retethering after initial surgery

[Guest guest]

In what I have seen/heard I feel the opposite is happening.......that

they wait and see more now. Of course there are many factors

that that can depend on.......but generally, that is the way it has

appeared to me.

I agree, that is very concerning. Seems like some have gotten

away from that viewpoint, but I guess we can't expect everybody

to abandon it, I don't know why, though. lol

Brande

mymocha@...

Back when Kathy and I were diagnosed (mid to late 1990s) the tendency

was to wait and watch almost everyone who was not symptomatic with TC.

Over the years I've seen the trend change to operate when discovered -

and am now observing a slow swing back

One of my concerns is for children who have repeated TC releases - 3,

4, even more(!) before they reach their teens - and their parents are

being told that once their child stops growing, all will be fine. I

worry about the scar tissue increasing with each operation, he

increased risk of archnoiditis, and what will happen to them, when

they do reach adulthood.

[Guest guest]

I just wanted to mention that there doesn't have to be alot of Scar

Tissue for there to be Symptoms present.

Brande

mymocha@...

.. The mri

showed

I was not retethered and that there was very little scar tissue.