Re: the road back...and others

[Guest guest]

,

I do not believe you have been misled. I read " The Road Back " and

tried hard to find a doctor that would prescribe minocycline. It was

not easy. I finally was able to talk my own rheumatologist into giving

it to me, but I didn't follow through because I have long standing

disease (25+) years, and from what I've read, it is effective in early

arthritis. For long standing arthritis, intravenous antibiotics are

required, and there is no way my rheumy would go for that. I don't

know what kind of relationship you have with your doctor, but maybe if

you printed some of these articles and brought them to him, he would

consider adding minocycline to your current meds. That is what my

rheumy did. Since the antibiotics have anti-inflammatory properties,

he prescribed them, but he had no faith that they would help beyond

some help with inflammation. There are doctors that will prescribe the

protocol, but finding them isn't easy. I recently moved to Florida and

one of the doctors that worked with McPhearson practiced right

here in my town. I was so excited that I'd finally be able to go to a

doctor that believed in this protocol, but to my dismay, he moved.

What state do you live in?

Antibiotics in Sarcoidosis - Reflections on the First Year

http://www.joimr.org/phorum/read.php?f=2 & i=38 & t=38

Sarcoidosis succumbs to antibiotics--implications for autoimmune

disease.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=15246025 & dopt=Abstract

Marshall Protocol, originally developed for Sarcoidosis patients for

relieving their symptoms. Here is an exclusive interview with Trevor

Marshall, Ph.D., who devised the protocol and explains why he believes

it works for CFS patients.

http://www.chronicfatiguesupport.com/library/showarticle.cfm/ID/5784/e/

1/T/CFIDS_FM/

The foundation has focused its initial efforts on developing a working

pathogenesis (and a cure) for one of the most chronic autoimmune

diseases, Sarcoidosis.

http://autoimmunityresearch.org/projects.htm

Hope this helps.

a

On Apr 5, 2005, at 12:22 AM, fly_mo_hotmail wrote:

>

>

> Hello,

> I don't suffer from RA although I do suffer from another autoimmune

> disease - Sarcoidosis.  I am trying to find a physician that will

> monitor me in taking low dose, pulsed, tetracycline antibiotics as

> per a new treatment for my illness and it was recommended that I seek

> out a RA specialist.

> Reading through the posts on the The Road Back and the reluctance of

> another group of physicians that will not heed new research - I may

> have been mislead.  However, if there are any, please let me know. 

> Many thanks and never give up on your search for a better solution

> for

> your health.

> Regards

>

>

>

>

>

>

>

>

>

>

[Guest guest]

,

I do not believe you have been misled. I read " The Road Back " and

tried hard to find a doctor that would prescribe minocycline. It was

not easy. I finally was able to talk my own rheumatologist into giving

it to me, but I didn't follow through because I have long standing

disease (25+) years, and from what I've read, it is effective in early

arthritis. For long standing arthritis, intravenous antibiotics are

required, and there is no way my rheumy would go for that. I don't

know what kind of relationship you have with your doctor, but maybe if

you printed some of these articles and brought them to him, he would

consider adding minocycline to your current meds. That is what my

rheumy did. Since the antibiotics have anti-inflammatory properties,

he prescribed them, but he had no faith that they would help beyond

some help with inflammation. There are doctors that will prescribe the

protocol, but finding them isn't easy. I recently moved to Florida and

one of the doctors that worked with McPhearson practiced right

here in my town. I was so excited that I'd finally be able to go to a

doctor that believed in this protocol, but to my dismay, he moved.

What state do you live in?

Antibiotics in Sarcoidosis - Reflections on the First Year

http://www.joimr.org/phorum/read.php?f=2 & i=38 & t=38

Sarcoidosis succumbs to antibiotics--implications for autoimmune

disease.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=15246025 & dopt=Abstract

Marshall Protocol, originally developed for Sarcoidosis patients for

relieving their symptoms. Here is an exclusive interview with Trevor

Marshall, Ph.D., who devised the protocol and explains why he believes

it works for CFS patients.

http://www.chronicfatiguesupport.com/library/showarticle.cfm/ID/5784/e/

1/T/CFIDS_FM/

The foundation has focused its initial efforts on developing a working

pathogenesis (and a cure) for one of the most chronic autoimmune

diseases, Sarcoidosis.

http://autoimmunityresearch.org/projects.htm

Hope this helps.

a

On Apr 5, 2005, at 12:22 AM, fly_mo_hotmail wrote:

>

>

> Hello,

> I don't suffer from RA although I do suffer from another autoimmune

> disease - Sarcoidosis.  I am trying to find a physician that will

> monitor me in taking low dose, pulsed, tetracycline antibiotics as

> per a new treatment for my illness and it was recommended that I seek

> out a RA specialist.

> Reading through the posts on the The Road Back and the reluctance of

> another group of physicians that will not heed new research - I may

> have been mislead.  However, if there are any, please let me know. 

> Many thanks and never give up on your search for a better solution

> for

> your health.

> Regards

>

>

>

>

>

>

>

>

>

>

[Guest guest]

,

I haven't read " The Road Back " but my rheumy did prescribe Minocycline

to treat my RA. It was extremely effective. I can't remember how long

I took it, but seems like it was about a couple of years. But all of a

sudden my extremities were all massive bruises all over. My doctor

said it was a very rare side effect and they eventually cleared after

discontinuing the Minocycline.

My doctor has had great success with antibiotic therapy with his

patients. He said many doctors hesitate to use the old treatments,

thinking newer is better.

Good luck in finding someone. There are doctors out there that will do

it; you just may have to call around.

Elaine

--- In , " fly_mo_hotmail " <fly_mo@h...>

wrote:

>

>

> Hello,

> I don't suffer from RA although I do suffer from another autoimmune

> disease - Sarcoidosis. I am trying to find a physician that will

> monitor me in taking low dose, pulsed, tetracycline antibiotics as

> per a new treatment for my illness and it was recommended that I

seek

> out a RA specialist.

> Reading through the posts on the The Road Back and the reluctance of

> another group of physicians that will not heed new research - I may

> have been mislead. However, if there are any, please let me know.

> Many thanks and never give up on your search for a better solution

> for

> your health.

> Regards

>

[Guest guest]

,

I haven't read " The Road Back " but my rheumy did prescribe Minocycline

to treat my RA. It was extremely effective. I can't remember how long

I took it, but seems like it was about a couple of years. But all of a

sudden my extremities were all massive bruises all over. My doctor

said it was a very rare side effect and they eventually cleared after

discontinuing the Minocycline.

My doctor has had great success with antibiotic therapy with his

patients. He said many doctors hesitate to use the old treatments,

thinking newer is better.

Good luck in finding someone. There are doctors out there that will do

it; you just may have to call around.

Elaine

>

>

> Hello,

> I don't suffer from RA although I do suffer from another autoimmune

> disease - Sarcoidosis. I am trying to find a physician that will

> monitor me in taking low dose, pulsed, tetracycline antibiotics as

> per a new treatment for my illness and it was recommended that I

seek

> out a RA specialist.

> Reading through the posts on the The Road Back and the reluctance of

> another group of physicians that will not heed new research - I may

> have been mislead. However, if there are any, please let me know.

> Many thanks and never give up on your search for a better solution

> for

> your health.

> Regards

>