Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hi all, I have had all my posts returned, I hope this gets to you and the attachments also. If you don,t receive the attachments please let me know, as I will resend, they are all very relevant to all bronch people and have some great info. Cheers, Sandy _________________________________________________________________ Be quick, these Dell end of financial year deals can’t last! http://clk.atdmt.com/OMA/go/dau0100000064oma/direct/01/ This is totally off topic, but thought it is all so relevant to all questions asked here. I,m sure you will all find something of interest and give you a better idea of what many in this group and other bronch group, have looked into and also often found useful, I have posted all before, and have lots more very relevant info sheets on the importance of diet, minerals, air we breathe, have many diet sheets from my job as special diet section of hospital kitchen, etc. Sandy _________________________________________________________________ Be quick, these Dell end of financial year deals can’t last! http://clk.atdmt.com/OMA/go/dau0100000064oma/direct/01/ Air Purifiers | Air Cleaners FAQ | Air Quality | Medical Conditions | Air Filtration Terms | Contact Austin | Links | Home What you can't see can hurt you! “Particulate Matter” or “PM” is a term used to describe a collection of contaminants that pollute the air and pose a variety of significant risks to human health. The term particulate matter encompasses both solid particles and liquid droplets that are found floating in the air. They come in an expansive range of sizes and can come from natural sources but the greatest amount of matter is generated by man-made sources. Some particles are large or dark enough to be seen as haze, soot or smoke. Others are so small they can only be seen by an electron microscope. They are distinguished by size and those posing the greatest threat are referred to as PM10 and PM2.5. The numbers, 10 and 2.5 refer to the particle’s size as measured in micrometers or microns. “Fine" particles are smaller than 2.5 microns in diameter and “coarse” particles are between 2.5 and 10 microns. Particulate matter comes from sources such as windblown dust, vehicles traveling on paved and unpaved roads, as well as crushing and grinding operations. Some particles are emitted directly from their sources, such as smokestacks and engines. In other cases, gases such as sulfur oxide (SO), sulfur dioxide (SO2), nitrogen oxide (NOx), and volatile organic compounds (VOC) interact with other compounds in the air to form fine particles. Their chemical and physical compositions vary depending on location, time of year, and weather conditions. For the most part, the fine particles (PM2.5) are produced by the combustion of fossil fuels such as oil, diesel fuel, gasoline, coal and wood. Buses, trucks, automobiles, aeroplanes, fireplaces, wood stoves, industrial processes such as metal smelting, steel production and coal powered generation are all significant sources of particulate matter. Both fine and coarse particles can collect in the respiratory system. Adverse health effects have been linked to exposures to particulate matter over both short periods - a day or so - and longer periods - a year or more. Exposure to particulate matter results in people with existing heart or lung conditions being at an increased risk of admission to hospitals or emergency rooms or premature death. Seniors and children are also at the greatest risk. Recent studies reveal that fine particles (PM2.5) can travel deeper into the lungs, past our primary respiratory defense mechanisms lodging in the alveoli, the small air sacs in the farthest reaches of the lung. A study by Schwartz of the Harvard School of Public Health documented the fact that for every increase in the level of particle air pollution there is a measurable increase in chronic respiratory illness as well as an increase in mortality. A clear example of this is pneumonia related deaths. Pneumonia is a disease of the lower lung where fine particles – not coarse particles - come to rest. During periods of increased particulate pollution pneumonia related deaths increase. In recent years studies have also begun to reveal a relationship between heart attacks and periods of high particulate air pollution. PM2.5 causes inflammation and blood clotting. and may contribute to heart attacks by blocking flow of blood through the heart. More recent studies have begun to show that these particles may also create electrical reactions that affect the central nervous system, which in turn may also contribute to the problem. Return to the Air Quality Page Air Pollution | Allergies | Asthma | Chemical Sensitivity | Chronic Fatigue | Bronchitis internet partners Driving Results 87% Reported an increase in alertness while driving 80% Said they slept better and deeper during breaks(spent in the truck's cabin) 73% Reported less irritability 93% Said their truck seemed cleaner and fresher (Close Window) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hope this comes through ok, first bit is to Barb erdman. I am forwarding another to Kadi. Hugs Sandy _________________________________________________________________ Be quick, these Dell end of financial year deals can’t last! http://clk.atdmt.com/OMA/go/dau0100000064oma/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Carer/ Consumer Representative Central Area, Mental Health Clinical network. " Sec/ Co -ord HBCAG & GEMS. Consumer/ carer rep to FCIMHS Community Consultant on Mental Health /Fraser Coast. Sandy R . " Nothing about us without us " HBCAG " Promoting Excellence in Mental Health " ---------------------------------------- > Date: Thu, 14 Dec 2006 10:05:06 +0000 > To: sillysandy82@... > From: notify > Subject: Your Message to bronchiectasis > > > We're sorry. The reply message you sent to bronchiectasis Daily Digest was not delivered. > > To ensure the best experience for our users, replies to the Yahoo! Groups Daily Digest are only supported through the " reply links " which immediately follow each message in the fully featured version of the digest. > > You can also reply to a message directly from the web by going to: http://groups.yahoo.com/group/bronchiectasis/messages > > [Note: If you use the legacy, traditional digest format, you will need to reply to a message by changing the email address of the reply to bronchiectasis .] > > Meanwhile, if you're interested in starting a new message topic within your group, just send an email directly to bronchiectasis . > > Thank you for your continued support of Yahoo! Groups. > > The Yahoo! Groups Team > _________________________________________________________________ Be one of the first to try Windows Live Mail. http://ideas.live.com/programpage.aspx?versionId=5d21c51a-b161-4314-9b0e-4911fb2\ b2e6d Porta caths, coughing blood, and cats. well As for the cats, many of us cannot have animals that shed lots of fur, hair etc, I have birds, and when the molt, I have to steer clear of them too. I manage our rotty, but when we bred maltese terriers, I had to keep clear, and vac daily and it was hard. But then there are others we know who have cats and doesn,t worry them. Its really a bit like other things that trigger attacks etc. Most who have asthma also, can not tolerate cats, birds and long haired animals. Porta Caths, well , I too am a firm believer in them too. I believe its 6 of 1 and half dozen of the other here to. I have had porta caths, that were great, never got infections etc, had them for same reason you do, no decent veins. and easy. However I have nursed many people who had them and they were continuously getting site infections. I really think some people are of course more sucsible to infection than others and also some who shower with them not covered correctly etc are more prone to infection. I think if you have choices, and veins good etc, and you can manage without-- fine. But for those who have lousy veins, live a long way from hospitals and services etc, then I would always and do often, reccommend porta caths. Coughing blood, many cough blood often, and lots, and others again only when really bad infection or copious coughing etc, also many only have blood episodes every couple of months. I coughed blood for the 1st 6 months, it did settle, I coughed almost incessanltly. It stopped and I never coughed blood again till bad bout of whooping cough, then started again, but not for more than 3 months. I haven,t coughed like that for well over 12 years now. So, really don,t think theres any one rule for any of it. We are all different have different genes, different levels of the illness and many other compounding issues too, that also makes us so different, yet so similar. Thts why we remind everyone here, whet we say is our own experience, we are just giving our opinions and experience, its up to each to check with doctors etc. The one good thing is though, you get lots of ideas and opinions and experiences, so you can list all, some or none and take to specialists etc, and show them, and again they will give opinion, but they hopefully know you better/ and can either say give it a go, or a direct NO, etc. Must go, nice to see newbies here. Hello , seems a while since we chatted. Sandy ( Australia) Carer/ Consumer Representative Central Area, Mental Health Clinical network. " Sec/ Co -ord HBCAG & GEMS. Consumer/ carer rep to FCIMHS Community Consultant on Mental Health /Fraser Coast. Sandy R . " Nothing about us without us " HBCAG " Promoting Excellence in Mental Health " ________________________________ > Date: Thu, 14 Dec 2006 09:06:20 +0000 > From: bronchiectasis > To: bronchiectasis > Subject: Digest Number 1479 > > Bronchiectasis Support Group <http://groups.yahoo.com/group/bronchiectasis;_ylc=X3oDMTJkdmU3MTFsBF9TAzk3MzU5N\ zE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwNoZHIEc2xrA2hwaARzdGltZQMxM\ TY2MDg3MTgw> > Messages In This Digest (9 Messages) > 1a. > Re: new here From: Sunniesback55@... > 1b. > Re: new here From: debres@... > 1c. > Re: new here From: Glass > 1d. > Re: new here From: Debbie > 1e. > Re: new here From: marsha granville > 1f. > Re: new here From: Debbie > 1g. > Re: new here From: anatolebrowde > 1h. > Re: new here From: marsha.granville@... > 2. > Re: port-a-caths Re: new here From: Sunniesback55@... > View All Topics<http://groups.yahoo.com/group/bronchiectasis/messages;_ylc=X3oDMTJmcmF2ND\ VxBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwNkbXNnBHNsaw\ NhdHBjBHN0aW1lAzExNjYwODcxODA-?xm=1 & m=p & tidx=1> | Create New Topic<http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJmanUxbDdiBF9\ TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwNkbXNnBHNsawNudHB\ jBHN0aW1lAzExNjYwODcxODA-> > Messages > 1a. > Re: new here <http://groups.yahoo.com/group/bronchiectasis/message/14256;_ylc=X3oDMTJyZjc4OW5\ uBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU2BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjYwODcxODA-> > Posted by: " Sunniesback55@... " Sunniesback55@... <mailto:Sunniesback55@...?Subject=%20Re:%20new%20here> > Wed Dec 13, 2006 1:22 am (PST) > In a message dated 12/12/2006 9:05:58 P.M. Eastern Standard Time, > debres@... writes: > hi > how long does the IV take??? I agree,, I don't think I'd want to go around > with a port. > As I stated, I've been infused for 7 years now. It's so integrated into my > life, it's just something I do, and ' a normal part of my weekly routine'. I'm > usually at the clinic for about an hour. The infusion itself takes no more > than a half hour. Piece of cake. I go there, I know the staff..all the nurses. > I'm infused at an ambulatory oncology center..I've made a lot of friends > there. We sit around with our IVs..talk, laugh, share..empathize. Some of the > oncology pt's are very sick, others are recouping well. > There's two others like me, with A1AD..and we've been tagged the Alpha1 > group lol..we usually sit together and just shoot the breeze. It's not bad at all. > They serve us lunch..we can have sodas, ensure, juice..I love this place. > The infusion nurses are professional, compassionate, they know their stuff and > getting stuck really doesn't hurt when you have someone who ' knows their > job' as well as these gals do. I'll be there for the rest of my life, and I've > told a few of them if I am ever forced to leave, for whatever reason, I'm > kidnapping you, cause no one knows my veins better.. > It's not such a bad thing.. > Sandie > Never Look Down on Someone > Unless You're Gonna Help Them Up > Back to top > Reply to sender <mailto:Sunniesback55@...?Subject=Re:%20new%20here> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20new%20here> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyN3VwbmU1BF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU2BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjYwODcxODA-?act=reply & messageNum=14256> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14075;_ylc=X3oDMTM3OHQ4bGM\ 3BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU2BHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjYwODcxODAEdHBjSWQDMTQwNzU-> (40) > 1b. > Re: new here <http://groups.yahoo.com/group/bronchiectasis/message/14258;_ylc=X3oDMTJydG5nZ2t\ oBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU4BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjYwODcxODA-> > Posted by: " debres@... " debres@... <mailto:debres@...?Subject=%20Re:%20new%20here> peppergal_111 <http://profiles.yahoo.com/peppergal_111> > Wed Dec 13, 2006 9:52 am (PST) > I thank you for all the info you have given me. I think I am prepared > somewhat. Least I will know what the DR is talking about. > I go tomorrow for the " cleaning " and on the 21st for the results. > I will let you know what DR says. > Thanks > Quoting Sunniesback55@...: > > > > > > > > > > In a message dated 12/12/2006 9:05:58 P.M. Eastern Standard Time, > > debres@... writes: > > > > > > > > > > > > hi > > how long does the IV take??? I agree,, I don't think I'd want to go around > > > > with a port. > > > > > > > > > > > > As I stated, I've been infused for 7 years now. It's so integrated into my > > life, it's just something I do, and ' a normal part of my weekly routine'. > > I'm > > usually at the clinic for about an hour. The infusion itself takes no more > > than a half hour. Piece of cake. I go there, I know the staff..all the > > nurses. > > I'm infused at an ambulatory oncology center..I've made a lot of friends > > there. We sit around with our IVs..talk, laugh, share..empathize. Some of > > the > > oncology pt's are very sick, others are recouping well. > > There's two others like me, with A1AD..and we've been tagged the Alpha1 > > group lol..we usually sit together and just shoot the breeze. It's not bad > > at all. > > They serve us lunch..we can have sodas, ensure, juice..I love this place. > > The infusion nurses are professional, compassionate, they know their stuff > > and > > getting stuck really doesn't hurt when you have someone who ' knows their > > job' as well as these gals do. I'll be there for the rest of my life, and > > I've > > told a few of them if I am ever forced to leave, for whatever reason, I'm > > kidnapping you, cause no one knows my veins better.. > > It's not such a bad thing.. > > Sandie > > > > > > > > Never Look Down on Someone > > Unless You're Gonna Help Them Up > > > > > > > > > > > > > > > > > Back to top > Reply to sender <mailto:debres@...?Subject=Re:%20new%20here> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20new%20here> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJybzlsdGUzBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU4BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjYwODcxODA-?act=reply & messageNum=14258> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14075;_ylc=X3oDMTM3ajlpYWt\ vBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU4BHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjYwODcxODAEdHBjSWQDMTQwNzU-> (40) > 1c. > Re: new here <http://groups.yahoo.com/group/bronchiectasis/message/14259;_ylc=X3oDMTJyMjJsc2d\ iBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU5BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjYwODcxODA-> > Posted by: " Glass " rajeg@... <mailto:rajeg@...?Subject=%20Re:%20new%20here> taffy10092000 <http://profiles.yahoo.com/taffy10092000> > Wed Dec 13, 2006 10:52 am (PST) > In many of the e-mails I have read since signing up on this website, I have noticed a few who said they have coughed up blood. When I was first diagnosed in 1992 with bronch, I had an incident where I coughed up a lot of blood. Since then--until a few months ago--I rarely have had blood in the sputum. My doc said next time it happens he wants to do bronchosocopy. He said if it keeps up, they will cauterize(sp?) the area. Have any of you had this done before and how do they do a " cleaning " ? I want to mention that to the doctor also. There are some days I imagine it would be great if we could just go in and vacuum the " stuff " out! > Good Luck Debbie. Hope everything goes okay. > Jan in St. Louis, MO > debres@... wrote: > I thank you for all the info you have given me. I think I am prepared > somewhat. Least I will know what the DR is talking about. > I go tomorrow for the " cleaning " and on the 21st for the results. > I will let you know what DR says. > Thanks > Quoting Sunniesback55@...: > > > > > > > > > > In a message dated 12/12/2006 9:05:58 P.M. Eastern Standard Time, > > debres@... writes: > > > > > > > > > > > > hi > > how long does the IV take??? I agree,, I don't think I'd want to go around > > > > with a port. > > > > > > > > > > > > As I stated, I've been infused for 7 years now. It's so integrated into my > > life, it's just something I do, and ' a normal part of my weekly routine'. > > I'm > > usually at the clinic for about an hour. The infusion itself takes no more > > than a half hour. Piece of cake. I go there, I know the staff..all the > > nurses. > > I'm infused at an ambulatory oncology center..I've made a lot of friends > > there. We sit around with our IVs..talk, laugh, share..empathize. Some of > > the > > oncology pt's are very sick, others are recouping well. > > There's two others like me, with A1AD..and we've been tagged the Alpha1 > > group lol..we usually sit together and just shoot the breeze. It's not bad > > at all. > > They serve us lunch..we can have sodas, ensure, juice..I love this place. > > The infusion nurses are professional, compassionate, they know their stuff > > and > > getting stuck really doesn't hurt when you have someone who ' knows their > > job' as well as these gals do. I'll be there for the rest of my life, and > > I've > > told a few of them if I am ever forced to leave, for whatever reason, I'm > > kidnapping you, cause no one knows my veins better.. > > It's not such a bad thing.. > > Sandie > > > > > > > > Never Look Down on Someone > > Unless You're Gonna Help Them Up > > > > > > > > > > > > > > > > > Back to top > Reply to sender <mailto:rajeg@...?Subject=Re:%20new%20here> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20new%20here> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyMTgxdGJkBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU5BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjYwODcxODA-?act=reply & messageNum=14259> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14075;_ylc=X3oDMTM3Z3FlNjA\ 4BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU5BHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjYwODcxODAEdHBjSWQDMTQwNzU-> (40) > 1d. > Re: new here <http://groups.yahoo.com/group/bronchiectasis/message/14260;_ylc=X3oDMTJyaWNwb25\ lBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYwBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjYwODcxODA-> > Posted by: " Debbie " debres@... <mailto:debres@...?Subject=%20Re:%20new%20here> peppergal_111 <http://profiles.yahoo.com/peppergal_111> > Wed Dec 13, 2006 6:07 pm (PST) > I'll let you all know how it goes tomorrow. > hugs > _____ > From: bronchiectasis <mailto:bronchiectasis > [mailto:bronchiectasis <mailto:bronchiectasis >] > On Behalf Of Glass > Sent: Wednesday, December 13, 2006 10:49 AM > To: bronchiectasis <mailto:bronchiectasis > > Subject: Re: new here > In many of the e-mails I have read since signing up on this website, I have > noticed a few who said they have coughed up blood. When I was first > diagnosed in 1992 with bronch, I had an incident where I coughed up a lot of > blood. Since then--until a few months ago--I rarely have had blood in the > sputum. My doc said next time it happens he wants to do bronchosocopy. He > said if it keeps up, they will cauterize(sp?) the area. Have any of you had > this done before and how do they do a " cleaning " ? I want to mention that to > the doctor also. There are some days I imagine it would be great if we > could just go in and vacuum the " stuff " out! > Good Luck Debbie. Hope everything goes okay. > Jan in St. Louis, MO > debres@... wrote: > I thank you for all the info you have given me. I think I am prepared > somewhat. Least I will know what the DR is talking about. > I go tomorrow for the " cleaning " and on the 21st for the results. > I will let you know what DR says. > Thanks > Quoting Sunniesback55@ <mailto:Sunniesback55%40aol.com> aol.com: > > > > > > > > > > In a message dated 12/12/2006 9:05:58 P.M. Eastern Standard Time, > > debrestelus (DOT) <mailto:debres%40telus.net> net writes: > > > > > > > > > > > > hi > > how long does the IV take??? I agree,, I don't think I'd want to go around > > > > with a port. > > > > > > > > > > > > As I stated, I've been infused for 7 years now. It's so integrated into my > > life, it's just something I do, and ' a normal part of my weekly routine'. > > I'm > > usually at the clinic for about an hour. The infusion itself takes no more > > than a half hour. Piece of cake. I go there, I know the staff..all the > > nurses. > > I'm infused at an ambulatory oncology center..I've made a lot of friends > > there. We sit around with our IVs..talk, laugh, share..empathize. Some of > > the > > oncology pt's are very sick, others are recouping well. > > There's two others like me, with A1AD..and we've been tagged the Alpha1 > > group lol..we usually sit together and just shoot the breeze. It's not bad > > at all. > > They serve us lunch..we can have sodas, ensure, juice..I love this place. > > The infusion nurses are professional, compassionate, they know their stuff > > and > > getting stuck really doesn't hurt when you have someone who ' knows their > > job' as well as these gals do. I'll be there for the rest of my life, and > > I've > > told a few of them if I am ever forced to leave, for whatever reason, I'm > > kidnapping you, cause no one knows my veins better.. > > It's not such a bad thing.. > > Sandie > > > > > > > > Never Look Down on Someone > > Unless You're Gonna Help Them Up > > > > > > > > > > > > > > > > > Back to top > Reply to sender <mailto:debres@...?Subject=Re:%20new%20here> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20new%20here> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyZGY2cGVwBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYwBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjYwODcxODA-?act=reply & messageNum=14260> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14075;_ylc=X3oDMTM3OTBqMGF\ mBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYwBHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjYwODcxODAEdHBjSWQDMTQwNzU-> (40) > 1e. > Re: new here <http://groups.yahoo.com/group/bronchiectasis/message/14261;_ylc=X3oDMTJydmFyYzF\ wBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYxBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjYwODcxODA-> > Posted by: " marsha granville " marsha.granville@... <mailto:marsha.granville@...?Subject=%20Re:%20new%20here> > Wed Dec 13, 2006 7:00 pm (PST) > Is it bad for Bronchiectasis if you have a cat? > Marsha/NYC > Back to top > Reply to sender <mailto:marsha.granville@...?Subject=Re:%20new%20here> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20new%20here> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyOTVwaXF2BF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYxBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjYwODcxODA-?act=reply & messageNum=14261> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14075;_ylc=X3oDMTM3bnU1ZmI\ zBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYxBHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjYwODcxODAEdHBjSWQDMTQwNzU-> (40) > 1f. > Re: new here <http://groups.yahoo.com/group/bronchiectasis/message/14262;_ylc=X3oDMTJya283NmU\ 1BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYyBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjYwODcxODA-> > Posted by: " Debbie " debres@... <mailto:debres@...?Subject=%20Re:%20new%20here> peppergal_111 <http://profiles.yahoo.com/peppergal_111> > Wed Dec 13, 2006 7:15 pm (PST) > I have 2 .. one sheds like mad. :-)don't think it bothers me. > _____ > From: bronchiectasis <mailto:bronchiectasis > [mailto:bronchiectasis <mailto:bronchiectasis >] > On Behalf Of marsha granville > Sent: Wednesday, December 13, 2006 6:56 PM > To: bronchiectasis <mailto:bronchiectasis > > Subject: Re: new here > Is it bad for Bronchiectasis if you have a cat? > Marsha/NYC > Back to top > Reply to sender <mailto:debres@...?Subject=Re:%20new%20here> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20new%20here> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyc3Q3NnBkBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYyBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjYwODcxODA-?act=reply & messageNum=14262> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14075;_ylc=X3oDMTM3YW4zdjF\ pBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYyBHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjYwODcxODAEdHBjSWQDMTQwNzU-> (40) > 1g. > Re: new here <http://groups.yahoo.com/group/bronchiectasis/message/14263;_ylc=X3oDMTJyYzNwazZ\ qBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYzBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjYwODcxODA-> > Posted by: " anatolebrowde " abrowde@... <mailto:abrowde@...?Subject=%20Re:%20new%20here> anatolebrowde <http://profiles.yahoo.com/anatolebrowde> > Wed Dec 13, 2006 8:50 pm (PST) > > > > > In many of the e-mails I have read since signing up on this > website, I have noticed a few who said they have coughed up blood. > When I was first diagnosed in 1992 with bronch, I had an incident > where I coughed up a lot of blood. Since then--until a few months > ago--I rarely have had blood in the sputum. My doc said next time it > happens he wants to do bronchosocopy. He said if it keeps up, they > will cauterize(sp?) the area. Have any of you had this done before > and how do they do a " cleaning " ? I want to mention that to the > doctor also. There are some days I imagine it would be great if we > could just go in and vacuum the " stuff " out! > > > I have had a lung hemmorage but it came suddenly preceded by chills > and fever. My problem was that I am also on blood thinners because of > atrial fibrilation. Holding the blood thinners for a few days and a > bronchoscopy managed to cure it and I haven't had a relapse of that. > But it wasn't fun and scary. > Tolly > Back to top > Reply to sender <mailto:abrowde@...?Subject=Re:%20new%20here> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20new%20here> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyc2dyNGhrBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYzBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjYwODcxODA-?act=reply & messageNum=14263> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14075;_ylc=X3oDMTM3N29rMzh\ mBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjYzBHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjYwODcxODAEdHBjSWQDMTQwNzU-> (40) > 1h. > Re: new here <http://groups.yahoo.com/group/bronchiectasis/message/14264;_ylc=X3oDMTJyMDNvOHF\ pBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjY0BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjYwODcxODA-> > Posted by: " marsha.granville@... " marsha.granville@... <mailto:marsha.granville@...?Subject=%20Re:%20new%20here> > Thu Dec 14, 2006 12:54 am (PST) > I think coughing up blood is not uncommon with bronchiectasis. The first time I did postural drainage (about 4 months ago after being diagnosed), I coughed up copius amounts of bloody mucous. Since then only a little tiny dot here and there. > Marsha/NYC > Back to top > Reply to sender <mailto:marsha.granville@...?Subject=Re:%20new%20here> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20new%20here> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyb2JjZDloBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjY0BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjYwODcxODA-?act=reply & messageNum=14264> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14075;_ylc=X3oDMTM3c2hkNnN\ sBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjY0BHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjYwODcxODAEdHBjSWQDMTQwNzU-> (40) > 2. > Re: port-a-caths Re: new here <http://groups.yahoo.com/group/bronchiectasis/message/14257;_ylc=X3oDMTJyMmczOXZ\ kBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU3BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjYwODcxODA-> > Posted by: " Sunniesback55@... " Sunniesback55@... <mailto:Sunniesback55@...?Subject=%20Re:%20port-a-caths%20Re:%20[bronchiecta\ sis]%20new%20here> > Wed Dec 13, 2006 1:33 am (PST) > In a message dated 12/12/2006 2:40:31 P.M. Eastern Standard Time, > maryholt12@... writes: > Hi Sandie, > I have to disagree with you about port-a-caths. I have required a > port-a-cath for about 10+ years now and they work great. > Liz..thanks for your feedback. Well, yea..we all have prefs, I'm sure. > I've seen the good and the not so good stories about ports. So, for me, I > choose not to go that route for as long as I possibly can. > For some, however, the meds they're infused with are so strong, they need to > use the port, for it would tear their veins up. That's not the case with me. > I have very very good infusion nurses. Most of the time I don't even feel > the stick. The cath slides in smooth as butter. > But, as I said, dif strokes for dif folks > Sandie > Never Look Down on Someone > Unless You're Gonna Help Them Up > Back to top > Reply to sender <mailto:Sunniesback55@...?Subject=Re:%20port-a-caths%20Re:%20[bronchiectasis\ ]%20new%20here> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20port-a-caths%20Re:%20[br\ onchiectasis]%20new%20here> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyNGE2c2szBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU3BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjYwODcxODA-?act=reply & messageNum=14257> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14075;_ylc=X3oDMTM3dXRvM2F\ pBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0MjU3BHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjYwODcxODAEdHBjSWQDMTQwNzU-> (40) > Recent Activity > * > 1 > New Members<http://groups.yahoo.com/group/bronchiectasis/members;_ylc=X3oDMTJmZXMwdW\ VnBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwN2dGwEc2xrA3\ ZtYnJzBHN0aW1lAzExNjYwODcxODA-> > Visit Your Group <http://groups.yahoo.com/group/bronchiectasis;_ylc=X3oDMTJlbnZ1MDk5BF9TAzk3MzU5N\ zE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUDM\ TE2NjA4NzE4MA--> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 Please read, sorry it was returned, hope all can read attachment Sandy Carer/ Consumer Representative Central Area, Mental Health Clinical network. " Sec/ Co -ord HBCAG & GEMS. Consumer/ carer rep to FCIMHS Community Consultant on Mental Health /Fraser Coast. Sandy R . " Nothing about us without us " HBCAG " Promoting Excellence in Mental Health " ---------------------------------------- > Date: Mon, 15 Jan 2007 10:55:32 +0000 > To: sillysandy82@... > From: notify > Subject: Your Message to bronchiectasis > > > We're sorry. The reply message you sent to bronchiectasis Daily Digest was not delivered. > > To ensure the best experience for our users, replies to the Yahoo! Groups Daily Digest are only supported through the " reply links " which immediately follow each message in the fully featured version of the digest. > > You can also reply to a message directly from the web by going to: http://groups.yahoo.com/group/bronchiectasis/messages > > [Note: If you use the legacy, traditional digest format, you will need to reply to a message by changing the email address of the reply to bronchiectasis .] > > Meanwhile, if you're interested in starting a new message topic within your group, just send an email directly to bronchiectasis . > > Thank you for your continued support of Yahoo! Groups. > > The Yahoo! Groups Team > _________________________________________________________________ Be one of the first to try Windows Live Mail. http://ideas.live.com/programpage.aspx?versionId=5d21c51a-b161-4314-9b0e-4911fb2\ b2e6d Thank you , and Sandie. Sandie I will ask if she minds me giving her email address out, but for the time being I will work on the info you have supplied any help and links are better than none, I have very little knowledge about the vast USA, except the waether, the currency and all the politics. I do know of the Mayo Clinic and the Hopkins and Albright. Cos almost got a scholarship to go to the Hopkins to do nursing at that time it was part of my mothercaft nursing. But my family begged me not to go. So well, never got over there. I do appreciate anything anyone can assist me with. Is Arkansis close to Sherwood, or is one part of the other? Ellen, good to hear your son is making good progress, yes squeeky wheels can cause mountains to move lol. For the chap with newly dx wife. Your in for plenty of good advice here. A really good doctor and pulmo is a must. Keep an open mind with all so you can try things that may only help, but all is worth a try and of course remember what we offer is support and info, that various people have from experiences etc, and believe me, there are many here who have lived with broch for many years Some have really hard to budge infections often, others have very mild form. Some of us have gone for many years as very ill people in and out of hospital s most of our lives and then over years of learning, years of trial and error etc, have finally found themselves with a much milder case, not to say we won,t ever go back to the dreadful days as were in the past. I am one who has had bronch most of my life and lots of other lung, respitory problems , asthma, etc. But seem to have gone on hold with bronch, no symptoms at all, no infections, no hospital etc. However still suffer from many things caused by over use of steroid meds etc. still have asthma. There is so much to learn, and so many things one can do for themselves too. Hope you keep posting because you will learn much more here than Google. hugs all Sandy Carer/ Consumer Representative Central Area, Mental Health Clinical network. " Sec/ Co -ord HBCAG & GEMS. Consumer/ carer rep to FCIMHS Community Consultant on Mental Health /Fraser Coast. Sandy R . " Nothing about us without us " HBCAG " Promoting Excellence in Mental Health " ________________________________ > Date: Mon, 15 Jan 2007 09:00:42 +0000 > From: bronchiectasis > To: bronchiectasis > Subject: Digest Number 1512 > > Bronchiectasis Support Group <http://groups.yahoo.com/group/bronchiectasis;_ylc=X3oDMTJkbWNiN2NvBF9TAzk3MzU5N\ zE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwNoZHIEc2xrA2hwaARzdGltZQMxM\ TY4ODUxNjQy> > Messages In This Digest (16 Messages) > 1. > Re: Regarding positive test for CF From: W > 2a. > Re: FW: Delivery Status Notification (Failure) From: Sunniesback55@... > 2b. > Re: FW: Delivery Status Notification (Failure) From: Ladutko > 3a. > New Diagnosis From: Mike Stack > 3b. > Re: New Diagnosis From: marsha granville > 3c. > Re: New Diagnosis From: Sunniesback55@... > 3d. > Re: New Diagnosis From: Holt > 4a. > question From: Debbie > 4b. > Re: question From: Bigler > 4c. > Re: question From: marsha granville > 4d. > Re: question From: marsha granville > 4e. > Re: question From: Debbie > 4f. > Re: question From: Holt > 5a. > Hi Mike (and update on ) From: rdprice64 > 5b. > Re: Hi Mike (and update on ) From: Holt > 5c. > Hi Ellen Re: From: Holt > View All Topics<http://groups.yahoo.com/group/bronchiectasis/messages;_ylc=X3oDMTJmYW9xa2\ ZnBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwNkbXNnBHNsaw\ NhdHBjBHN0aW1lAzExNjg4NTE2NDI-?xm=1 & m=p & tidx=1> | Create New Topic<http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJmOWtiZHVhBF9\ TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwNkbXNnBHNsawNudHB\ jBHN0aW1lAzExNjg4NTE2NDI-> > Messages > 1. > Re: Regarding positive test for CF <http://groups.yahoo.com/group/bronchiectasis/message/14620;_ylc=X3oDMTJyM3BiYWh\ nBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIwBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " W " brookew_au@... <mailto:brookew_au@...?Subject=%20Re:%20Regarding%20positive%20test%20fo\ r%20CF> bwadelaide <http://profiles.yahoo.com/bwadelaide> > Sun Jan 14, 2007 1:19 am (PST) > Hello, > Many years ago I was tested for CF by the Sweat Test & that came > back negative. In the recent years I was tested and am not a > carrier of the CF gene. > , Adelaide, Australia > " > > Reply-To: bronchiectasis <mailto:bronchiectasis > > To: bronchiectasis <mailto:bronchiectasis > > Subject: Regarding positive test for CF > Date: Fri, 12 Jan 2007 15:46:20 GMT > When my daughter was pregnant with her first child, she had some > genetic testing because she was an " older " mom (36) and she > tested positive for CF. Not that she has CF, but just that she > had a gene. Both of her children are healthy as can be. They > have not been tested for CF gene. > I came down with bronc at age 62 after a bout of pneumonia. > Untill then I was very healthy, although I always seemed to get > short of breath quicker than other people. I have not been > tested for CF but it seems likely that it would show up. > It would be interesting to know if other people with bronc but > not full blown CF test positive for it. > > California > #ygrp-mlmsg > {font-size:13px;font-family:arial,helvetica,clean,sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg > select, input, textarea {font:99% > arial,helvetica,clean,sans-serif;} #ygrp-mlmsg pre, code > {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text {font-family:Georgia;} #ygrp-text p {margin:0 0 1em > 0;} #ygrp-tpmsgs {font-family:Arial;clear:both;} #ygrp-vitnav > {padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a {padding:0 1px;} #ygrp-actbar > {clear:both;margin:25px > 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar > .left {float:left;white-space:nowrap;} .bld {font-weight:bold;} > #ygrp-grft {font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft {font-family:verdana;font-size:77%;border-top:1px solid > #666;padding:5px 0;} #ygrp-mlmsg #logo {padding-bottom:10px;} > #ygrp-vital > {background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px > 8px;} #ygrp-vital #vithd > {font-size:77%;font-family:Verdana;font-weight:bold;color:#333;te\ > xt-transform:uppercase;} #ygrp-vital ul {padding:0;margin:2px 0;} > #ygrp-vital ul li {list-style-type:none;clear:both;border:1px > solid #e0ecee;} #ygrp-vital ul li .ct > {font-weight:bold;color:#ff7900;float:right;width:2em;text-align:\ > right;padding-right:.5em;} #ygrp-vital ul li .cat > {font-weight:bold;} #ygrp-vital a {text-decoration:none;} > #ygrp-vital a:hover {text-decoration:underline;} #ygrp-sponsor > #hd {color:#999;font-size:77%;} #ygrp-sponsor #ov {padding:6px > 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor > #ov ul {padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li > {list-style-type:square;padding:6px 0;font-size:77%;} > #ygrp-sponsor #ov li a {text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc > {background-color:#eee;margin-bottom:20px;padding:0 8px;} > #ygrp-sponsor .ad {padding:8px 0;} #ygrp-sponsor .ad #hd1 > {font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;\ > line-height:122%;} #ygrp-sponsor .ad a {text-decoration:none;} > #ygrp-sponsor .ad a:hover {text-decoration:underline;} > #ygrp-sponsor .ad p {margin:0;} o {font-size:0;} .MsoNormal > {margin:0 0 0 0;} #ygrp-text tt {font-size:120%;} blockquote > {margin:0 0 0 4px;} .replbq {margin:4;} > An even better search engine. New Live Search, try it now at > live.com <http://g.msn.com/8HMBENAU/2731??PS=47575> > Back to top > Reply to sender <mailto:brookew_au@...?Subject=Re:%20Regarding%20positive%20test%20for%2\ 0CF> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20Regarding%20positive%20t\ est%20for%20CF> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyYnNjMTE4BF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIwBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14620> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14602;_ylc=X3oDMTM3Z29lbHN\ 1BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIwBHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMTQ2MDI-> (3) > 2a. > Re: FW: Delivery Status Notification (Failure) <http://groups.yahoo.com/group/bronchiectasis/message/14621;_ylc=X3oDMTJycDJqY2V\ oBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIxBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Sunniesback55@... " Sunniesback55@... <mailto:Sunniesback55@...?Subject=%20Re:%20FW:%20Delivery%20Status%20Notific\ ation%20(Failure)> > Sun Jan 14, 2007 3:43 am (PST) > In a message dated 1/13/2007 11:57:17 P.M. Eastern Standard Time, > sillysandy82@... writes: > I just hope someone may know of a support group, hospital etc in the area. > I do have a list of places, but being that I have no idea how far away > places are etc, I cannot even guess if they are 100 miles or 1000 miles away. > The girl is pining to go back to her school, where she can see her friends > and start to pick up some of her better life. > I hope someone can help me. > Thanks for listening. > Look forward to a reply of some kind. > Hugs Sandy > This is a terrible terrible tragedy, Sandy > I don't know what the support/welfare system in Arkansas is about, but it > would seem to me Department of Social Services should be called in to help this > young girl and her mother.!!!! > This child needs IMMEDIATE psych intervention..she NEEDS to be in > school..and there's no reason they don't have food on their table..Social Services > could help them with a program called Food Stamps..she can also get MCHP..here in > land that's medical aide for children up to the age of 19..thru a > program such as this she can get pscyh services as well as medical.. > Could you talk to her and ask her if it's possible for her to share her > screen name with me? Or her email address..? > God Bless that young girl and her Mother > Sandie in MD > Back to top > Reply to sender <mailto:Sunniesback55@...?Subject=Re:%20FW:%20Delivery%20Status%20Notificati\ on%20(Failure)> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20FW:%20Delivery%20Status%\ 20Notification%20(Failure)> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyaTk2bHEzBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIxBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14621> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/2858;_ylc=X3oDMTM2NWgyMXJp\ BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIxBHNl\ YwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMjg1OA--> (4) > 2b. > Re: FW: Delivery Status Notification (Failure) <http://groups.yahoo.com/group/bronchiectasis/message/14622;_ylc=X3oDMTJycWgwMWd\ yBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIyBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Ladutko " eladutko1@... <mailto:eladutko1@...?Subject=%20Re:%20FW:%20Delivery%20Status%20Notific\ ation%20(Failure)> > Sun Jan 14, 2007 7:49 am (PST) > Sandy, I pulled up the attachment and it said " this user doesn't have a > yahoo.com.au account (bronchfriends@...) > Sandy, I wish I could help you out the way you helped me, but I'm afraid I'm > not too computer savvy. Good luck with it. > >From: sandy taylor > > >Reply-To: bronchiectasis <mailto:bronchiectasis > > >To: <bronchfriends <mailto:bronchfriends >> > >Subject: FW: Delivery Status Notification (Failure) > >Date: Sun, 14 Jan 2007 14:52:29 +1000 > > > > > > > >Hope someone can help me, Sandy > > > > > > > >----------------------------------------> > > > >__________________________________________________________ > >Be one of the first to try Windows Live Mail. > >http://ideas.live.com/programpage.aspx?versionId=5d21c51a-b161-4314-9b0e-4911fb\ 2b2e6d > ><< details00000.txt >> > >From: sandy taylor > > >To: > > >Subject: I need some help > >Date: Sun, 14 Jan 2007 14:48:48 +1000 > > > >Hi all, Jut hoping some one from the USA can help me here. > >I have a lss who is keeping in touch with me personally, she is only just > >turning 15. > >She lives in Arkansas, and has mentioned Sharwood or Sherwood. > >This lass has recently witnessed her mother being bashed and raped in the > >street on the way home from work. > >This happened a while back( only months). > >She said the area is dangerously rough etc. > >She was a good scholar at school etc till this. > >She had begun to self harm as a result, and her only good friend is another > >lass who self harms too. > >She herself has stopped but suffering severe depression, and fears she will > >again self harm, she recently was sexually assaulted by her cousin, but not > >raped. > >However her uncle insists the cousin being this girls ( big bro image) and > >she is terrified that she will not be so lucky next time, and fears being > >raped. > >She is feeling imprisoned in her home, so stays and looks after her mom, > >who when bashed also got 4 broken ribs, which haven,t healed well, and has > >left her unable to keep house etc, so the lass stays home from school now > >to take care of mom, this is where the uncle fits in, as mum is divorced > >and her bro, helps her out. > >The lass is in what she calls shared custody, some weeks with mom and some > >weeks with dad. > >However dad is a violent alcaholic and he keeps saying he wants the girl to > >get out and get her own life, so she of course is a very mixed up little > >girl. > >I have promised to do all I can from here, but thats not good enough > >really. > >This lass is an internet friend of one of my oldest grandsons, so he has > >introduced us, because he feels I can help them. > >He has been in constant contact since all the trouble began. > >When the lasses mom got raped etc, she went out and purchased a gun for > >self defense and has taught the lass how to use it too. > >I am probably worried about nothing, with regards the gun, but its still on > >my mind also. > >Do any of you know the area, and is there a hospital that is reputable > >enough to help. > >Or can any of you suggest somewhere I can contact to help get this lass, > >her mum and her friend some help. > >I do know they are very poor, and often food on the table is not all that > >good etc. > >This lovely girl, is keeping in contact with me, and with my grandson and > >his sister who is 14.( my grand daughter too). > >I just hope someone may know of a support group, hospital etc in the area. > >I do have a list of places, but being that I have no idea how far away > >places are etc, I cannot even guess if they are 100 miles or 1000 miles > >away. > >The girl is pining to go back to her school, where she can see her friends > >and start to pick up some of her better life. > >I hope someone can help me. > >Thanks for listening. > >Look forward to a reply of some kind. > >Hugs Sandy > > > > > > > >Carer/ Consumer Representative > >Central Area, Mental Health Clinical network. > > " Sec/ Co -ord HBCAG & GEMS. > >Consumer/ carer rep to FCIMHS > >Community Consultant on Mental Health /Fraser Coast. > >Sandy R . > > > > " Nothing about us without us " > >HBCAG " Promoting Excellence in Mental Health " > >__________________________________________________________ > >Be one of the first to try Windows Live Mail. > >http://ideas.live.com/programpage.aspx?versionId=5d21c51a-b161-4314-9b0e-4911fb\ 2b2e6d > __________________________________________________________ > Fixing up the home? Live Search can help > http://imagine-windowslive.com/search/kits/default.aspx?kit=improve & locale=en-US\ & source=hmemailtaglinenov06 & FORM=WLMTAG > Back to top > Reply to sender <mailto:eladutko1@...?Subject=Re:%20FW:%20Delivery%20Status%20Notificati\ on%20(Failure)> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20FW:%20Delivery%20Status%\ 20Notification%20(Failure)> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJydnIzaDE3BF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIyBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14622> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/2858;_ylc=X3oDMTM2Z3F0bnZp\ BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIyBHNl\ YwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMjg1OA--> (4) > 3a. > New Diagnosis <http://groups.yahoo.com/group/bronchiectasis/message/14623;_ylc=X3oDMTJyOWYxcDl\ mBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIzBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Mike Stack " mikstack@... <mailto:mikstack@...?Subject=%20Re:New%20Diagnosis> mikstack <http://profiles.yahoo.com/mikstack> > Sun Jan 14, 2007 9:10 am (PST) > Hi, > I'm new to the group. My wife (of 34 years) and I live in Royal Oak, Michigan. We have > raised four children and are enjoying three young grandsons. Life is good. We both work in > health care but havn't been exposed to information about bronciectasis. > My wife has recently been diagnosed with Bronchiectasis. She's been coughing for 7 mo > now. No relief in site. She had a bronchoscopy last week. We were told that she has > bronchiectasis as well as Dynamic Airway Collapse. Of course it's several days before we'll be > able to talk to the Doctor to get more information( biopsy results..) about the prognaosis, > treatment.... > I joined the group in hopes of finding more info. I didn't have much luck searching(google) > for information. > Can any of you point us to a place where we can educate ourselves about these two > conditions? > Thanks for being there, > Mike Stack > Royal Oak Michigan > Back to top > Reply to sender <mailto:mikstack@...?Subject=Re:New%20Diagnosis> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:New%20Diagnosis> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyMGExcjQxBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIzBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14623> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14623;_ylc=X3oDMTM3Z3Qxbjc\ xBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjIzBHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMTQ2MjM-> (4) > 3b. > Re: New Diagnosis <http://groups.yahoo.com/group/bronchiectasis/message/14625;_ylc=X3oDMTJyOW1idXN\ lBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI1BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " marsha granville " marsha.granville@... <mailto:marsha.granville@...?Subject=%20Re:%20New%20Diagnosis> > Sun Jan 14, 2007 11:24 am (PST) > This group will give you a lot of info. Also, Goggle lung diseases and the > Mayo Clinic. > Marsha/NYC > Back to top > Reply to sender <mailto:marsha.granville@...?Subject=Re:%20New%20Diagnosis> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20New%20Diagnosis> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJya2RrNTJnBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI1BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14625> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14623;_ylc=X3oDMTM3OGE3cTc\ wBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI1BHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMTQ2MjM-> (4) > 3c. > Re: New Diagnosis <http://groups.yahoo.com/group/bronchiectasis/message/14630;_ylc=X3oDMTJyODhuYmp\ 1BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMwBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Sunniesback55@... " Sunniesback55@... <mailto:Sunniesback55@...?Subject=%20Re:%20New%20Diagnosis> > Sun Jan 14, 2007 12:14 pm (PST) > I tried to forward mail that I saved, but couldnt..so I copied and pasted > this for you..hope it helps..this was mail listed on our bronch support group.. > etti M, Pignatti PF. > Clinica di Malattie dell'Apparato Respiratorio, Laboratorio di Biochimica e > Genetica, IRCCS Policlinico San Matteo, Universita di Pavia, Pavia, Italy. > _m.luisetti@..._ (mailto:m.luisetti@...) > Bronchiectasis is an abnormal dilation of bronchi, consequent to the > destruction of their walls. It is included in the category of obstructive > pulmonary diseases, along with chronic obstructive pulmonary disease (COPD), > asthma, and cystic fibrosis. In approximately 50% of cases, bronchiectasis > is associated with underlying conditions; in the remainder, known causes are > not ascertainable (idiopathic bronchiectasis). A search for genetic > determinants of this phenotype, with the cystic fibrosis gene as a > candidate, has been performed by three independent groups. The results of > this search agreed on the association of bronchiectasis with cystic fibrosis > gene mutations and polymorphisms. The cystic fibrosis gene is also > associated with bronchiectasis due to rheumatoid arthritis and allergic > bronchopulmonary aspergillosis. A few other genes have been investigated in > idiopathic bronchiectasis, with negative results. Idiopathic bronchiectasis > is, therefore, to be considered as an obstructive multifactorial disorder > belonging to the category of cystic fibrosis monosymptomatic diseases (or > CFTR-opathies), whose pathogenesis is influenced by environmental factors > and other undetermined genes. > Pseudomonas aeruginosa can be common both in non-CF (cystic fibrosis) > bronchiectasis, and also common in cystic fibrosis. In my opinion it requires > treatment, because its one of the bad bacteria that can do damage to the lungs. I > think with bronchiectasis that its best to treat infections aggressively. > Having an infectious disease specialist can be a huge help. Once again > Pseudomonas requires treatment such as inhaled TOBI (or generic tobramycin) , colistin > is another take I sometimes take be inhalation, there is Cipro via IV or > oral, zithromax, and a slough of others. Its vital that you have a doctor > willing to treat these infections aggressively, as bronchiectasis can seem fine one > day and one can be very next within the same day or the next. Doctors must > be aggressive and be following pulmonary function tests (even four times a > year, etc). Chestphysio and exercise and vital, as well as a well balanced diet, > and some treats are perfectly fine. Various inhalers and aerosol meds for an > aerosol machine can be ordered. There are Acapella, flutter, pep masks, etc > that can all be helpful in airway clearance. there's tons that can be done, > but again I think you should be followed by an infectious disease specialist - > one with knowledge of bronchiectasis and cystic fibrosis (Many of the bronch, > treatments are taken from CF research). > See: _http://www.pseudomohttp://w_ (http://www.pseudomonas.com/) > _http://www.uams.http://www.uamshttp://www.uamshttp://www._ > (http://www.uams.edu/pediatrics/cf/respiratory_therapy.asp) > (excerpt from another patient) > This disease is nothing to fool with...terribly hard to treat and can be > deadly. It needs to be carefully treated. I had a bronchoscopy last May 3rd, > where bronchietasis was confirmed. My Pulmonary doctor sent me to the Internal > Disease specialist, who worked up a formula to attack this disease, which > was also complicated by an Aspergilus infection (a fungus ) . I asked my ID Dr > what would happen if I didn't take these treatments. She said I would just > get sicker and sicker...... She said I woul > Back to top > Reply to sender <mailto:Sunniesback55@...?Subject=Re:%20New%20Diagnosis> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20New%20Diagnosis> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyY3Q5NzVmBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMwBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14630> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14623;_ylc=X3oDMTM3aW83amg\ wBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMwBHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMTQ2MjM-> (4) > 3d. > Re: New Diagnosis <http://groups.yahoo.com/group/bronchiectasis/message/14633;_ylc=X3oDMTJydGNvNXR\ mBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMzBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Holt " maryholt12@... <mailto:maryholt12@...?Subject=%20Re:%20New%20Diagnosis> maryholt12 <http://profiles.yahoo.com/maryholt12> > Sun Jan 14, 2007 2:30 pm (PST) > Great post Sandie. ) Very helpful information from Dr. Pignatti and much agree about the pseudomonas and having an ID specialist. Agree with you comments, too. My ID specialist has been a life saver when respiratory doctors were not taking my bronchiectasis infections seriously Dr. Haase did. > Hugs:0) > Liz > Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) > carepages.com name: maryelizabethholt > Please watch: Live Life Then Give Life! - UK > http://www.youtube.com/watch?v=Nz33i6prkuQ. > " Don't take your organs to Heaven, heaven knows we need them here. " > --------------------------------- > All new Yahoo! Mail > --------------------------------- > Get news delivered. Enjoy RSS feeds right on your Mail page. > Back to top > Reply to sender <mailto:maryholt12@...?Subject=Re:%20New%20Diagnosis> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20New%20Diagnosis> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJydmN0NTFzBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMzBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14633> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14623;_ylc=X3oDMTM3YWVzcmx\ zBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMzBHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMTQ2MjM-> (4) > 4a. > question <http://groups.yahoo.com/group/bronchiectasis/message/14624;_ylc=X3oDMTJybXBlNjQ\ 5BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI0BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Debbie " debres@... <mailto:debres@...?Subject=%20Re:question> peppergal_111 <http://profiles.yahoo.com/peppergal_111> > Sun Jan 14, 2007 10:15 am (PST) > hi all > Happy weekend. Hope everyone is enjoying theirs > Question... does anyone else in your family have lung and or stomach > problems?? > I am trying to understand the " why " (not including Alpha 1 as I know how > that is genetic) > My mother and I both have Bronch.. I am 48 and she was probably diagnosed in > her late 50's. After much talking we discovered that as children we were > not runners. That kind of activity usually left us winded. My son (now > 20) is/was the same. He played football as a little guy and could never run > far. He has not been tested yet. Something I've yet to really discuss with > him and the Doc. We know of one Aunt that has lung problems and in her 90's > now is on oxygen. Rest of the family?? Don't know. But we are going to > start talking to them. Do we have a genetic weakness??? > Debbie/Canada > Back to top > Reply to sender <mailto:debres@...?Subject=Re:question> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:question> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJycmpqbGsxBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI0BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14624> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/2158;_ylc=X3oDMTM2MnZobmhr\ BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI0BHNl\ YwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMjE1OA--> (11) > 4b. > Re: question <http://groups.yahoo.com/group/bronchiectasis/message/14626;_ylc=X3oDMTJydTQxMHV\ uBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI2BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Bigler " patbigler@... <mailto:patbigler@...?Subject=%20Re:%20question> pbig1822 <http://profiles.yahoo.com/pbig1822> > Sun Jan 14, 2007 11:31 am (PST) > please take me off your e-mail list > Thanks patbigler@... > > > Reply-To: bronchiectasis <mailto:bronchiectasis > > To: <bronchiectasis <mailto:bronchiectasis >> > Subject: question > Date: Sun, 14 Jan 2007 09:25:53 -0800 > hi all Happy weekend. Hope everyone is enjoying theirs > Question... does anyone else in your family have lung and or > stomach problems?? I am trying to understand the " why " (not > including Alpha 1 as I know how that is genetic) My mother and > I both have Bronch.. I am 48 and she was probably diagnosed in > her late 50's. After much talking we discovered that as children > we were not runners. That kind of activity usually left us > winded. My son (now 20) is/was the same. He played football > as a little guy and could never run far. He has not been tested > yet. Something I've yet to really discuss with him and the Doc. > We know of one Aunt that has lung problems and in her 90's now is > on oxygen. Rest of the family?? Don't know. But we are going > to start talking to them. Do we have a genetic weakness??? > Debbie/Canada > #ygrp-mlmsg > {font-size:13px;font-family:arial,helvetica,clean,sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg > select, input, textarea {font:99% > arial,helvetica,clean,sans-serif;} #ygrp-mlmsg pre, code > {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text {font-family:Georgia;} #ygrp-text p {margin:0 0 1em > 0;} #ygrp-tpmsgs {font-family:Arial;clear:both;} #ygrp-vitnav > {padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a {padding:0 1px;} #ygrp-actbar > {clear:both;margin:25px > 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar > .left {float:left;white-space:nowrap;} .bld {font-weight:bold;} > #ygrp-grft {font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft {font-family:verdana;font-size:77%;border-top:1px solid > #666;padding:5px 0;} #ygrp-mlmsg #logo {padding-bottom:10px;} > #ygrp-vital > {background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px > 8px;} #ygrp-vital #vithd > {font-size:77%;font-family:Verdana;font-weight:bold;color:#333;te\ > xt-transform:uppercase;} #ygrp-vital ul {padding:0;margin:2px 0;} > #ygrp-vital ul li {list-style-type:none;clear:both;border:1px > solid #e0ecee;} #ygrp-vital ul li .ct > {font-weight:bold;color:#ff7900;float:right;width:2em;text-align:\ > right;padding-right:.5em;} #ygrp-vital ul li .cat > {font-weight:bold;} #ygrp-vital a {text-decoration:none;} > #ygrp-vital a:hover {text-decoration:underline;} #ygrp-sponsor > #hd {color:#999;font-size:77%;} #ygrp-sponsor #ov {padding:6px > 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor > #ov ul {padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li > {list-style-type:square;padding:6px 0;font-size:77%;} > #ygrp-sponsor #ov li a {text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc > {background-color:#eee;margin-bottom:20px;padding:0 8px;} > #ygrp-sponsor .ad {padding:8px 0;} #ygrp-sponsor .ad #hd1 > {font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;\ > line-height:122%;} #ygrp-sponsor .ad a {text-decoration:none;} > #ygrp-sponsor .ad a:hover {text-decoration:underline;} > #ygrp-sponsor .ad p {margin:0;} o {font-size:0;} .MsoNormal > {margin:0 0 0 0;} #ygrp-text tt {font-size:120%;} blockquote > {margin:0 0 0 4px;} .replbq {margin:4;} > Find sales, coupons, and free shipping, all in one place! MSN > Shopping Sales Deals <http://g.msn.com/8HMBENUS/2728??PS=47575> > Back to top > Reply to sender <mailto:patbigler@...?Subject=Re:%20question> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20question> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyYzlraHJvBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI2BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14626> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/2158;_ylc=X3oDMTM2NjF0aW91\ BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI2BHNl\ YwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMjE1OA--> (11) > 4c. > Re: question <http://groups.yahoo.com/group/bronchiectasis/message/14627;_ylc=X3oDMTJydWlzbDE\ 2BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI3BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " marsha granville " marsha.granville@... <mailto:marsha.granville@...?Subject=%20Re:%20question> > Sun Jan 14, 2007 11:35 am (PST) > Pat Bigler, > You must unsubscribe yourself. No one can do it for you. Please stop > writing the same message again and again. > Back to top > Reply to sender <mailto:marsha.granville@...?Subject=Re:%20question> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20question> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyZmNqMGljBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI3BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14627> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/2158;_ylc=X3oDMTM2b3QzcTlt\ BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI3BHNl\ YwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMjE1OA--> (11) > 4d. > Re: question <http://groups.yahoo.com/group/bronchiectasis/message/14628;_ylc=X3oDMTJyM2ZxaW1\ oBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI4BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " marsha granville " marsha.granville@... <mailto:marsha.granville@...?Subject=%20Re:%20question> > Sun Jan 14, 2007 11:35 am (PST) > As for me, I know of no history in my family. I think it can be > environmentally caused, too. > Marsha/NYC > Back to top > Reply to sender <mailto:marsha.granville@...?Subject=Re:%20question> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20question> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyZGhzMWQ0BF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI4BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14628> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/2158;_ylc=X3oDMTM2amVwc2U0\ BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI4BHNl\ YwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMjE1OA--> (11) > 4e. > Re: question <http://groups.yahoo.com/group/bronchiectasis/message/14629;_ylc=X3oDMTJyN2Nrbm9\ 1BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI5BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Debbie " debres@... <mailto:debres@...?Subject=%20Re:%20question> peppergal_111 <http://profiles.yahoo.com/peppergal_111> > Sun Jan 14, 2007 12:12 pm (PST) > Dear Pat > UNSUBSCRIBE yourself from the Yahoo group . > You are on a group mail list. > _____ > From: bronchiectasis <mailto:bronchiectasis > [mailto:bronchiectasis <mailto:bronchiectasis >] > On Behalf Of Bigler > Sent: Sunday, January 14, 2007 11:30 AM > To: bronchiectasis <mailto:bronchiectasis > > Subject: RE: question > please take me off your e-mail list > Thanks patbigler@... > _____ > > > Reply-To: bronchiectasis <mailto:bronchiectasis > > To: <bronchiectasis <mailto:bronchiectasis >> > Subject: question > Date: Sun, 14 Jan 2007 09:25:53 -0800 > hi all > Happy weekend. Hope everyone is enjoying theirs > Question... does anyone else in your family have lung and or stomach > problems?? > I am trying to understand the " why " (not including Alpha 1 as I know how > that is genetic) > My mother and I both have Bronch.. I am 48 and she was probably diagnosed in > her late 50's. After much talking we discovered that as children we were > not runners. That kind of activity usually left us winded. My son (now > 20) is/was the same. He played football as a little guy and could never run > far. He has not been tested yet. Something I've yet to really discuss with > him and the Doc. We know of one Aunt that has lung problems and in her 90's > now is on oxygen. Rest of the family?? Don't know. But we are going to > start talking to them. Do we have a genetic weakness??? > Debbie/Canada > _____ > Find sales, <http://g.msn.com/8HMBENUS/2728??PS=47575> coupons, and free > shipping, all in one place! MSN Shopping Sales Deals > Back to top > Reply to sender <mailto:debres@...?Subject=Re:%20question> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20question> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyODE5bzljBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI5BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14629> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/2158;_ylc=X3oDMTM2bWRuNHFv\ BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjI5BHNl\ YwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMjE1OA--> (11) > 4f. > Re: question <http://groups.yahoo.com/group/bronchiectasis/message/14632;_ylc=X3oDMTJyZXQycGF\ yBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMyBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Holt " maryholt12@... <mailto:maryholt12@...?Subject=%20Re:%20question> maryholt12 <http://profiles.yahoo.com/maryholt12> > Sun Jan 14, 2007 2:25 pm (PST) > Dear Debbie, > Aside from a cousin with severe life long asthma and a couple with less severe asthma, I'm the only one in my family that we know of with bronchiectasis, asthma and CF (some specialists still disagree about the CF diagnosis, but it fits). However, given the genetic variances, mutations in genes in the like this is not necessarily an uncommon experience. > My two older brothers and their children (all 4) are healthy. one child is however adopted. > A friend's children also call me " Aunt , " so I say I have 6 nieces! Unfortunately, no nephews, however the children are healthy and this is a blessing. > Hugs:0) > Liz > Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) > carepages.com name: maryelizabethholt > Please watch: Live Life Then Give Life! - UK > http://www.youtube.com/watch?v=Nz33i6prkuQ. > " Don't take your organs to Heaven, heaven knows we need them here. " > --------------------------------- > Share your photos with the people who matter at Yahoo! Canada Photos > Back to top > Reply to sender <mailto:maryholt12@...?Subject=Re:%20question> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20question> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyZjE1bGppBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMyBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14632> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/2158;_ylc=X3oDMTM2YTU5dGlm\ BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMyBHNl\ YwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMjE1OA--> (11) > 5a. > Hi Mike (and update on ) <http://groups.yahoo.com/group/bronchiectasis/message/14631;_ylc=X3oDMTJybWZvNjR\ sBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMxBHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " rdprice64 " emprice@... <mailto:emprice@...?Subject=%20Re:Hi%20%20Mike%20(and%20update%20on%20\ )> rdprice64 <http://profiles.yahoo.com/rdprice64> > Sun Jan 14, 2007 2:22 pm (PST) > Hi Mike and wife (name please) > To tell you the truth your doctor (a pulmonologist) and this group are > the best places for answers to your questions. I've found that there > is very little info out there on Bronchx (as we vets call it!) My > brother is an ER doc and I found him significantly lacking in knowledge > on bronchx and eventually gave up asking him as now I know more than he > does. > For everyone else the update on (my son, age 14) is doing so > much better with the pulmozyme and the vest. He's like an entirely > different kid. Our insurance denied coverage for the vest, but I will > continue to fight and be he squeeky wheel. > Good Luck, Mike and just ask away. These people know alot and have > lived with this illness a long time. > Ellen > Back to top > Reply to sender <mailto:emprice@...?Subject=Re:Hi%20%20Mike%20(and%20update%20on%20And\ rew)> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:Hi%20%20Mike%20(and%20updat\ e%20on%20)> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyMXJiZ2cxBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMxBHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14631> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14631;_ylc=X3oDMTM3bDlkZmZ\ lBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjMxBHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMTQ2MzE-> (3) > 5b. > Re: Hi Mike (and update on ) <http://groups.yahoo.com/group/bronchiectasis/message/14634;_ylc=X3oDMTJyaDlraTB\ rBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjM0BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Holt " maryholt12@... <mailto:maryholt12@...?Subject=%20Re:%20Hi%20%20Mike%20(and%20update%20on%2\ 0)> maryholt12 <http://profiles.yahoo.com/maryholt12> > Sun Jan 14, 2007 2:39 pm (PST) > I'd also like to welcome Mike and family to the list and agree with Ellen. Canadian Lung Association is even surprising lacking in information that does not pertain to emphysema, asthma or bronchitis. Our lung association in Canada should be more representative of the various lung diseases. They have a web page about bronchiectasis, but it is unhelpful and speaks about bronchiectasis as though it is a " mild " disease for everyone. I do not doubt that bronchiectasis can be mild, but it requires care and treatment and concern from specialists. Do not allow the infections to get out of hand. Get them treated, ASAP, and never underestimate bronchiectasis. In my opinion it can quickly progress if not treated aggressively and with thorough follow up. Even non-CF bronchiectasis can get out of hand and requires aggressive care. There needs to be more specialized clinics devoted to bronchiectasis. > Best Wishes:0) > Liz in Nova Scotia, Canada > Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) > carepages.com name: maryelizabethholt > Please watch: Live Life Then Give Life! - UK > http://www.youtube.com/watch?v=Nz33i6prkuQ. > " Don't take your organs to Heaven, heaven knows we need them here. " > --------------------------------- > The best gets better. See why everyone is raving about the All-new Yahoo! Mail. > Back to top > Reply to sender <mailto:maryholt12@...?Subject=Re:%20Hi%20%20Mike%20(and%20update%20on%20An\ drew)> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:%20Hi%20%20Mike%20(and%20up\ date%20on%20)> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJydDQycGgwBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjM0BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14634> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14631;_ylc=X3oDMTM3MnJiODQ\ 2BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjM0BHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMTQ2MzE-> (3) > 5c. > Hi Ellen Re: <http://groups.yahoo.com/group/bronchiectasis/message/14635;_ylc=X3oDMTJyOWdrZzl\ lBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjM1BHN\ lYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExNjg4NTE2NDI-> > Posted by: " Holt " maryholt12@... <mailto:maryholt12@...?Subject=%20Re:Hi%20Ellen%20Re:%20> maryholt12 <http://profiles.yahoo.com/maryholt12> > Sun Jan 14, 2007 2:42 pm (PST) > Dear Ellen. > Happy to hear that is achieving good results from Pulmozyme and the vest. Pulmozyme was also very helpful for me. > Please keep us updated. > Hugs:0) > Liz > rdprice64 > wrote: > Hi Mike and wife (name please) > To tell you the truth your doctor (a pulmonologist) and this group are > the best places for answers to your questions. I've found that there > is very little info out there on Bronchx (as we vets call it!) My > brother is an ER doc and I found him significantly lacking in knowledge > on bronchx and eventually gave up asking him as now I know more than he > does. > For everyone else the update on (my son, age 14) is doing so > much better with the pulmozyme and the vest. He's like an entirely > different kid. Our insurance denied coverage for the vest, but I will > continue to fight and be he squeeky wheel. > Good Luck, Mike and just ask away. These people know alot and have > lived with this illness a long time. > Ellen > Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) > carepages.com name: maryelizabethholt > Please watch: Live Life Then Give Life! - UK > http://www.youtube.com/watch?v=Nz33i6prkuQ. > " Don't take your organs to Heaven, heaven knows we need them here. " > --------------------------------- > Share your photos with the people who matter at Yahoo! Canada Photos > Back to top > Reply to sender <mailto:maryholt12@...?Subject=Re:Hi%20Ellen%20Re:%20> | Reply to group <mailto:bronchiectasis ?Subject=%20Re:Hi%20Ellen%20Re:%20> | Reply via web post <http://groups.yahoo.com/group/bronchiectasis/post;_ylc=X3oDMTJyZGR2dXZoBF9TAzk3\ MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjM1BHNlYwNkbXNn\ BHNsawNycGx5BHN0aW1lAzExNjg4NTE2NDI-?act=reply & messageNum=14635> > Messages in this topic <http://groups.yahoo.com/group/bronchiectasis/message/14631;_ylc=X3oDMTM3N3JoZzR\ wBF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BG1zZ0lkAzE0NjM1BHN\ lYwNkbXNnBHNsawN2dHBjBHN0aW1lAzExNjg4NTE2NDIEdHBjSWQDMTQ2MzE-> (3) > Recent Activity > * > 5 > New Members<http://groups.yahoo.com/group/bronchiectasis/members;_ylc=X3oDMTJmMTVrNm\ d0BF9TAzk3MzU5NzE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwN2dGwEc2xrA3\ ZtYnJzBHN0aW1lAzExNjg4NTE2NDI-> > Visit Your Group <http://groups.yahoo.com/group/bronchiectasis;_ylc=X3oDMTJlZnM3bWIyBF9TAzk3MzU5N\ zE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUDM\ TE2ODg1MTY0Mg--> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 I'm confused..so what you're saying is you tried to reply to the woman who's terribly ill and her daughter who you fear is being abused..and it was returned ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 I just wondered if someone responds to a question I ask and asks me a question in return, my answer to that question will go to everyone. And that is how it should be, right? Marsha Quote Link to comment Share on other sites More sharing options...
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