Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 ----- Original Message ----- From: kimguzi > My name is Kim, and I just joined this group out of frustration. My husband, whose name is Les, was diagnosed with RA like 4 years ago. We live outside of Washington, D.C., and his doc is supposed to be one of the best in the country. But, this whole time, he's only said that it's " atypical RA " . Meaning that he has no idea what kind of RA he has. He's tried EVERYTHING (humira, methatrexate, etc.) Nothing helps. If anything, he's getting worse, and fast. Anybody have ANY suggestions? Thank you so much. Welcome, but sorry you have to be here! Maybe it's time to get a second opinion?? Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 ----- Original Message ----- From: kimguzi > My name is Kim, and I just joined this group out of frustration. My husband, whose name is Les, was diagnosed with RA like 4 years ago. We live outside of Washington, D.C., and his doc is supposed to be one of the best in the country. But, this whole time, he's only said that it's " atypical RA " . Meaning that he has no idea what kind of RA he has. He's tried EVERYTHING (humira, methatrexate, etc.) Nothing helps. If anything, he's getting worse, and fast. Anybody have ANY suggestions? Thank you so much. Welcome, but sorry you have to be here! Maybe it's time to get a second opinion?? Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 Hi Kim and welcome, I am with Nina on this one. After four years I don't care if he is the president, why not try the second opinion. I am considering it after just six months with my doc " who is supposed to be the best around. " I am sure my husband could relate to your frustation at watching your spouse detiorate so rapidly and not being able to do a whole lot about it. The group does help a lot so again welcome! Tracie --- In , " Nina " <ncampbell@t...> wrote: > > ----- Original Message ----- > From: kimguzi > > > My name is Kim, and I just joined this group out of frustration. My > husband, whose name is Les, was diagnosed with RA like 4 years ago. We > live outside of Washington, D.C., and his doc is supposed to be one of > the best in the country. But, this whole time, he's only said that > it's " atypical RA " . Meaning that he has no idea what kind of RA he > has. He's tried EVERYTHING (humira, methatrexate, etc.) Nothing > helps. If anything, he's getting worse, and fast. Anybody have ANY > suggestions? Thank you so much. > > Welcome, but sorry you have to be here! Maybe it's time to get a second opinion?? > > Nina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 Hi Kim and welcome, I am with Nina on this one. After four years I don't care if he is the president, why not try the second opinion. I am considering it after just six months with my doc " who is supposed to be the best around. " I am sure my husband could relate to your frustation at watching your spouse detiorate so rapidly and not being able to do a whole lot about it. The group does help a lot so again welcome! Tracie > > ----- Original Message ----- > From: kimguzi > > > My name is Kim, and I just joined this group out of frustration. My > husband, whose name is Les, was diagnosed with RA like 4 years ago. We > live outside of Washington, D.C., and his doc is supposed to be one of > the best in the country. But, this whole time, he's only said that > it's " atypical RA " . Meaning that he has no idea what kind of RA he > has. He's tried EVERYTHING (humira, methatrexate, etc.) Nothing > helps. If anything, he's getting worse, and fast. Anybody have ANY > suggestions? Thank you so much. > > Welcome, but sorry you have to be here! Maybe it's time to get a second opinion?? > > Nina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 ----- Original Message ----- From: tracierae143 >I am with Nina on this one. After four years I don't care if he is the president, why not try the second opinion. I am considering it after just six months with my doc " who is supposed to be the best around. " It never hurts to get a second opinion. They are, after all, only human. They do make mistakes. And they can't possibly know everything. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2005 Report Share Posted April 16, 2005 ----- Original Message ----- From: tracierae143 >I am with Nina on this one. After four years I don't care if he is the president, why not try the second opinion. I am considering it after just six months with my doc " who is supposed to be the best around. " It never hurts to get a second opinion. They are, after all, only human. They do make mistakes. And they can't possibly know everything. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2005 Report Share Posted April 17, 2005 > > > Hello, > > My name is Kim. We live outside of Washington, D.C., and his doc is supposed to be one of > the best in the country. > > Kim I'm in the Northern VA suburbs, andria exactly. My Rhemey is Dr. Philip Kempt who is next to Arlington Hospital in Arlington, VA. My last Rhemey was Dr. Leila Zackrison for 2 years. She would never diagnoised anything. Once I changed doctors after she " yelled " at me, I was diagnoised with RA by Dr. Kempt, an endocrinoligist he recommeded found I was hypothyroid and my gastro doctor found I have colleageaous colitis. I agree with my other peers, no matter how great a reputation your doctor has, your husband needs another opinion. Dr. Zackrison was suppose to be " one of the best in the county " . I don't think she is a bad doctor, she just tries to " do everything herself " . She never refered me to any other specialist. I despertaly needed an endocrinologist and a Gastro doctor. She choose to handle it all. In this world of specialists, it is impossible to keep up everything that is going on in each specialty. I'm in Vet meds, so I do know of what I'm saying. Same same. Tess, you and I began Humira and Methorexate together, I feel a kin with you. I'm sorry you're feeling so bad. I'm still on Humira every other week, thought I think I need every week now. In Jan. I didn't have swelling, but I felt similar to how you describe you do now. My Rhemey decided I was flaring and he gave me 3 alteratives., One go on Humira once a week, wasn't an option unless I was able to receive it from the manufactures, no insurance, go on Pred.or tough it out. I went on a very low dose of pred. 10mg. and lowered VERY slow. That did take care of it. I'm praying for you. You're story is sooo inspiring!! Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2005 Report Share Posted April 17, 2005 > > > Hello, > > My name is Kim. We live outside of Washington, D.C., and his doc is supposed to be one of > the best in the country. > > Kim I'm in the Northern VA suburbs, andria exactly. My Rhemey is Dr. Philip Kempt who is next to Arlington Hospital in Arlington, VA. My last Rhemey was Dr. Leila Zackrison for 2 years. She would never diagnoised anything. Once I changed doctors after she " yelled " at me, I was diagnoised with RA by Dr. Kempt, an endocrinoligist he recommeded found I was hypothyroid and my gastro doctor found I have colleageaous colitis. I agree with my other peers, no matter how great a reputation your doctor has, your husband needs another opinion. Dr. Zackrison was suppose to be " one of the best in the county " . I don't think she is a bad doctor, she just tries to " do everything herself " . She never refered me to any other specialist. I despertaly needed an endocrinologist and a Gastro doctor. She choose to handle it all. In this world of specialists, it is impossible to keep up everything that is going on in each specialty. I'm in Vet meds, so I do know of what I'm saying. Same same. Tess, you and I began Humira and Methorexate together, I feel a kin with you. I'm sorry you're feeling so bad. I'm still on Humira every other week, thought I think I need every week now. In Jan. I didn't have swelling, but I felt similar to how you describe you do now. My Rhemey decided I was flaring and he gave me 3 alteratives., One go on Humira once a week, wasn't an option unless I was able to receive it from the manufactures, no insurance, go on Pred.or tough it out. I went on a very low dose of pred. 10mg. and lowered VERY slow. That did take care of it. I'm praying for you. You're story is sooo inspiring!! Colleen Quote Link to comment Share on other sites More sharing options...
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