Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Hi Karin, I hope your appointment goes well. The clinic was helpful. Family and I were not impressed with the care received on the CF floor when hospitalised for 10 days I only saw Dr. Tullis once. Disappointing because I came from Nova Scotia to see her. Also had an arrogant physiotherapist that did not want to give me physio, because I'm a nonclassic CF patient and he didn't go along with doctors orders. fought with him the entire hospital stay about the physio and ended up writing a formal letter of complaint about him to the president of St.Mike's and to Dr. Tullis. My brother even complained to the nurses that I should be receiving physio. Unfortunately, because of work he could only get in at night and the physio people were off. Most of the nurses were fantastic with The exception of one snarky woman and I put in a complaint about her, as well, she said after my brother’s complaint "everybody has a little bit of mucous" ... in a not so kindly tone. She needed a boot to her bottom. My lungs have always produced a lot of mucous and physio is helpful! Best Wishes for health and happiness in 2007 and please let me know how your appointment goes. I think you'll find the clinic helpful. Hugs:0) LizPre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Most of the nurses were fantastic with The exception of one snarky woman and I put in a complaint about her, as well, she said after my brother’s complaint "everybody has a little bit of mucous" ... in a not so kindly tone. She needed a boot to her bottom. My lungs have always produced a lot of mucous and physio is helpful! Liz.. When I read, see or hear of people like this the ' not so nice lady' in me wants to bellow.." I only wish they could experience, in their lifetime, what we do..for just one week..then perhaps they'd be a tad more compassionate and understanding '..however..my Karma has a way of booting me right on my OWN face..therefore try as I may, I tend to bite my lip and squash such negative thoughts..I don't need that negativity I put out there coming back to me 10 fold..but dammit!!..sometimes it's SO HARD not to.. Sandie Never Look Down on SomeoneUnless You're Gonna Help Them Up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Dear Karin, Well, coming all the way from Nova Scotia after waiting months for this appointment, I would "expect" to see the specialist not the intern. The resident new nothing about CF or bronchiectasis, he said that I didn’t have bronchiectasis (wrong, I do) and wasn't helpful. Yes, he did daily rounds and sometimes with the senior residents, but often not with an attending specialist. I told him that I was getting physio and he did nothing to resolve this matter. I was extremely disappointed in St. Mike's Hospital. At least in Nova Scotia even in Halifax one see's the specialist along with the residents during rounds. On the weekend you may still see a specialist or a resident. It was this way at Toronto General, too the residents and specialist often came in together. Much better. I appreciate that Dr. Tullis is busy, but its not an excuse to fail to see her hospitalised patients. She has 300+ Cf patients, but it still doesn't excuse St. Mike's from offering a rotating slate of specialists. Some of her CF patients have also complained to me about her lack of care when they are in hospital. We expect to see our specialist and not a resident who doesn’t even know what a well known asthma med is ... accolate. It was an extremely frustrating hospital stay, so much so that I would never choose St. Mike's for in-hospital care again. Instead I'd go to Toronto General. The respirology floor at Toronto General was much better and I had a great physiotherapist there. She came in and spent a good half hour Monday through Friday. On the weekend another physiotherapist was available. No fighting for physio! I wrote a formal complaint letter to St. Mike's about my care. Toronto's larger population is not an excuse to ignore out right their patients, and I feel this happened on my case. I receive much better care form my GP and infectious disease specialist in Nova Scotia. After being in St.Mike's and arriving home I ended up getting sicker, ended up with pnuemonia, and was hospitalised over Christmas at our local hospital, because the resident failed to ensure that I was reciving the proper care at St. Mikes. My brother even complained to the nurses. My family could not be wth me often due to their work schedule. When I was at St. Mike's I tried to get through to the patient care representative, but had some phone problems. Anyhow, my letter went to everyone and I hope it made a difference leading to improved care for others with bronchiectasis and CF or other lung disease. Hugs:0) LizPre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Dear Karin, I understand that Dr. Tullis is busy. She has 300+ adult CF patients alone not including non-CF bronchiectasis. She directs one of the largest adult CF clinics in North America. However, as you stated bigger does not necessarily bring about better care especially if the specialist is too busy. My doctor did make an appointment for me to be seen in her office. Appointment went well, however she wanted me admitted to St. Mike's for IV antibiotics and physio. This did not go well and I sent my letter of complaint to Dr. Tullis, hospital CEO, and others at St. Mike's. I hope it made a difference. Thanks and Hugs:0) Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here." __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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