Re: Any Young Adults? Like under 40 but ESP in their 20's? Im 28yo.

[Guest guest]

Hi Becki, I'm still a young adult under 35, but rapidly getting older!!!! Time flies! Hugs:0) LIz ... the big 33-years-old .... Birthday is January 4th Becki Snyder wrote: Hi I am curious to see how many young adults and teens we have here . . . Say under30 and then anyone under 35years old. I am curious !! ! ! I am still in my 20's, 28yo, but the big 30 is coming closer. Becki Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." __________________________________________________

[Guest guest]

I was dx'd with Bronchiectasis at 20

Now I am 62

My suggestion would be, get all the treatment you can NOW, while

you're young.

I used to be the darling of the respiratory dept. at 20, now I am

looked upon as a nuicance. It will happen to you too.

When you get older, over 55, the doctors don't give a da**.

Karin

>

>

> Hi

> I am curious to see how many young adults and teens we have here . .

.. Say

> under30 and then anyone under 35years old. I am curious !! ! !

>

> I am still in my 20's, 28yo, but the big 30 is coming closer.

>

>

> Becki

>

[Guest guest]

I disagree! I was diagnosed just this year, age 59, and my doctors here in California have been wonderful, kind and very attentive! 60 here is the "new" 40 ha ha! It's true. JanetKarin wrote: I was dx'd with Bronchiectasis at 20Now I am 62My suggestion would be, get all the treatment you can NOW, whileyou're young.I used to be the darling of the respiratory

dept. at 20, now I amlooked upon as a nuicance. It will happen to you too.When you get older, over 55, the doctors don't give a da**.Karin>> > Hi> I am curious to see how many young adults and teens we have here . .. Say> under30 and then anyone under 35years old. I am curious !! ! ! > > I am still in my 20's, 28yo, but the big 30 is coming closer.> > > Becki>

[Guest guest]

Hey kiddo! Happy Birthday! Time does have a habit of "flying" but we must all live in the present and enjoy each day ... one day at a time! Janet Holt wrote: Hi Becki, I'm still a young adult under 35, but rapidly getting older!!!! Time flies! Hugs:0) LIz ... the big 33-years-old .... Birthday is January 4th

Becki Snyder <prograf_princesscomcast (DOT) net> wrote: Hi I am curious to see how many

young adults and teens we have here . . . Say under30 and then anyone under 35years old. I am curious !! ! ! I am still in my 20's, 28yo, but the big 30 is coming closer. Becki /! SPAN> Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." __________________________________________________

[Guest guest]

Hi Karin, This happened to me when I was in my late 20s and early 30s. I was blackballed from th QEII respirology dept. I'm now 33! Hugs:0) Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them

here." __________________________________________________

[Guest guest]

I was dx'd with Bronchiectasis at 20. Now I am 62My suggestion would be, get all the treatment you can NOW, while you're young.I used to be the darling of the respiratory dept. at 20, now I amlooked upon as a nuisance

Hi Karin,

I can relate. I've been with my specialist for 25 years, and was only a young-un (20's) when he first treated me. He was always pleased to see me, in those days. Nowadays, I feel I am just a "nuisance" especially when I need to call on him more often, with frequent hospitalisations, etc. Maybe it's time to change, so that we can be the "new kids on the block" again (lol)! I don't know why they have this attitude towards us now, I think it's partly their frustration of not being able to cure us.

Best wishes

Bunny

[Guest guest]

Really I think no matter WHAT your age, you deserve, and should be,

treated with respect and dignity, not regarded as a " nuisance " . I

have not had that experience thus far, and I have had more health

issues the past five years than in my entire life. Yes I expect the

doctor's are just as frustrated as we are because there is no cure

but that is no excuse to mistreat us. My daughter will be off to

medical school soon and she already has learned the necessity of

a " good bedside manner " which they actually teach in coursework now,

along with dignity and respect at any age! One day she will be my

own personal doctor [hopefully and will live nearby] so you can be

assured that I will, at least, let her know how we all feel about

advancing age and illnesses. In fact the baby boomer generation

will create a whole new specialty for new doctors!!

Hang in there and don't take that from any doctors ... change is

good! And I believe in the " squeaky wheel " mantra, it has worked

for me!

Janet in California

>

> I was dx'd with Bronchiectasis at 20. Now I am 62

> My suggestion would be, get all the treatment you can NOW, while

you're

> young.

> I used to be the darling of the respiratory dept. at 20, now I am

> looked upon as a nuisance

>

>

> Hi Karin,

>

> I can relate. I've been with my specialist for 25 years, and was

only a

> young-un (20's) when he first treated me. He was always pleased

to see me,

> in those days. Nowadays, I feel I am just a " nuisance " especially

when I

> need to call on him more often, with frequent hospitalisations,

etc. Maybe

> it's time to change, so that we can be the " new kids on the block "

again

> (lol)! I don't know why they have this attitude towards us now, I

think

> it's partly their frustration of not being able to cure us.

>

> Best wishes

> Bunny

>

[Guest guest]

Dear Janet, Your daughter sounds like a wonderful young lady. She will make a fine doctor. Turn the world upside down! Best wishes to her on her medical school journey. Hugs:0) LizPre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." __________________________________________________

[Guest guest]

Dear Karin and Bunny, I'm sorry about your doctor woes. Have been there myself, but have left respirology (wasn’t getting anywhere, just the run around, and was actually blackballed). Now, I'm treated exclusively by my family doctor and infectious disease specialist. Might this be an option? As for your specialist he/she needs a swift kick in the rear. Medicine should be about humanity. I realise the doctors get tired and frustrated, but they should never give uo on us. When anyone gives up all hope is lost. Yes, bronchiectasis is frustrating, but all of us need to "fight" for our health and this includes our doctors. BTW.... There will be some new meds coming up through the pipeline and I think some are undergoing clinical trials. So, there is always hope. Thinking about you, Hugs:0) Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." __________________________________________________

[Guest guest]

Dear Janet, Thank you for the birthday wishes. Everyday is to be celebrated! Hugs:0) lIzJanet Duhe wrote: Hey kiddo! Happy Birthday! Time does have a habit of "flying" but we must all live in the present and enjoy each day ... one day at a time! Janet Holt <maryholt12yahoo (DOT) ca> wrote: Hi Becki, I'm still a young adult under 35, but rapidly getting older!!!! Time flies! Hugs:0) LIz ... the big 33-years-old .... Birthday is January 4th Becki Snyder <prograf_princesscomcast (DOT) net> wrote: Hi I am curious to see how many young adults and teens we have here . . . Say under30 and then anyone under 35years old. I am curious !! ! ! I am still in my 20's, 28yo, but the big 30 is coming closer. Becki /! SPAN> Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." __________________________________________________

[Guest guest]

My bronchiectasis is minimal I am told. Why do I have these symptoms

then. Like coughing up blood twice a year for 20 years now. Trouble

breathing on smoggy, humid days? If it's so minimal as my

respirologist claims, why did the b. progress, why do I now have it on

both sides, for 40 years it was in the lower left lobe only.

karin

>

> Dear Karin and Bunny,

>

> I'm sorry about your doctor woes. Have been there myself, but have

left respirology (wasn't getting anywhere, just the run around, and

was actually blackballed). Now, I'm treated exclusively by my family

doctor and infectious disease specialist. Might this be an option? As

for your specialist he/she needs a swift kick in the rear. Medicine

should be about humanity. I realise the doctors get tired and

frustrated, but they should never give uo on us. When anyone gives up

all hope is lost. Yes, bronchiectasis is frustrating, but all of us

need to " fight " for our health and this includes our doctors.

>

> BTW.... There will be some new meds coming up through the pipeline

and I think some are undergoing clinical trials. So, there is always

hope.

>

> Thinking about you,

>

> Hugs:0)

> Liz

>

>

>

>

>

> Pre-Lung Transplant Journey - For updates please visit my carepage

and leave a message. Thank you! )

> carepages.com name: maryelizabethholt

>

> Please watch: Live Life Then Give Life! - UK

> http://www.youtube.com/watch?v=Nz33i6prkuQ.

>

> " Don't take your organs to Heaven, heaven knows we need them here. "

>

> __________________________________________________

>

[Guest guest]

Hi Karin, Some respirologists tried to call my bronch minimal also, and its bilateral and has spread throughout the lungs. Requiring IVs monthly. In December I only went 16 days without IV antibiotics and require O2 24/7. Symptomatic all the time and my ID specialists says I'm running out of antibiotics and require a double lung transplant. He works with the CF clinic and also with bronchiectasis patients and is much more aware than most of the respirologists. Have found radiologists also very helpful and thank goodness for chest Ct-scans ... before them I was accused of faking my lung disease. We must keep on fighting! Hugs and happiness with hope for 2007!!!! LizPre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." __________________________________________________

[Guest guest]

Hello,

I am also under 30, just turned 27 actually. I was diagnosed when I was 20y yrs old.

, Adelaide, Australia

Reply-To: bronchiectasis To: <bronchiectasis >Subject: Any Young Adults? Like under 40 but ESP in their 20's? Im 28yo.Date: Sat, 30 Dec 2006 05:20:32 -0500 (Eastern Standard Time)

Hi

I am curious to see how many young adults and teens we have here . . . Say under30 and then anyone under 35years old. I am curious !! ! !

I am still in my 20's, 28yo, but the big 30 is coming closer.

Becki

><< 32_tile.jpg >> ><< 32_header2.gif >> ><< imstp_xmas06_en.gif >> Web. Images. News. Maps. Try searching here with Live Search.

[Guest guest]

Any Young Adults? Like under 40 but ESP in their 20's? Im 28yo.

Hi

I am curious to see how many young adults and teens we have here . . . Say under30 and then anyone under 35years old. I am curious !! ! !

I am still in my 20's, 28yo, but the big 30 is coming closer.

Becki