Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Marina, I wish that there were something we could do about the fatigue factor, too. You are such a sweet person, I hate to hear that you are having tough times. Isn't it ironic that we're exhausted but hafl the time we still can't sleep? If I could wave a magic wand, we would all have energy, and pain free days. You know, I used to pray to be healed.I don't pray for healing anymore; is that weird? I just pray that God's will be done in my life,whatever that may be, and that I can live out His love to others. If I were there with you, I'd make you a nice cup of tea and a batch of my semi-legendary snickerdoodles. Very gentle hugs from beautiful sunny Dallas. Jane --- In , " marina_troi " <marina_troi@y...> wrote: > > I can empathize with you. There are times when I get home, I park > the car in the garage, and just sit there because I don't have the > energy or the will to get out. I had to give up my sports car > because the fatigue was so bad I couldn't make it out of the car. > > Sometimes I think the fatigue is more difficult to deal with than > the pain. It takes me a few days to get over it, and even come > monday, I'm still not completely over it. I have found that a hot > bath, usually sitting in the hot tub, relaxes me enough that I can > actually fall asleep. But, it doesn't always work. That, and the > fact I am usually to fatigued to get the cover of the hot tub. > > There are days, too many days, where I just feel soooo pathetic!! > Trying to get someone to understand what you are going through (the > ones who don't go through this) is just a tiring as what the disease > itself does. <<<sigh>>> > > I wish I could offer some advice, but I am still looking for the > answer, myself!!.....Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Marina, I wish that there were something we could do about the fatigue factor, too. You are such a sweet person, I hate to hear that you are having tough times. Isn't it ironic that we're exhausted but hafl the time we still can't sleep? If I could wave a magic wand, we would all have energy, and pain free days. You know, I used to pray to be healed.I don't pray for healing anymore; is that weird? I just pray that God's will be done in my life,whatever that may be, and that I can live out His love to others. If I were there with you, I'd make you a nice cup of tea and a batch of my semi-legendary snickerdoodles. Very gentle hugs from beautiful sunny Dallas. Jane > > I can empathize with you. There are times when I get home, I park > the car in the garage, and just sit there because I don't have the > energy or the will to get out. I had to give up my sports car > because the fatigue was so bad I couldn't make it out of the car. > > Sometimes I think the fatigue is more difficult to deal with than > the pain. It takes me a few days to get over it, and even come > monday, I'm still not completely over it. I have found that a hot > bath, usually sitting in the hot tub, relaxes me enough that I can > actually fall asleep. But, it doesn't always work. That, and the > fact I am usually to fatigued to get the cover of the hot tub. > > There are days, too many days, where I just feel soooo pathetic!! > Trying to get someone to understand what you are going through (the > ones who don't go through this) is just a tiring as what the disease > itself does. <<<sigh>>> > > I wish I could offer some advice, but I am still looking for the > answer, myself!!.....Marina Quote Link to comment Share on other sites More sharing options...
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