Update skinbiopt and more ,..

August 3, 2011

Hello,..

I am sending you a little update ,..

I got the results of the skinbiopt , about the problem with my feet and legs ,

it seems that it is not the thin fiber neuropathy,..

That is at least what the test did show,..

So we are just were we already were,..

I already did call the hospital in Maastricht again and asked for a new

appointment with my paindoctor, I have to go and see him on september 30th ,

And I also asked if he could give me a call today because I had a question for

him ( I think he is a worldclass guy, a doctor that does try his best to help me

the best he can) I asked if he could call me today because I have a question for

him , I have the feeling as if there are thousands of ants crawling under my

skin, in my lowerlegs and feet, and the skin itches so bad that I try not to

scratch but at a surtant point I just can not help myself I just have to because

I can not take the itching anymore,..with the effect that I scratch my skin

open:(( on the lowerlegs..

I have seen my diabeticnurse and she asked me to contact my doctor about it and

ask what to do about it and if it was (in my case) a complaint that he would say

is neuropathy related , so I asked the doctor today and he said , " Girl ,girl ,

I feel so sorry for you,.. we just can not seem to put the finger on the reason

why you got Poly Neuropathy, we can not link it to a surtant thing in your case

but that it is Poly Neuropathy that I am absolutely sure of , it is called

Chronical Axional Idiopathic Poly Neuropathy,.that is what you got girly,..that

I am absolutely sure off,.. and that with the feeling of those thousands of ants

running under your skin is definately a thing related to Neuropathy too,..

He did not like to tell it but it merely was a new thing that was again an

assurance that it is Poly Neuropathy to him ,he says it is frustrating that we

can not put a finger on the cause of me having it but that it is that he is

absolutely sure off,..

Now we did upgrade the meds with 25 mg in the morning and I have to try that and

we will talk about how that goes when I go to see him on September 30th when I

go to see him..

I do have to admit I get down really about the fact that it is getting worse and

worse and I try this and that and nothing seems to work , but what I am glad

about is that I have a doctor that is willing to think with me and who is

willing to help me the best way he can,.. he is really a good guy ,..

I will keep you posted if there is any other news..

liefs

Annemie

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