Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Hi, My name is Ida and I am new to the group. I felt that I needed a support group to help me deal with the fact that my RA is very much alive in my body. For a few years I was kept pretty stable and things were almost normal. Then about 2 months ago I had a really bad flair from my RA and I haven't been the same since. Today I will start taking Enbrel injections and I am scared to death. For one I don't like needles and the thought that my disease is so active right now is so depressing to me. I just hurt all the time and am so wiped out. I am sure many of you understand. I think I am just at a very low point right now and I just needed someone to listen who understands. We ended up having to adopt our children because when I got off of my meds. to try and get pregnant my disease went on the war path. I am very happy with our two boys but I can't help but be angry with my disease. Right now I am just angry and sad. Any ideas on how some of you deal with all this would be greatly apprectiated. Thanks for listening!!! Take care,Ida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 hang in there ida! usually once you find the right " cocktail " for you it gets much easier. i can't believe i have been back to part time work for 3 yrs now!!! i remember thinking that was for other people. not me, i'll be like this forever. i finally tried a drug i had turned down a few years before. afraid of it's side effects. the first 6 weeks were rough. but after that . look at me now!!! i have been working and having a bit of a social life and attending concerts. i am having another minor setback that is in the shadows. but i keep trying to see beyond it. well i'd better get going. i have to get ready for the styx concert that i won tickets for tonight. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Welcome Ida. When I had to start Enbrel, I was scared too. I started it in 1999, shortly after it was approved. Being a new classification of drugs, with the long term side effects unknown, I was pretty nervous. But the drug was very effective shortly after starting it, and I felt that the benefits outweighed the risks. I hope you respond to Enbrel and will feel better quickly. Most of us get pretty angry at what this disease has taken from us, so your feelings are normal. I've had along time to come to terms with it, but still get cranky about it. a On May 25, 2005, at 11:39 AM, idamus4 wrote: > Hi, My name is Ida and I am new to the group. I felt that I needed a > support group to help me deal with the fact that my RA is very much > alive in my body. For a few years I was kept pretty stable and things > were almost normal. Then about 2 months ago I had a really bad flair > from my RA and I haven't been the same since. Today I will start > taking Enbrel injections and I am scared to death. For one I don't > like needles and the thought that my disease is so active right now is > so depressing to me. I just hurt all the time and am so wiped out. I > am sure many of you understand. I think I am just at a very low point > right now and I just needed someone to listen who understands. We > ended up having to adopt our children because when I got off of my > meds. to try and get pregnant my disease went on the war path. I am > very happy with our two boys but I can't help but be angry with my > disease. Right now I am just angry and sad. Any ideas on how some of > you deal with all this would be greatly apprectiated. Thanks for > listening!!! Take care,Ida > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Welcome Ida. When I had to start Enbrel, I was scared too. I started it in 1999, shortly after it was approved. Being a new classification of drugs, with the long term side effects unknown, I was pretty nervous. But the drug was very effective shortly after starting it, and I felt that the benefits outweighed the risks. I hope you respond to Enbrel and will feel better quickly. Most of us get pretty angry at what this disease has taken from us, so your feelings are normal. I've had along time to come to terms with it, but still get cranky about it. a On May 25, 2005, at 11:39 AM, idamus4 wrote: > Hi, My name is Ida and I am new to the group. I felt that I needed a > support group to help me deal with the fact that my RA is very much > alive in my body. For a few years I was kept pretty stable and things > were almost normal. Then about 2 months ago I had a really bad flair > from my RA and I haven't been the same since. Today I will start > taking Enbrel injections and I am scared to death. For one I don't > like needles and the thought that my disease is so active right now is > so depressing to me. I just hurt all the time and am so wiped out. I > am sure many of you understand. I think I am just at a very low point > right now and I just needed someone to listen who understands. We > ended up having to adopt our children because when I got off of my > meds. to try and get pregnant my disease went on the war path. I am > very happy with our two boys but I can't help but be angry with my > disease. Right now I am just angry and sad. Any ideas on how some of > you deal with all this would be greatly apprectiated. Thanks for > listening!!! Take care,Ida > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 HI Ida, You came to the right place. These people are all wonderful, like family and they truly understand your pain. It is so nice to have a place to come to that is like this when so many people in the outside world just don't get it! I find that frustrating. I too just started a new drug, Humira, and am very nervous about the whole thing. I am not crazy about giving myself shots, but I figure I cannot feel much worse right? I am just not sure now if I am having a reaction to the shot or if I just caught a bug and it is a coincidence, but I have had a viral upper respiratory thing since about a week after my first injection and I have lost my voice, etc. Feel lousy, tired, etc. I wish I knew for sure if it was the med or not, but a lot of this I guess is trial and error because each of us reacts differently to different meds. Anytime you need to talk or whine, just email me. I would be happy to listen. My email is tracierae@... and I think most of the group would vouch for me. We do understand here what you are going through and you have just done one of the smartest things you could have ever done, joined this group!!! Take care and God Bless, Tracie in Maine > Hi, My name is Ida and I am new to the group. I felt that I needed a > support group to help me deal with the fact that my RA is very much > alive in my body. For a few years I was kept pretty stable and things > were almost normal. Then about 2 months ago I had a really bad flair > from my RA and I haven't been the same since. Today I will start > taking Enbrel injections and I am scared to death. For one I don't > like needles and the thought that my disease is so active right now is > so depressing to me. I just hurt all the time and am so wiped out. I > am sure many of you understand. I think I am just at a very low point > right now and I just needed someone to listen who understands. We > ended up having to adopt our children because when I got off of my > meds. to try and get pregnant my disease went on the war path. I am > very happy with our two boys but I can't help but be angry with my > disease. Right now I am just angry and sad. Any ideas on how some of > you deal with all this would be greatly apprectiated. Thanks for > listening!!! Take care,Ida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Welcome, Ida. {{{gentle granny hugs}}} RA is big and scary and ugly no matter how long you have it. Mine has been strangely quiet lately, which worries me more - when is it going to pounce? How bad will it be when it does? GB you, having two small ones to raise while coping with RA. My kids were 11 and 12 when my RA came along. The timing was awful, I wasn't there to keep them out of trouble during their teen years. But, amazingly enough, they both survived, learned from their mistakes and are now productive members of society. So hold onto all the hope you can. And don't be afraid to ask for help. Nina in Tucson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Welcome, Ida. {{{gentle granny hugs}}} RA is big and scary and ugly no matter how long you have it. Mine has been strangely quiet lately, which worries me more - when is it going to pounce? How bad will it be when it does? GB you, having two small ones to raise while coping with RA. My kids were 11 and 12 when my RA came along. The timing was awful, I wasn't there to keep them out of trouble during their teen years. But, amazingly enough, they both survived, learned from their mistakes and are now productive members of society. So hold onto all the hope you can. And don't be afraid to ask for help. Nina in Tucson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Ida, I was also scared to death when I first started on Enbrel. I didn't like the thought of giving myself shots, but it didn't take long before I became an old pro. I have had no adverse side effects from Enbrel, and it is working very well to keep my RA in control. I hope that Enbrel will be effective for you, too, but if it's not, you can always try something else. It usually takes a while to get the right combination of meds. Just hang in there! Sue On Wednesday, May 25, 2005, at 11:39 AM, idamus4 wrote: > Today I will start > taking Enbrel injections and I am scared to death. For one I don't > like needles and the thought that my disease is so active right now is > so depressing to me. I just hurt all the time and am so wiped out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Ida, I was also scared to death when I first started on Enbrel. I didn't like the thought of giving myself shots, but it didn't take long before I became an old pro. I have had no adverse side effects from Enbrel, and it is working very well to keep my RA in control. I hope that Enbrel will be effective for you, too, but if it's not, you can always try something else. It usually takes a while to get the right combination of meds. Just hang in there! Sue On Wednesday, May 25, 2005, at 11:39 AM, idamus4 wrote: > Today I will start > taking Enbrel injections and I am scared to death. For one I don't > like needles and the thought that my disease is so active right now is > so depressing to me. I just hurt all the time and am so wiped out. Quote Link to comment Share on other sites More sharing options...
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