Re: Nina- Pain & Complaining

[Guest guest]

Dear JiLL: Please be careful with the prednisone. It can cause all kinds of

side effects. Especially to your bones.

I have been on it a long time and now I can't get off of it. If I try to

stop taking it I can't walk. It has effected my teeth, my jaw bones, my

appearance, my back, I have a hump back, I have very bad bones because of it.

My eyes

are effected also. I have to have cataract surgery soon. I have loss bone

everywhere, my height is now 5'1 " after alwaays being 5'3 " .

Prednisone is a dangerous medicine.

Tell your Dr you don't want it and let him put you on pain medicine. It is

much safer. If he won't do go to someone else. There are Doctors out there

that would rather give their patients pain meds instead of prednisone, you just

have to find them.

Prednsone destroys your body. My Doctor knows it now but it is too late to

do anything about all my symptoms. However, he realizes now that I have to

have pain medicatiion. I use dilaudid and duragesic pain patches and I am

comfortable.

Good luck.

Colletti

Anjillah@...

[Guest guest]

Dear JiLL: Please be careful with the prednisone. It can cause all kinds of

side effects. Especially to your bones.

I have been on it a long time and now I can't get off of it. If I try to

stop taking it I can't walk. It has effected my teeth, my jaw bones, my

appearance, my back, I have a hump back, I have very bad bones because of it.

My eyes

are effected also. I have to have cataract surgery soon. I have loss bone

everywhere, my height is now 5'1 " after alwaays being 5'3 " .

Prednisone is a dangerous medicine.

Tell your Dr you don't want it and let him put you on pain medicine. It is

much safer. If he won't do go to someone else. There are Doctors out there

that would rather give their patients pain meds instead of prednisone, you just

have to find them.

Prednsone destroys your body. My Doctor knows it now but it is too late to

do anything about all my symptoms. However, he realizes now that I have to

have pain medicatiion. I use dilaudid and duragesic pain patches and I am

comfortable.

Good luck.

Colletti

Anjillah@...

[Guest guest]

Hi All,

I am very new to this group but found 's warnings about prednisone to

be of interest. I was diagnosed with RA in november of 2004 and my reumy put me

on prednisone 5mg as well as plaquelin and voltaren. I told him I did not

want the prednisone at all but he insisted for " a few months " until the voltaren

took effect. well, I just went off the prednisone myself last friday and boy am

I paying for it. Most days I feel like crying I am in so much pain. I will

not give in though. I was my doc on Monday and he was annoyed I went off the

prednisone and refused some other treatments due to the fact that I would have

to have my liver and kidneys checked every few months. Even though I told him

what terrible pain I was in all he did was give me some pain medication and

send me out the door. Well, needless to say, I am finding a new doctor. In the

meantime, how do you cope? I am at the end of my rope but do not want to give

in.

, I am so sorry to hear waht prednisone has done to you. I had not

heard any of those things about the drug when my doctor prescribed them but you

can bet I will not be taking that drug again.

Take care

sandie

[Guest guest]

Hi All,

I am very new to this group but found 's warnings about prednisone to

be of interest. I was diagnosed with RA in november of 2004 and my reumy put me

on prednisone 5mg as well as plaquelin and voltaren. I told him I did not

want the prednisone at all but he insisted for " a few months " until the voltaren

took effect. well, I just went off the prednisone myself last friday and boy am

I paying for it. Most days I feel like crying I am in so much pain. I will

not give in though. I was my doc on Monday and he was annoyed I went off the

prednisone and refused some other treatments due to the fact that I would have

to have my liver and kidneys checked every few months. Even though I told him

what terrible pain I was in all he did was give me some pain medication and

send me out the door. Well, needless to say, I am finding a new doctor. In the

meantime, how do you cope? I am at the end of my rope but do not want to give

in.

, I am so sorry to hear waht prednisone has done to you. I had not

heard any of those things about the drug when my doctor prescribed them but you

can bet I will not be taking that drug again.

Take care

sandie

[Guest guest]

Hi ,

I hear your grief with the prednisone but to some people it is a life

saver!...Prednisone is one of those drugs that are horrible to some but

a miracle to others......I am sorry it isn't working for you, but maybe

we should not voice such strong opinions " I just mean when you say that

it is a dangerous drug " for those of us that have to take

it.........All medications have some form of bad reaction to some people

but not all. To some Prednisone is a wonder drug...

Hope your feeling better soon.

hugs,

Corinne

ANJILLAH@... wrote:

> Dear JiLL: Please be careful with the prednisone. It can cause all

> kinds of

> side effects. Especially to your bones.

> I have been on it a long time and now I can't get off of it. If I try to

> stop taking it I can't walk. It has effected my teeth, my jaw bones, my

> appearance, my back, I have a hump back, I have very bad bones because

> of it. My eyes

> are effected also. I have to have cataract surgery soon. I have loss

> bone

> everywhere, my height is now 5'1 " after alwaays being 5'3 " .

> Prednisone is a dangerous medicine.

> Tell your Dr you don't want it and let him put you on pain medicine.

> It is

> much safer. If he won't do go to someone else. There are Doctors out

> there

> that would rather give their patients pain meds instead of prednisone,

> you just

> have to find them.

> Prednsone destroys your body. My Doctor knows it now but it is too

> late to

> do anything about all my symptoms. However, he realizes now that I

> have to

> have pain medicatiion. I use dilaudid and duragesic pain patches and

> I am

> comfortable.

> Good luck.

> Colletti

> Anjillah@...

>

>

>

[Guest guest]

Hi ,

I hear your grief with the prednisone but to some people it is a life

saver!...Prednisone is one of those drugs that are horrible to some but

a miracle to others......I am sorry it isn't working for you, but maybe

we should not voice such strong opinions " I just mean when you say that

it is a dangerous drug " for those of us that have to take

it.........All medications have some form of bad reaction to some people

but not all. To some Prednisone is a wonder drug...

Hope your feeling better soon.

hugs,

Corinne

ANJILLAH@... wrote:

> Dear JiLL: Please be careful with the prednisone. It can cause all

> kinds of

> side effects. Especially to your bones.

> I have been on it a long time and now I can't get off of it. If I try to

> stop taking it I can't walk. It has effected my teeth, my jaw bones, my

> appearance, my back, I have a hump back, I have very bad bones because

> of it. My eyes

> are effected also. I have to have cataract surgery soon. I have loss

> bone

> everywhere, my height is now 5'1 " after alwaays being 5'3 " .

> Prednisone is a dangerous medicine.

> Tell your Dr you don't want it and let him put you on pain medicine.

> It is

> much safer. If he won't do go to someone else. There are Doctors out

> there

> that would rather give their patients pain meds instead of prednisone,

> you just

> have to find them.

> Prednsone destroys your body. My Doctor knows it now but it is too

> late to

> do anything about all my symptoms. However, he realizes now that I

> have to

> have pain medicatiion. I use dilaudid and duragesic pain patches and

> I am

> comfortable.

> Good luck.

> Colletti

> Anjillah@...

>

>

>

[Guest guest]

Hi Corinne,

I have to agree with you about the Prednisone. All of these drugs can come with

terrible side effects, just read the product information. For some, like

myself, Prednisone has been a lifesaver. Without it, I don't know if I would be

able to get around at all. Yes, we are adding to it and weaning me off it, but

without it temporarily my life would be even more restricted and disabling than

it already is which is pretty hard to imagine, but at least I can move around a

little. So be careful about that word dangerious because it probably can apply

to almost all of our meds:o)

Hugs,

Tracie

Re: [ ] Nina- Pain & Complaining

Hi ,

I hear your grief with the prednisone but to some people it is a life

saver!...Prednisone is one of those drugs that are horrible to some but

a miracle to others......I am sorry it isn't working for you, but maybe

we should not voice such strong opinions " I just mean when you say that

it is a dangerous drug " for those of us that have to take

it.........All medications have some form of bad reaction to some people

but not all. To some Prednisone is a wonder drug...

Hope your feeling better soon.

hugs,

Corinne

ANJILLAH@... wrote:

> Dear JiLL: Please be careful with the prednisone. It can cause all

> kinds of

> side effects. Especially to your bones.

> I have been on it a long time and now I can't get off of it. If I try to

> stop taking it I can't walk. It has effected my teeth, my jaw bones, my

> appearance, my back, I have a hump back, I have very bad bones because

> of it. My eyes

> are effected also. I have to have cataract surgery soon. I have loss

> bone

> everywhere, my height is now 5'1 " after alwaays being 5'3 " .

> Prednisone is a dangerous medicine.

> Tell your Dr you don't want it and let him put you on pain medicine.

> It is

> much safer. If he won't do go to someone else. There are Doctors out

> there

> that would rather give their patients pain meds instead of prednisone,

> you just

> have to find them.

> Prednsone destroys your body. My Doctor knows it now but it is too

> late to

> do anything about all my symptoms. However, he realizes now that I

> have to

> have pain medicatiion. I use dilaudid and duragesic pain patches and

> I am

> comfortable.

> Good luck.

> Colletti

> Anjillah@...

>

>

>

[Guest guest]

Hi Corinne,

I have to agree with you about the Prednisone. All of these drugs can come with

terrible side effects, just read the product information. For some, like

myself, Prednisone has been a lifesaver. Without it, I don't know if I would be

able to get around at all. Yes, we are adding to it and weaning me off it, but

without it temporarily my life would be even more restricted and disabling than

it already is which is pretty hard to imagine, but at least I can move around a

little. So be careful about that word dangerious because it probably can apply

to almost all of our meds:o)

Hugs,

Tracie

Re: [ ] Nina- Pain & Complaining

Hi ,

I hear your grief with the prednisone but to some people it is a life

saver!...Prednisone is one of those drugs that are horrible to some but

a miracle to others......I am sorry it isn't working for you, but maybe

we should not voice such strong opinions " I just mean when you say that

it is a dangerous drug " for those of us that have to take

it.........All medications have some form of bad reaction to some people

but not all. To some Prednisone is a wonder drug...

Hope your feeling better soon.

hugs,

Corinne

ANJILLAH@... wrote:

> Dear JiLL: Please be careful with the prednisone. It can cause all

> kinds of

> side effects. Especially to your bones.

> I have been on it a long time and now I can't get off of it. If I try to

> stop taking it I can't walk. It has effected my teeth, my jaw bones, my

> appearance, my back, I have a hump back, I have very bad bones because

> of it. My eyes

> are effected also. I have to have cataract surgery soon. I have loss

> bone

> everywhere, my height is now 5'1 " after alwaays being 5'3 " .

> Prednisone is a dangerous medicine.

> Tell your Dr you don't want it and let him put you on pain medicine.

> It is

> much safer. If he won't do go to someone else. There are Doctors out

> there

> that would rather give their patients pain meds instead of prednisone,

> you just

> have to find them.

> Prednsone destroys your body. My Doctor knows it now but it is too

> late to

> do anything about all my symptoms. However, he realizes now that I

> have to

> have pain medicatiion. I use dilaudid and duragesic pain patches and

> I am

> comfortable.

> Good luck.

> Colletti

> Anjillah@...

>

>

>

[Guest guest]

----- Original Message -----

From: ANJILLAH@...

>Dear JiLL: Please be careful with the prednisone. It can cause all kinds of

side effects. Especially to your bones.

Extended use is harder on you than temporary use. When I began taking it for

Sjogren's Syndrome, there just wasn't anything I could take that would work

against the symptoms I was having. Now, I take the smallest dose I can.

> Prednisone is a dangerous medicine.

Tell your Dr you don't want it and let him put you on pain medicine. It is

much safer. If he won't do go to someone else. There are Doctors out there

that would rather give their patients pain meds instead of prednisone, you just

have to find them.

The problem with your suggestion is that prednisone decreases inflammation.

Therefore it keeps you from having long term problems. A pain pill only masks

the problem, it's not going to help it. Prednisone is.

> Prednsone destroys your body. My Doctor knows it now but it is too late to

do anything about all my symptoms. However, he realizes now that I have to

have pain medicatiion. I use dilaudid and duragesic pain patches and I am

comfortable.

If your doctor did not know the side effects of Prednisone when he prescribed it

to you, then you need a new doctor!

There are definitely side effects with Prednisone, especially with long term

use. However, to tell someone to not take it, but to go on pain medication

(which have their own side effects including addiction), seems a bit harsh to

me.

Nina

[Guest guest]

----- Original Message -----

From: ANJILLAH@...

>Dear JiLL: Please be careful with the prednisone. It can cause all kinds of

side effects. Especially to your bones.

Extended use is harder on you than temporary use. When I began taking it for

Sjogren's Syndrome, there just wasn't anything I could take that would work

against the symptoms I was having. Now, I take the smallest dose I can.

> Prednisone is a dangerous medicine.

Tell your Dr you don't want it and let him put you on pain medicine. It is

much safer. If he won't do go to someone else. There are Doctors out there

that would rather give their patients pain meds instead of prednisone, you just

have to find them.

The problem with your suggestion is that prednisone decreases inflammation.

Therefore it keeps you from having long term problems. A pain pill only masks

the problem, it's not going to help it. Prednisone is.

> Prednsone destroys your body. My Doctor knows it now but it is too late to

do anything about all my symptoms. However, he realizes now that I have to

have pain medicatiion. I use dilaudid and duragesic pain patches and I am

comfortable.

If your doctor did not know the side effects of Prednisone when he prescribed it

to you, then you need a new doctor!

There are definitely side effects with Prednisone, especially with long term

use. However, to tell someone to not take it, but to go on pain medication

(which have their own side effects including addiction), seems a bit harsh to

me.

Nina

[Guest guest]

Saying goes for all drugs....some they work for and some they don't.....

I am on lots of medications and I actually sometimes would rather not

know all the side effects. Just to scary. But without the meds I would

be much worst off.

Hope your feeling well soon. Pain is a horrible thing.

Corinne

Tracie Bragdon wrote:

> Hi Corinne,

>

> I have to agree with you about the Prednisone. All of these drugs can

> come with terrible side effects, just read the product information.

> For some, like myself, Prednisone has been a lifesaver. Without it, I

> don't know if I would be able to get around at all. Yes, we are

> adding to it and weaning me off it, but without it temporarily my life

> would be even more restricted and disabling than it already is which

> is pretty hard to imagine, but at least I can move around a little.

> So be careful about that word dangerious because it probably can apply

> to almost all of our meds:o)

>

> Hugs,

>

> Tracie

> Re: [ ] Nina- Pain & Complaining

>

>

>

> Hi ,

> I hear your grief with the prednisone but to some people it is a life

> saver!...Prednisone is one of those drugs that are horrible to some but

> a miracle to others......I am sorry it isn't working for you, but maybe

> we should not voice such strong opinions " I just mean when you say that

> it is a dangerous drug " for those of us that have to take

> it.........All medications have some form of bad reaction to some

> people

> but not all. To some Prednisone is a wonder drug...

> Hope your feeling better soon.

>

> hugs,

>

> Corinne

>

> ANJILLAH@... wrote:

>

> > Dear JiLL: Please be careful with the prednisone. It can cause all

> > kinds of

> > side effects. Especially to your bones.

> > I have been on it a long time and now I can't get off of it. If I

> try to

> > stop taking it I can't walk. It has effected my teeth, my jaw

> bones, my

> > appearance, my back, I have a hump back, I have very bad bones

> because

> > of it. My eyes

> > are effected also. I have to have cataract surgery soon. I have

> loss

> > bone

> > everywhere, my height is now 5'1 " after alwaays being 5'3 " .

> > Prednisone is a dangerous medicine.

> > Tell your Dr you don't want it and let him put you on pain medicine.

> > It is

> > much safer. If he won't do go to someone else. There are Doctors

> out

> > there

> > that would rather give their patients pain meds instead of

> prednisone,

> > you just

> > have to find them.

> > Prednsone destroys your body. My Doctor knows it now but it is too

> > late to

> > do anything about all my symptoms. However, he realizes now that I

> > have to

> > have pain medicatiion. I use dilaudid and duragesic pain patches and

> > I am

> > comfortable.

> > Good luck.

> > Colletti

> > Anjillah@...

> >

> >

> >

[Guest guest]

Saying goes for all drugs....some they work for and some they don't.....

I am on lots of medications and I actually sometimes would rather not

know all the side effects. Just to scary. But without the meds I would

be much worst off.

Hope your feeling well soon. Pain is a horrible thing.

Corinne

Tracie Bragdon wrote:

> Hi Corinne,

>

> I have to agree with you about the Prednisone. All of these drugs can

> come with terrible side effects, just read the product information.

> For some, like myself, Prednisone has been a lifesaver. Without it, I

> don't know if I would be able to get around at all. Yes, we are

> adding to it and weaning me off it, but without it temporarily my life

> would be even more restricted and disabling than it already is which

> is pretty hard to imagine, but at least I can move around a little.

> So be careful about that word dangerious because it probably can apply

> to almost all of our meds:o)

>

> Hugs,

>

> Tracie

> Re: [ ] Nina- Pain & Complaining

>

>

>

> Hi ,

> I hear your grief with the prednisone but to some people it is a life

> saver!...Prednisone is one of those drugs that are horrible to some but

> a miracle to others......I am sorry it isn't working for you, but maybe

> we should not voice such strong opinions " I just mean when you say that

> it is a dangerous drug " for those of us that have to take

> it.........All medications have some form of bad reaction to some

> people

> but not all. To some Prednisone is a wonder drug...

> Hope your feeling better soon.

>

> hugs,

>

> Corinne

>

> ANJILLAH@... wrote:

>

> > Dear JiLL: Please be careful with the prednisone. It can cause all

> > kinds of

> > side effects. Especially to your bones.

> > I have been on it a long time and now I can't get off of it. If I

> try to

> > stop taking it I can't walk. It has effected my teeth, my jaw

> bones, my

> > appearance, my back, I have a hump back, I have very bad bones

> because

> > of it. My eyes

> > are effected also. I have to have cataract surgery soon. I have

> loss

> > bone

> > everywhere, my height is now 5'1 " after alwaays being 5'3 " .

> > Prednisone is a dangerous medicine.

> > Tell your Dr you don't want it and let him put you on pain medicine.

> > It is

> > much safer. If he won't do go to someone else. There are Doctors

> out

> > there

> > that would rather give their patients pain meds instead of

> prednisone,

> > you just

> > have to find them.

> > Prednsone destroys your body. My Doctor knows it now but it is too

> > late to

> > do anything about all my symptoms. However, he realizes now that I

> > have to

> > have pain medicatiion. I use dilaudid and duragesic pain patches and

> > I am

> > comfortable.

> > Good luck.

> > Colletti

> > Anjillah@...

> >

> >

> >

[Guest guest]

Sandie,

I just re-read your message. Did you quit the pred cold turkey

without tapering off? If so, that may be why the doc was angry. It's

a med that you're supposed to taper off over the course of months.

When I went off, it was 5mgs one month, 4 the next, 3 the next, etc.

It was hard but not unbearable.

I once went off Mtx by myself in my enthusiasm to try to get pregnant,

and my kindly doc was PO'd.

Just thought I should point that out after all my ranting ;-)

Sharon

>

> Hi All,

> I am very new to this group but found 's warnings about

prednisone to

> be of interest. I was diagnosed with RA in november of 2004 and my

reumy put me

> on prednisone 5mg as well as plaquelin and voltaren. I told him I

did not

> want the prednisone at all but he insisted for " a few months " until

the voltaren

> took effect. well, I just went off the prednisone myself last friday

and boy am

> I paying for it. Most days I feel like crying I am in so much pain.

I will

> not give in though. I was my doc on Monday and he was annoyed I went

off the

> prednisone and refused some other treatments due to the fact that I

would have

> to have my liver and kidneys checked every few months. Even though I

told him

> what terrible pain I was in all he did was give me some pain

medication and

> send me out the door. Well, needless to say, I am finding a new

doctor. In the

> meantime, how do you cope? I am at the end of my rope but do not

want to give

> in.

> , I am so sorry to hear waht prednisone has done to you. I had

not

> heard any of those things about the drug when my doctor prescribed

them but you

> can bet I will not be taking that drug again.

>

> Take care

> sandie

>

>

>

[Guest guest]

Sandie,

I just re-read your message. Did you quit the pred cold turkey

without tapering off? If so, that may be why the doc was angry. It's

a med that you're supposed to taper off over the course of months.

When I went off, it was 5mgs one month, 4 the next, 3 the next, etc.

It was hard but not unbearable.

I once went off Mtx by myself in my enthusiasm to try to get pregnant,

and my kindly doc was PO'd.

Just thought I should point that out after all my ranting ;-)

Sharon

>

> Hi All,

> I am very new to this group but found 's warnings about

prednisone to

> be of interest. I was diagnosed with RA in november of 2004 and my

reumy put me

> on prednisone 5mg as well as plaquelin and voltaren. I told him I

did not

> want the prednisone at all but he insisted for " a few months " until

the voltaren

> took effect. well, I just went off the prednisone myself last friday

and boy am

> I paying for it. Most days I feel like crying I am in so much pain.

I will

> not give in though. I was my doc on Monday and he was annoyed I went

off the

> prednisone and refused some other treatments due to the fact that I

would have

> to have my liver and kidneys checked every few months. Even though I

told him

> what terrible pain I was in all he did was give me some pain

medication and

> send me out the door. Well, needless to say, I am finding a new

doctor. In the

> meantime, how do you cope? I am at the end of my rope but do not

want to give

> in.

> , I am so sorry to hear waht prednisone has done to you. I had

not

> heard any of those things about the drug when my doctor prescribed

them but you

> can bet I will not be taking that drug again.

>

> Take care

> sandie

>

>

>

[Guest guest]

Nina,

I did go off the prednisone cold turkey. I did not know that you had to taper

off the drug and y doc did not even mentionit. I went off it last friday and

saw the doc on Monday. Even then he did not suggest I should taper. When in

his office I actually pleaded with him to help me I was in so much pain. He gave

me a script for a pain medication and told me I could take tylenol. I dont

know about you but tylenol. motrin, aleve do not do a thing for me and I had

told him that in the past. Now that I had xrays done I will have copies of them

sent to my pcp and then hopefully all will be sent to my new rheumatologist.

I guess that explains my terrible pain, I thought it was another flare up.

I am hoping to get through this without going back on the meds. I would like

to try some of the non steroid meds out there, I do know they all have risks

but I am hoping some weight loss will also aleve some of my pain.

Since being diagnosed with RA I have been doing a walking exercise tape at

least 4-5 times a week. I can do a mile and a half at a time. Then I totally

changed my eating habits, drink 10 glasses of water daily eat more fruits and

veggies. All in all trying to help myself.

THis stupid doc actually told me on my previous visit he wanted me to stay on

the meds i was on and see how many flare ups I had. Then this visit he didnt

even ask about the flare ups but I told him. I also told him I have had

plurisy 3 times in the last 2 years 2 of the times in the last 6 months. That

also

didnt even get a response out of him. I also told him I am not trying to have

another problem( Lupus) but with those facts and also my mother having lupus

it is something to explore further. He told me there is no chance i have lupus

and to be 100 percent sure he would need to take a skin sample from my face

and have it tested. I know from my Mother that it doesnt always show up in blood

tests but that you can still have Lupus.

All in all I guess I have to do alot more research on what RA is since I am

not getting anywhere with the doc.

Today I am in such terrible pain I feel like crying. But, with 2 babies at

home I have to keep going.

Hope you are doing ok. and thanks for all the info.

sandie

[Guest guest]

Nina,

I did go off the prednisone cold turkey. I did not know that you had to taper

off the drug and y doc did not even mentionit. I went off it last friday and

saw the doc on Monday. Even then he did not suggest I should taper. When in

his office I actually pleaded with him to help me I was in so much pain. He gave

me a script for a pain medication and told me I could take tylenol. I dont

know about you but tylenol. motrin, aleve do not do a thing for me and I had

told him that in the past. Now that I had xrays done I will have copies of them

sent to my pcp and then hopefully all will be sent to my new rheumatologist.

I guess that explains my terrible pain, I thought it was another flare up.

I am hoping to get through this without going back on the meds. I would like

to try some of the non steroid meds out there, I do know they all have risks

but I am hoping some weight loss will also aleve some of my pain.

Since being diagnosed with RA I have been doing a walking exercise tape at

least 4-5 times a week. I can do a mile and a half at a time. Then I totally

changed my eating habits, drink 10 glasses of water daily eat more fruits and

veggies. All in all trying to help myself.

THis stupid doc actually told me on my previous visit he wanted me to stay on

the meds i was on and see how many flare ups I had. Then this visit he didnt

even ask about the flare ups but I told him. I also told him I have had

plurisy 3 times in the last 2 years 2 of the times in the last 6 months. That

also

didnt even get a response out of him. I also told him I am not trying to have

another problem( Lupus) but with those facts and also my mother having lupus

it is something to explore further. He told me there is no chance i have lupus

and to be 100 percent sure he would need to take a skin sample from my face

and have it tested. I know from my Mother that it doesnt always show up in blood

tests but that you can still have Lupus.

All in all I guess I have to do alot more research on what RA is since I am

not getting anywhere with the doc.

Today I am in such terrible pain I feel like crying. But, with 2 babies at

home I have to keep going.

Hope you are doing ok. and thanks for all the info.

sandie

[Guest guest]

----- Original Message -----

From: sharonmacd

> I just re-read your message. Did you quit the pred cold turkey

without tapering off? If so, that may be why the doc was angry. It's

a med that you're supposed to taper off over the course of months.

When I went off, it was 5mgs one month, 4 the next, 3 the next, etc.

It was hard but not unbearable.

When I taper, I do it at 2.5 mg a week. Of course, I started at 40 mg. a day.

When I got down to 5 mg. I flared big time and had to go back up to 20. Now I'm

at 10 and I already feel the difference. The tapering plan was approved by both

my rheumy and my PCP.

Nina

[Guest guest]

----- Original Message -----

From: sharonmacd

> I just re-read your message. Did you quit the pred cold turkey

without tapering off? If so, that may be why the doc was angry. It's

a med that you're supposed to taper off over the course of months.

When I went off, it was 5mgs one month, 4 the next, 3 the next, etc.

It was hard but not unbearable.

When I taper, I do it at 2.5 mg a week. Of course, I started at 40 mg. a day.

When I got down to 5 mg. I flared big time and had to go back up to 20. Now I'm

at 10 and I already feel the difference. The tapering plan was approved by both

my rheumy and my PCP.

Nina

[Guest guest]

----- Original Message -----

From: slmcc93@...

> I did go off the prednisone cold turkey. I did not know that you had to taper

off the drug and y doc did not even mentionit. I went off it last friday and

saw the doc on Monday.

You need to get back on it ASAP and taper off. You can die from just stopping

cold turkey, depending on the dosage you were on. When you take Prednisone,

your adrenal glands stop working. You wean off it to get the adrenal glands

working again. If they aren't working, you could suffer heart failure.

Nina

[Guest guest]

----- Original Message -----

From: slmcc93@...

> I did go off the prednisone cold turkey. I did not know that you had to taper

off the drug and y doc did not even mentionit. I went off it last friday and

saw the doc on Monday.

You need to get back on it ASAP and taper off. You can die from just stopping

cold turkey, depending on the dosage you were on. When you take Prednisone,

your adrenal glands stop working. You wean off it to get the adrenal glands

working again. If they aren't working, you could suffer heart failure.

Nina