Re: bleeding, bloating and spouses

[Guest guest]

Gracie -

It sounds like Ed's digestive system is out of wack. I take pro-biotics

regularly, and have taken pancreatic enzymes and apple cider vinegar (to

raise the acidic level of the stomach) in the past to deal with various

digestive problems. Most medications have some effect on the balance of

the digestive system. I often refer to a book called Digestive Wellness

which provides an alternative approach to managing digestive problems.

This is another area where I think acupuncture can help alot. Since some

of it could be related to specific foods, one approach is to eliminate

specific items from the diet and observe the results. Ed can then avoid

things that cause problems. There should be no problems with a vegetarian

diet as long as it is properly balance.

My rule of thumb for jaundice is if I'm questioning my skin color I'm

probably at least slightly jaundiced. I look to see if my tan lines have

disappeared. I have a fairly good tan and most people miss my jaundice,

including doctors. My eyes seem to show it last. I've had bili levels as

high as 3.6 without it showing in my eyes. My doctor often checks the

fatty part of my palm near the thumb. I also notice that my urine tends to

take on an orangeish color.

If Ed is feverish alot he probably has cholangitis and it should be treated

with antibiotics. My cholangitis tends to show with night sweats and lots

of short low level fevers. Left unattended it goes ballistic with temps of

+6-8 degrees over norm. The infection could be the cause of both his

fatigue and his bloating. When I get cholangitis I am very fatigued and

the digestive system starts to slow down. I lost 10 pounds during my last

episode, yet constantly felt full. If this is a persistent problem Ed can

stay on the antibiotics indefinitely and it may result in a lot of

improvement. I'm on Cipro all of the time and eat whatever I feel like

(which for me means everything and anything) and maintain activity and

exercise levels that very few of my " healthy " friends can.

Russ

------------------------------------------------------------------------

[Guest guest]

Dan -

I believe the " official " etiologies for PSC and most UC are unknown,

possibly autoimmune. For PSC there is the predominant autoimmune schooland

a less common bacterial or possibly viral school. Some forms of UC seem to

be bacterially induced and I know one patient whose GI diagnosed UC was

resolved with an extended course of antibiotics. Most of the alternative

therapists I've worked with are suspicious of " auto-immune " diseases and

believe that something is going on that we haven't identified.

The thing that annoys me most with doctors is when they tell me to live

without the things I enjoy. It's easy for them to say because they aren't

giving it up. I've resisted every dietary recommendation given to me by a

doctor for either my UC or PSC. I eat vegetables, fruits, dairy products,

spicy food (can't make it hot enough for me), alcohol and junk in whatever

quantities I want, and for the most part always have since my UC started 27

years ago. It annoys my doctors but keeps me happy with no evidence that

it effects either my UC or PSC.

....just a less compliant perspective...

Russ

------------------------------------------------------------------------

[Guest guest]

We need to remember that UC, etc. are autoimmune diseases, not digestive

disorders. I used to be a vegetarian, and still prefer a high

fruit/vegetable diet, but strangely enough, the fruits and vegetables cause

me the most problems (especially raw). This may sound strange, but one of

the things that sits well with me is steak. I don't know anybody with UC

who shares this reaction to meat. Every GI that I've talked to states that

diet is not a factor, except where you personally encounter reactions and

each person reacts differently.

When I'm having a flare up, nothing sits well. I would be chasing reaction

after reaction, until I found this out. I would think it was dairy, bread,

meat, fruit, veggies, air, etc., etc. etc..

I would recommend people who don't feel like eating, eat very small amounts

frequently throughout the day. As you get better, you will find more and

more things tolerable.

Again, my $1.50 worth.

Dan

On Monday, March 15, 1999 4:58 AM, californiaboy@...

[sMTP:californiaboy@...] wrote:

> Gracie -

>

> It sounds like Ed's digestive system is out of wack. I take pro-biotics

> regularly, and have taken pancreatic enzymes and apple cider vinegar (to

> raise the acidic level of the stomach) in the past to deal with various

> digestive problems. Most medications have some effect on the balance of

> the digestive system. I often refer to a book called Digestive Wellness

> which provides an alternative approach to managing digestive problems.

> This is another area where I think acupuncture can help alot. Since some

> of it could be related to specific foods, one approach is to eliminate

> specific items from the diet and observe the results. Ed can then avoid

> things that cause problems. There should be no problems with a vegetarian

> diet as long as it is properly balance.

>

> My rule of thumb for jaundice is if I'm questioning my skin color I'm

> probably at least slightly jaundiced. I look to see if my tan lines have

> disappeared. I have a fairly good tan and most people miss my jaundice,

> including doctors. My eyes seem to show it last. I've had bili levels as

> high as 3.6 without it showing in my eyes. My doctor often checks the

> fatty part of my palm near the thumb. I also notice that my urine tends

to

> take on an orangeish color.

>

> If Ed is feverish alot he probably has cholangitis and it should be

treated

> with antibiotics. My cholangitis tends to show with night sweats and lots

> of short low level fevers. Left unattended it goes ballistic with temps

of

> +6-8 degrees over norm. The infection could be the cause of both his

> fatigue and his bloating. When I get cholangitis I am very fatigued and

> the digestive system starts to slow down. I lost 10 pounds during my last

> episode, yet constantly felt full. If this is a persistent problem Ed can

> stay on the antibiotics indefinitely and it may result in a lot of

> improvement. I'm on Cipro all of the time and eat whatever I feel like

> (which for me means everything and anything) and maintain activity and

> exercise levels that very few of my " healthy " friends can.

>

> Russ

>

>

>

> ------------------------------------------------------------------------

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> Instantly store & access your valuable PC files on the net,

> from any Web browser.

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>

>

[Guest guest]

Dan,

I too can eat steak with no problem. I also have cheese pizza which actually

helps to block me up. I talked with someone else who shared the same reaction

with pizza. Go figure.

Larry

------------------------------------------------------------------------

[Guest guest]

krooner1@... wrote:

> Lately he says the sight of any any protein makes him feel ill. Like

chicken, >steak, or any meat. Is it healthy to start eating a vegetarian diet

with liver >disease?

I've been a vegetarian all my life, and so far it hasn't given me any

problem liverwise... I kind of think that it might actually help, but of

course I don't really know. I've read that animal protien is harder for

the liver to process and thus some people with liver disease are advised

to limit animal products. (sorry don't remember the source for that)

One thing you need to be sure of before going to a vegetarian or near

vegetarian diet is to be sure that your diet is supplying the nutrients

that have been suplied by meat in the past. Most vitamins etc. are

present in vegetable products at high enough levels that there is no

problem for a vegetarian, but a few (B12 for instance) are a bit harder

to get, and you need to be sure you're getting them. Usually, though,

if you eat a relativaly balanced diet, you won't have any problem with

being a vegetarian.

If you'd like more info, let me know.

athan

------------------------------------------------------------------------

[Guest guest]

Dan

I thought that it was not cast in stone the UC or PSC were autoimmune

diseases. I thought that the researchers were leaning in that direction,

however the common link had not been found. Maybe I'm wrong.

Lynn

Re: bleeding, bloating and spouses

>We need to remember that UC, etc. are autoimmune diseases, not digestive

>disorders. I used to be a vegetarian, and still prefer a high

>fruit/vegetable diet, but strangely enough, the fruits and vegetables cause

>me the most problems (especially raw). This may sound strange, but one of

>the things that sits well with me is steak. I don't know anybody with UC

>who shares this reaction to meat. Every GI that I've talked to states that

>diet is not a factor, except where you personally encounter reactions and

>each person reacts differently.

>

>When I'm having a flare up, nothing sits well. I would be chasing reaction

>after reaction, until I found this out. I would think it was dairy, bread,

>meat, fruit, veggies, air, etc., etc. etc..

>

>I would recommend people who don't feel like eating, eat very small amounts

>frequently throughout the day. As you get better, you will find more and

>more things tolerable.

>

>Again, my $1.50 worth.

>

>Dan

>

>On Monday, March 15, 1999 4:58 AM, californiaboy@...

>[sMTP:californiaboy@...] wrote:

>> Gracie -

>>

>> It sounds like Ed's digestive system is out of wack. I take pro-biotics

>> regularly, and have taken pancreatic enzymes and apple cider vinegar (to

>> raise the acidic level of the stomach) in the past to deal with various

>> digestive problems. Most medications have some effect on the balance of

>> the digestive system. I often refer to a book called Digestive Wellness

>> which provides an alternative approach to managing digestive problems.

>> This is another area where I think acupuncture can help alot. Since some

>> of it could be related to specific foods, one approach is to eliminate

>> specific items from the diet and observe the results. Ed can then avoid

>> things that cause problems. There should be no problems with a

vegetarian

>> diet as long as it is properly balance.

>>

>> My rule of thumb for jaundice is if I'm questioning my skin color I'm

>> probably at least slightly jaundiced. I look to see if my tan lines have

>> disappeared. I have a fairly good tan and most people miss my jaundice,

>> including doctors. My eyes seem to show it last. I've had bili levels

as

>> high as 3.6 without it showing in my eyes. My doctor often checks the

>> fatty part of my palm near the thumb. I also notice that my urine tends

>to

>> take on an orangeish color.

>>

>> If Ed is feverish alot he probably has cholangitis and it should be

>treated

>> with antibiotics. My cholangitis tends to show with night sweats and

lots

>> of short low level fevers. Left unattended it goes ballistic with temps

>of

>> +6-8 degrees over norm. The infection could be the cause of both his

>> fatigue and his bloating. When I get cholangitis I am very fatigued and

>> the digestive system starts to slow down. I lost 10 pounds during my

last

>> episode, yet constantly felt full. If this is a persistent problem Ed

can

>> stay on the antibiotics indefinitely and it may result in a lot of

>> improvement. I'm on Cipro all of the time and eat whatever I feel like

>> (which for me means everything and anything) and maintain activity and

>> exercise levels that very few of my " healthy " friends can.

>>

>> Russ

>>

>>

>>

>> ------------------------------------------------------------------------

>> Internet FileZone: Always FREE!

>> Instantly store & access your valuable PC files on the net,

>> from any Web browser.

>> SIGN UP NOW - http://offers./click/235/0

>>

>>

[Guest guest]

Lynn,

You're possibly right. I just think that people treat UC like a stomach

ulcer. I personally have found that diet doesn't play as important a role

in UC as many people imply. My hepatologist told me and I've read in

research that 75% of people with PSC develop UC. If that's the case, it's

not of a digestive tract origin.

Just my $0.02

Dan

On Monday, March 15, 1999 3:23 PM, Vizas [sMTP:vizas@...] wrote:

> Dan

>

> I thought that it was not cast in stone the UC or PSC were autoimmune

> diseases. I thought that the researchers were leaning in that direction,

> however the common link had not been found. Maybe I'm wrong.

>

> Lynn

> Re: bleeding, bloating and spouses

>

>

> >We need to remember that UC, etc. are autoimmune diseases, not digestive

> >disorders. I used to be a vegetarian, and still prefer a high

> >fruit/vegetable diet, but strangely enough, the fruits and vegetables

cause

> >me the most problems (especially raw). This may sound strange, but one

of

> >the things that sits well with me is steak. I don't know anybody with UC

> >who shares this reaction to meat. Every GI that I've talked to states

that

> >diet is not a factor, except where you personally encounter reactions and

> >each person reacts differently.

> >

> >When I'm having a flare up, nothing sits well. I would be chasing

reaction

> >after reaction, until I found this out. I would think it was dairy,

bread,

> >meat, fruit, veggies, air, etc., etc. etc..

> >

> >I would recommend people who don't feel like eating, eat very small

amounts

> >frequently throughout the day. As you get better, you will find more and

> >more things tolerable.

> >

> >Again, my $1.50 worth.

> >

> >Dan

> >

> >On Monday, March 15, 1999 4:58 AM, californiaboy@...

> >[sMTP:californiaboy@...] wrote:

> >> Gracie -

> >>

> >> It sounds like Ed's digestive system is out of wack. I take

pro-biotics

> >> regularly, and have taken pancreatic enzymes and apple cider vinegar

(to

> >> raise the acidic level of the stomach) in the past to deal with various

> >> digestive problems. Most medications have some effect on the balance

of

> >> the digestive system. I often refer to a book called Digestive

Wellness

> >> which provides an alternative approach to managing digestive problems.

> >> This is another area where I think acupuncture can help alot. Since

some

> >> of it could be related to specific foods, one approach is to eliminate

> >> specific items from the diet and observe the results. Ed can then

avoid

> >> things that cause problems. There should be no problems with a

> vegetarian

> >> diet as long as it is properly balance.

> >>

> >> My rule of thumb for jaundice is if I'm questioning my skin color I'm

> >> probably at least slightly jaundiced. I look to see if my tan lines

have

> >> disappeared. I have a fairly good tan and most people miss my

jaundice,

> >> including doctors. My eyes seem to show it last. I've had bili levels

> as

> >> high as 3.6 without it showing in my eyes. My doctor often checks the

> >> fatty part of my palm near the thumb. I also notice that my urine

tends

> >to

> >> take on an orangeish color.

> >>

> >> If Ed is feverish alot he probably has cholangitis and it should be

> >treated

> >> with antibiotics. My cholangitis tends to show with night sweats and

> lots

> >> of short low level fevers. Left unattended it goes ballistic with

temps

> >of

> >> +6-8 degrees over norm. The infection could be the cause of both his

> >> fatigue and his bloating. When I get cholangitis I am very fatigued

and

> >> the digestive system starts to slow down. I lost 10 pounds during my

> last

> >> episode, yet constantly felt full. If this is a persistent problem Ed

> can

> >> stay on the antibiotics indefinitely and it may result in a lot of

> >> improvement. I'm on Cipro all of the time and eat whatever I feel like

> >> (which for me means everything and anything) and maintain activity and

> >> exercise levels that very few of my " healthy " friends can.

> >>

> >> Russ

> >>

> >>

> >>

> >>

------------------------------------------------------------------------

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> >> Instantly store & access your valuable PC files on the net,

> >> from any Web browser.

> >> SIGN UP NOW - http://offers./click/235/0

> >>

> >>

[Guest guest]

Larry,

Ain't it nice that we can eat the good stuff?

Dan

On Monday, March 15, 1999 2:04 PM, OneAVIDman@...

[sMTP:OneAVIDman@...] wrote:

> Dan,

>

> I too can eat steak with no problem. I also have cheese pizza which

actually

> helps to block me up. I talked with someone else who shared the same

reaction

> with pizza. Go figure.

>

> Larry

>

> ------------------------------------------------------------------------

> Internet FileZone: Always FREE!

> Instantly store & access your valuable PC files on the net,

> from any Web browser. http://offers./click/235/0

>

>