Re: so tired

[Guest guest]

Hi,

Is there anyway you can shorten your workday or work week? It is

amazing that you are hanging in there working and I did for as long as

I could and slowly started decreasing the work amount until I just

could not do it anymore, but if there is some way that you can work

perhaps less hours or less days a week until you get your bounce back

that would be great huh? Also, the biggest thing I have learned so

far is never multitask too much, that means no doing five errands, cut

back to two. Rest is so important with RA and any of these autoimmune

diseases. Again, the fact that you are working is truly amazing to me

right now. I am at a very active point in my disease process. Good

luck and take care of yourself, you need to rest, rest, rest. You can

still do stuff, just pace yourself more. I know how difficult that is

to accept, but hang in there. Hugs and prayers from Tracie in Maine.

>

>

> Fatigue from RA is wearing me down. There are many weekends in

which I

> park the car in the garage on Friday after work and do not leave the

> house again until Monday morning. This is so unlike me...prior to

RA,

> that is.

> Even when the pain is bearable/in control, I am just SO TIRED!

> Anybody have success easing fatigue?

[Guest guest]

I can empathize with you. There are times when I get home, I park

the car in the garage, and just sit there because I don't have the

energy or the will to get out. I had to give up my sports car

because the fatigue was so bad I couldn't make it out of the car.

Sometimes I think the fatigue is more difficult to deal with than

the pain. It takes me a few days to get over it, and even come

monday, I'm still not completely over it. I have found that a hot

bath, usually sitting in the hot tub, relaxes me enough that I can

actually fall asleep. But, it doesn't always work. That, and the

fact I am usually to fatigued to get the cover of the hot tub.

There are days, too many days, where I just feel soooo pathetic!!

Trying to get someone to understand what you are going through (the

ones who don't go through this) is just a tiring as what the disease

itself does. <<<sigh>>>

I wish I could offer some advice, but I am still looking for the

answer, myself!!.....Marina

[Guest guest]

You know, I thought it was just me. I hate trying to explain what's

going on, even to my wife. She tries but just doesn't get it, I don't

really blame her though. I've found that for me, at least, the fatigue

is worse than the pain. I can handle high amounts of pain but being

tired all the time drives me nuts. I've found that the best method of

fatigue management is meditation. I am a Buddhist, so I have my biases.

:-) I usually meditate for 15 minutes or so in the morning before my

walk and 15 minutes at night before my nightly exercises. It really

helps the focus during the day. I used to only do this as part of my

philosophical practices but now its far more rewarding with a purpose.

The medication, I think, makes the fatigue worse, I would ask the Dr.

about that.

Bill - newly diagnosed, new member, trying to get the hang of this

support group thing.

marina_troi wrote:

>

> I can empathize with you. There are times when I get home, I park

> the car in the garage, and just sit there because I don't have the

> energy or the will to get out. I had to give up my sports car

> because the fatigue was so bad I couldn't make it out of the car.

>

> Sometimes I think the fatigue is more difficult to deal with than

> the pain. It takes me a few days to get over it, and even come

> monday, I'm still not completely over it. I have found that a hot

> bath, usually sitting in the hot tub, relaxes me enough that I can

> actually fall asleep. But, it doesn't always work. That, and the

> fact I am usually to fatigued to get the cover of the hot tub.

>

> There are days, too many days, where I just feel soooo pathetic!!

> Trying to get someone to understand what you are going through (the

> ones who don't go through this) is just a tiring as what the disease

> itself does. <<<sigh>>>

>

> I wish I could offer some advice, but I am still looking for the

> answer, myself!!.....Marina

>

>

>

>

>

>

>

>

>

[Guest guest]

It's amazing to hear about the fatigue factor--I too think it's more

debilitating than the pain. Add to that the fact that the medication I take

contributes to my fatigue. If I try to " work through it " I end up wiped out on

my living room floor with my dog licking my face and my husband asking me where

supper is. Ugh.

Re: [ ] Re: so tired

You know, I thought it was just me. I hate trying to explain what's

going on, even to my wife. She tries but just doesn't get it, I don't

really blame her though. I've found that for me, at least, the fatigue

is worse than the pain. I can handle high amounts of pain but being

tired all the time drives me nuts. I've found that the best method of

fatigue management is meditation. I am a Buddhist, so I have my biases.

:-) I usually meditate for 15 minutes or so in the morning before my

walk and 15 minutes at night before my nightly exercises. It really

helps the focus during the day. I used to only do this as part of my

philosophical practices but now its far more rewarding with a purpose.

The medication, I think, makes the fatigue worse, I would ask the Dr.

about that.

Bill - newly diagnosed, new member, trying to get the hang of this

support group thing.

marina_troi wrote:

>

> I can empathize with you. There are times when I get home, I park

> the car in the garage, and just sit there because I don't have the

> energy or the will to get out. I had to give up my sports car

> because the fatigue was so bad I couldn't make it out of the car.

>

> Sometimes I think the fatigue is more difficult to deal with than

> the pain. It takes me a few days to get over it, and even come

> monday, I'm still not completely over it. I have found that a hot

> bath, usually sitting in the hot tub, relaxes me enough that I can

> actually fall asleep. But, it doesn't always work. That, and the

> fact I am usually to fatigued to get the cover of the hot tub.

>

> There are days, too many days, where I just feel soooo pathetic!!

> Trying to get someone to understand what you are going through (the

> ones who don't go through this) is just a tiring as what the disease

> itself does. <<<sigh>>>

>

> I wish I could offer some advice, but I am still looking for the

> answer, myself!!.....Marina

>

>

>

>

>

>

>

>

>

[Guest guest]

Yeah, " working through it " only works if you can get the energy to start

working in the first place. :-) I find the best thing to do is to take

slow deep breaths and focus on one thing at a time. That's pretty hard

for me, since I'm an extreme Type-A personality, that's why this has

been so hard on me. Oh well, back to work.

Bill

wrote:

>

> It's amazing to hear about the fatigue factor--I too think it's more

> debilitating than the pain. Add to that the fact that the medication I

> take contributes to my fatigue. If I try to " work through it " I end up

> wiped out on my living room floor with my dog licking my face and my

> husband asking me where supper is. Ugh.

>

>

>

> Re: [ ] Re: so tired

>

>

>

> You know, I thought it was just me. I hate trying to explain what's

> going on, even to my wife. She tries but just doesn't get it, I don't

> really blame her though. I've found that for me, at least, the fatigue

> is worse than the pain. I can handle high amounts of pain but being

> tired all the time drives me nuts. I've found that the best method of

> fatigue management is meditation. I am a Buddhist, so I have my biases.

> :-) I usually meditate for 15 minutes or so in the morning before my

> walk and 15 minutes at night before my nightly exercises. It really

> helps the focus during the day. I used to only do this as part of my

> philosophical practices but now its far more rewarding with a purpose.

> The medication, I think, makes the fatigue worse, I would ask the Dr.

> about that.

>

> Bill - newly diagnosed, new member, trying to get the hang of this

> support group thing.

>

>

> marina_troi wrote:

> >

> > I can empathize with you. There are times when I get home, I park

> > the car in the garage, and just sit there because I don't have the

> > energy or the will to get out. I had to give up my sports car

> > because the fatigue was so bad I couldn't make it out of the car.

> >

> > Sometimes I think the fatigue is more difficult to deal with than

> > the pain. It takes me a few days to get over it, and even come

> > monday, I'm still not completely over it. I have found that a hot

> > bath, usually sitting in the hot tub, relaxes me enough that I can

> > actually fall asleep. But, it doesn't always work. That, and the

> > fact I am usually to fatigued to get the cover of the hot tub.

> >

> > There are days, too many days, where I just feel soooo pathetic!!

> > Trying to get someone to understand what you are going through (the

> > ones who don't go through this) is just a tiring as what the disease

> > itself does. <<<sigh>>>

> >

> > I wish I could offer some advice, but I am still looking for the

> > answer, myself!!.....Marina

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Boy, do I agree about the fatigue factor! There is no way I could

continue to work full time as a Vet tech if I couldn't come home and

take a nap most afternoons, then I go back to work for 3 more hours.

I have been diagnoised with 3 auto-immune diaseases, so I thought it

was just me, too. I rarely go " out " on weekends, never during the

week. I have found when I do try and work throught it, or try and

plan to do something " special " by getting some extra rest, I still

end up " paying for it " I'm wiped out for a few days. I can travel,

have a pretty good time if I'm on Pred, but then I pay for it when I

come off of it. I have a Grandson who turned " 1 " on April 5th and

another expected the first week in May. They live in CO and I in VA.

I visited before the birth in Feb. of last years, was on Steriods for

two weeks to make the trip. I'm afraid to go back on Pred. just to

take a trip, so I've not seen my grandson. Steriods are the only

thing I have found to " help " with the fatigue, and the side effects,

I've decided, just aren't worth it. Sorry, please share any solutions

to the fatigue problem. That is by far my biggest problem.

Colleen

>

> Yeah, " working through it " only works if you can get the energy to

start

> working in the first place.

> >

> > It's amazing to hear about the fatigue factor--I too think it's

more

> > debilitating than the pain. Add to that the fact that the

medication I

> > take contributes to my fatigue. If I try to " work through it " I

end up

> > wiped out on my living room floor with my dog licking my face and

my

> > husband asking me where supper is. Ugh.

> >

> > > >

> > You know, I thought it was just me. I hate trying to explain

what's

> > going on, even to my wife. She tries but just doesn't get it, I

don't

> > really blame her though. I've found that for me, at least, the

fatigue

> > is worse than the pain. I can handle high amounts of pain but

being

> > tired all the time drives me nuts. > > > I can empathize with

you. There are times when I get home, I park

> > > the car in the garage, and just sit there because I don't have

the

> > > energy or the will to get out. I had to give up my sports car

> > > because the fatigue was so bad I couldn't make it out of the

car.

> > >

> > > Sometimes I think the fatigue is more difficult to deal with

than

> > > the pain. It takes me a few days to get over it, and even come

> > > monday, I'm still not completely over it. I have found that a

hot

> > > bath, usually sitting in the hot tub, relaxes me enough that I

can

> > > actually fall asleep. But, it doesn't always work. > > >

Trying to get someone to understand what you are going through (the

> > > ones who don't go through this) is just a tiring as what the

disease

> > > itself does. <<<sigh>>>

> > >

> > > I wish I could offer some advice, but I am still looking for

the

> > > answer, myself!!.....Marina

> >

[Guest guest]

Colleen, I'm the same way. I try to avoid the steroids at all

costs. But, the Enbrel has begun to wear off and I am finding that

I am requiring steroids more frequently. I try to go no longer than

a week and no more than once a month, if I can. I told my rheumy

that I will take 20mg (the lowest dose to have some effect) and

taper off at about 5mg a day. Sometimes I have to longer than a

week only because I stay on the 20mg for a few days. I hate doing

that. I have been avoiding using them lately because I want them to

have their peek effect when I go on vacation this week. I'm going

to Vegas Thursday and, damn it, I want to be able to enjoy myself.

So, my pal Prednisone is going with me!! <<sigh>> The things we

must endure!!......Marina

[Guest guest]

,

What a bummer! I'm sorry to hear, you had such a long day at work. It

helps me to take the MTX on Saturday, and I know that I can rest for

the weekend. Make sure you take the Folic acid every day, except the

day of MTX. I don't have much stomach problem with the Mtx, but I do

feel so fatiqued from it. I hope the side effects of the med goes

away, after you get use to it. Will keep you in my prayes, Tawny

> well i started on mtx yesterday night and well today they called me

> into work at 7:30am and i clocked out of work tonight at 7:00pm what

a

> long day i'm so tired and my stomic hurts. i still have to feed the

> kids (dinner is on the stove ) and my husband is out of town this

> weekend for work

> he is so scared about me starting this why he was out of town but my

> dr wanted me to start it last night so i did

> well i got to go for now time to feed the kids

>

>

> melissa in MI