to figure out an easy way to write it

out. Terminology is confusing, and it's even more

confusing trying to wrap my brain around the subtle

differences in conditions (like what is the difference

between ACM I and II?).

--- DK Moulton wrote:

> Yep, and unfortunately for me, it took me four

> paragraphs trying to get your exact definition

> across, without any luck...ugh...but, you're

> definition of both is my understanding also.

>

> Kathy

> Re: Re:Confused

> Lipomyelomenigocele

> > ect

> >

> >

> > ,

> >

> > A lipoma is a fatty tumor. Simple as that. You

> can

> > have a lipoma anywhere on your body. People with

> > lipomyelomenigocele and lipomeningocele have

> > lipomas

> > in their spinal columns. Some sites on the web

> > treat

> > them as one and the same, but I'm pretty sure

> they

> > are

> > different. I have lipomyelomenigocele, a bulging

> > (out

> > of the spinal column) myelomenigocele with a

> > lipoma

> > embedded in it, not open to the world. Okay, I

> > think

> > I just found out the difference. A

> myelomenigocele

> > is

> > when the spinal cord and nerve roots are

> herniated

> > into the sac. With meningocele, only the

> meninges

> > are

> > herniated through the bony defect (spina

> bifida):

> > http://www.emedicine.com/ped/topic2805.htm.

> >

> > So one has the spinal cord and/or the nerve

> roots

> > in

> > the sac, the other doesn't.

> >

> >

> >

> > --- wrote:

> >

> > > Hi Guys,

> > >

> > > Well what is a lipoma then??If I have fatty

> > filum

> > > terminale,lipoma,tethered cord and a

> > > tarlov/arachnoid cyst what does

> > > all that mean or are some of them the same

> > > thing.Could the cyst be the

> > > cause of the tether??

> > >

> > > Regards

> > > (Aust)

> > >

> > >

> > > >

> > > > I was under the impression that both forms

> of

> > Lipo

> > > were closed.

> > > > I used to think that both of those were just

> > one

> > > in the same,

> > > > but have learned differently.

> > > >

> > > > Maybe similar to what I have learned that

> > > Lipomyelomenigocele

> > > > is similar/conneted to Myelomeningocele, but

> > > generally

> > > > without the complications, because of the

> > > protection of

> > > > the Lipoma........?

> > > >

> > > > Me

> > > > Nebraska, USA

> > > > mymocha@...

> > > >

> > > >

> > > > >

> > > > > I believe though that Lipomylomeningocele

> is

> > a

> > > bit of a different

> > > > animal, although how it is different I'm not

> > 100%

> > > certain but I believe

> > > >

> > > > it's connected to or part of a meningocele.

> > > > >

> > > >

> > >

> > >

> > >

> >

> > --Artificial Intelligence is no match for

> Natural

> > Stupidity

> >

> >

> >

>

>

__________________________________________________________Be

> > a better Globetrotter. Get better travel answers

> > from someone who knows. Yahoo! Answers - Check

> it

> > out.

> >

> >

>

>

http://answers.yahoo.com/dir/?link=list & sid=396545469

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> --Artificial Intelligence is no match for Natural

> Stupidity

>

>

>

__________________________________________________________Get

> the free Yahoo! toolbar and rest assured with the

> added security of spyware protection.

>

>

http://new.toolbar.yahoo.com/toolbar/features/norton/index.php

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

--Artificial Intelligence is no match for Natural Stupidity

________________________________________________________________________________\

____Pinpoint customers who are looking for what you sell.

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[Guest guest]

Here's my 2 cents:

Meningocele (MM):Protrusion of the membranes that

cover the spine and part of the spinal cord through a

bone defect in the vertebral column. MM is due to

failure of closure during embryonic life of bottom end

of the neural tube, the structure which gives rise to

the central nervous system (the brain and spinal

cord). The term spina bifida refers specifically to

the bony defect in the vertebral column through which

the meningeal membrane and cord may protrude (spina

bifida cystica) or may not protrude so that the defect

remains hidden, covered by skin (spina bifida

occulta). However, through usage the term spina bifida

is gradually becoming synonymous with MM. The risk of

MM (and all neural tube defects) can be decreased by

the mother eating ample folic acid during pregnancy.

Lipomyelomeningocele:Clinical features: occult spinal

dysraphism; presence of lipomatous tissue attached to

the dorsal spinal cord, which protrudes through a

spinal defect along with the meninges or spinal cord

to form a posterior mass below the skin, usually in

the lumbosacral region] The four most common markers

for this are all in the lower lumbar region and

include all or some of the following: Hairy Patch,

Deep Dimple, Lipoma, and Hemangioma. this is a very

rare defect aoocrring in about 1 /10,000 births and is

more common in girls.

The differentiation between lipomyelocele and

lipomyelomeningocele is merely based on the degree of

protrusion of neural elements through the posterior

bony opening.

In my daughter's case, the lipoma encroached into the

spinal column through the hole in her sacral wall. It

was there that her spinal cord became tethered to the

lipoma.

I have the pre-op and 1 year post op MRI images if

anyone is interested in seeing them.

Sorry this is so long--hope it is helpful.

Mindy

--- DK Moulton wrote:

> Yep, and unfortunately for me, it took me four

> paragraphs trying to get your exact definition

> across, without any luck...ugh...but, you're

> definition of both is my understanding also.

>

> Kathy

> Re: Re:Confused

> Lipomyelomenigocele

> > ect

> >

> >

> > ,

> >

> > A lipoma is a fatty tumor. Simple as that. You

> can

> > have a lipoma anywhere on your body. People with

> > lipomyelomenigocele and lipomeningocele have

> > lipomas

> > in their spinal columns. Some sites on the web

> > treat

> > them as one and the same, but I'm pretty sure

> they

> > are

> > different. I have lipomyelomenigocele, a bulging

> > (out

> > of the spinal column) myelomenigocele with a

> > lipoma

> > embedded in it, not open to the world. Okay, I

> > think

> > I just found out the difference. A

> myelomenigocele

> > is

> > when the spinal cord and nerve roots are

> herniated

> > into the sac. With meningocele, only the

> meninges

> > are

> > herniated through the bony defect (spina

> bifida):

> > http://www.emedicine.com/ped/topic2805.htm.

> >

> > So one has the spinal cord and/or the nerve

> roots

> > in

> > the sac, the other doesn't.

> >

> >

> >

> > --- wrote:

> >

> > > Hi Guys,

> > >

> > > Well what is a lipoma then??If I have fatty

> > filum

> > > terminale,lipoma,tethered cord and a

> > > tarlov/arachnoid cyst what does

> > > all that mean or are some of them the same

> > > thing.Could the cyst be the

> > > cause of the tether??

> > >

> > > Regards

> > > (Aust)

> > >

> > >

> > > >

> > > > I was under the impression that both forms

> of

> > Lipo

> > > were closed.

> > > > I used to think that both of those were just

> > one

> > > in the same,

> > > > but have learned differently.

> > > >

> > > > Maybe similar to what I have learned that

> > > Lipomyelomenigocele

> > > > is similar/conneted to Myelomeningocele, but

> > > generally

> > > > without the complications, because of the

> > > protection of

> > > > the Lipoma........?

> > > >

> > > > Me

> > > > Nebraska, USA

> > > > mymocha@...

> > > >

> > > >

> > > > >

> > > > > I believe though that Lipomylomeningocele

> is

> > a

> > > bit of a different

> > > > animal, although how it is different I'm not

> > 100%

> > > certain but I believe

> > > >

> > > > it's connected to or part of a meningocele.

> > > > >

> > > >

> > >

> > >

> > >

> >

> > --Artificial Intelligence is no match for

> Natural

> > Stupidity

> >

> >

> >

>

>

__________________________________________________________Be

> > a better Globetrotter. Get better travel answers

> > from someone who knows. Yahoo! Answers - Check

> it

> > out.

> >

> >

>

>

http://answers.yahoo.com/dir/?link=list & sid=396545469

> >

> >

> >

> >

>

=== message truncated ===

[Guest guest]

Mindy,

I didn't realize Lipomyelomenigocle was more common in girls. Thats what my

daughter has.

Anne

----Original Message Follows----

Reply-To: tetheredspinalcord

To: tetheredspinalcord

Subject: Re: Confused Lipomyelomenigocele ect

Date: Thu, 24 May 2007 20:08:58 -0700 (PDT)

Here's my 2 cents:

Meningocele (MM):Protrusion of the membranes that

cover the spine and part of the spinal cord through a

bone defect in the vertebral column. MM is due to

failure of closure during embryonic life of bottom end

of the neural tube, the structure which gives rise to

the central nervous system (the brain and spinal

cord). The term spina bifida refers specifically to

the bony defect in the vertebral column through which

the meningeal membrane and cord may protrude (spina

bifida cystica) or may not protrude so that the defect

remains hidden, covered by skin (spina bifida

occulta). However, through usage the term spina bifida

is gradually becoming synonymous with MM. The risk of

MM (and all neural tube defects) can be decreased by

the mother eating ample folic acid during pregnancy.

Lipomyelomeningocele:Clinical features: occult spinal

dysraphism; presence of lipomatous tissue attached to

the dorsal spinal cord, which protrudes through a

spinal defect along with the meninges or spinal cord

to form a posterior mass below the skin, usually in

the lumbosacral region] The four most common markers

for this are all in the lower lumbar region and

include all or some of the following: Hairy Patch,

Deep Dimple, Lipoma, and Hemangioma. this is a very

rare defect aoocrring in about 1 /10,000 births and is

more common in girls.

The differentiation between lipomyelocele and

lipomyelomeningocele is merely based on the degree of

protrusion of neural elements through the posterior

bony opening.

In my daughter's case, the lipoma encroached into the

spinal column through the hole in her sacral wall. It

was there that her spinal cord became tethered to the

lipoma.

I have the pre-op and 1 year post op MRI images if

anyone is interested in seeing them.

Sorry this is so long--hope it is helpful.

Mindy

--- DK Moulton wrote:

> Yep, and unfortunately for me, it took me four

> paragraphs trying to get your exact definition

> across, without any luck...ugh...but, you're

> definition of both is my understanding also.

>

> Kathy

> Re: Re:Confused

> Lipomyelomenigocele

> > ect

> >

> >

> > ,

> >

> > A lipoma is a fatty tumor. Simple as that. You

> can

> > have a lipoma anywhere on your body. People with

> > lipomyelomenigocele and lipomeningocele have

> > lipomas

> > in their spinal columns. Some sites on the web

> > treat

> > them as one and the same, but I'm pretty sure

> they

> > are

> > different. I have lipomyelomenigocele, a bulging

> > (out

> > of the spinal column) myelomenigocele with a

> > lipoma

> > embedded in it, not open to the world. Okay, I

> > think

> > I just found out the difference. A

> myelomenigocele

> > is

> > when the spinal cord and nerve roots are

> herniated

> > into the sac. With meningocele, only the

> meninges

> > are

> > herniated through the bony defect (spina

> bifida):

> > http://www.emedicine.com/ped/topic2805.htm.

> >

> > So one has the spinal cord and/or the nerve

> roots

> > in

> > the sac, the other doesn't.

> >

> >

> >

> > --- wrote:

> >

> > > Hi Guys,

> > >

> > > Well what is a lipoma then??If I have fatty

> > filum

> > > terminale,lipoma,tethered cord and a

> > > tarlov/arachnoid cyst what does

> > > all that mean or are some of them the same

> > > thing.Could the cyst be the

> > > cause of the tether??

> > >

> > > Regards

> > > (Aust)

> > >

> > >

> > > >

> > > > I was under the impression that both forms

> of

> > Lipo

> > > were closed.

> > > > I used to think that both of those were just

> > one

> > > in the same,

> > > > but have learned differently.

> > > >

> > > > Maybe similar to what I have learned that

> > > Lipomyelomenigocele

> > > > is similar/conneted to Myelomeningocele, but

> > > generally

> > > > without the complications, because of the

> > > protection of

> > > > the Lipoma........?

> > > >

> > > > Me

> > > > Nebraska, USA

> > > > mymocha@...

> > > >

> > > >

> > > > >

> > > > > I believe though that Lipomylomeningocele

> is

> > a

> > > bit of a different

> > > > animal, although how it is different I'm not

> > 100%

> > > certain but I believe

> > > >

> > > > it's connected to or part of a meningocele.

> > > > >

> > > >

> > >

> > >

> > >

> >

> > --Artificial Intelligence is no match for

> Natural

> > Stupidity

> >

> >

> >

>

>

__________________________________________________________Be

> > a better Globetrotter. Get better travel answers

> > from someone who knows. Yahoo! Answers - Check

> it

> > out.

> >

> >

>

>

http://answers.yahoo.com/dir/?link=list & sid=396545469

> >

> >

> >

> >

>

=== message truncated ===

[Guest guest]

Neither involve open skin, to my knowledge. Other then that, I have

heard the same as you.

Brande

mymocha@...

Lipo " myelomeningocele " is when there is a myelomeningocele involved

along with a lipoma entwined within and around the nerve roots and

spinal cord " and " the lipoma is intra and extra dural (inside and

outside of the spinal column.

And, a Lipo " meningocele " does not involves open skin (ie: Spina

Bifida), but does involve an intra and extra dural lipoma.

[Guest guest]

I was a little confused by the statement below " open skin (ie: Spina

Bifida). " Spina bifida does not mean open or closed skin. Spina bifida is

a defect in the bones of the spinal column (or vertebrae). Both

myelomeningocele and meningocele are considered " open " neural tube defects.

They have a " sac " that protrudes through the skin. The difference between

the two is that in myleo- the spinal cord is included in the " sac " in

addition to just the meninges and CSF as in meningocele. These are

different from " closed " NTDs -- that are not " open " to the outside. There

is still an opening in the spinal column, and meninges, CSF, lipoma or

whatever (depending on the persons case) may protrude through the defect in

the spinal canal), but they cannot be seen from the outside (ie: no " sac "

can be seen on the back). Examples of closed NTDs are lipomeningocele,

tethered cord, diastematomyelia).

Check out a Duke site that does a good job of explaining the " tree " of

NTDs. I like it b/c it does not begin with SB or not SB. It begins the

tree with OPEN vs CLOSED. and then moves down the tree from there. The

site is about a clinical trial, but still does a good job.

I pasted the paragraphs that I was talking about below, but if anyone wants

to visit, the site, you can view the whole page at:

http://www.chg.duke.edu/diseases/ntd.html#anchor1

Jenn

What are Neural Tube Defects (NTDs)?

Neural tube defects (NTDs) are one of the most common birth defects,

occurring in approximately one in 1,000 live births in the United States. An

NTD is an opening in the spinal cord or brain that occurs very early in

human development. The early spinal cord of the embryo begins as a flat

region, which rolls into a tube (the neural tube) 28 days after the baby is

conceived. When the neural tube does not close completely, an NTD develops.

NTDs develop before most women know they are even pregnant.

There are two types of NTDs. The most common type are called the open NTDs.

Open NTDs occur when the brain and/or spinal cord are exposed at birth

through a defect in the skull or vertebrae (back bones). Examples of open

NTDs are spina bifida (myelomeningocele), anencephaly, and encephalocele.

Rarer types of NTDs are called closed NTDs. Closed NTDs occur when the

spinal defect is covered by skin. Common examples of closed NTDs are

lipomyelomeningocele, lipomeningocele, and tethered cord.

Lastly, spina bifida occulta (SBO) is potentially another form of an NTD in

which there is a typically benign (or non-symptom-causing) bony change in

one or more vertebrae, but not involving the nerves within the spinal

column. The incidence of SBO is not well defined; however, it is more common

than the NTDs described above. The cause and potential similarities, or,

link to NTDs, has not been established.

>

> Neither involve open skin, to my knowledge. Other then that, I have

> heard the same as you.

>

> Brande

> mymocha@... <mymocha%40charter.net>

>

> Lipo " myelomeningocele " is when there is a myelomeningocele involved

> along with a lipoma entwined within and around the nerve roots and

> spinal cord " and " the lipoma is intra and extra dural (inside and

> outside of the spinal column.

>

> And, a Lipo " meningocele " does not involves open skin (ie: Spina

> Bifida), but does involve an intra and extra dural lipoma.

>

>

>