a question... and a little bit of a vent/update. Long!/ka

[Guest guest]

ka,

It was really good to hear from you. I am sorry that you are still in so much pain and continuing to be stressed out by the worthless roommate/landlord. As for you first question, yes I do get sores on my tongue and I also get fever blisters and yeast in the corners of my mouth. A lot of it is brought on by stress as is a lot of our fibro symptoms. Stress tends to stir things up and make them even worse. The pain is no exception to that rule.

I hope that you get your car soon. I just got one today. I got a fabulous deal on a 2004 Mercury Sable that only has 20,000 miles on it. I got it for about $10,000 less than the base price for a brand new one and this one is fully loaded with leather seats. I hadn't planned to go car hunting today, but my husband sort of gave me a shove. By the time we were driving home with my husband following me, I was in such a fog and exhausted that all I wanted to do was get home.

I know that once you get moved and settled you can let a huge sigh of relief. You will have less stress and hopefully the pain and some of the other fibro symptoms that you are experiencing will settle somewhat.

Please drop a line every now and then and let us know how you are. You are an important part of this group and we care for you.

gentle hugs,

Sundra

-- a question... and a little bit of a vent/update. Long!

Hi ALl Ok first my question.... Do any of you get mouth sores, like canker sores on your tongue or swollen taste buds? I get them all the time... And lately I have had a hard time talking and eating becuase I have had one on the right side of my tonuge for 2 weeks then when it started to go away one popped up on the left side... and now I have one on each side... OUCH!! Now as far as I am doing well honesly horribe... but its cause of stress and pain. the septic tank has been fixed since mondy. I havnet really had time to post because I have been busy with trying to find a specialist for FMS and looking for a new car and packing for my move. I only have 4 boxes done so far but it is taking a lot out of me when I pack because I am getting rid of stuff that I dont need anymore. Then is getting into everything so he keeps me rather busy... The roomate deal is getting worse... but I am standing up for myself. I am tired of being treated like I am develop mentally disabled. I can understand most things and just cause I fortget things doesnt make me stupid! Jack (my roomie/ land lord) said that all women are stupid Bitches... I looked at him and said " Im not stupid! Even though you may think I am, But I am far from stupid!" Then later that night he had a female visitor over.... I have respect enough not to get into an argument with him in front of company.... But he glared at me because MY lotion was almost empty.... I said' dont glare at me!" and he said "why not?" I looked at him and said " you have company Jack... and believe me you dont want me to go there right now!" If she wouldnt have been there I would have went off on him about being a imature little boy for mooching off a single disables mom and her son because he still hasnt helped out with anything besides 3 gallons of milk. While I was gone last week I left the house pretty much clean... the only things that were out was my laundry which I need help carring up stairs... and boxes cause I am getting ready to move... When I came home the house was a total mess... and who had to clean it???? Oh but of cores the house slave, A.K.A me. I just want to smack him upside the head with a frying pan and knock some sence into him! I am so fet up with him coming home and whinging to me about how horrible his life is.... He makes 12-15 dollars an hour has a brand new truck and doesnt pay any bills or for food... yeah his life is so rough..BoooHoooo... But when ever I say something he bitches at me... I told him that my mom wanted to know when he was going to burn the trash and he yelled at me because he was having a bad day. I just dont know what to do anymore... I am running my self ragged because I dont have enough hands or energy to be able to clean and pack and take care of all at the same time. The good news though is that tomorrow my friend Krissy is coming over to visit with me while I pack so I wont be so lonely. I can get a lot done if I have someone to visit with and someone who wont let me get side tracked lol. I called about my apartment the other day and fran (the manager..very nice) said it wont be ready for at least 3 weeks so that is good cause I didnt want to have to rush pack like I did last time I moved. I dont want my things to get broken. Oh last night I hurt so bad I couldnt walk up the sairs I had to crawl... My Pecocet doesnt do anything for me anymore... and I have had my RX doubled now I take 2 percocets every 8 hours. But it doesnt help one bit. I did how ever sleep well last night... I took the magnetic mattress topper off the bed, but besides that I was exhausted cause wouldnt take a nap for me yesterday so I missed out on one for me... Today he even fought his nap... but I knew he was tired. I cant deal with a fussy kid on top of being in pain and stressed out about moving and getting a new car... Oh yeah about the car. My son's uncle is going to get my car... His last two cars were stolen, and he cant afford a car right now... So his parents are going to buy me a car woohooo an automatic! they have been looking at Volvos for me cause I like them, or a honda 2 door but automatic... and I could handle the two door cause soon steven will be big enough to get in and out of his car seat on his own. Sorry if I havent been a big part of the family lately I have a lot on my plate. Tomorrow is the big confrence 0n Fms about 45 minutes from where I live.... I wanted to go but I didnt sign up in time... but My father (who I dont like cause he is a jurk) But I called him and asked if he could split the cost of the convention with my mom which would be 15 dollars each and he said sure... I got 30 bucks from him two days ago... I about fell out of my chair. I ended up using the money for things that I needed for my house but I think that is the nicest thing my father has done in years becides the 100 bucks I got cause he forgot my birthday. Lets just put it this way... My father molested me and my half sister when I was little... then treated me like shit after my mom divorced him... Untill my son was born he was never a big part of my life. And my father was irate because I named my son after my Step dad who is passed away in 1999. My step dad was my Daddy... he was the only man that loved me like I was his own child. My father has introduced me as his step daughter and called his step daughter his real daughter. He has done some serious pshycological dammage to me!!! But as soon as my son was born my father turned around and was trying to be a good grandpa... I thought about it and said "maybe I should have been a boy.... maybe then he would have loved me" No child should ever have to go therw that hoorible feeling that they must be worthless if even their own flesh and blood doesnt want to know or love them. Ok enough about that. I found out that the doctor I was told I was going to see isnt taking pacients because for the last 2 years he has been doing FMS research with a lady named Janice Hoffman (who is a friend of s Dad's family). And Janice does exercise videos for fibromites. You all should look into them.... Especially people like Norah and I who need a low impact with lost of resting work out. She told me to do a bicept curl then wake 5 minutes and do the same on the other side. Then do a leg curl and wait 5 minutes then do the same on the other side... It makes soooooo much sence.if you use your muscles too much with out taking breaks you are doing nothing but dammaging them. They are going to be starting another study and I am going to try to get on as a fibromite for them to use in the study. The doctor that is doing this is Dr. Bennete. I have head wonderful things about him... And the woman that took his place in the Fibro clinic is Kim ... and I guess she is just as great as dr. Bennete. Ok well I think I have written enough for the day... hehe See you all the next time I am taking a break from packing. ka1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

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