Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 I just wanted to say 'hello'......I've written before but only for a short time. And so I'm just wondering how you all are doing?....Kathy, kringlemom, and .....I've had RA for a while and now it's flaring up again. I don't need this , but have been very lucky and used to being in remission. However, a times like these, the pain is disabling me from regular work duties. I'm just glad to be living and working. I'll be fine after a while. My wrist cannot move and I have a brace on. Im just on here sharing thoughts and checking out new medications you've tried. I'm trying to lose some weight which would help my RA..........but its the exercise that will get it off. And yes, I know sometimes even that is impossible. You all have a nice sunday evening..........by the way, have you ever tried the Chat site?..........I couldnt get it to work.......just wondering. But with my flare up , I cannot type too much anyways........You have a good day....!! Sal from West Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hello, Sal. Nice to see you posting again. Sorry that you are flaring. What medications for your RA are you currently taking? The chat feature works, but there usually isn't anyone in the room! If you want to schedule a time for people to meet you to chat, please feel free to do so. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] HELLO ALL! > I just wanted to say 'hello'......I've written before but only > for a short time. And so I'm just wondering how you all are > doing?....Kathy, kringlemom, and .....I've had RA for a while and > now it's flaring up again. I don't need this , but have been very > lucky and used to being in remission. However, a times like these, > the pain is disabling me from regular work duties. I'm just glad to be > living and working. I'll be fine after a while. My wrist cannot move > and I have a brace on. Im just on here sharing thoughts and checking > out new medications you've tried. I'm trying to lose some weight which > would help my RA..........but its the exercise that will get it off. > And yes, I know sometimes even that is impossible. > You all have a nice sunday evening..........by the way, have you > ever tried the Chat site?..........I couldnt get it to work.......just > wondering. > But with my flare up , I cannot type too much anyways........You > have a good day....!! Sal from West Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Good morning to all! Just wondering if anybody else was having trouble reading with this bold font? thanks, corinne wrote: > Hello, Sal. Nice to see you posting again. > > Sorry that you are flaring. What medications for your RA are you > currently > taking? > > The chat feature works, but there usually isn't anyone in the room! If > you > want to schedule a time for people to meet you to chat, please feel > free to > do so. > > > > Not an MD > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] HELLO ALL! > > > > I just wanted to say 'hello'......I've written before but only > > for a short time. And so I'm just wondering how you all are > > doing?....Kathy, kringlemom, and .....I've had RA for a while and > > now it's flaring up again. I don't need this , but have been very > > lucky and used to being in remission. However, a times like these, > > the pain is disabling me from regular work duties. I'm just glad to be > > living and working. I'll be fine after a while. My wrist cannot move > > and I have a brace on. Im just on here sharing thoughts and checking > > out new medications you've tried. I'm trying to lose some weight which > > would help my RA..........but its the exercise that will get it off. > > And yes, I know sometimes even that is impossible. > > You all have a nice sunday evening..........by the way, have you > > ever tried the Chat site?..........I couldnt get it to work.......just > > wondering. > > But with my flare up , I cannot type too much anyways........You > > have a good day....!! Sal from West Virginia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hello, Corinne. The font with which you view your E-mail is under your control through your E-mail program. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] HELLO ALL! >> >> >> > I just wanted to say 'hello'......I've written before but only >> > for a short time. And so I'm just wondering how you all are >> > doing?....Kathy, kringlemom, and .....I've had RA for a while and >> > now it's flaring up again. I don't need this , but have been very >> > lucky and used to being in remission. However, a times like these, >> > the pain is disabling me from regular work duties. I'm just glad to be >> > living and working. I'll be fine after a while. My wrist cannot move >> > and I have a brace on. Im just on here sharing thoughts and checking >> > out new medications you've tried. I'm trying to lose some weight which >> > would help my RA..........but its the exercise that will get it off. >> > And yes, I know sometimes even that is impossible. >> > You all have a nice sunday evening..........by the way, have you >> > ever tried the Chat site?..........I couldnt get it to work.......just >> > wondering. >> > But with my flare up , I cannot type too much anyways........You >> > have a good day....!! Sal from West Virginia >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I have been diagnosed with RA over three years ago. I am at this present moment in no pain at all. I cross my fingers that it stays like this for a long time. Here is what I find confusing....reading lots of emails on this list I see that it is very hard for people in the U S to get strong painkillers. I am on Oxycocet and Oxycotin. My rheumatologist who I see once a week, every week, told me that she don't think anyone should suffer when there are drugs available to stop pain. Why is it so hard for you guys/gals to get pain meds. My heart goes out to all who suffer. I know at least when I get a flare that my painkillers will make the pain go away. gentle hugs, Corinne Corinne Drover wrote: > Good morning to all! > Just wondering if anybody else was having trouble reading with this bold > font? > > thanks, > > corinne > > wrote: > > > Hello, Sal. Nice to see you posting again. > > > > Sorry that you are flaring. What medications for your RA are you > > currently > > taking? > > > > The chat feature works, but there usually isn't anyone in the room! If > > you > > want to schedule a time for people to meet you to chat, please feel > > free to > > do so. > > > > > > > > Not an MD > > > > I'll tell you where to go! > > > > Mayo Clinic in Rochester > > http://www.mayoclinic.org/rochester > > > > s Hopkins Medicine > > http://www.hopkinsmedicine.org > > > > > > [ ] HELLO ALL! > > > > > > > I just wanted to say 'hello'......I've written before but only > > > for a short time. And so I'm just wondering how you all are > > > doing?....Kathy, kringlemom, and .....I've had RA for a while and > > > now it's flaring up again. I don't need this , but have been very > > > lucky and used to being in remission. However, a times like these, > > > the pain is disabling me from regular work duties. I'm just glad > to be > > > living and working. I'll be fine after a while. My wrist cannot move > > > and I have a brace on. Im just on here sharing thoughts and checking > > > out new medications you've tried. I'm trying to lose some weight > which > > > would help my RA..........but its the exercise that will get it off. > > > And yes, I know sometimes even that is impossible. > > > You all have a nice sunday evening..........by the way, have you > > > ever tried the Chat site?..........I couldnt get it to work.......just > > > wondering. > > > But with my flare up , I cannot type too much anyways........You > > > have a good day....!! Sal from West Virginia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Hi Angel I was diagnosed when I was 40 about 3 yrs ago and I think I had it maybe a few years before that but they kept saying it was osteo arthritis. Walking was a problem and still is because of the swelling in my feet and ankles. My shoulder and clavicle area also bothered me but that has cleared up for the most part with the meds. But the feet are still a problem. Joy Angel <angelcraw4d@...> wrote: Hi, I am new here...should have signed up a long time ago, though... I have RA and was diagnosed in 2003...although I had symptoms for a year and a half before I went to a doctor...I know bad idea but had no insurance at the time due to hubby getting laid off (twice no less!) from his company. I was about 32 or 33 when my first symptoms appeared...and by the time of my diagnosis in Jan 2003 at 34...I had trouble walking and could barely brush my own or my daughters hair (she was 5 at the time). What I am curious about is at what age some of you were diagnosed and what was the first things it really affected in your lives? Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 I have a --lot-- of fatigue, too...my husband thinks I am just lazy even though the house/kids are clean and taken care of... I knew from the time I was a kid I would have RA...my mom has it...she was diagnosed in her 40's and also has IBS(lost part of her intetines already)and LUPUS and she is almost totally bed bound now and only 58! She probably sleeps 15-20 hours now...and my dad says she is just lazy even told her doctor that!!! Course the doctor looked at him like he was from another planet! My mothers dad had RA too and it was bad...so I knew it was coming...just hoped that my kids would be grown first...:-( Before the meds it was in both hands, both wrists, both feet and both ankles...some days I would sit on the stairs and scoot down on my but to get down the stairs! One fine Sunday morn I got ready for church, we left and between the time I got into the van and we parked in front of church and I got out the joints in my feet/ankles swelled and when I stood up I almost fell down the pain was excrutiating!!! I managed to get inside and during singing (where ya stand up) I was singing quietly and tears were streaming down my face! My best friend, Donna turned around (she has fibromyalgia) and when she saw me made me sit down...it was hard during those days...no one, but Donna, believed that I was sick...they all thought it was a 'heart' thing...you know that lukewarm thing...I got that way after a year of them not listening to me though... One day again at church another 'friend' (ok, not so much) was holding my hand and noticed the swelling in the joints of fingers on both hands...she asked what was wrong...I laughed... " Well, you remember all those times I told you guys I was sick? Well, I AM!!!! I have RA and I am in pain constantly! " All she said was 'oh'... Most people have no clue what RA is...They think of Granny on Bev HillBillies and her 'rumatiz' and she still got around fine and she could walk, talk and never slept for 12 hours a day! And she never cried when she hit her hand accidentally! Blah, blah, blah... Anyway, I take plaquenil and Arava right now...and it is doing ok...I do take pred when I have a flare and Lortab when I can only grumble and cry... Hi, > I am new here...should have signed up a long time ago, though... > I have RA and was diagnosed in 2003...although I had symptoms for a > year and a half before I went to a doctor...I know bad idea but had no > insurance at the time due to hubby getting laid off (twice no less!) > from his company. > I was about 32 or 33 when my first symptoms appeared...and by the time > of my diagnosis in Jan 2003 at 34...I had trouble walking and could > barely brush my own or my daughters hair (she was 5 at the time). > What I am curious about is at what age some of you were diagnosed and > what was the first things it really affected in your lives? > Angel > > > > > > > Bridget Fitzgerald > brfitz2002@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Hi All I was diagonesed this year. I'm 59 and i sa w a Rheumy 2 yrs ago because blood work showed my rh was 600. Was having some problems with very painful wrists and hands on and off. The Dr. wants me to start mtx but i'm resisting. The side effects really scare me. I take 2 advil in morning and the same at lunch and supper this works pretty good for me. Go back to the doc on April 19th we will talk then Joy <jhoorm01@...> wrote: Hi Angel I was diagnosed when I was 40 about 3 yrs ago and I think I had it maybe a few years before that but they kept saying it was osteo arthritis. Walking was a problem and still is because of the swelling in my feet and ankles. My shoulder and clavicle area also bothered me but that has cleared up for the most part with the meds. But the feet are still a problem. Joy Angel <angelcraw4d@...> wrote: Hi, I am new here...should have signed up a long time ago, though... I have RA and was diagnosed in 2003...although I had symptoms for a year and a half before I went to a doctor...I know bad idea but had no insurance at the time due to hubby getting laid off (twice no less!) from his company. I was about 32 or 33 when my first symptoms appeared...and by the time of my diagnosis in Jan 2003 at 34...I had trouble walking and could barely brush my own or my daughters hair (she was 5 at the time). What I am curious about is at what age some of you were diagnosed and what was the first things it really affected in your lives? Angel Quote Link to comment Share on other sites More sharing options...
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