Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Hello again to all! I haven't posted for awhile now. I tried once and went to spell check and lost it all and was unable to retype it at that time. I saw my pcp last month and he did some blood work. The same blood work...just to see if the ra factor was still positive. I feel like I'm surrounded by idiots. It came back positive still after three years now. I then went back for my follow up. He won't refer me to a rheumy..says it isn't needed. If I am really in pain then the only choice he is willing to offer is prednisone which makes me freak out. He said then I would have to stay at the mental ward while taking it. Not covered by insurance. I'm so depressed. I'm sick of all the pain and immobility. He wouldn't do ant x-rays on my neck or shoulder. I told him about my loss of mobility in my neck and that I get dizzy if I tilt my head back at all. He said that I must have water in my ears. (didn't bother to look either) Now, I have bronchitis. Says there are no more tests or anything else they can do. My insurance will not cover protonix which is the only thing that helps my stomach after celebrex. I was taking prevacid and got extremely bad and was concerned about an ulcer or something. So, it looks as if I'll be taking over the counter prilosic which doensn't work. Again all they can do. No tests blah, bla, bla. As for my shoulder, he said that testing the fluid wouldn't reveal anything and wasn't worth it. In the last 2 months, now my hand is becoming deformed and he says that I must have injured it and forgot. So, obviously all I got out of the appointment was anger, resentment, and realized that he thinks that it is all in my head. I asked him about the scoliosis, and why it turned up in my early thirties. He said " no " that he has it and I have had it all my life. News to me, my parents and previous doctors. I told him that I would send for previous records and he said no and that he would need to compare the films. Oh, I can take tylenol for my imaginary pain. As for the fatigue, etc... he said then keep moving and do something about it. So, I guess I'm magically cured. Wish I felt that way for sure!!! I get to go see him for a follow up in 2 months! Can hardly wait. Love to all and I sure hope that today is a good day for each and everyone! Kim Pain Martyr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Kim I would be looking for a diffrent dr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Kim I would be looking for a diffrent dr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Hi Kim, I'm so sorry that you are being treated like that by your doctor,(he sounds like a quack-quack.) Can you try to find a new doctor, or rheumy? It seems like he has to refer you to a rheumy. I would not go back to him. You need to see a rheumy, there are many meds they can try you on. You have a right, so don't give up hope. I wil keep you in my prayers, Tawny > Hello again to all! I haven't posted for awhile now. I tried once > and went to spell check and lost it all and was unable to retype it > at that time. I saw my pcp last month and he did some blood work. > The same blood work...just to see if the ra factor was still > positive. I feel like I'm surrounded by idiots. It came back > positive still after three years now. I then went back for my follow > up. He won't refer me to a rheumy..says it isn't needed. If I am > really in pain then the only choice he is willing to offer is > prednisone which makes me freak out. He said then I would have to > stay at the mental ward while taking it. Not covered by insurance. > I'm so depressed. I'm sick of all the pain and immobility. He > wouldn't do ant x-rays on my neck or shoulder. I told him about my > loss of mobility in my neck and that I get dizzy if I tilt my head > back at all. He said that I must have water in my ears. (didn't > bother to look either) Now, I have bronchitis. Says there are no > more tests or anything else they can do. My insurance will not cover > protonix which is the only thing that helps my stomach after > celebrex. I was taking prevacid and got extremely bad and was > concerned about an ulcer or something. So, it looks as if I'll be > taking over the counter prilosic which doensn't work. Again all they > can do. No tests blah, bla, bla. As for my shoulder, he said that > testing the fluid wouldn't reveal anything and wasn't worth it. In > the last 2 months, now my hand is becoming deformed and he says that > I must have injured it and forgot. So, obviously all I got out of > the appointment was anger, resentment, and realized that he thinks > that it is all in my head. I asked him about the scoliosis, and why > it turned up in my early thirties. He said " no " that he has it and > I have had it all my life. News to me, my parents and previous > doctors. I told him that I would send for previous records and he > said no and that he would need to compare the films. Oh, I can take > tylenol for my imaginary pain. As for the fatigue, etc... he said > then keep moving and do something about it. So, I guess I'm > magically cured. Wish I felt that way for sure!!! I get to go see > him for a follow up in 2 months! Can hardly wait. Love to all and I > sure hope that today is a good day for each and everyone! > Kim > Pain Martyr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Hi Kim, I'm so sorry that you are being treated like that by your doctor,(he sounds like a quack-quack.) Can you try to find a new doctor, or rheumy? It seems like he has to refer you to a rheumy. I would not go back to him. You need to see a rheumy, there are many meds they can try you on. You have a right, so don't give up hope. I wil keep you in my prayers, Tawny > Hello again to all! I haven't posted for awhile now. I tried once > and went to spell check and lost it all and was unable to retype it > at that time. I saw my pcp last month and he did some blood work. > The same blood work...just to see if the ra factor was still > positive. I feel like I'm surrounded by idiots. It came back > positive still after three years now. I then went back for my follow > up. He won't refer me to a rheumy..says it isn't needed. If I am > really in pain then the only choice he is willing to offer is > prednisone which makes me freak out. He said then I would have to > stay at the mental ward while taking it. Not covered by insurance. > I'm so depressed. I'm sick of all the pain and immobility. He > wouldn't do ant x-rays on my neck or shoulder. I told him about my > loss of mobility in my neck and that I get dizzy if I tilt my head > back at all. He said that I must have water in my ears. (didn't > bother to look either) Now, I have bronchitis. Says there are no > more tests or anything else they can do. My insurance will not cover > protonix which is the only thing that helps my stomach after > celebrex. I was taking prevacid and got extremely bad and was > concerned about an ulcer or something. So, it looks as if I'll be > taking over the counter prilosic which doensn't work. Again all they > can do. No tests blah, bla, bla. As for my shoulder, he said that > testing the fluid wouldn't reveal anything and wasn't worth it. In > the last 2 months, now my hand is becoming deformed and he says that > I must have injured it and forgot. So, obviously all I got out of > the appointment was anger, resentment, and realized that he thinks > that it is all in my head. I asked him about the scoliosis, and why > it turned up in my early thirties. He said " no " that he has it and > I have had it all my life. News to me, my parents and previous > doctors. I told him that I would send for previous records and he > said no and that he would need to compare the films. Oh, I can take > tylenol for my imaginary pain. As for the fatigue, etc... he said > then keep moving and do something about it. So, I guess I'm > magically cured. Wish I felt that way for sure!!! I get to go see > him for a follow up in 2 months! Can hardly wait. Love to all and I > sure hope that today is a good day for each and everyone! > Kim > Pain Martyr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 At least here in California, you are entitled to a second opinion. Check with your insurance to find out how to get one. If you need a referral, and he won't give you one, call your insurance again and see what you can do. You may be able to go into the emergency room, especially if you are in severe pain, and see if that doctor can order some tests and give some kind of referral (or admit you for tests with a staff rheumatologist). Once you have the second opinion, I found this site for medical malpractice in Kansas. I'm guessing you can contact the medical board NOW to find out what else you can do. Their information is on the site. http://www.fedworkerscomp.net/doctors.htm This guy sounds like a real winner. He probably doesn't like you, or maybe just doesn't like women, or he's just a horse's behind to everyone, but this is NOT how he should respond to patients, and something should, and most likely can, be done. I would also see about changing your pcp. Even if you have to drive a couple of hours, it would be worth it. This is your health we are talking about. Good luck. > Hello again to all! I haven't posted for awhile now. I tried once > and went to spell check and lost it all and was unable to retype it > at that time. I saw my pcp last month and he did some blood work. > The same blood work...just to see if the ra factor was still > positive. I feel like I'm surrounded by idiots. It came back > positive still after three years now. I then went back for my follow > up. He won't refer me to a rheumy..says it isn't needed. If I am > really in pain then the only choice he is willing to offer is > prednisone which makes me freak out. He said then I would have to > stay at the mental ward while taking it. Not covered by insurance. > I'm so depressed. I'm sick of all the pain and immobility. He > wouldn't do ant x-rays on my neck or shoulder. I told him about my > loss of mobility in my neck and that I get dizzy if I tilt my head > back at all. He said that I must have water in my ears. (didn't > bother to look either) Now, I have bronchitis. Says there are no > more tests or anything else they can do. My insurance will not cover > protonix which is the only thing that helps my stomach after > celebrex. I was taking prevacid and got extremely bad and was > concerned about an ulcer or something. So, it looks as if I'll be > taking over the counter prilosic which doensn't work. Again all they > can do. No tests blah, bla, bla. As for my shoulder, he said that > testing the fluid wouldn't reveal anything and wasn't worth it. In > the last 2 months, now my hand is becoming deformed and he says that > I must have injured it and forgot. So, obviously all I got out of > the appointment was anger, resentment, and realized that he thinks > that it is all in my head. I asked him about the scoliosis, and why > it turned up in my early thirties. He said " no " that he has it and > I have had it all my life. News to me, my parents and previous > doctors. I told him that I would send for previous records and he > said no and that he would need to compare the films. Oh, I can take > tylenol for my imaginary pain. As for the fatigue, etc... he said > then keep moving and do something about it. So, I guess I'm > magically cured. Wish I felt that way for sure!!! I get to go see > him for a follow up in 2 months! Can hardly wait. Love to all and I > sure hope that today is a good day for each and everyone! > Kim > Pain Martyr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 At least here in California, you are entitled to a second opinion. Check with your insurance to find out how to get one. If you need a referral, and he won't give you one, call your insurance again and see what you can do. You may be able to go into the emergency room, especially if you are in severe pain, and see if that doctor can order some tests and give some kind of referral (or admit you for tests with a staff rheumatologist). Once you have the second opinion, I found this site for medical malpractice in Kansas. I'm guessing you can contact the medical board NOW to find out what else you can do. Their information is on the site. http://www.fedworkerscomp.net/doctors.htm This guy sounds like a real winner. He probably doesn't like you, or maybe just doesn't like women, or he's just a horse's behind to everyone, but this is NOT how he should respond to patients, and something should, and most likely can, be done. I would also see about changing your pcp. Even if you have to drive a couple of hours, it would be worth it. This is your health we are talking about. Good luck. > Hello again to all! I haven't posted for awhile now. I tried once > and went to spell check and lost it all and was unable to retype it > at that time. I saw my pcp last month and he did some blood work. > The same blood work...just to see if the ra factor was still > positive. I feel like I'm surrounded by idiots. It came back > positive still after three years now. I then went back for my follow > up. He won't refer me to a rheumy..says it isn't needed. If I am > really in pain then the only choice he is willing to offer is > prednisone which makes me freak out. He said then I would have to > stay at the mental ward while taking it. Not covered by insurance. > I'm so depressed. I'm sick of all the pain and immobility. He > wouldn't do ant x-rays on my neck or shoulder. I told him about my > loss of mobility in my neck and that I get dizzy if I tilt my head > back at all. He said that I must have water in my ears. (didn't > bother to look either) Now, I have bronchitis. Says there are no > more tests or anything else they can do. My insurance will not cover > protonix which is the only thing that helps my stomach after > celebrex. I was taking prevacid and got extremely bad and was > concerned about an ulcer or something. So, it looks as if I'll be > taking over the counter prilosic which doensn't work. Again all they > can do. No tests blah, bla, bla. As for my shoulder, he said that > testing the fluid wouldn't reveal anything and wasn't worth it. In > the last 2 months, now my hand is becoming deformed and he says that > I must have injured it and forgot. So, obviously all I got out of > the appointment was anger, resentment, and realized that he thinks > that it is all in my head. I asked him about the scoliosis, and why > it turned up in my early thirties. He said " no " that he has it and > I have had it all my life. News to me, my parents and previous > doctors. I told him that I would send for previous records and he > said no and that he would need to compare the films. Oh, I can take > tylenol for my imaginary pain. As for the fatigue, etc... he said > then keep moving and do something about it. So, I guess I'm > magically cured. Wish I felt that way for sure!!! I get to go see > him for a follow up in 2 months! Can hardly wait. Love to all and I > sure hope that today is a good day for each and everyone! > Kim > Pain Martyr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hi Kim, I agree with everyone else that you should find another rheumy. Your message caught my attention because this is how I feel a lot of the times. I have tried many times here in Atlanta to find someone, and I have been treated badly each time. I once drove 300 miles north of here to see a rheumatologist I liked and could trust, but when I was placed on Enbrel his staff insisted I see someone here. However, I have been terribly unlucky in finding someone I feel can adequately treat me, if that is possible. I usually just end up feeling like a walking medicine cabinet. Also, they all behave as if I have the worst ra they have ever seen. I was once told by a british doctor while being treated abroad that I had a very bad strain or form of ra. he couldn't seem to do much for me either and enbrel wasn't offered there. I have mild to severe deformities in the hands also. It has nothing to do with injuring it and forgetting about it. It's the constant inflammation of the ra. You should really have the xrays done or at least get in to see another rheumatologist at another practice. Also, I was once treated badly because of my insurance coverage and that is the first thing that came to mind when reading your post. Hate to say it but sometimes your insurance coverage can dictate your level of care. Sad, huh? I do wish the best for you. Get a second opinion like someone else here suggested. Take care, Ebony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hi Kim, I agree with everyone else that you should find another rheumy. Your message caught my attention because this is how I feel a lot of the times. I have tried many times here in Atlanta to find someone, and I have been treated badly each time. I once drove 300 miles north of here to see a rheumatologist I liked and could trust, but when I was placed on Enbrel his staff insisted I see someone here. However, I have been terribly unlucky in finding someone I feel can adequately treat me, if that is possible. I usually just end up feeling like a walking medicine cabinet. Also, they all behave as if I have the worst ra they have ever seen. I was once told by a british doctor while being treated abroad that I had a very bad strain or form of ra. he couldn't seem to do much for me either and enbrel wasn't offered there. I have mild to severe deformities in the hands also. It has nothing to do with injuring it and forgetting about it. It's the constant inflammation of the ra. You should really have the xrays done or at least get in to see another rheumatologist at another practice. Also, I was once treated badly because of my insurance coverage and that is the first thing that came to mind when reading your post. Hate to say it but sometimes your insurance coverage can dictate your level of care. Sad, huh? I do wish the best for you. Get a second opinion like someone else here suggested. Take care, Ebony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Kim, I hope you try to find a new Dr. it doesn't sound like he has your best interest. You are in my thoughts and prayers. Try to stay strong. Beth in Arkansas > Hello again to all! I haven't posted for awhile now. I tried once > and went to spell check and lost it all and was unable to retype it > at that time. I saw my pcp last month and he did some blood work. > The same blood work...just to see if the ra factor was still > positive. I feel like I'm surrounded by idiots. It came back > positive still after three years now. I then went back for my follow > up. He won't refer me to a rheumy..says it isn't needed. If I am > really in pain then the only choice he is willing to offer is > prednisone which makes me freak out. He said then I would have to > stay at the mental ward while taking it. Not covered by insurance. > I'm so depressed. I'm sick of all the pain and immobility. He > wouldn't do ant x-rays on my neck or shoulder. I told him about my > loss of mobility in my neck and that I get dizzy if I tilt my head > back at all. He said that I must have water in my ears. (didn't > bother to look either) Now, I have bronchitis. Says there are no > more tests or anything else they can do. My insurance will not cover > protonix which is the only thing that helps my stomach after > celebrex. I was taking prevacid and got extremely bad and was > concerned about an ulcer or something. So, it looks as if I'll be > taking over the counter prilosic which doensn't work. Again all they > can do. No tests blah, bla, bla. As for my shoulder, he said that > testing the fluid wouldn't reveal anything and wasn't worth it. In > the last 2 months, now my hand is becoming deformed and he says that > I must have injured it and forgot. So, obviously all I got out of > the appointment was anger, resentment, and realized that he thinks > that it is all in my head. I asked him about the scoliosis, and why > it turned up in my early thirties. He said " no " that he has it and > I have had it all my life. News to me, my parents and previous > doctors. I told him that I would send for previous records and he > said no and that he would need to compare the films. Oh, I can take > tylenol for my imaginary pain. As for the fatigue, etc... he said > then keep moving and do something about it. So, I guess I'm > magically cured. Wish I felt that way for sure!!! I get to go see > him for a follow up in 2 months! Can hardly wait. Love to all and I > sure hope that today is a good day for each and everyone! > Kim > Pain Martyr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Kim, I hope you try to find a new Dr. it doesn't sound like he has your best interest. You are in my thoughts and prayers. Try to stay strong. Beth in Arkansas > Hello again to all! I haven't posted for awhile now. I tried once > and went to spell check and lost it all and was unable to retype it > at that time. I saw my pcp last month and he did some blood work. > The same blood work...just to see if the ra factor was still > positive. I feel like I'm surrounded by idiots. It came back > positive still after three years now. I then went back for my follow > up. He won't refer me to a rheumy..says it isn't needed. If I am > really in pain then the only choice he is willing to offer is > prednisone which makes me freak out. He said then I would have to > stay at the mental ward while taking it. Not covered by insurance. > I'm so depressed. I'm sick of all the pain and immobility. He > wouldn't do ant x-rays on my neck or shoulder. I told him about my > loss of mobility in my neck and that I get dizzy if I tilt my head > back at all. He said that I must have water in my ears. (didn't > bother to look either) Now, I have bronchitis. Says there are no > more tests or anything else they can do. My insurance will not cover > protonix which is the only thing that helps my stomach after > celebrex. I was taking prevacid and got extremely bad and was > concerned about an ulcer or something. So, it looks as if I'll be > taking over the counter prilosic which doensn't work. Again all they > can do. No tests blah, bla, bla. As for my shoulder, he said that > testing the fluid wouldn't reveal anything and wasn't worth it. In > the last 2 months, now my hand is becoming deformed and he says that > I must have injured it and forgot. So, obviously all I got out of > the appointment was anger, resentment, and realized that he thinks > that it is all in my head. I asked him about the scoliosis, and why > it turned up in my early thirties. He said " no " that he has it and > I have had it all my life. News to me, my parents and previous > doctors. I told him that I would send for previous records and he > said no and that he would need to compare the films. Oh, I can take > tylenol for my imaginary pain. As for the fatigue, etc... he said > then keep moving and do something about it. So, I guess I'm > magically cured. Wish I felt that way for sure!!! I get to go see > him for a follow up in 2 months! Can hardly wait. Love to all and I > sure hope that today is a good day for each and everyone! > Kim > Pain Martyr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Kim, I'm thinking that somebody needs to go to a mental ward, but it sure isn't you, honey! That doc sounds like his elevator ain't going to the top floor. I developed scoliosis after I was 40, due to having psoriatic arthritis. I would find myself another pcp and get a referral to a rheumy which i think a good doc would have no problem giving you. hang in there sweetie. jane > Hello again to all! I haven't posted for awhile now. I tried once > and went to spell check and lost it all and was unable to retype it > at that time. I saw my pcp last month and he did some blood work. > The same blood work...just to see if the ra factor was still > positive. I feel like I'm surrounded by idiots. It came back > positive still after three years now. I then went back for my follow > up. He won't refer me to a rheumy..says it isn't needed. If I am > really in pain then the only choice he is willing to offer is > prednisone which makes me freak out. He said then I would have to > stay at the mental ward while taking it. Not covered by insurance. > I'm so depressed. I'm sick of all the pain and immobility. He > wouldn't do ant x-rays on my neck or shoulder. I told him about my > loss of mobility in my neck and that I get dizzy if I tilt my head > back at all. He said that I must have water in my ears. (didn't > bother to look either) Now, I have bronchitis. Says there are no > more tests or anything else they can do. My insurance will not cover > protonix which is the only thing that helps my stomach after > celebrex. I was taking prevacid and got extremely bad and was > concerned about an ulcer or something. So, it looks as if I'll be > taking over the counter prilosic which doensn't work. Again all they > can do. No tests blah, bla, bla. As for my shoulder, he said that > testing the fluid wouldn't reveal anything and wasn't worth it. In > the last 2 months, now my hand is becoming deformed and he says that > I must have injured it and forgot. So, obviously all I got out of > the appointment was anger, resentment, and realized that he thinks > that it is all in my head. I asked him about the scoliosis, and why > it turned up in my early thirties. He said " no " that he has it and > I have had it all my life. News to me, my parents and previous > doctors. I told him that I would send for previous records and he > said no and that he would need to compare the films. Oh, I can take > tylenol for my imaginary pain. As for the fatigue, etc... he said > then keep moving and do something about it. So, I guess I'm > magically cured. Wish I felt that way for sure!!! I get to go see > him for a follow up in 2 months! Can hardly wait. Love to all and I > sure hope that today is a good day for each and everyone! > Kim > Pain Martyr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Kim, I'm thinking that somebody needs to go to a mental ward, but it sure isn't you, honey! That doc sounds like his elevator ain't going to the top floor. I developed scoliosis after I was 40, due to having psoriatic arthritis. I would find myself another pcp and get a referral to a rheumy which i think a good doc would have no problem giving you. hang in there sweetie. jane > Hello again to all! I haven't posted for awhile now. I tried once > and went to spell check and lost it all and was unable to retype it > at that time. I saw my pcp last month and he did some blood work. > The same blood work...just to see if the ra factor was still > positive. I feel like I'm surrounded by idiots. It came back > positive still after three years now. I then went back for my follow > up. He won't refer me to a rheumy..says it isn't needed. If I am > really in pain then the only choice he is willing to offer is > prednisone which makes me freak out. He said then I would have to > stay at the mental ward while taking it. Not covered by insurance. > I'm so depressed. I'm sick of all the pain and immobility. He > wouldn't do ant x-rays on my neck or shoulder. I told him about my > loss of mobility in my neck and that I get dizzy if I tilt my head > back at all. He said that I must have water in my ears. (didn't > bother to look either) Now, I have bronchitis. Says there are no > more tests or anything else they can do. My insurance will not cover > protonix which is the only thing that helps my stomach after > celebrex. I was taking prevacid and got extremely bad and was > concerned about an ulcer or something. So, it looks as if I'll be > taking over the counter prilosic which doensn't work. Again all they > can do. No tests blah, bla, bla. As for my shoulder, he said that > testing the fluid wouldn't reveal anything and wasn't worth it. In > the last 2 months, now my hand is becoming deformed and he says that > I must have injured it and forgot. So, obviously all I got out of > the appointment was anger, resentment, and realized that he thinks > that it is all in my head. I asked him about the scoliosis, and why > it turned up in my early thirties. He said " no " that he has it and > I have had it all my life. News to me, my parents and previous > doctors. I told him that I would send for previous records and he > said no and that he would need to compare the films. Oh, I can take > tylenol for my imaginary pain. As for the fatigue, etc... he said > then keep moving and do something about it. So, I guess I'm > magically cured. Wish I felt that way for sure!!! I get to go see > him for a follow up in 2 months! Can hardly wait. Love to all and I > sure hope that today is a good day for each and everyone! > Kim > Pain Martyr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 TO: RA IN KANSAS, I AM 45 YEARS OLD, AND I HAVE HAD RHEUMATOID ARTHITIS AND PERIPHERAL NEUROPATHY IN MY FEET AND HANDS AND FIBROMYLAGIA AND IBS FOR 4 YEARS THIS APRIL.... MY RHEUMATOLOGIST, NEUROLOGIST, AND PAIN CONTROL MANAGER WHO IS AN ANESTHESIOLOGIST, THE ONLY DOCTORS WHO ARE TRAINED IN PAIN MANAGEMENT, HAVE ALL RECOMMENDED PREDNISONE IN THE CASES OF RA FLARES. I TAKE 5 MGS. 2 TIMES A DAY FOR 3 DAYS AND 5 MGS. ONCE A DAY FOR 4 DAYS. TO HELP LESSEN THE PAIN OF THE FLARE.... NOTHING ELSE.... I FEEL VERY, EXTREMELY ILL ON PREDNISONE, BUT I STICK THROUGH MY DOCTORS ORDERS AND THE FLARE DOES END. THEY ARE DEBILITATING, MY FAMILY MUST PITCH IN AND DO EVERYTHING, I FEE TERRIBLY GUILTY, BUT IT IS THE WAY OUR LIFE IS NOW. I AM THE ONE THAT ACCEPTS IT ALL THE LEAST. OUR LIVES ARE CHANGED AND I LIVE FOR THE GOOD DAYS. NO ONE THAT I KNOW OF HAS DAYS WHERE THEY ARE PERFECT ALL THE TIME, ESPECIALLY THE GOOD PEOPLE HERE. WE ALL HAVE MANY DAYS OF DARK SUFFERING. THAT IS THE WAY OF IT, IF FIND THAT EVERYONE HERE IS KIND AND HAVE GREAT DIGNITY THROUGH THEIR PERSONAL ORDEALS. I TRY TO EMULATE THEM IN MY OWN HOME, WHEN I AM FLARING, FATIGUE AND WEAKNESS IS A SYMPTOM OF OUR AUTO-IMMUNE DISEASES, TAKING A 10 - 15 NAP OR REST ALOT TIMES IF THE PAIN IS ON A LOW END, CAN HELP ALOT. WHEN AN ALL DAY OF HALF DAY BED REST IS NECESSARY - SO BE IT. BUT, WE ALL HAVE BEEN TOLD THAT THOSE OF US WITH ARTHRITIS, MUST KEEP MOVING, MUST TRY TO WALK AND NOT LET OUR MUSCLES BECOME WEAK OR WE WILL ONLY HAVE THAT MUCH MORE PAIN, AND DIFFICULTY AND WE WILL HAVE MORE WEIGHT GAIN WHICH PUTS MORE STRAIN ON OUR DAMAGED JOINTS....IT IS ESSENTIAL TO MOVE. WALKS, OR POOLS, BUT MOVE..... I ALSO TAKE METHOTREXATE SHOTS ONCE A WEEK AND A FOLIC ACID SUPPLEMENT.... I TRY AND KEEP THINGS AS SIMPLIFIED AS I CAN,SO AS NOT TO UPSET AND MAKE WORRIED MY LOVED ONES... MY NEUROPATHY IS FOR A DIFFERENT SUPPORT GROUP BUT IS EVEN MORE PAINFUL BECAUSE IT IS DUE TO NERVE DAMAGE....MOST OF US HERE, IF WE HAVE ONE AUTO-IMMUNE DISEASE HAVE 2 OR MORE....I AM AMAZED AT THEIR ABILITY TO HELP EACH OTHER AND THEIR COMPASSION AND THEIR CARE FOR EACH OTHER....THIS WAS THE VERY FIRST SUPPORT GROUP THAT I WAS EVER IN, AND I LEARNED MORE HERE ABOUT LIVING WITH WHAT HAD HAPPENED TO ME THAN FROM MY DOCTOR. DOCTORS ARE NOT GODS, AND THEY MUST USE THIER JUDGEMENT AS TO WHO IS REALLY SICK AND NEEDS EXTRA HELP AND TREATMENT AND THOSE WHO ARE NOT... SOMETIMES THEY ARE WRONG, THEY ARE HUMAN, THEY ARE NOT GODS, AND WE SHOULD NOT THINK THEY CAN SOLVE ALL OUR ILLS IN ONE APPOINTMENT. A REPOIRE IS ESTABLISHED WITH A PHYSICIAN AFTER SERVERAL TO MANY VISITS. THAT IS WHY IT IS IMPORTANT TO " GIVE IT TIME " WHEN YOU FIRST MEET A NEW DOCTOR. I AM NOT EXACTLY HAPPY ALL THE TIME WITH MY DOCTOR EITHER, BUT MY PAIN OFTEN CLOUDS MY JUDGEMENT. WHEN THE DUST SETTLES SO TO SPEAK, I FIND HE DID THE RIGHT THING, AND IT WAS UP TO ME TO WORK THROUGH THE PAIN AND TO BE PATIENT, I ALSO HAVE FOUND THAT OTHER REMEDIES HAVE HELPED ME IN CONJUNCTION WITH MY DOCTORS, MEDITATION AND BIO-FEED BACK HAVE WONDERFULLY HELPED CHANGE MY PAIN LEVELS....DON'T LET STRESS OVER TAKE YOU BETTER JUDGEMENT. CINDI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Ebony, The first part of this year my wonderful rheumy moved from Winston-Salem, NC, to Atlanta. I urge you to look him up and get an appointment with him. His name is Dr. Sutej. I don't know where in Atlanta he is located. If you find out, please send me his address. I'd be tempted to go to Atlanta to see him if it wasn't so far. He is compassionate and caring and wants his patients to get better. He encourages them to call him and report their progress or lack of it. He is the best doctor that I've ever had. If you do see him, I'll be jealous. Dr. Wall is the nickname that I've given to the rheumy I'm seeing now, because he has about as much personality as a wall. Keep me posted. Sue > I agree with everyone else that you should find another rheumy. > Your > message caught my attention because this is how I feel a lot of the > times. I have tried many times here in Atlanta to find someone, and > I have been treated badly each time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Ebony, The first part of this year my wonderful rheumy moved from Winston-Salem, NC, to Atlanta. I urge you to look him up and get an appointment with him. His name is Dr. Sutej. I don't know where in Atlanta he is located. If you find out, please send me his address. I'd be tempted to go to Atlanta to see him if it wasn't so far. He is compassionate and caring and wants his patients to get better. He encourages them to call him and report their progress or lack of it. He is the best doctor that I've ever had. If you do see him, I'll be jealous. Dr. Wall is the nickname that I've given to the rheumy I'm seeing now, because he has about as much personality as a wall. Keep me posted. Sue > I agree with everyone else that you should find another rheumy. > Your > message caught my attention because this is how I feel a lot of the > times. I have tried many times here in Atlanta to find someone, and > I have been treated badly each time. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.