Re: Is this something to sweat about??

[Guest guest]

Hi Jozann,

I remember, years ago, reading that over-sweating in the armpit region was a

sign of a nervous system disorder/problem. I can't even remember how I came

across the article - and never asked my doctor about it - but have you done any

research on over-sweating or whatever the term would be and cross-reference it

with nervous system disorders?

Kathy

Is this something to " sweat " about??

Hey everyone, life since Sammy's 'detether' in August '06 has been

going remarkably well and we've been living almost worry-free (in

regards to her TSC) but I have a question for the group. Before the

surgery she had extremely sweaty feet, something many people told me

was part of the tether. Once the surgery was over her sweaty feet had

gone away. Now 6 months later we are noticing her sweaty feet have re-

appeared. However she seems to be progressing and hitting milestones

as she should. She's 10 months and stands, walks along furniture and

shows me her " big girl legs " without problem.

Has anyone had this happen and what was the outcome? I don't want to

over react (something I've become quite good at) but I don't want to be

naive and miss a signal either.

Thanks everyone!! Jozann

Mom to Jack 4 years and (LMC/TSC) 10 months-detether surgery

CHOC at 4 months.

[Guest guest]

my daughter never sweats, and i told all of her

doctors about it. finally, one day an intern told me

that it can be related to the sb/tc and gave her a

bunch of tests (skin conductivity?) that showed that

she had less sensation on her skin. in extreme weather

she could easily get very cold/hot and not even know

it. and she NEVER has a fever.

melanie

--- DK Moulton wrote:

> Hi Jozann,

>

> I remember, years ago, reading that over-sweating in

> the armpit region was a sign of a nervous system

> disorder/problem. I can't even remember how I came

> across the article - and never asked my doctor about

> it - but have you done any research on over-sweating

> or whatever the term would be and cross-reference it

> with nervous system disorders?

>

> Kathy

> Is this something to " sweat "

> about??

>

>

> Hey everyone, life since Sammy's 'detether' in

> August '06 has been

> going remarkably well and we've been living almost

> worry-free (in

> regards to her TSC) but I have a question for the

> group. Before the

> surgery she had extremely sweaty feet, something

> many people told me

> was part of the tether. Once the surgery was over

> her sweaty feet had

> gone away. Now 6 months later we are noticing her

> sweaty feet have re-

> appeared. However she seems to be progressing and

> hitting milestones

> as she should. She's 10 months and stands, walks

> along furniture and

> shows me her " big girl legs " without problem.

>

> Has anyone had this happen and what was the

> outcome? I don't want to

> over react (something I've become quite good at)

> but I don't want to be

> naive and miss a signal either.

>

> Thanks everyone!! Jozann

>

> Mom to Jack 4 years and (LMC/TSC) 10

> months-detether surgery

> CHOC at 4 months.

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

jozann18 said the following on 2/24/2007 12:34 PM:

> Hey everyone, life since Sammy's 'detether' in August '06 has been

> going remarkably well and we've been living almost worry-free (in

> regards to her TSC) but I have a question for the group. Before the

> surgery she had extremely sweaty feet, something many people told me

> was part of the tether. Once the surgery was over her sweaty feet had

> gone away. Now 6 months later we are noticing her sweaty feet have re-

> appeared. However she seems to be progressing and hitting milestones

> as she should. She's 10 months and stands, walks along furniture and

> shows me her " big girl legs " without problem.

>

> Has anyone had this happen and what was the outcome? I don't want to

> over react (something I've become quite good at) but I don't want to be

> naive and miss a signal either.

>

> Thanks everyone!! Jozann

>

> Mom to Jack 4 years and (LMC/TSC) 10 months-detether surgery

> CHOC at 4 months.

>

>

>

>

Ji Jozann,

After my surgery in 1997 I had sweaty feet for about a year. My docs

just dismissed it as no problem. I developed some kind of skin

irritation from the wetness and had to go see my pcp. He did a culture

test on the 'sweat' and determined I had a mild fungus that was causing

the sweaty feet. He prescribed Triamcinolone Acetonide cream 0.1% (have

tube in front of me). He said thoroughly wash and dry feet, apply cream,

put on clean cotton socks. I did that a few times that day and have

never had sweaty feet since. And there is about half of this 15 gram

tube left.

Rick

[Guest guest]

I've never heard that sweaty feet was a symptom of Tethered Cord. I'm not

trying to say it is not, just that I've not heard about it, nor do I have

it.

Were you ever given any information about this, other then being told it was

a symptom? I find it interesting, and would like to read.

Me

Nebraska, USA

mymocha@...

Before the

surgery she had extremely sweaty feet, something many people told me

was part of the tether. Once the surgery was over her sweaty feet

had

gone away. Now 6 months later we are noticing her sweaty feet have

re-

appeared.

[Guest guest]

Does your daughter have Spina Bifida? This type of problem, not sweating,

can be associated with it. I have not heard of Tethered Cord being the

actual cause, though. I however, don't have that problem, although I

do have Spina Bifida - Myelomeningocele( I am under the impression that this

is the only type of Spina Bifida they have found it being associated with(.

In my years, I have had many

medical professionals shocked that I sweat..........of course, I then looked

at them like they were odd. lol

Not necessarily does not having normal sensation mean you can't sweat.

Me

Nebraska, USA

mymocha@...

my daughter never sweats, and i told all of her

doctors about it. finally, one day an intern told me

that it can be related to the sb/tc and gave her a

bunch of tests (skin conductivity?) that showed that

she had less sensation on her skin. in extreme weather

she could easily get very cold/hot and not even know

it. and she NEVER has a fever.

[Guest guest]

Read, or maybe you have already, my note about Spina Bifida

and sweating, or lack thereof. I was just wondering in this

specific post about the relation between it and Tethered

Cord, specifically.

Yes, I understand that there is a CNS connection, however, nor

do I completely understand it.

Me

Nebraska, USA

mymocha@...

> I read online, and then asked my nsg, if sweating or rather,

excessive/more than usual sweating was a symptom of a nervous system

or spinal cord problem - he said yes, the article I had read was

correct.

>

> Until my first untethering, anti-perspirant never kept me dry - it

could be cold, windy, no nervousness, and I wouldn't stay dry. Then,

after my first untethering, I noticed that I wasn't sweating at all,

except for when I should be. Which is what made me look to see if

there was a connection. (Sort of like how each time I was pregnant,

my hairline in the front filled in - stranger things have happened.)

>

> I don't know or pretend to know the mechanisms behind the spinal

cord and sweating, but supposedly there is one.

>

>

>

> I've never heard that sweaty feet was a symptom of Tethered Cord.

I'm not

> trying to say it is not, just that I've not heard about it, nor

do I have

> it.

>

> Were you ever given any information about this, other then being

told it was

> a symptom? I find it interesting, and would like to read.

>

>

[Guest guest]

Well my daughter is having the same issues but i never would have

thought it was connected.

>

> Read, or maybe you have already, my note about Spina Bifida

> and sweating, or lack thereof. I was just wondering in this

> specific post about the relation between it and Tethered

> Cord, specifically.

>

> Yes, I understand that there is a CNS connection, however, nor

> do I completely understand it.

>

> Me

> Nebraska, USA

> mymocha@...

>

>

> > I read online, and then asked my nsg, if sweating or rather,

> excessive/more than usual sweating was a symptom of a nervous

system

> or spinal cord problem - he said yes, the article I had read was

> correct.

> >

> > Until my first untethering, anti-perspirant never kept me dry -

it

> could be cold, windy, no nervousness, and I wouldn't stay dry.

Then,

> after my first untethering, I noticed that I wasn't sweating at

all,

> except for when I should be. Which is what made me look to see if

> there was a connection. (Sort of like how each time I was

pregnant,

> my hairline in the front filled in - stranger things have happened.)

> >

> > I don't know or pretend to know the mechanisms behind the spinal

> cord and sweating, but supposedly there is one.

> >

> >

> >

> > I've never heard that sweaty feet was a symptom of Tethered

Cord.

> I'm not

> > trying to say it is not, just that I've not heard about it, nor

> do I have

> > it.

> >

> > Were you ever given any information about this, other then

being

> told it was

> > a symptom? I find it interesting, and would like to read.

> >

> >

>

[Guest guest]

I don't know if this is related but when Ben was a newborn he had underarm

BO. It freaked me out. He wasn't really sweaty, but he smelled like a grown

many. It went away on it's own before he was a year old. We did not know about

or operate on his tethered cord until he was two so I never made a

connection. Who knows?

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