Guest guest Posted April 8, 1999 Report Share Posted April 8, 1999 Roy-- I'm really late in responding -- I've been " down in the dumps " and haven't gone on line. I just intended to go on tonight to read, but wanted to respond to yours. They didn't say I would be transplanted right away after listing--they just indicated I wouldn't have as long a wait because of my size and blood type. They guesstimated between 6mos to 1 yr. As far as going to another tx center, my hands are pretty much tied because of ins. I rec'd a copy of the eval. ltr from the surgeon to my family dr. last week which really has me and my husband dumbfounded. It was so full of inaccuracies that I wonder if they have me mixed up w/another patient--that's why I'm so down now--I find I'm all of a sudden w/o a dr. in whom I am confident and feel like I'm stuck. Don't want to get into it now and get too upset to go to bed, so will say no more for now. I will say, though, that I did write a ltr back to him to correct the record, so to speak. Laurie ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 1999 Report Share Posted April 8, 1999 -- blood type A; body size - small 5'6 " , now up to 107#. I'm not looking forward to June due to prev. msg I sent a little bit ago. Depending on the dr's response to mine, I may cancel. Laurie ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 1999 Report Share Posted April 8, 1999 Dear Laurie, Keep your chin up Sweetie!! It will happen in God's perfect timing!! I'll be praying for you! I know the wait is nearly unbearable!!! God Bless!! Love you, Jacquelyn ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 1999 Report Share Posted April 8, 1999 Laurie, Sending a written request to correct the record is a good idea. The other thing you might consider is working through one of the transplant coordinators to get this straightened out. You may find that they have a little more time to deal with patient issues than do the surgeons. Roy T. Re: Liver Tx Eval Done >Roy-- >I'm really late in responding -- I've been " down in the dumps " and >haven't gone on line. I just intended to go on tonight to read, but >wanted to respond to yours. They didn't say I would be transplanted >right away after listing--they just indicated I wouldn't have as long a >wait because of my size and blood type. They guesstimated between >6mos to 1 yr. As far as going to another tx center, my hands are pretty >much tied because of ins. > >I rec'd a copy of the eval. ltr from the surgeon to my family dr. last >week which really has me and my husband dumbfounded. It was so full >of inaccuracies that I wonder if they have me mixed up w/another >patient--that's >why I'm so down now--I find I'm all of a sudden w/o a dr. in whom >I am confident and feel like I'm stuck. Don't want to get into it now and >get too upset to go to bed, so will say no more for now. I will say, though, >that I did write a ltr back to him to correct the record, so to speak. > >Laurie > >------------------------------------------------------------------------ >eGroups eLerts! >Exclusive discounts on small business products and services >Join Now! http://clickhere./click/25 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 1999 Report Share Posted April 9, 1999 Laurie, I can relate to the " down in the dumps " ...I go through it periodically. I'll try to send some positive energy your way and have a candle burning for you this weekend... I also have to " correct " the record every time I go into the hospital, so I make sure I carry an accurate medical history with me when I go. Sometimes, for me, when I get presented with a challenge in life, it is doubly hard because I'm also dealing with this illness. Sometimes, I just want to lie in bed, pull the covers up, and stay there for a while. Take care and be gentle with yourself. I'll be thinking of you. Oceandrmer@... wrote: > -- > blood type A; body size - small 5'6 " , now up to 107#. > I'm not looking forward to June due to prev. msg I sent > a little bit ago. Depending on the dr's response to mine, > I may cancel. > > Laurie > > ------------------------------------------------------------------------ > shop.theglobe.com * One Stop Shopping * Free Shipping in the U.S.! > Live Personal Shopper * Satisfaction Guaranteed * No Hassle Returns! > Accessories, Apparel, Gourmet, Jewelry, Kids, Outdoors, Sports, More! > http://clickhere./click/7 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 1999 Report Share Posted April 10, 1999 Roy-- I called the tx coordinator a week after we were home (and before I rec'd the letter) telling her I was itching and asking what THEY wanted me to do--that Mayo had me double up on anitbiotics (I'm always on one antibiotic). That was 3/31 & I've not heard back yet -- so I'm losing hope fast in that place as a whole. Laurie ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 1999 Report Share Posted April 10, 1999 -- Thank you for your kind thoughts -it helps to be reminded when we are down that there are others out there who really understand what we are going through. That leaky boat thing again. Sometimes things look so bleak and it is really easy to close yourself in away from others--that's what I tend to do, anyway. Since I finally felt I should get back on line before the msgs piled up too badly, I find my friends and the hope & encouragement I need. Thank you all so much! I wish so much we could get together sometime. I wish I could be there in person for Jacquelyn, Phil, Peg and everyone as each of us goes through our difficult times. Since that isn't possible, my thoughts & prayers will have to do. Laurie ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 1999 Report Share Posted April 10, 1999 Laurie, You're right about this group. It's become my lifeline, sometimes, providing encouragement to take care of myself when I can't do it alone...what a beautiful gift. I really fussed and complained about getting my local GI, but I'm glad I did it. I hope you find a local GI doc soon. You shouldn't have to deal with the itching, etc. without a doc to refer to who will take your symptoms seriously. So, keep plugging away, and good luck. The candle is lit for you. Oceandrmer@... wrote: > -- > Thank you for your kind thoughts -it helps to be > reminded when we are down that there are > others out there who really understand what we are > going through. That leaky boat thing again. Sometimes things look so bleak > and it is really easy to close yourself in away from > others--that's what I tend to do, anyway. Since I finally felt I should > get back on line before the msgs piled up too badly, > I find my friends and the hope & encouragement I > need. Thank you all so much! > > I wish so much we could get together sometime. I wish > I could be there in person for Jacquelyn, Phil, Peg > and everyone as each of us goes through our difficult > times. Since that isn't possible, my thoughts & prayers > will have to do. > > Laurie > > ------------------------------------------------------------------------ > eGroups eLerts! > Exclusive discounts on the hottest electronics & Gadgets > Join Now! http://clickhere./click/29 > > Quote Link to comment Share on other sites More sharing options...
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