Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 Glad to hear your son's is doing fine. Not having any proteinuria is certainly a great sign. I'm not sure that micro-hematuria at this point is really significant. It's not unusual for this to persist even though the proteinuria may be down. I'm sure the tonsillectomy really did help, because that's the classic case where it does seem to be effective in reducing proteinuria -- when tonsillitis and throat infections are a recurring problem. Pierre update > Members: > > As I have mentioned I have an 8 year old boy - - diagnosed > with IGAN. Recently, he had his biannual checkup . We did receive > some good news in that his protein samples came back negative - which > after his initial readings of a year ago when hematuria first > appeared, there has been an obvious decline. He still does have > microscopic hematuria though - and perhaps Pierre would have specific > info on hematuria correlations. > Will did have his tonsils removed as he had severe tonsillitus > throughout his childhood - and so far there seems to be hope that the > tonsillectomy is helping in at the least the relief of throat > infections as he has not had any more sore throats since the > procedure. And as his protein count is now negative - we can only > think that the tonsilectomy has been a good move. > A Dr. Brewer of Texas Childrens Hospital in Houston emphasis on a > cure of this disease is likely in the genome research that is moving > forward in the medical world...... the way medicine looks at disease > will be change dramatically from the way we now know to research - and > the advances will most certainly involve understanding genetic > histories.. > > > eGroups Sponsor > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Oh , I am praying furiously that your will be awarded this. I know from bitter experience how stressful this is. We (Ann and I) were awarded Disability Living Allowance last week. What a difference it will make to us both. Shall continue the prayers until you tell me you have been awarded it. Love and Hugs, Lilian Fers wrote: > > Hello Everyone! > I got a call from disability today. It seems I've > made it through the first 3 steps of the process. My > claim has now been sent to the review board in KC,MO > for final decision. I should know within the next 2 > weeks. Wish me luck. I've been fighting since 1996. > > F > CEDS > Lebanon,MO > USA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Good luck , we will keep our fingers crossed for you. Donna G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 I can relate with your frustration... Maybe you can refer to the Physician list Jill has somewhere and there will be someone close to you you can use.. Good Luck.,... we all ahve gone through this and it really S**KS!!!!!! ( Big Hugs debby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 ; Good luck and God Bless. I sometimes forget, the stress of the situation doesn't always disappear after the test results are in. I hope this turns out to be the most minimal thing possible for you. --- karen@... wrote: <HR> <html><body> <tt> Hi Everyone<BR> <BR> Just to let you know that I had my ultra-sound and x-rays yesterday, <BR> this was to check for gallstones, check of kidneys and liver, the <BR> latter two being normal. & nbsp; No sign of any gallstones, although <BR> gallbladder was inflamed, I have been advised to avoid all dairy <BR> products, as this is probable cause of my pain. & nbsp; Also from ultra-<BR> sound, not xray, the radiologist has seen fluid around my heart and <BR> lungs, this he has suggested could be a bout of pleurisy. & nbsp; Would make <BR> sense, as I keep getting upper respiratory chest infections.<BR> <BR> Should have a more definitive picture on Tuesday once the consultant <BR> has looked at my chest x-rays. & nbsp; Needless to say with fluid around the <BR> heart and lungs, other things have to be checked out as well, i.e. <BR> tumours etc, so you can imagine I am very worried at the moment, as <BR> well as feeling absolutely lousy, hence my absence from the group <BR> just lately.<BR> <BR> Anyway will post the outcome next week, and whilst writing I did say <BR> I would try to get to the chat room this evening, but I doubt if I <BR> can make it now, I seem to be spending most of my time in my sick bed <BR> LOL.<BR> <BR> Still I am still smiling .....just.<BR> <BR> Best wishes<BR> <BR> <BR> <BR> </tt> <br> <tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hi all, Just wanted to let you know that my Dad is doing better (sort of). His blood sugar is now down to about 12 (quite an improvement over the 60 that it was yesterday). We saw him earlier today and he looks like hell, feels like hell. I think that i was expecting him to look and feel a lot better since his blood sugar is so much better but that was not the case. I'm guessing that it takes the body a while to bounce back from that kind of thing and the severe dehydration. Looks like if he continues on prednisone, he's going to be insulin dependent--I'm scared about this as I know very little about it and my parents know nothing. Any suggestions on how to prepare for his homecoming? Research I can do. I believe they will do some counselling and teaching at the hospital before he goes home but want to prepare myself as best I can. Also have to consult with his respirologist to see what the recommendation is on continuing prednisone or not. Thanks for listening and I look forward to any advice you all may have. anne (dad ipf 03/06) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Anne, I wish I had some advice or tips for you, but I have no experience with what you are dealing with. I just want you to know, "They also serve who only sit and wait"....I pray for you and "Dad". Sher ipf 5-06 Update Hi all,Just wanted to let you know that my Dad is doing better (sort of). His blood sugar is now down to about 12 (quite an improvement over the 60 that it was yesterday). We saw him earlier today and he looks like hell, feels like hell. I think that i was expecting him to look and feel a lot better since his blood sugar is so much better but that was not the case. I'm guessing that it takes the body a while to bounce back from that kind of thing and the severe dehydration. Looks like if he continues on prednisone, he's going to be insulin dependent--I'm scared about this as I know very little about it and my parents know nothing. Any suggestions on how to prepare for his homecoming? Research I can do. I believe they will do some counselling and teaching at the hospital before he goes home but want to prepare myself as best I can. Also have to consult with his respirologist to see what the recommendation is on continuing prednisone or not. Thanks for listening and I look forward to any advice you all may have.anne (dad ipf 03/06) Quote Link to comment Share on other sites More sharing options...
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