Re: I need pain management help! Please.

[Guest guest]

Tracie:

I suffered in pain for weeks waiting for my Rheumy appointment. I was

shocked when my Rheumy told me she didn't prescribe triplicate

(narcotic) medications. I had to make another appointment to see my

GP, and wait to get into see him at a later date. After that huge run-

around, I was finally prescribed the pain patch. I too have trouble with

my stomach, so am limited as to what I can take for oral medications. I

found that the patch did provide relief and I had the weakest dose. It

didn't cover all the pain, but it was way better than any other pain killer

I'd tried previously.

I find that when I am in the middle of a flare, I can become so fatigued

because of the non-stop pain my body is in. Try your best to get a pain

prescription that works for you ASAP. You need your rest to stay

healthy and get through this latest flare.

Take care,

> As you know I am trying to get started on the Humira, but came down

> with bronchitis so had to hold off on that. I am on the MTX and

> Prednisone right now, but still have awful pain. I have been on

> Vicoprofen (which is like Vicodin except ibuprofen instead of Tylenol)

> for about six weeks and my PCP is all paranoid about the narcotic

> thing and I am very, very careful with it. She wants to switch me to

> Mobic, but I have horrible stomach problems and am already on

Nexium

> 40 mg a day. I am allergic to sulfa so cannot take Celebrex. I know

> a lot of you are on chronic pain meds, but some doctors are sooooo

> paranoid about it. Should I go to my rheumy about it? Should I ask

> to see a Pain Management specialist until they get my RA

stabilized?

> I am housebound literally between the walking cast and the pain. I go

> nowhere other than the doctors and am having a hard time getting

> around. At this point, I don't care if I have to take the medicine

> for the rest of my life if it means I can at least putter and sleep

> somewhat pain free. Has anyone else run into this or am I some kind

> of freak? You know you can email me and I will try to check for

> responses, but please, I am begging you for advice here. Tracie in

> Maine

[Guest guest]

Tracie:

I suffered in pain for weeks waiting for my Rheumy appointment. I was

shocked when my Rheumy told me she didn't prescribe triplicate

(narcotic) medications. I had to make another appointment to see my

GP, and wait to get into see him at a later date. After that huge run-

around, I was finally prescribed the pain patch. I too have trouble with

my stomach, so am limited as to what I can take for oral medications. I

found that the patch did provide relief and I had the weakest dose. It

didn't cover all the pain, but it was way better than any other pain killer

I'd tried previously.

I find that when I am in the middle of a flare, I can become so fatigued

because of the non-stop pain my body is in. Try your best to get a pain

prescription that works for you ASAP. You need your rest to stay

healthy and get through this latest flare.

Take care,

> As you know I am trying to get started on the Humira, but came down

> with bronchitis so had to hold off on that. I am on the MTX and

> Prednisone right now, but still have awful pain. I have been on

> Vicoprofen (which is like Vicodin except ibuprofen instead of Tylenol)

> for about six weeks and my PCP is all paranoid about the narcotic

> thing and I am very, very careful with it. She wants to switch me to

> Mobic, but I have horrible stomach problems and am already on

Nexium

> 40 mg a day. I am allergic to sulfa so cannot take Celebrex. I know

> a lot of you are on chronic pain meds, but some doctors are sooooo

> paranoid about it. Should I go to my rheumy about it? Should I ask

> to see a Pain Management specialist until they get my RA

stabilized?

> I am housebound literally between the walking cast and the pain. I go

> nowhere other than the doctors and am having a hard time getting

> around. At this point, I don't care if I have to take the medicine

> for the rest of my life if it means I can at least putter and sleep

> somewhat pain free. Has anyone else run into this or am I some kind

> of freak? You know you can email me and I will try to check for

> responses, but please, I am begging you for advice here. Tracie in

> Maine

[Guest guest]

Tracie,

You're not the only one with problems getting pain meds. My old

rheumy wouldn't prescribe narcotics.

I went to 3 different ones, and none would treat my pain. Then I moved

to another state, and the first rheumy I went to wouldn't prescribe

narcotics. He wanted me to go to a pain management clinic. I went to

another rheumy instead, and this one has no problem prescribing

narcotic pain meds. Untreated pain has health consequences, so please

try to find a doctor that will help you. I hope you find one and get

some relief.

a

On Jun 2, 2005, at 11:36 AM, tracierae143 wrote:

> As you know I am trying to get started on the Humira, but came down

> with bronchitis so had to hold off on that.  I am on the MTX and

> Prednisone right now, but still have awful pain.  I have been on

> Vicoprofen (which is like Vicodin except ibuprofen instead of Tylenol)

> for about six weeks and my PCP is all paranoid about the narcotic

> thing and I am very, very careful with it.  She wants to switch me to

> Mobic, but I have horrible stomach problems and am already on Nexium

> 40 mg a day.  I am allergic to sulfa so cannot take Celebrex.  I know

> a lot of you are on chronic pain meds, but some doctors are sooooo

> paranoid about it.  Should I go to my rheumy about it?  Should I ask

> to see a Pain Management specialist until they get my RA stabilized? 

> I am housebound literally between the walking cast and the pain.  I go

> nowhere other than the doctors and am having a hard time getting

> around.  At this point, I don't care if I have to take the medicine

> for the rest of my life if it means I can at least putter and sleep

> somewhat pain free.  Has anyone else run into this or am I some kind

> of freak?  You know you can email me and I will try to check for

> responses, but please, I am begging you for advice here.  Tracie in

> Maine

>

>

>

>

>

>

[Guest guest]

Tracie,

You're not the only one with problems getting pain meds. My old

rheumy wouldn't prescribe narcotics.

I went to 3 different ones, and none would treat my pain. Then I moved

to another state, and the first rheumy I went to wouldn't prescribe

narcotics. He wanted me to go to a pain management clinic. I went to

another rheumy instead, and this one has no problem prescribing

narcotic pain meds. Untreated pain has health consequences, so please

try to find a doctor that will help you. I hope you find one and get

some relief.

a

On Jun 2, 2005, at 11:36 AM, tracierae143 wrote:

> As you know I am trying to get started on the Humira, but came down

> with bronchitis so had to hold off on that.  I am on the MTX and

> Prednisone right now, but still have awful pain.  I have been on

> Vicoprofen (which is like Vicodin except ibuprofen instead of Tylenol)

> for about six weeks and my PCP is all paranoid about the narcotic

> thing and I am very, very careful with it.  She wants to switch me to

> Mobic, but I have horrible stomach problems and am already on Nexium

> 40 mg a day.  I am allergic to sulfa so cannot take Celebrex.  I know

> a lot of you are on chronic pain meds, but some doctors are sooooo

> paranoid about it.  Should I go to my rheumy about it?  Should I ask

> to see a Pain Management specialist until they get my RA stabilized? 

> I am housebound literally between the walking cast and the pain.  I go

> nowhere other than the doctors and am having a hard time getting

> around.  At this point, I don't care if I have to take the medicine

> for the rest of my life if it means I can at least putter and sleep

> somewhat pain free.  Has anyone else run into this or am I some kind

> of freak?  You know you can email me and I will try to check for

> responses, but please, I am begging you for advice here.  Tracie in

> Maine

>

>

>

>

>

>

[Guest guest]

a,

Thank you for your support. I was feeling so alone, but I see now

that this is a major problem for RA patients. It is totally

ridiculous and makes me angry when I stop and think about it. If

the doctors were in our shoes, I think they would think a whole lot

differently about it. I will persist with my rheumy and switch if I

have to. I just won't take no for an answer. I don't want to get

high or anything, I just want to be able to function. I am not even

asking to be completely pain free, but I need to move around a

little. It is not good for me to be this immobile either. Thanks

again to you and everyone who emailed me. Tracie

>

> > As you know I am trying to get started on the Humira, but came

down

> > with bronchitis so had to hold off on that.  I am on the MTX and

> > Prednisone right now, but still have awful pain.  I have been on

> > Vicoprofen (which is like Vicodin except ibuprofen instead of

Tylenol)

> > for about six weeks and my PCP is all paranoid about the

narcotic

> > thing and I am very, very careful with it.  She wants to switch

me to

> > Mobic, but I have horrible stomach problems and am already on

Nexium

> > 40 mg a day.  I am allergic to sulfa so cannot take Celebrex. 

I know

> > a lot of you are on chronic pain meds, but some doctors are

sooooo

> > paranoid about it.  Should I go to my rheumy about it?  Should

I ask

> > to see a Pain Management specialist until they get my RA

stabilized? 

> > I am housebound literally between the walking cast and the

pain.  I go

> > nowhere other than the doctors and am having a hard time getting

> > around.  At this point, I don't care if I have to take the

medicine

> > for the rest of my life if it means I can at least putter and

sleep

> > somewhat pain free.  Has anyone else run into this or am I some

kind

> > of freak?  You know you can email me and I will try to check for

> > responses, but please, I am begging you for advice here. 

Tracie in

> > Maine

> >

> >

> >

> >

> >

> >

[Guest guest]

a,

Thank you for your support. I was feeling so alone, but I see now

that this is a major problem for RA patients. It is totally

ridiculous and makes me angry when I stop and think about it. If

the doctors were in our shoes, I think they would think a whole lot

differently about it. I will persist with my rheumy and switch if I

have to. I just won't take no for an answer. I don't want to get

high or anything, I just want to be able to function. I am not even

asking to be completely pain free, but I need to move around a

little. It is not good for me to be this immobile either. Thanks

again to you and everyone who emailed me. Tracie

>

> > As you know I am trying to get started on the Humira, but came

down

> > with bronchitis so had to hold off on that.  I am on the MTX and

> > Prednisone right now, but still have awful pain.  I have been on

> > Vicoprofen (which is like Vicodin except ibuprofen instead of

Tylenol)

> > for about six weeks and my PCP is all paranoid about the

narcotic

> > thing and I am very, very careful with it.  She wants to switch

me to

> > Mobic, but I have horrible stomach problems and am already on

Nexium

> > 40 mg a day.  I am allergic to sulfa so cannot take Celebrex. 

I know

> > a lot of you are on chronic pain meds, but some doctors are

sooooo

> > paranoid about it.  Should I go to my rheumy about it?  Should

I ask

> > to see a Pain Management specialist until they get my RA

stabilized? 

> > I am housebound literally between the walking cast and the

pain.  I go

> > nowhere other than the doctors and am having a hard time getting

> > around.  At this point, I don't care if I have to take the

medicine

> > for the rest of my life if it means I can at least putter and

sleep

> > somewhat pain free.  Has anyone else run into this or am I some

kind

> > of freak?  You know you can email me and I will try to check for

> > responses, but please, I am begging you for advice here. 

Tracie in

> > Maine

> >

> >

> >

> >

> >

> >