Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 In a message dated 00-07-02 15:40:58 EDT, you write: << But I find that I never manage to get the balance right with my insulin and frequently have post exercise hypos - needless to say I then have to eat - no wonder I never lose weight this way. >> , instead of eating to counteract a hypo, it's much better to buy some of those glucose tablets they sell for diabetics. They're calibrated to give 20 point rise per tablet and therefore you can measure your hypo, do a quick calculation to see what you need to get BG to 100 then take the appropriate number of glucose tabs. (You can take a half tablet for a 10-point rise). To confirm that you got the correct number, wait 35 minutes then test BG again. This will avoid the yo-yo effect of eating food to counteract a hypo and it's foolproof. . Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 In a message dated 00-07-02 16:52:56 EDT, you write: << I do the same, except that my exercise bike is in the living room but also in front of the TV - that is the only way I can avoid boring myself to death. >> I don't watch TV (must be one of the few people in the universe who don't) but I do get books on tape from the library. This really makes exercise tolerable -- I really love being read to! Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 > I have an exercise bike in my bedroom - > in front of the TV! But I find that I never manage > to get the balance right with my insulin and frequently > have post exercise hypos - needless to say I then > have to eat - no wonder I never lose weight this way. > Maybe I should take up walking. I do the same, except that my exercise bike is in the living room but also in front of the TV - that is the only way I can avoid boring myself to death. I have been doing 30 minutes a day at 65 watts and that has always had a marked effect on my blood glucose. Since my HbA1c is in the low 5s, I have decided to go for weight reduction and, starting today, have changed my program to 45 minutes at 30 watts but I still sweat for the last 20 minutes or so. If that manages to nudge me off my previously unshakeable 88.4 kg then I will try to stick it out for 60 minutes at 20 watts and then, hopefully, without sweating. Walking is strongly recommended as a way of doing weight loss exercise but it is a real pain carrying around a portable TV at the same time. I am working on a plan to have somebody ride a bicycle slowly in front of me with the TV strapped to his back. Will let you know how it works out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2000 Report Share Posted July 3, 2000 Maybe we could start an international campaign to have a TV attached to every lamp post!!! Re: To > I have an exercise bike in my bedroom - > in front of the TV! But I find that I never manage > to get the balance right with my insulin and frequently > have post exercise hypos - needless to say I then > have to eat - no wonder I never lose weight this way. > Maybe I should take up walking. I do the same, except that my exercise bike is in the living room but also in front of the TV - that is the only way I can avoid boring myself to death. I have been doing 30 minutes a day at 65 watts and that has always had a marked effect on my blood glucose. Since my HbA1c is in the low 5s, I have decided to go for weight reduction and, starting today, have changed my program to 45 minutes at 30 watts but I still sweat for the last 20 minutes or so. If that manages to nudge me off my previously unshakeable 88.4 kg then I will try to stick it out for 60 minutes at 20 watts and then, hopefully, without sweating. Walking is strongly recommended as a way of doing weight loss exercise but it is a real pain carrying around a portable TV at the same time. I am working on a plan to have somebody ride a bicycle slowly in front of me with the TV strapped to his back. Will let you know how it works out. ------------------------------------------------------------------------ Life's too short to send boring email. Let SuperSig come to the rescue. http://click./1/6137/2/_/529507/_/962570972/ ------------------------------------------------------------------------ Public website for Diabetes International: http://www.msteri.com/diabetes-info/diabetes_int Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Thanks for sharing your story. My boyfriend has some pals in England, and they were always talking about how horrible and rainy the weather is over there. I've always wanted to visit the English countryside, but I've heard that travel overseas isn't such a great idea for Americans right now. Something about being from the Devil Country or something LOL I'm taking my summer vacation right here in Texas, although 5 hours from my home. Going to a nice peaceful gorgeous lake to fish and stay in a cute little cabin. I will be going to Las Vegas in October though. We will be meeting one of his friends from England there too. Hope your move back to Australia is a good one, and that everything gets worked out okay for your health. I have decided I will NOT take steroids if they are offered to me, unless it is after a transplant. They sound like the side effects they cause are 20 times worse than the disease itself. No thanks. Teri in Texas > Hi Teri! When I joined the board in about December there were people > talking about how they thought that stress was making a bad situation worse, > and a couple of people said they had changed given up their high stress > lifestyle and felt/got better. I was jealous, so I thought I should think > about what I really wanted and then do something about it! > > I was born in the UK, emigrated to Australia at 5, came back at 31, > diagnosed IgAN at 33, returning at 34. I had a radio isotope function test > a few months ago which put me at 53% kidney function (though the 24 hour > collections seem to come out better), am spilling about 3g protein a day > with a nephrologist who desperately wants to put me on steroids (though he > says I don't have nephrotic syndrome), even before I have had a chance to > see if the Ramipril makes any difference (we have been trying different > doses). He says I am looking at dialysis and/or transplant within 10 years. > > In London the pollution is bad, the quality of fruit/veg is bad, the sun > doesn't come out often, and I am continually getting colds and feeling > generally miserable! So I decided that if I had to take immune suppressants > then I would do it somewhere that would be a bit " healthier " . > > I decided to go home via America because it had the cheapest fare - strange > how things work out isn't it? The cold really doesn't agree with me so I am > looking forward to going to Las Vegas and burning the chill out of my bones > (I was used to temps reaching up to 113F so it's going to be great). > > A bit extreme perhaps, but I am hoping that I can slow down when I get > there! > > ______________________________________________________________________ ___ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Funny, while there were rain showers now and again, the weather was lovely when I was in London a few years ago. Pierre Re: To > Thanks for sharing your story. My boyfriend has some pals in > England, and they were always talking about how horrible and rainy > the weather is over there. I've always wanted to visit the English > countryside, but I've heard that travel overseas isn't such a great > idea for Americans right now. Something about being from the Devil > Country or something LOL I'm taking my summer vacation right here > in Texas, although 5 hours from my home. Going to a nice peaceful > gorgeous lake to fish and stay in a cute little cabin. I will be > going to Las Vegas in October though. We will be meeting one of his > friends from England there too. > > Hope your move back to Australia is a good one, and that everything > gets worked out okay for your health. I have decided I will NOT take > steroids if they are offered to me, unless it is after a transplant. > They sound like the side effects they cause are 20 times worse than > the disease itself. No thanks. > > Teri in Texas > > > > > > Hi Teri! When I joined the board in about December there were > people > > talking about how they thought that stress was making a bad > situation worse, > > and a couple of people said they had changed given up their high > stress > > lifestyle and felt/got better. I was jealous, so I thought I > should think > > about what I really wanted and then do something about it! > > > > I was born in the UK, emigrated to Australia at 5, came back at 31, > > diagnosed IgAN at 33, returning at 34. I had a radio isotope > function test > > a few months ago which put me at 53% kidney function (though the 24 > hour > > collections seem to come out better), am spilling about 3g protein > a day > > with a nephrologist who desperately wants to put me on steroids > (though he > > says I don't have nephrotic syndrome), even before I have had a > chance to > > see if the Ramipril makes any difference (we have been trying > different > > doses). He says I am looking at dialysis and/or transplant within > 10 years. > > > > In London the pollution is bad, the quality of fruit/veg is bad, > the sun > > doesn't come out often, and I am continually getting colds and > feeling > > generally miserable! So I decided that if I had to take immune > suppressants > > then I would do it somewhere that would be a bit " healthier " . > > > > I decided to go home via America because it had the cheapest fare - > strange > > how things work out isn't it? The cold really doesn't agree with > me so I am > > looking forward to going to Las Vegas and burning the chill out of > my bones > > (I was used to temps reaching up to 113F so it's going to be great). > > > > A bit extreme perhaps, but I am hoping that I can slow down when I > get > > there! > > > > > ______________________________________________________________________ > ___ > > Get Your Private, Free E-mail from MSN Hotmail at > http://www.hotmail.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 You're welcome Teri. There are some good things about the UK, but as Dorothy says, there's no place like home! The US to UK exchange rate has improved since January (shame about me though). My belongings have safely departed for home, and I look forward to being reunited with them in a few months. Sadly I had to freight most of my clothes and will have to buy some more in the US (aaahhhhhhh). I would like to get out in the country, but I will settle for the tourist traps as I might not make it back again. I can't believe it's nearly time! I don't want to take the steroids, the neph thinks I should but I am not convinced that there is any real need just yet and that there is plenty of time, though if circumstances change I will think about it again as some on the list have noticed positives as well as negatives. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 > In a message dated 6/23/01 4:20:30 AM Pacific Daylight Time, > Failteg@m... writes: > > << have to tell you that your Posts are great. I have learned so much > from you over the past several months, and it's a pleasure to have > you as a member of our Group. > >> > Hi, Ellen, > Thank you for your appreciation, and I'm happy to hear that you had a great > trip! When I was afib-free last fall and early winter, I was not as inspired > to make posts here as I am now that my afib has returned and visits me every > 11-14 days. When I did make posts, it was usually to the Maze Afib Board > because there seemed to be more beginning afibbers on that board to whom I > could offer help, whereas this board seemed to consist mostly of more > experienced afibbers like me. However, I am realizing there are many > beginners on this board, too, and it's for beginners that afib is most > terrifying and to whom my heart goes out. I am still in afib for the sixth > day now, the second longest session I have ever had, but I continue to sleep > well and to be unaware of the afib unless I take my pulse. Perhaps this is > the time I will stay in afib and become a permanent afibber like my brother, > and half of me hopes I do stay in afib. The worry about the increased risk > of stroke from popping in and out of afib would end or at least abate a bit. > > After much research and consultation with doctors, I have decided that > ablation and/or surgery are not appropriate for my case. I won't even try > cardioversion because I have not read of one case in which afib was > permanently reversed by cardioversion. I have also decided against > proarrhythmic drugs unless afib symptoms return (the " mammal " revisits me!) > and become unbearable. I will continue with Atenolol and Verapamil which are > doing a great job of controlling rate and symptoms for me, and I will live > with afib when it becomes permanent, as I am sure it will. It's good to know > that you and others are doing well on Dofetilide, because that remains as an > option for me if my afib begins to interfere with my life again. (Perhaps > after all these years of afib, my heart has now become sufficiently " rewired " > that symptoms have disappeared as they did with my brother, who was also > visited by the mammal in the beginning.) I will not take Sotalol, as my > doctor recommends, or any other proarrhythmic drug except Dofetilide because > I have not read reports of any proarrhythmic drug other than Dofetilide being > successful to any significant degree. Your success with Dofetilide is > phenomenal and encouraging, and I have read of many others for whom > Dofetilide is successful. Dofetilide will be my next choice if my trusty > Atenolol and Verapamil fail me and the " mammal " returns to wreak havoc on my > life. > > I will be seeing a new cardiologist on July 5, an arrhythmia specialist, > because my present cardiologist is retiring. If he has any new ideas of > interest, I will pass them along to the group. However, I am not > anticipating a change in my treatment because I doubt that he will have any > new resources to offer other than ablation, surgery, or proarrhythmic drugs, > against which I have already decided. However, this kind of decision is very > personal, and I will pass along any information which might be useful to > others. > Hi, : You mention the Maze AFIB board for newcomers. Can you tell me where it is? I've known I have this for 2-1/2 weeks, and hypertension for about four months. I'm new! Also, there's been mention of the Maze and I don't know what that is. If anyone knows which side-effect is due to which of my drugs, I'd love to know so I can plead for a reduction in that one. I think the muscle fatigue is due to the Toprol, according to what was said previously. Even chewing tires my jaw. I'm a wreck. I'm starting to dream about how tired I am! My voice is lower. Which one can do that? Is it just the Toprol that's knocking me out? Or also the one or more of the others. The Accupril seems the most benign, but it didn't check my blood pressure enough. I don't know why he added drugs rather than removing some as well. So here are the symptoms: General fatigue Muscle fatique Light Headedness Lower voice Feel tranquilized or sedated Feel like there's cotton wool inside me And here are the drugs: Accupril 40 mg twice a day Toprol-XL 25 (down from 50) mg twice a day Diltiazem 180 (down from 300) mg once a day Nifedibpine ER 60 mg once a day Coated Enteric Aspirin with food, 81 mg once a day Synthroid 200 mcg once a day, down from 300 mcg PremPro .625 mg/2.5 mg I think the last three are innocent, but I'm mentioning them because of possible interactions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 In a message dated 6/23/2001 4:51:10 PM Pacific Daylight Time, sheshops01@... writes: << If anyone knows which side-effect is due to which of my drugs, I'd love to know so I can plead for a reduction in that one. I think the muscle fatigue is due to the Toprol, according to what was said previously. >> Hi, LInda, I'm sorry to hear about your troubles with side effects, but I can certainly sympathize. I think most of your problem with fatigue is resulting from the beta blockers, especially Toprol. I have noticed increased fatigue each time my dose of Atenolol has been raised over the past ten years. I am now taking 150 m.g. per day and don't notice abnormal fatigue as I did at first. If you hang in there, you will probably adjust to the beta blockers and feel less fatigue as time passes. From my experience, I can offer you a word of encouragement and say that the situation will improve as you get used to the drugs. My personal belief is that treatment of afib with beta blockers such as Atenolol or Topril is preferable to treatment with more risky drugs such as Sotalol (which has beta blocker properties with an added electrophysiological component) or Amiodarone (which has drastic side effects far more dangerous than simple fatigue.) However, you may want to check on one of your drugs: Synthroid. This drug is currently the topic of great controversy because it has been discovered that the manufacturers have purposely and randomly added extra potency beyond the advertised level to the pills to prolong the shelf life and marketability of the drug. In other words, the dosage of Synthroid has apparently been rather random and not necessarily the amount listed on the label! Also, in researching the drug on the Internet, I have discovered that the manufacturers have suppressed research which suggested that comparable generic levothyroxine (the active hormone in Synthroid) is as effective as Synthroid, or bioequivalent. Another disturbing fact which I learned in my research is that amazingly Synthroid has never been formally approved by the FDA even though it has been used for over 35 years! The manufacturers are being required to meet an August, 2001 deadline for approval. According to what I have read, there is a possibility that Synthroid will be removed from the market although the American Thyroid Society in an article on their Website recommends keeping Synthroid on the market. In any case, I find all of this quite disconcerting since I have always had an intuitive perception that thyroid has played a role in my development of afib and I started taking Synthroid shortly before my afib appeared. I am currently lobbying my doctor to try another form of levothyroxine which has been approved by the FDA. There are two of them: Levoxyl (also called Levothroid?) and Unithroid. My doctor has said she must research this and consult with an endocrinologist before prescribing a new drug for me. Anyway, since you are a Synthroid user and fellow afibber, you may want to check with your doctor, also. You asked about the Maze procedure. It is a surgical procedure for curing afib which involves making a series of incisions in tissue which will form scar tissue to block the paths of the abnormal electrical impulses which cause the afib. Since the most successful Maze procedure is open heart, it is an option which, in my opinion, would be chosen mostly by those who are desperate for relief from life-disrupting symptoms. I would not consider it at this time because, as my cardiologist says, you can " buy a lot of Atenolol and Verapamil for the cost of a Maze. " In other words, if medication controls my afib, I would prefer that route. (There is a Maze procedure that is not open heart, but that apparently is not very successful at this time.) The URL for the Maze Board is http://members.aol.com/mazern/post.htm You will find a bit of bias there on the part of some in favor of the Maze procedure over other options, but that's probably because persons who have been cured of afib are probably so jubilant and want to share their success and joy with others. Also, my perception is that there are fewer experienced afib sufferers using that board and more beginners than in this group. I see you are not taking Coumadin. Are you in afib all the time or are you paroxysmal as I am, in and out? Your doctor must think the aspirin is adequate to prevent stroke as it did for me and my brother for years. The Diltiazem is a calcium channel blocker, and that could be causing the swelling or water retention. Verapamil, my calcium channel blocker, has had that effect on me, an effect which worsens when I am tired, under stress, or on my feet most of the time. That, too, was worse in the beginning though. I find that cutting out salt really helps that fluid retention problem as well as blood pressure. Your doctor is basically prescribing for you the same treatment as mine with some variations. It's a treatment that has worked for me over the past ten years. It won't prevent afib completely, but I'm not sure there is a treatment which will infallibly cure or prevent afib. The best we can hope for is control of symptoms which will allow us to live our lives as we choose Good luck to you and I hope this helps. Afib is very frightening in the beginning, but it really helps, I think, to talk to experienced afibbers as you are doing with this group and as I did in the beginning with my brother, an experienced afib sufferer. You discover that others are surviving and coping with afib, just as you can, too. Best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Hi . I don't see anything wrong with your membership at my end, at least not according to the member list. Also checked the activity log, and I can see where you changed your email address. I can't think of any reason why it might not work. Did you reply to the comfirmation email? When you go to the web page, do you see anything about " linking " your email address to the group (top left hand corner, or thereabouts)? If so, that might be the problem. Let me know if it still doesn't work tomorrow, and we'll explore it further. Pierre > > > > > > Dear friends: > > > > My husband is Kirk and he has been in touch with your group for awhile > >now. My husband has faced a setback in dealing with his IGA. Kirk came > >down with flu symptoms and went to the ER when he was not producing urine > >after more than 12 hours. He was diagnosed with severe pneumonia also his > >lab and urine came back bad. He was rushed down by ambulance that night to > >a hospital where his neph. specialist is located. He maintained well on > >Thursday, complaining of difficulty breathing. I received a call early > >Friday morning and was told that was in ICU on a respirator. He went into > >respiratory distress and his kidneys worsening. > > > > Positive news: Kirk is on dialysis now and he is doing well. He is not > >having any troubles except with cramping after treatment. They are taking > >lots of fluids out of him at the present time. This is to help his kidneys > >and his pneumonia. He is under heavy sedation to prevent him from pulling > >out his tubes. And letting his body heal in the process. > > > > We need prayers for Kirk and our family. He was laid off of his job a > >few days before and the insurance is no longer there. We will get through > >this tough time, but it is going to take awhile. Please keep my husband in > >mind and I will make brief updates when I can. > > > > With love to all, > > > > Kirk's wife Lithe > > > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Right on Peggy, why didn't I think of that? hehehe. Sher ipf 5-06 to , I did as you suggested and now I'm posting direct from the board vs. my email for a trial. So far, the mail that comes in still has the little boxes in it. Any other suggestions?Thanks again. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Hi Sher, It's dnsrndl@... ( Randel with no vowels). Thanks-Sher K Bauman wrote: ...send me your personal email address and I'll fwd this sheet to you...I'm sure the whole group doesn't give a fig about it! LOL Sher Re: Re: Chromium Picolinate Nope Sher wasn't me. I don't have a clue what that is bu! t I would like to.. still need to loose 20 lbs myself..Love and Prayers, Peggy 9/04 ipf To all.....some months back I remember someone talking about a husband who lost weigh on the CP.Was it you Peggy?Anyway, I'd like to talk to that person.......Thanks, Sher ipf 5-06 Stay in the know. Pulse on the new Yahoo.com. Check it out. How low will we go? Check out Yahoo! Messenger’s low How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 , will you send me your home email again? I accidentally deleted it trying to send you a message...Thx. Went to the PO Sat and they were closed...duh! All books go out Mon. Sher Nac -To Leanne Storch, Beth and members> > > To Leanne Storch, Beth and members Re: NAC> > Hi, my name is Lillian and I am a fairly new member although > I apparently have had fibrosis for a number of years. Just recently > got worse and I lost a lot of weight-down to a size 4. Also I am a > senior.> My questions are about Nac. Was told by a former pulmonary > doctor and my present doctor to try Nac 600 mg 3 times a day. But > when I took it 3 times a day had a very strange reaction. I could > not sleep and was up all night for days and also became very > hyperactive. When I reduced dosage of the Vitamin to 2 times a day I > was still somewhat hyperactive and maybe got 3 hours of sleep a > night. Reduced capsule to one a day and slept much better at night > but was back to being tired and not as active during the day.> My questions: Do you know of any members who had the same > reaction to Nac? Are all brands of the Vitamin so bad smelling and > bad tasting? Most important a) Is there somewhere I can get this > vitamin in a pill form (so I can cut it in half and take 1 and ½ > pills a day) or somewhere I can get a capsule of 300 mg c) are > there any other vitamins or supplements which are helpful? What is > this prednisome ? - also there seems to be conflicting medical > studies and opinions on medications that help. Would also like to > know if any members are in clinical trials and how they are doing. I > would love to participate in a trial and will investigate that > later. Thank you for any help you can give me on this and thank you > for setting up this Support Web site> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Sunday to you ^o^ everyone's e-mail address is right after their name on posts. I think you can get every ones that way.. Love and Prayers, Peggy 9/04 ipf , will you send me your home email again? I accidentally deleted it trying to send you a message...Thx. Went to the PO Sat and they were closed...duh! All books go out Mon. Sher Nac -To Leanne Storch, Beth and members > > > To Leanne Storch, Beth and members Re: NAC > > Hi, my name is Lillian and I am a fairly new member although > I apparently have had fibrosis for a number of years. Just recently > got worse and I lost a lot of weight-down to a size 4. Also I am a > senior. > My questions are about Nac. Was told by a former pulmonary > doctor and my present doctor to try Nac 600 mg 3 times a day. But > when I took it 3 times a day had a very strange reaction. I could > not sleep and was up all night for days and also became very > hyperactive. When I reduced dosage of the Vitamin to 2 times a day I > was still somewhat hyperactive and maybe got 3 hours of sleep a > night. Reduced capsule to one a day and slept much better at night > but was back to being tired and not as active during the day. > My questions: Do you know of any members who had the same > reaction to Nac? Are all brands of the Vitamin so bad smelling and > bad tasting? Most important a) Is there somewhere I can get this > vitamin in a pill form (so I can cut it in half and take 1 and ½ > pills a day) or somewhere I can get a capsule of 300 mg c) are > there any other vitamins or supplements which are helpful? What is > this prednisome ? - also there seems to be conflicting medical > studies and opinions on medications that help. Would also like to > know if any members are in clinical trials and how they are doing. I > would love to participate in a trial and will investigate that > later. Thank you for any help you can give me on this and thank you > for setting up this Support Web site > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 , You sweet, sweet thang. What a great way to start the day...with your beautiful voice. Thank you so much for adding sunshine to my day by singing to us. It makes me smile each time I think of it! You are such a sweet soul. Thank you for being You!! Love, Leanne Sponsored Link $200,000 mortgage for $660/mo - 30/15 yr fixed, reduce debt, home equity - Click now for info Quote Link to comment Share on other sites More sharing options...
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