UPdate = Roxanne

[Guest guest]

Hi all,

Well we had our appointment with the new neurologist (Head of paediatric

neurology at major Children's hospital in Sydney).

As usual Roxanne passed all neuro tests with flying colours (other than

reflex asymetry). All is well as far as the sm is concerned.

He has made arrangements to have Rox admitted to the hospital to undergo a

24 hour EEG with video monitoring. This is what I was hoping for, so maybe

it will show them a bit more about what is going on, instead of the 20

minute EEG she usually has. This will enable them to see what she is like

first thing in the morning (her worst time for " blank outs " ).

Unfortunately it will be a wait of a few months before a bed is available,

but we expected this. He also ordered some more blood tests to check for

pernicious anemia, lupus etc, which all run in her father's family. These

results should be in in about a week or so.

He also took all her MRI's and looked over them with other neuro's and

radiologists (no results as yet). He was very approachable, so fingers

crossed they find the cause of all her problems.

Roxanne went to the snow with her father this weekend, and I am pleased to

say has returned in one piece

Her brother was due to go as well (first time to see snow), but nearly broke

his ankle at soccer training two nights before so had to stay home. He

wasn't very impressed. Thank god for videos and playstation games

Finally went back to school today on crutches (after falling off our back

landing yesterday) and spending five hours in the casualty department having

it re-xrayed.

I'll let you all know when we get any results.

Hope you all have a good day.

Debby Clare

clarefam@...

clarefam@...

Australian ACM/SM Support Group