Re: Hi Dear Friends, It is Debs in FL

[Guest guest]

hey debs it is so good to hear from you. i think of you often. i am sorry

for all you are going through. i wish i was closer so i could help in some way.

please take care of yourself and keep in touch when you can

kathy in il

[Guest guest]

hey debs it is so good to hear from you. i think of you often. i am sorry

for all you are going through. i wish i was closer so i could help in some way.

please take care of yourself and keep in touch when you can

kathy in il

[Guest guest]

Hi Debs,

It's good to hear from you again (though not good that you are still in

so much pain and infections)--you are always in my prayers.

Just remember that old broken down cars get some pretty nifty rebuilds,

with the result that they carry high price tags then. I think of

myself as a '57 Chevy sitting in a cornfield just waiting for the right

person to come along and restore me!

Peace,

Judi

[Guest guest]

Hi Debs,

It's good to hear from you again (though not good that you are still in

so much pain and infections)--you are always in my prayers.

Just remember that old broken down cars get some pretty nifty rebuilds,

with the result that they carry high price tags then. I think of

myself as a '57 Chevy sitting in a cornfield just waiting for the right

person to come along and restore me!

Peace,

Judi

[Guest guest]

Hi Deb,

It is so nice to see you post. I just wish things were better for you.

I wanted you to know you are in my prayers and things will get better for

you soon. You sure have been through the mill.

Lynn (meMom)

Original Message:

-----------------

From: BadKneesDebs@...

Date: Mon, 25 Apr 2005 15:10:53 EDT

Subject: [ ] Hi Dear Friends, It is Debs in FL

Hello to all of my dear RA family members.

Well, I just got home from another hospital confinement. I have changed

doctors and have some new information. They did a MRI of my right " no

knee " and

saw infectious fluid and the nex day or maybe the same day (( was pretty

much

out of things due to medication) they cultured my right leg and I have a

very

deep bone infection (mrsa) growing in mass quantities. I also cultured out

a

bladder infection. So they put me on 2 IV antibiotics and then put me in

an

isolation room. They also discovered that due to the various diseases I am

fighting and the medications used to treat them, I was walking around with

a

hemogobin of 5 and virtually no iron in my system. So more IV's and blood

transfusions. I finally stabilized and was able to be released home with

home nursing

care, IV's and procrit injections twice a week. I also have to see a

hemotologist to start IV iron infusions asap. The IV iron cannot be given

at home

due to the danger of the infusions and my depleted condition. The new

doctor is

very straight forward and talks to me that way also because she knows how

much I have been thru and have heard everythng before. This infection was

pretty

evere n it's own right. My temp went up to 102.4 and a sugar count of over

400. As always, we had our problems in getting me admitted because my PCP

REFUSED to treat saying that he would be busy all week long and that they

should

get a hospitalist from my insurance company. Using this approach was

actually

the best thing that could have happened for me. Oh well !!!!!

We are very busy right now getting ready for 's wedding on July 9,

2005. She has gotten her dress and her two sisters are ging to be co-maids

of

honor and they got their dresses. Don't know where those babies went to

that I

brought home from the hospital!!!!!!! It is going to be a very small

family

affair of about 50 people. There is nothing like seeing a happy bride to

forget your own problems.

I am in a lot of pain rght now, some of the redness has disappeared, but it

is still soooooo painful. Please forgive me for my frequent absence, but

you

know that you are all close to my mind and my heart. Yikes, this really

hurrts

and they are slowly talking about possible amputation. Just trying to take

one day at a time.

Gentle, tender angel hugs to each and everyone of you!!!!!!

Debs in FL

[Guest guest]

Hi Deb,

It is so nice to see you post. I just wish things were better for you.

I wanted you to know you are in my prayers and things will get better for

you soon. You sure have been through the mill.

Lynn (meMom)

Original Message:

-----------------

From: BadKneesDebs@...

Date: Mon, 25 Apr 2005 15:10:53 EDT

Subject: [ ] Hi Dear Friends, It is Debs in FL

Hello to all of my dear RA family members.

Well, I just got home from another hospital confinement. I have changed

doctors and have some new information. They did a MRI of my right " no

knee " and

saw infectious fluid and the nex day or maybe the same day (( was pretty

much

out of things due to medication) they cultured my right leg and I have a

very

deep bone infection (mrsa) growing in mass quantities. I also cultured out

a

bladder infection. So they put me on 2 IV antibiotics and then put me in

an

isolation room. They also discovered that due to the various diseases I am

fighting and the medications used to treat them, I was walking around with

a

hemogobin of 5 and virtually no iron in my system. So more IV's and blood

transfusions. I finally stabilized and was able to be released home with

home nursing

care, IV's and procrit injections twice a week. I also have to see a

hemotologist to start IV iron infusions asap. The IV iron cannot be given

at home

due to the danger of the infusions and my depleted condition. The new

doctor is

very straight forward and talks to me that way also because she knows how

much I have been thru and have heard everythng before. This infection was

pretty

evere n it's own right. My temp went up to 102.4 and a sugar count of over

400. As always, we had our problems in getting me admitted because my PCP

REFUSED to treat saying that he would be busy all week long and that they

should

get a hospitalist from my insurance company. Using this approach was

actually

the best thing that could have happened for me. Oh well !!!!!

We are very busy right now getting ready for 's wedding on July 9,

2005. She has gotten her dress and her two sisters are ging to be co-maids

of

honor and they got their dresses. Don't know where those babies went to

that I

brought home from the hospital!!!!!!! It is going to be a very small

family

affair of about 50 people. There is nothing like seeing a happy bride to

forget your own problems.

I am in a lot of pain rght now, some of the redness has disappeared, but it

is still soooooo painful. Please forgive me for my frequent absence, but

you

know that you are all close to my mind and my heart. Yikes, this really

hurrts

and they are slowly talking about possible amputation. Just trying to take

one day at a time.

Gentle, tender angel hugs to each and everyone of you!!!!!!

Debs in FL

[Guest guest]

Hi Debs. It's nice to see you posting. I'm happy to hear that you

have a new doctor and hope she can get these infections under control

soon. You have to feel better for that wedding! How exciting to be

preparing for such a happy event. I hope it helps take your mind off

of your pain. You've been through so much and deserve some happiness.

a

On Apr 25, 2005, at 3:10 PM, BadKneesDebs@... wrote:

> Hello to all of my dear RA family members.

>

> Well, I just got home from another hospital confinement.  I have

> changed

> doctors and have some new information.  They did a MRI of my right

> " no knee " and

> saw infectious fluid and the nex day or maybe the same day (( was

> pretty much

> out of things due to medication) they cultured my right leg and I

> have a very

> deep bone infection (mrsa) growing in mass quantities.  I also

> cultured out a

> bladder infection.  So they put me on 2 IV antibiotics and then put

> me in an

> isolation room.  They also discovered that due to the various

> diseases I am

> fighting and the medications used to treat them, I was walking around

> with a

> hemogobin of 5 and virtually no iron in my system.  So more IV's and

> blood

> transfusions.  I finally stabilized and was able to be released home

> with home nursing

> care, IV's and procrit injections twice a week.  I also have to see a

> hemotologist to start IV iron infusions asap.  The IV iron cannot be

> given at home

> due to the danger of the infusions and my depleted condition.  The

> new doctor is

> very straight forward and talks to me that way also because she knows

> how

> much I have been thru and have heard everythng before.  This

> infection was pretty

> evere n it's own right.  My temp went up to 102.4 and a sugar count

> of over

> 400.  As always, we had our problems in getting me admitted because

> my PCP

> REFUSED to treat saying that he would be busy all week long and that

> they should

> get a hospitalist from my insurance company.  Using this approach was

> actually

> the best thing that could have happened for me.  Oh well !!!!!

>

> We are very busy right now getting ready for 's wedding on

> July 9,

> 2005.  She has gotten her dress and her two sisters are ging to be

> co-maids of

> honor and they got their dresses.  Don't know where those babies went

> to that I

> brought home from the hospital!!!!!!!  It is going to be a very small

> family

> affair of about 50 people.  There is nothing like seeing a happy

> bride to

> forget your own problems.

>

> I am in a lot of pain rght now, some of the redness has disappeared,

> but it

> is still soooooo painful.  Please forgive me for my frequent absence,

> but you

> know that you are all close to my mind and my heart.  Yikes, this

> really hurrts

> and they are slowly talking about possible amputation.  Just trying

> to take

> one day at a time.

>

> Gentle, tender angel hugs to each and everyone of you!!!!!!

>

>

> Debs in FL

>

>

>

[Guest guest]

Hi Debs. It's nice to see you posting. I'm happy to hear that you

have a new doctor and hope she can get these infections under control

soon. You have to feel better for that wedding! How exciting to be

preparing for such a happy event. I hope it helps take your mind off

of your pain. You've been through so much and deserve some happiness.

a

On Apr 25, 2005, at 3:10 PM, BadKneesDebs@... wrote:

> Hello to all of my dear RA family members.

>

> Well, I just got home from another hospital confinement.  I have

> changed

> doctors and have some new information.  They did a MRI of my right

> " no knee " and

> saw infectious fluid and the nex day or maybe the same day (( was

> pretty much

> out of things due to medication) they cultured my right leg and I

> have a very

> deep bone infection (mrsa) growing in mass quantities.  I also

> cultured out a

> bladder infection.  So they put me on 2 IV antibiotics and then put

> me in an

> isolation room.  They also discovered that due to the various

> diseases I am

> fighting and the medications used to treat them, I was walking around

> with a

> hemogobin of 5 and virtually no iron in my system.  So more IV's and

> blood

> transfusions.  I finally stabilized and was able to be released home

> with home nursing

> care, IV's and procrit injections twice a week.  I also have to see a

> hemotologist to start IV iron infusions asap.  The IV iron cannot be

> given at home

> due to the danger of the infusions and my depleted condition.  The

> new doctor is

> very straight forward and talks to me that way also because she knows

> how

> much I have been thru and have heard everythng before.  This

> infection was pretty

> evere n it's own right.  My temp went up to 102.4 and a sugar count

> of over

> 400.  As always, we had our problems in getting me admitted because

> my PCP

> REFUSED to treat saying that he would be busy all week long and that

> they should

> get a hospitalist from my insurance company.  Using this approach was

> actually

> the best thing that could have happened for me.  Oh well !!!!!

>

> We are very busy right now getting ready for 's wedding on

> July 9,

> 2005.  She has gotten her dress and her two sisters are ging to be

> co-maids of

> honor and they got their dresses.  Don't know where those babies went

> to that I

> brought home from the hospital!!!!!!!  It is going to be a very small

> family

> affair of about 50 people.  There is nothing like seeing a happy

> bride to

> forget your own problems.

>

> I am in a lot of pain rght now, some of the redness has disappeared,

> but it

> is still soooooo painful.  Please forgive me for my frequent absence,

> but you

> know that you are all close to my mind and my heart.  Yikes, this

> really hurrts

> and they are slowly talking about possible amputation.  Just trying

> to take

> one day at a time.

>

> Gentle, tender angel hugs to each and everyone of you!!!!!!

>

>

> Debs in FL

>

>

>

[Guest guest]

Judi,

Thanks for the encouraging words!!!! I will look forward for my rebuild!!!!!

Gentle, tender angel hugs,

Debs in FL

[Guest guest]

Hi Kathi,

Thanks for your good thoughts, they are sure needed. The home nurse came out

to admnister a dose of antibiotic and she cannot get it to start and they

think that therer is a possible blood clot occluding this area. Right now they

are giving the medicine thru a hep lock. I am not very happy, actually

furious, but I can't change much of this. Unfortunately, I will have to wear my

paranphil

[Guest guest]

Lynn,

I have missed you more than words can express. How are you doing? I thi nk

of you often as this IV medication is not agreeing with my GII tract, yet they

have no further antibiotics that they can try on this infection. Once they

grew out the infection, I was run over to the isolation unit and stayed there

until I was discharged.

Right now my chest port is apparently clogged by a blood clot and they are

now administrating thru a hep lock. The pain and swelling in my knee is so very

painful that even the cover on my bed when placed there I start screamiing.

Most ortho's that come into my room insists that the only was to stop this is

going to amputation.

gets married on 7-9-05 and I don't want to have this done until I

get some moreopinions. I feel like you did a veryy years ago with the Whipple.

How are things go wth that condition?Any changes in your law suits? I still

don't get the whole thing, they gave me my back pay then they took it back and

claimed we charted tthe IRS by $4000.00. What a mss!

Keep in touch!!!!

Gentle, tender, angel hugs,

debs in FL

[Guest guest]

Lynn,

I have missed you more than words can express. How are you doing? I thi nk

of you often as this IV medication is not agreeing with my GII tract, yet they

have no further antibiotics that they can try on this infection. Once they

grew out the infection, I was run over to the isolation unit and stayed there

until I was discharged.

Right now my chest port is apparently clogged by a blood clot and they are

now administrating thru a hep lock. The pain and swelling in my knee is so very

painful that even the cover on my bed when placed there I start screamiing.

Most ortho's that come into my room insists that the only was to stop this is

going to amputation.

gets married on 7-9-05 and I don't want to have this done until I

get some moreopinions. I feel like you did a veryy years ago with the Whipple.

How are things go wth that condition?Any changes in your law suits? I still

don't get the whole thing, they gave me my back pay then they took it back and

claimed we charted tthe IRS by $4000.00. What a mss!

Keep in touch!!!!

Gentle, tender, angel hugs,

debs in FL

[Guest guest]

Hi Kathi,

Thanks for your good thoughts, they are sure needed. The home nurse came out

to admnister a dose of antibiotic and she cannot get it to start and they

think that therer is a possible blood clot occluding this area. Right now they

are giving the medicine thru a hep lock. I am not very happy, actually

furious, but I can't change much of this. Unfortunately, I will have to wear my

paranphil