Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Dear Sandie: Hi, I am sorry about your pain and difficulty. I understand what it is like. I too have a lot of pain and it is hard for people to understand. Sorry, no one wrote to you but I guess people get busy with their own stuff. I know it is hard for you being you are young 33, is young. I am 57 and have been sick since I was 16 with many things besides RA. I also have a kidney transplant for 20 years and before that I was on dialysis for 18 years. I never married and never had any children. Too sick to even think about those things. Try to focus on the important things that you have and maybe that will help you deal with the pain and difficulty. Sincerely, Colletti Anjillah@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Dear Sandie: Hi, I am sorry about your pain and difficulty. I understand what it is like. I too have a lot of pain and it is hard for people to understand. Sorry, no one wrote to you but I guess people get busy with their own stuff. I know it is hard for you being you are young 33, is young. I am 57 and have been sick since I was 16 with many things besides RA. I also have a kidney transplant for 20 years and before that I was on dialysis for 18 years. I never married and never had any children. Too sick to even think about those things. Try to focus on the important things that you have and maybe that will help you deal with the pain and difficulty. Sincerely, Colletti Anjillah@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Hi Sandie, I would like to just welcome you to the group. I was off line for awhile, and been back for a couple of weeks. I know it must be so hard on you with young children. Do you have time to yourself at all? Maybe someone in the family, could help you out, and do some of the things with the kids that's hard for you, just a thought. We all go in the denial stage, and it's tough. It's hard to find a rheumy, and I hope this new one will be a charm for you. He needs to put you on something to help stop the progression of the RA. Good luck Tuesday, will be praying for you. I will tell you a little about myself. I am 42yrs old, been married for almost 13yrs, and have 2 daughters, 23 and 10, big age difference. My husband is a OTR truck driver so he's gone all the time. So, it's just me, and my 10yr old daughter. It's so hard too. You know kids really don't understand, and sometimes I feel so bad. We live quite a drive from the family, so I don't get any help. My oldest daughter, she is really going through a time. She's been missing for awhile, I do know she is alive, so that is nice to know. She's just doing her thing, and not caring if I worry. I started having problems in 01. I went to a family physician, she just happened to have Lupus. She diagnosed me with Lupus, but she wanted me to see a rheumy. Well, when I went he told me that I had RA, and not Lupus. I started receiving disability in 03, it took a year. I tried a lot of different meds, and still have always felt sick, no relief. I changed rheumy's because of insurance, and went to the new one last month. He diagnosed me with Lupus, and the RA is real bad. So, I'm on Plaquenil right now, it helps Lupus and RA. So, I'm praying it will work. I also take Methotrexate, Lodine, Loratab, Flexeril, and Folic. I just want you to know the group has a lot of nice people. You just kind of have to get use to it all. Sometimes, people don't post if they are not familiar with a type of drug, or a question they really can't answer. But, were all here for the same reason. I've been here almost 2yrs, and it's like my life line. I was so new to RA, and this site helped me so much. You let me know how your visit goes, will keep you in my prayers. If you ever need to talk, I'm always here. I haven't been on the computer much, having a lot of problems with my health. I go to the doctor on Friday, so hope they can help. Their doing an x-ray on my right hip, it's hurting so bad, and doesn't want to work anymore, yikes. But, just know I'm here for you Sandie. I know how devastating this disease is. But, just know that you do have a friend here, and you will find many more. So, take care of yourself, and I will talk to you later. Hugs, Tawny > a, > > Thank you for your response. I wrote in to the group about a month or so ago > and did not hear from anyone. I know this is a very large group and peoples > health depends on replies, so I guess I was just a bit hurt. > I am very new to RA having only been diagnosed in November of last year. I am > 33 with 3 young children(9,3,1) and in constant pain. It kills me that I > can't " push through " and keep going. I was always able to do that in the past. I > also am in some denial about the disease. I keep thinking if i eat the right > things or exercise enough I will be cured. I know, fat chance. > My latest endeavor was the all natural approach. That really didnt pan out > either. I was seeing a terrible RA and finally switched and after waiting a > month and a half, I go on Tuesday. I cant wait. > The reason I joined this group was the wealth of knowledege you have on the > subject. I am one of those people that just don't take meds the doc prescribes > witout researching it first. My last Rheumy did not like the fac thtat I > questioned what he said. So I said bye bye to him. Sorry, it is my body and my > health. At our last visit he got angry but did have xrays ordered on my hands and > feet to see the damage. (it turns out my bones in my left foot are > deteriorating) he then sent me out the door with " take some tylenol for the pain " and " you > know stress plays a big part in RA, maybe you should take up yoga " I , who > was dragging my 3 and 1 year old with me laughed in his face and walked out the > door for good! If tylenol worked, I would never have gone to the doctor to > begin with. > Anyway, sorry to rant. It is so hard to learn to deal with my limitations as > well as my hubby who I love to death but he can't even comprehend the pain I > am in daily. > I do need a group like this so I will hang in there and learn from you all. > > Thanks for listening if you made it this far. > > sandie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Hi Sandie, I would like to just welcome you to the group. I was off line for awhile, and been back for a couple of weeks. I know it must be so hard on you with young children. Do you have time to yourself at all? Maybe someone in the family, could help you out, and do some of the things with the kids that's hard for you, just a thought. We all go in the denial stage, and it's tough. It's hard to find a rheumy, and I hope this new one will be a charm for you. He needs to put you on something to help stop the progression of the RA. Good luck Tuesday, will be praying for you. I will tell you a little about myself. I am 42yrs old, been married for almost 13yrs, and have 2 daughters, 23 and 10, big age difference. My husband is a OTR truck driver so he's gone all the time. So, it's just me, and my 10yr old daughter. It's so hard too. You know kids really don't understand, and sometimes I feel so bad. We live quite a drive from the family, so I don't get any help. My oldest daughter, she is really going through a time. She's been missing for awhile, I do know she is alive, so that is nice to know. She's just doing her thing, and not caring if I worry. I started having problems in 01. I went to a family physician, she just happened to have Lupus. She diagnosed me with Lupus, but she wanted me to see a rheumy. Well, when I went he told me that I had RA, and not Lupus. I started receiving disability in 03, it took a year. I tried a lot of different meds, and still have always felt sick, no relief. I changed rheumy's because of insurance, and went to the new one last month. He diagnosed me with Lupus, and the RA is real bad. So, I'm on Plaquenil right now, it helps Lupus and RA. So, I'm praying it will work. I also take Methotrexate, Lodine, Loratab, Flexeril, and Folic. I just want you to know the group has a lot of nice people. You just kind of have to get use to it all. Sometimes, people don't post if they are not familiar with a type of drug, or a question they really can't answer. But, were all here for the same reason. I've been here almost 2yrs, and it's like my life line. I was so new to RA, and this site helped me so much. You let me know how your visit goes, will keep you in my prayers. If you ever need to talk, I'm always here. I haven't been on the computer much, having a lot of problems with my health. I go to the doctor on Friday, so hope they can help. Their doing an x-ray on my right hip, it's hurting so bad, and doesn't want to work anymore, yikes. But, just know I'm here for you Sandie. I know how devastating this disease is. But, just know that you do have a friend here, and you will find many more. So, take care of yourself, and I will talk to you later. Hugs, Tawny > a, > > Thank you for your response. I wrote in to the group about a month or so ago > and did not hear from anyone. I know this is a very large group and peoples > health depends on replies, so I guess I was just a bit hurt. > I am very new to RA having only been diagnosed in November of last year. I am > 33 with 3 young children(9,3,1) and in constant pain. It kills me that I > can't " push through " and keep going. I was always able to do that in the past. I > also am in some denial about the disease. I keep thinking if i eat the right > things or exercise enough I will be cured. I know, fat chance. > My latest endeavor was the all natural approach. That really didnt pan out > either. I was seeing a terrible RA and finally switched and after waiting a > month and a half, I go on Tuesday. I cant wait. > The reason I joined this group was the wealth of knowledege you have on the > subject. I am one of those people that just don't take meds the doc prescribes > witout researching it first. My last Rheumy did not like the fac thtat I > questioned what he said. So I said bye bye to him. Sorry, it is my body and my > health. At our last visit he got angry but did have xrays ordered on my hands and > feet to see the damage. (it turns out my bones in my left foot are > deteriorating) he then sent me out the door with " take some tylenol for the pain " and " you > know stress plays a big part in RA, maybe you should take up yoga " I , who > was dragging my 3 and 1 year old with me laughed in his face and walked out the > door for good! If tylenol worked, I would never have gone to the doctor to > begin with. > Anyway, sorry to rant. It is so hard to learn to deal with my limitations as > well as my hubby who I love to death but he can't even comprehend the pain I > am in daily. > I do need a group like this so I will hang in there and learn from you all. > > Thanks for listening if you made it this far. > > sandie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Sandie, Just wanted to say hi. I have been diagnosed with RA for almost a year. THis group has really helped me through tough times and still are. I am 31 years old have a 10 year old son and a husband and work a fulltime job with toddlers. The best thing I can say is when you have a second to yourself sit down and relax. Hope you learn as much as I have. I am here if you need someone to talk to Thanks ANgie > a, > > Thank you for your response. I wrote in to the group about a month or so ago > and did not hear from anyone. I know this is a very large group and peoples > health depends on replies, so I guess I was just a bit hurt. > I am very new to RA having only been diagnosed in November of last year. I am > 33 with 3 young children(9,3,1) and in constant pain. It kills me that I > can't " push through " and keep going. I was always able to do that in the past. I > also am in some denial about the disease. I keep thinking if i eat the right > things or exercise enough I will be cured. I know, fat chance. > My latest endeavor was the all natural approach. That really didnt pan out > either. I was seeing a terrible RA and finally switched and after waiting a > month and a half, I go on Tuesday. I cant wait. > The reason I joined this group was the wealth of knowledege you have on the > subject. I am one of those people that just don't take meds the doc prescribes > witout researching it first. My last Rheumy did not like the fac thtat I > questioned what he said. So I said bye bye to him. Sorry, it is my body and my > health. At our last visit he got angry but did have xrays ordered on my hands and > feet to see the damage. (it turns out my bones in my left foot are > deteriorating) he then sent me out the door with " take some tylenol for the pain " and " you > know stress plays a big part in RA, maybe you should take up yoga " I , who > was dragging my 3 and 1 year old with me laughed in his face and walked out the > door for good! If tylenol worked, I would never have gone to the doctor to > begin with. > Anyway, sorry to rant. It is so hard to learn to deal with my limitations as > well as my hubby who I love to death but he can't even comprehend the pain I > am in daily. > I do need a group like this so I will hang in there and learn from you all. > > Thanks for listening if you made it this far. > > sandie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Sandie, Just wanted to say hi. I have been diagnosed with RA for almost a year. THis group has really helped me through tough times and still are. I am 31 years old have a 10 year old son and a husband and work a fulltime job with toddlers. The best thing I can say is when you have a second to yourself sit down and relax. Hope you learn as much as I have. I am here if you need someone to talk to Thanks ANgie > a, > > Thank you for your response. I wrote in to the group about a month or so ago > and did not hear from anyone. I know this is a very large group and peoples > health depends on replies, so I guess I was just a bit hurt. > I am very new to RA having only been diagnosed in November of last year. I am > 33 with 3 young children(9,3,1) and in constant pain. It kills me that I > can't " push through " and keep going. I was always able to do that in the past. I > also am in some denial about the disease. I keep thinking if i eat the right > things or exercise enough I will be cured. I know, fat chance. > My latest endeavor was the all natural approach. That really didnt pan out > either. I was seeing a terrible RA and finally switched and after waiting a > month and a half, I go on Tuesday. I cant wait. > The reason I joined this group was the wealth of knowledege you have on the > subject. I am one of those people that just don't take meds the doc prescribes > witout researching it first. My last Rheumy did not like the fac thtat I > questioned what he said. So I said bye bye to him. Sorry, it is my body and my > health. At our last visit he got angry but did have xrays ordered on my hands and > feet to see the damage. (it turns out my bones in my left foot are > deteriorating) he then sent me out the door with " take some tylenol for the pain " and " you > know stress plays a big part in RA, maybe you should take up yoga " I , who > was dragging my 3 and 1 year old with me laughed in his face and walked out the > door for good! If tylenol worked, I would never have gone to the doctor to > begin with. > Anyway, sorry to rant. It is so hard to learn to deal with my limitations as > well as my hubby who I love to death but he can't even comprehend the pain I > am in daily. > I do need a group like this so I will hang in there and learn from you all. > > Thanks for listening if you made it this far. > > sandie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 No apologies needed for ranting. That is what we're here for. No one understands like fellow RA sufferers. It is hard raising children with RA. I raised 2 and it wasn't easy. Looking back, I just don't know how I did it. I guess I had no choice. When the little ones need you, you find a way to do what you have to do. I had help from family and friends, so that made a big difference. I was diagnosed with RA around 1976 and I STILL believe if I eat the right thing I'll be cured, so I guess I'm in denial too. But that can be a good thing since it keeps me reading and learning. But I do take meds, so I'm not relying on eating the right things for treatment. What did you try for the all natural approach? Were you seeing an alternative doctor? One thing you have going for you is that it's early in your disease, and research is showing that early aggressive treatment is stopping damage. Since I had to have both knees replaced when I was only 43, I can't stress the importance of trying to find the right meds to slow the progression of the disease. I wish these meds were available when I was diagnosed. I also have to research everything and question my doctor. I've had some that don't like to be questioned and others that welcome having a knowledgeable patient. I hope your appointment goes well tomorrow. a On Jun 14, 2005, at 4:42 PM, slmcc93@... wrote: > a, > > Thank you for your response. I wrote in to the group about a month or > so ago > and did not hear from anyone. I know this is a very large group and > peoples > health depends on replies, so I guess I was just a bit hurt. > I am very new to RA having only been diagnosed in November of last > year. I am > 33 with 3 young children(9,3,1) and in constant pain. It kills me > that I > can't " push through " and keep going. I was always able to do that in > the past. I > also am in some denial about the disease. I keep thinking if i eat > the right > things or exercise enough I will be cured. I know, fat chance. > My latest endeavor was the all natural approach. That really didnt > pan out > either. I was seeing a terrible RA and finally switched and after > waiting a > month and a half, I go on Tuesday. I cant wait. > The reason I joined this group was the wealth of knowledege you have > on the > subject. I am one of those people that just don't take meds the doc > prescribes > witout researching it first. My last Rheumy did not like the fac > thtat I > questioned what he said. So I said bye bye to him. Sorry, it is my > body and my > health. At our last visit he got angry but did have xrays ordered on > my hands and > feet to see the damage. (it turns out my bones in my left foot are > deteriorating) he then sent me out the door with " take some tylenol > for the pain " and " you > know stress plays a big part in RA, maybe you should take up yoga " I > , who > was dragging my 3 and 1 year old with me laughed in his face and > walked out the > door for good! If tylenol worked, I would never have gone to the > doctor to > begin with. > Anyway, sorry to rant. It is so hard to learn to deal with my > limitations as > well as my hubby who I love to death but he can't even comprehend the > pain I > am in daily. > I do need a group like this so I will hang in there and learn from > you all. > > Thanks for listening if you made it this far. > > sandie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 No apologies needed for ranting. That is what we're here for. No one understands like fellow RA sufferers. It is hard raising children with RA. I raised 2 and it wasn't easy. Looking back, I just don't know how I did it. I guess I had no choice. When the little ones need you, you find a way to do what you have to do. I had help from family and friends, so that made a big difference. I was diagnosed with RA around 1976 and I STILL believe if I eat the right thing I'll be cured, so I guess I'm in denial too. But that can be a good thing since it keeps me reading and learning. But I do take meds, so I'm not relying on eating the right things for treatment. What did you try for the all natural approach? Were you seeing an alternative doctor? One thing you have going for you is that it's early in your disease, and research is showing that early aggressive treatment is stopping damage. Since I had to have both knees replaced when I was only 43, I can't stress the importance of trying to find the right meds to slow the progression of the disease. I wish these meds were available when I was diagnosed. I also have to research everything and question my doctor. I've had some that don't like to be questioned and others that welcome having a knowledgeable patient. I hope your appointment goes well tomorrow. a On Jun 14, 2005, at 4:42 PM, slmcc93@... wrote: > a, > > Thank you for your response. I wrote in to the group about a month or > so ago > and did not hear from anyone. I know this is a very large group and > peoples > health depends on replies, so I guess I was just a bit hurt. > I am very new to RA having only been diagnosed in November of last > year. I am > 33 with 3 young children(9,3,1) and in constant pain. It kills me > that I > can't " push through " and keep going. I was always able to do that in > the past. I > also am in some denial about the disease. I keep thinking if i eat > the right > things or exercise enough I will be cured. I know, fat chance. > My latest endeavor was the all natural approach. That really didnt > pan out > either. I was seeing a terrible RA and finally switched and after > waiting a > month and a half, I go on Tuesday. I cant wait. > The reason I joined this group was the wealth of knowledege you have > on the > subject. I am one of those people that just don't take meds the doc > prescribes > witout researching it first. My last Rheumy did not like the fac > thtat I > questioned what he said. So I said bye bye to him. Sorry, it is my > body and my > health. At our last visit he got angry but did have xrays ordered on > my hands and > feet to see the damage. (it turns out my bones in my left foot are > deteriorating) he then sent me out the door with " take some tylenol > for the pain " and " you > know stress plays a big part in RA, maybe you should take up yoga " I > , who > was dragging my 3 and 1 year old with me laughed in his face and > walked out the > door for good! If tylenol worked, I would never have gone to the > doctor to > begin with. > Anyway, sorry to rant. It is so hard to learn to deal with my > limitations as > well as my hubby who I love to death but he can't even comprehend the > pain I > am in daily. > I do need a group like this so I will hang in there and learn from > you all. > > Thanks for listening if you made it this far. > > sandie > > > Quote Link to comment Share on other sites More sharing options...
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