To Sandie

[Guest guest]

Dear Sandie,

I know you are desperate to ease your pain, especially with small children.

They are probably the thing that keeps you going and, with small kids,

even when you are in pain, you have to keep going. I don't know what

treatments you have tried but keep trying until you get something that

works. I started out with some of the lesser drugs, graduated to methotrexate

and Humira and never felt so good after the Humira once started taking

effect. Then I had a reaction to Humira and thought, no wished, I could

just go ahead and die. My doctor didn't seem to care that I was in pain

when I came off of the Humira and drug his feet about getting papers

filled out for a different drug. I changed doctors and he started me on

Remicade. So far that has helped and you can increase the dosage

until you find a comfort zone. Bottom line, don't let this doctor run

your life, if he is unsympathetic, uncaring, then UN-engage him!

Life is to short to struggle with those kind of doctors. Look for

someone who cares, please.

My husband is a paraplegic and I have to turn him every two hours

and take care of his every need regardless of how I feel. I know that

sometimes " have to " is the only thing that keeps me up and moving.

I am sure you are in the same boat with little ones. Please see another

doctor if this one is uncaring.

Remember, half of the doctors practicing medicine graduated in the

bottom half of their class.....(a little humor). You have to find something

to make you smile.

Please feel free to write to me pathinze@...

Hugs,

Pat