been reading all messages.....

[Guest guest]

Hi to all my fellow sufferers of what ever your diagnosis is. I am

so thankful for all that comes through this group. I have my

daughtrer read it from time to time and I think she is finally

starting to understand the mystery of living with these autoimmune

diseases. I was told I have r/a, sjogrens, others and the last one

added was lupis. I think I am still in denial over that one. I am so

sick and tired of being sick and tired. Gee I bet no one can relate

in this group,right? I'm sorry I'm being sarcastic. I am afraid.

That is what I am. I am a Christian. I pray and I cry....ALOT! Oh

well...that's my life at this point. Great life,huh? I don't look

sick. I don't even like to be sick or show that I am not well. I

have been isolating and have been so unhappy. I'm tired of being a

guinea pig for medications and so on. I'm not wtriting anything that

I haven't read here. Am I whining or on a pity pot or what. I don't

even know. I'm just tired. Always tired now. Why??? I don't expect

anyone to know why we were dealt these cards but LORD have mercy.

This is to much. Lupis on top of everything? Nuerontin? Oh I was

given that and oh my God. For anyone who can take that drug, my hat

is off to you. It scared the heck out of me. Well, time to do

something. Soak in the tub with epsom salt and so on. One more day

to be grateful for. I pray everyone is blest today in more than one

way. Sincerly and with love,

[Guest guest]

Dear ,

I truly could identify with your feeling of being sick and tired of being

sick and tired. I have had the same diagnosis' as you and it is no fun, but

believe me there is a light at the end of the tunnel. I have seen many Dr's

including the head of Rheumatology at Stanford University Medical Center. It

is very difficult until they find the right mix of medications-all of which

are pretty scarey stuff- but when they kick in it is great. As I told Kirsten,

thanks to Neurontin I was able to wear low heeled dress shoes to my husbands

fancy awards dinner instead of clunky birkenstocks! Did I feel sexy! But

it took almost a year to get to the mix that works and I thank God for

everyday I have that works.

, this will happen for you! Another part of what helped me was being on

social security disability and not having to go to work everyday.

Please take care, if you would like to write to me personally I would be

honored to answer your E-mails - _Dandcmayer@..._

(mailto:Dandcmayer@...)

..

Gentle Hugs & prayers,

Carol M. in CA