TAWNY

[Guest guest]

Thank you so much for the update on our precious girl. She and her

family will be in all our thoughts and prayers, and is terribly

missed. Going on the road is tough for healthy folks much less

someone in the middle of a flare. God bless her.

jane

--- In , " tracierae143 " <tracierae@u...>

wrote:

> Hello everyone,

>

> I got a " real " letter from Tawny today. She is at least alive. I

> was so worried. She really needs your prayers though now. The

> house fell through and she had to live in a motel briefly and go on

> the road with her truck driver husband briefly. She finally found

> another rent in ee, OK which she will do for at least the next

> school year. She was finally officially diagnosed with lupus along

> with her RA. She has been very depressed without us all to support

> her and is hoping to get online soon. She misses everyone and says

> hello to all, a special hello to Lou Ann and Jane (you know who you

> are) she says. She has had a terrible time with one of her

> daughters so really needs our prayers. She had to give up her

> Humira in all the chaos and is on Plaquenil now. She had a major

> flare after the road trip with her hubby which is not surprising

> that must have been so hard for her. Well, if you want to write to

> her the old fashioned or regular way please email me at

> tracierae@u... and I will give you her mailing address.

> She could use some cards and good wishes I expect.

>

> Here is a direct quote from her form the letter " Tell them I love

> them (the RA group) and miss them all very much. "

>

> So, please pray for Tawny to get her life back on track and her

> health in order and hopefully she will get that internet going soon

> since she is finally moved into a more permanent home. She was

> practically homeless the poor baby! Geez, I wish I lived closer

and

> could have helped her more. Again, email me if you want to send

her

> cards or anything.

>

> Thanks to all of you!

>

> Tracie in Maine

[Guest guest]

Hi Tawny,

I am a new member since you have been gone but have seen

the concern about you written here. I can't imagine the stress

you are managing, all you are going through plus the worry

over your daughter. I will add you and your family to my prayer

list and look for updates.

Nice to meet you.

Hugs,

Pat (Kansas)

Message: 5

Date: Sat, 04 Jun 2005 19:58:19 -0000

From: " tdianaok " <tdianaok@...>

Subject: I'm so glad to be back!

It's been a rocky road, but finally back online. I just got my PC

out of the shop today, and so glad it's working. I have dial up, but

it's better then nothing.

I have missed everyone so much. Thanks to all the wonderful friends

that sent me letters and cards, I needed them so very much. I know

how tough it is to take the time to write, and your just so

appreciated.

At the last moment we found out that the home we were buying fell

through. So, we were in a motel for awhile, also was on the road

for awhile with hubby, and you can imagine how that was.

We did find a rental home, and so that is where I will plant my butt

for awhile.

Also, my oldest daughter(23) has been missing since March 31. So,

you can imagine what I have been going through. I have done

everything in my power to find her. I just stay close to the phone,

and wait for any news at all. She was suppose to report for her

military training in May, but she never showed. She is now

considered AWOL, she has been in the military 6yrs, and had a year

left.

I went to my new rheumy, and was diagnosed with Lupus. He took me

off the Humira, and now on Plaquenil. I hope it starts working

soon. I go back this month to have my right hip x-rayed, and lab

work. I've been having problems with the hip, and my blood work is

totally out of wack.

Thanks Tracie for getting the word out, and thanks to all the

support. Welcome to all the new members, and hope to hear from

everybody. I will keep everyone in my prayers.

Tawny

[Guest guest]

Hi Pat in Kansas,

Welcome to the group! Thanks so much for your kindness, and your

prayers. I just keep praying, and wait for the safe return of my

daughter. This is a wonderful group, and so I hope you stay.

Hugs, Tawny

> Hi Tawny,

>

> I am a new member since you have been gone but have seen

> the concern about you written here. I can't imagine the stress

> you are managing, all you are going through plus the worry

> over your daughter. I will add you and your family to my prayer

> list and look for updates.

>

> Nice to meet you.

>

> Hugs,

> Pat (Kansas)

>

> Message: 5

> Date: Sat, 04 Jun 2005 19:58:19 -0000

> From: " tdianaok " <tdianaok@y...>

> Subject: I'm so glad to be back!

>

> It's been a rocky road, but finally back online. I just got my PC

> out of the shop today, and so glad it's working. I have dial up,

but

> it's better then nothing.

> I have missed everyone so much. Thanks to all the wonderful

friends

> that sent me letters and cards, I needed them so very much. I know

> how tough it is to take the time to write, and your just so

> appreciated.

> At the last moment we found out that the home we were buying fell

> through. So, we were in a motel for awhile, also was on the road

> for awhile with hubby, and you can imagine how that was.

> We did find a rental home, and so that is where I will plant my

butt

> for awhile.

> Also, my oldest daughter(23) has been missing since March 31. So,

> you can imagine what I have been going through. I have done

> everything in my power to find her. I just stay close to the

phone,

> and wait for any news at all. She was suppose to report for her

> military training in May, but she never showed. She is now

> considered AWOL, she has been in the military 6yrs, and had a year

> left.

> I went to my new rheumy, and was diagnosed with Lupus. He took me

> off the Humira, and now on Plaquenil. I hope it starts working

> soon. I go back this month to have my right hip x-rayed, and lab

> work. I've been having problems with the hip, and my blood work

is

> totally out of wack.

> Thanks Tracie for getting the word out, and thanks to all the

> support. Welcome to all the new members, and hope to hear from

> everybody. I will keep everyone in my prayers.

> Tawny

[Guest guest]

Thanks, it's so good to be back.

--- In , " dreamer_plus " <dreamer_plus@w...>

wrote:

> good to see you!

[Guest guest]

Hi, Tawny,

Here is a link that I hope will help you. If not, let me know,

and I will keep looking for you.

http://www.needymeds.com/programs/69.shtml

Joan A.

tdianaok wrote:

> Would anyone know of an assistance program for Lidoderm 5% patches,

> the company is Endo Pharmaceutical? I really need these patches, but

> can't afford $180 for 30, with no prescription insurance.

> I don't feel well now, so don't spend much time on the computer. If

> anyone can help me search, I would be so grateful.

> Thanks Tawny

>

>

[Guest guest]

You are more than welcome, Tawny.

Joan

tdianaok wrote:

> Thanks Joan,

> I will call them tomorrow. hugs, T

>

>

>

>

>

> >

> > > Would anyone know of an assistance program for Lidoderm 5%

> patches,

> > > the company is Endo Pharmaceutical? I really need these patches,

> but

> > > can't afford $180 for 30, with no prescription insurance.

> > > I don't feel well now, so don't spend much time on the computer.

> If

> > > anyone can help me search, I would be so grateful.

> > > Thanks Tawny

[Guest guest]

tawny

hi girl i have missed you so much please drop me a

line okay? I want to know how you are, your daughter

and how your liking your new place...i love you and

you have been such a great friend..

jan in bama...

--- tdianaok <tdianaok@...> wrote:

> Thanks Joan,

> I will call them tomorrow. hugs, T

>

>

>

>

>

> >

> > > Would anyone know of an assistance program for

> Lidoderm 5%

> patches,

> > > the company is Endo Pharmaceutical? I really

> need these patches,

> but

> > > can't afford $180 for 30, with no prescription

> insurance.

> > > I don't feel well now, so don't spend much time

> on the computer.

> If

> > > anyone can help me search, I would be so

> grateful.

> > > Thanks Tawny

> > >

> > >

> >

> >

> > [Non-text portions of this message have been

> removed]

>

>

>

__________________________________________________

[Guest guest]

Tawny, Hey gal! How are you holding up? Bone spurs, crappy! Is

that RA of the spine? Do you have it in the cervical part? I'm

extremely curious about RA of the spine!!!! I have spurs at C5-6 and

C6-7. I have never had a baseline x-ray as of yet. Tried to get one

today with no luck. I told the doc about how bad the verigo is and

that over the weekend I considered going to the hospital because it

was really difficult to breathe!!!! So, needless to say - I'm really

getting scared. Mainly because the doc will absolutely not do

anything within normal for me. He pushed on my neck and said that PT

was the best thing to get rid of the pain. If I'm not better in a

month then he might consider a MRI or CT scan. I'm hoping at least

PT can document the pain and decreased range of motion. It was weird

when he was pushing on my neck because I broke out in an immediate

sweat. You would think that any normal person would at least

consider an x-ray b-4 sending ya to move about. Sometimes, I wish

that my neck would just snap so they'd get it! I think that my neck

is unstable? The littlest things cause injury to my spine. Riding

in the car is an absolute ordeal. Every trip is like an episode of

survivor. I have other spinal stuff going on as well. I have facet

disease and my lower back has fused itself already. Are you

shrinking? I've lost 4 inches in 3 years. You would think that was

strange or a sign but they haven't seemed concerned. Probably my

head acting up again! I'm just glad your doc is checking things and

trying to do something for you! I pray for you and will continue to

pray for you throughout! Please keep us posted somehow. Hugs, Kim

[Guest guest]

Kim,

I don't think the bone spurs is connected with RA. The problem is a

disc in my lower back, that's causing all the pain. I do have some

arthritis in the lower back.

I also have neck pain, have had it for a long time. I take Flexeril

for it, and it helps quite a bit. I haven't really lost any inches.

Your in bad shape, Kim. You sure do need to get some answers. Have

you thought of finding a new doc? That is what I would do. You don't

a doctor that doesn't want to help you.

I will keep you in my prayers, you take care of yourself. Tawny

> Tawny, Hey gal! How are you holding up? Bone spurs, crappy! Is

> that RA of the spine? Do you have it in the cervical part? I'm

> extremely curious about RA of the spine!!!! I have spurs at C5-6

and

> C6-7. I have never had a baseline x-ray as of yet. Tried to get

one

> today with no luck. I told the doc about how bad the verigo is and

> that over the weekend I considered going to the hospital because it

> was really difficult to breathe!!!! So, needless to say - I'm

really

> getting scared. Mainly because the doc will absolutely not do

> anything within normal for me. He pushed on my neck and said that

PT

> was the best thing to get rid of the pain. If I'm not better in a

> month then he might consider a MRI or CT scan. I'm hoping at least

> PT can document the pain and decreased range of motion. It was

weird

> when he was pushing on my neck because I broke out in an immediate

> sweat. You would think that any normal person would at least

> consider an x-ray b-4 sending ya to move about. Sometimes, I wish

> that my neck would just snap so they'd get it! I think that my

neck

> is unstable? The littlest things cause injury to my spine. Riding

> in the car is an absolute ordeal. Every trip is like an episode of

> survivor. I have other spinal stuff going on as well. I have

facet

> disease and my lower back has fused itself already. Are you

> shrinking? I've lost 4 inches in 3 years. You would think that

was

> strange or a sign but they haven't seemed concerned. Probably my

> head acting up again! I'm just glad your doc is checking things

and

> trying to do something for you! I pray for you and will continue

to

> pray for you throughout! Please keep us posted somehow. Hugs, Kim

[Guest guest]

Hi Judi,

I'm glad you got some rain, and not too much. Could you send some

this way? It's really hot and miserable this way. I would like to be

somwhere where I could enjoy the summer without being cooped up in

the house. Maybe a tropical island, I can dream,

Oh, I'm sorry that you have to suffer like that because of the

weather. Hey, glad you had a good day with your grandson. I know

that made your day.

I will talk to the doctor on the next appointment. The funny thing

is, they are in another office on Monday, when they gave them out.

At least the company knows, so there will not be any problems, if I

need to order early.

The patch is relieving a little of the pain, but not much today. I'm

a little depressed today too, so just feeling lousy. Just one of

those days, but just dealing with it.

Well, you take care of yourself. I hope the weather is decent for

you, lower that pain. I will be praying for you, take care Tawny

> Hi Tawny,

>

> Glad you got your patches, but I am still fuming about what they

did to

> you. I can't imagine them GIVING AWAY that many patches in one

day!!

> They must not care who gets what.

>

> It's been rainng lightly all night and all day today. We were

> fortunate that we didn't get the really heavy large amounts of rain

> they had originally predicted, and I'm just glad we got some rain

as

> everything was very dry. I was afraid we'd have sun-dried tomatoes

> before they ever got a chance to grow!

>

> My ole bod will be hurting until about October when the humidity

goes

> down and high pressure moves in. Had one of the triplets all day

today

> (Randy) and he was an angel.

>

> Hoping you get some relief,

> Judi