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Hello to everyone from The United Kingdom. My name is Graham and I have a 6 year old daughter who has Bronchiectasis but she also has Gastro-esophageal Reflux, Spasmodic Croup and very bad Asthma. She was given a PH study back in 2000 but she pulled the tube out after 2 hours so they never got a result. Unbeknown to my wife and I, they had put the result down as negative result when in fact they should have given a fail for the test. So that means that for the first 4 years of her life she was refluxing 15% of her stomach acid back into her lungs. I know that it is not documented as to where and how Bronchiectasis is contracted but I'm sure that she wouldn't be having the problems that she is today if they had only done the test again. I'm not blaming anyone but I am angry by what has happened. now has home oxygen and the use of a wheelchair. She wears a Sats monitor whilst at school so they can keep a close eye on her oxygen levels. Her consultant at the

Royal Brompton Hospital in London has sent blood test and lung biopsy's to the Hopkins Medical Centre in land to see if there is anything that they have missed. He has told us that her Lung Biopsy results have come back as abnormal but they cannot tell us why my daughter keeps having the problems that she is. There are no help groups that I know off in England that we can turn to for help. We have sought a second opinion for my daughters illness and I was hoping that someone out there might be able to point us in the right direction. If anyone knows of a specialist that I can e-mail who would be willing to help us then I and my wife would be so grateful. Yours hopefully Graham

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