Re: am I crazy? Larry and Cathy

[Guest guest]

THank you for your experiences! So far I have had no luck getting help. Before

I was ill, I did get help ordered for us thru the county due to the kids and

husband, but there was not enough staff for them to ever fill the position.

LOL, I attended " severe weather spotting " school for 2 years before my dx, LOL,

I love to watch thunderstorms, and silly me it took till 2 years of pain before

I realized it got so much worse when storms were brewing.

Many people are surprised that winter is not too bad for me. Lovely springtime

seems to be very worst. How sad to be worse when the world is getting so green

and pretty after winter.

My elbows only began in the last few months, too. I guess I can say I seldome

get bored? The past week I become extra weepy from it all, too, so tired of

complaining, so tired of pain. The change in lifestyle gets to me, I was a

waitress and a nurses aide and a nurse and was used to very heavy physical work.

Now it is a challenge figuring out how to buy a gallon of milk. Or opening the

envelopes the mail comes in.

- In , Flakin Gimp <flakin-gimp@t...> wrote:

> You sure have more on your plate than most. Is it possible to get help

> to come in? Do ask your dr about how to go about getting help.

>

> I also have PA (I don't call myself, " Flakin-Gimp for nothing... :-D )

> and my pain hits me in different places too. This spring has been

> miserable. If I'm not hurting in one place it is in another. I have

> found that if my spine is flaring, one or both of the hips are soon to

> follow and vice-versa. The feet and ankles flare, once they ease up the

> pain just starts heading up the leg. My new spots are my elbows. It

> use to be just the hands and wrists now it likes to go to the elbows

> too. I have found the right elbow gets worst. I think that has more to

> do with being right handed and I use it most, even in a flare up. It is

> wicked trying to lift that cup of coffee in the morning. I tried using

> the left hand, but learned fast that was bad after dumping the cup of

> coffee. No terrible burns thank goodness. I have been practicing with

> my left hand with cold items for the days that the right elbow is bad.

> The barometer that is on the wall, (I put it up so people don't need to

> ask me the age old question of " How are you doing? " ) and I have a

> love-hate relationship.

>

> Doesn't it drive you crazy when you think you have the pain under

> control and it hits somewhere else? I can't say I'm use to this

> migrating pain, but I expect it. The one thing I can't get use to is

> being so bloody cranky when I am in pain for more than 3 days in a row.

> Trust me, I am being nice in the description!

>

> So as you can see there are more of us with this problem of pain moving

> around. There are probably many more of us on the list that do. It

> isn't fun is it? Right now I think most of us can't wait til summer

> when the flare ups aren't so bad.

>

> Hope you start to feel better soon.

>

> in Ct.

>

> dreamer_plus wrote:

>

> >

> > Does anyone else have it where the problem moves from spot to spot

> > every few days?

> > Early last week my hip was flaring REALLY extremely. I could NOT move

> > it in any direction at all, the entire area where the leg of

> > underpants would be was swollen. That lasted 2 full days. It receded

> > as new pain began in my achilles tendon area on the other side. as

> > that slowly subsided, both ring fingers contracted and huge lumps

> > formed in my palms. (tendons, tendon sheaths- like trigger finger)

> > Day to day it moves around from one place to another.

> > My formal dx is psoriatic arthritis, altho I only had a couple months

> > of very mild psoriasis on my tummy. I began mtx last year after 2

> > years of not being able to afford any meds. I only have Rx for

> > ibuprofen for pain, not sure WHY my rheumy is not more aggressive on

> > pain control.

> > I AM going to demand more aggressive treatment, I have been suffering

> > this profoundly, out of my head literally delierious from pain for 3

> > years, now. It seems MUCH worse in spring, and in fall, less worse in

> > mid winter and much better in summer unless it is thunderstormy.

> > My husband is very very ill, and I have 2 disabled kids, I cannot keep

> > living this way if there is something that can be done.

> > But I seldom hear people say their problem areas are in different

> > places on different days.

> > My fingers, toes and wrists are almost always like sausages, stiff

> > swollen, often unuseable, but this other stuff moves so much.

> > Does anyone else have this or is it just me?

> > and this level of pain blows my mind. I had 3 kids with NO meds at

> > all, had knee surgery before there was arthroscopic surgery with no

> > pain meds after the first 4 hours post surgery. But this pain

> > liiterally takes me to my knees and OFTEN.

> >

[Guest guest]

THank you for your experiences! So far I have had no luck getting help. Before

I was ill, I did get help ordered for us thru the county due to the kids and

husband, but there was not enough staff for them to ever fill the position.

LOL, I attended " severe weather spotting " school for 2 years before my dx, LOL,

I love to watch thunderstorms, and silly me it took till 2 years of pain before

I realized it got so much worse when storms were brewing.

Many people are surprised that winter is not too bad for me. Lovely springtime

seems to be very worst. How sad to be worse when the world is getting so green

and pretty after winter.

My elbows only began in the last few months, too. I guess I can say I seldome

get bored? The past week I become extra weepy from it all, too, so tired of

complaining, so tired of pain. The change in lifestyle gets to me, I was a

waitress and a nurses aide and a nurse and was used to very heavy physical work.

Now it is a challenge figuring out how to buy a gallon of milk. Or opening the

envelopes the mail comes in.

- In , Flakin Gimp <flakin-gimp@t...> wrote:

> You sure have more on your plate than most. Is it possible to get help

> to come in? Do ask your dr about how to go about getting help.

>

> I also have PA (I don't call myself, " Flakin-Gimp for nothing... :-D )

> and my pain hits me in different places too. This spring has been

> miserable. If I'm not hurting in one place it is in another. I have

> found that if my spine is flaring, one or both of the hips are soon to

> follow and vice-versa. The feet and ankles flare, once they ease up the

> pain just starts heading up the leg. My new spots are my elbows. It

> use to be just the hands and wrists now it likes to go to the elbows

> too. I have found the right elbow gets worst. I think that has more to

> do with being right handed and I use it most, even in a flare up. It is

> wicked trying to lift that cup of coffee in the morning. I tried using

> the left hand, but learned fast that was bad after dumping the cup of

> coffee. No terrible burns thank goodness. I have been practicing with

> my left hand with cold items for the days that the right elbow is bad.

> The barometer that is on the wall, (I put it up so people don't need to

> ask me the age old question of " How are you doing? " ) and I have a

> love-hate relationship.

>

> Doesn't it drive you crazy when you think you have the pain under

> control and it hits somewhere else? I can't say I'm use to this

> migrating pain, but I expect it. The one thing I can't get use to is

> being so bloody cranky when I am in pain for more than 3 days in a row.

> Trust me, I am being nice in the description!

>

> So as you can see there are more of us with this problem of pain moving

> around. There are probably many more of us on the list that do. It

> isn't fun is it? Right now I think most of us can't wait til summer

> when the flare ups aren't so bad.

>

> Hope you start to feel better soon.

>

> in Ct.

>

> dreamer_plus wrote:

>

> >

> > Does anyone else have it where the problem moves from spot to spot

> > every few days?

> > Early last week my hip was flaring REALLY extremely. I could NOT move

> > it in any direction at all, the entire area where the leg of

> > underpants would be was swollen. That lasted 2 full days. It receded

> > as new pain began in my achilles tendon area on the other side. as

> > that slowly subsided, both ring fingers contracted and huge lumps

> > formed in my palms. (tendons, tendon sheaths- like trigger finger)

> > Day to day it moves around from one place to another.

> > My formal dx is psoriatic arthritis, altho I only had a couple months

> > of very mild psoriasis on my tummy. I began mtx last year after 2

> > years of not being able to afford any meds. I only have Rx for

> > ibuprofen for pain, not sure WHY my rheumy is not more aggressive on

> > pain control.

> > I AM going to demand more aggressive treatment, I have been suffering

> > this profoundly, out of my head literally delierious from pain for 3

> > years, now. It seems MUCH worse in spring, and in fall, less worse in

> > mid winter and much better in summer unless it is thunderstormy.

> > My husband is very very ill, and I have 2 disabled kids, I cannot keep

> > living this way if there is something that can be done.

> > But I seldom hear people say their problem areas are in different

> > places on different days.

> > My fingers, toes and wrists are almost always like sausages, stiff

> > swollen, often unuseable, but this other stuff moves so much.

> > Does anyone else have this or is it just me?

> > and this level of pain blows my mind. I had 3 kids with NO meds at

> > all, had knee surgery before there was arthroscopic surgery with no

> > pain meds after the first 4 hours post surgery. But this pain

> > liiterally takes me to my knees and OFTEN.

> >