Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Hi ...I was 29 when I was first dxd with " sero-negative lupus' and 'mixed connective tissue' disease. That was 24 years ago. At the time I had 1 daughter, and shortly after dxd adopted 3 more children. I think it's fine of course to start any group you believe might be helpful. But I hope you don't 'throw the baby out with the bath water' as is said, and lose the great interaction of folks who have been exactly down the road you are facing. Much love & best wishes... Tess in Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Ok, now I have to put my two cents in. I am 34, was diagnosed at 32. I also have a considerable amount fo time and money invested into my education, I also love my work. I have days where I don't want to get out of bed, but, I also have days where I CAN'T get out of bed. My rheumatologist had also suggested I go on disability, but I told him I wasn't ready. He was ok with that and left the offer of the table for me. I didn't stop going to him because of it, though. He has been a life savior for me. I don't know where I would be without him. I got lucky with him and I wouldn't trade him in for anything (except maybe a cure!!). The people in here have not " allowed " themselves to be disabled. It happens to be a potential part of this disease. It's not an issue of not " allowing " it to disable you, it's a point of " when " it iwll disable you. Experience accounts for a lot. I don't know HOW I could have coped with this disease if it weren't for the wonderful and beautiful people in this group. They have saved me, they have helped me to prepare for what may come. I haven't come across another support group like this one. I would like to give a great, big, prednisone fat, thank you to all....Marina/Ohio > > Right. I'm 46, and I actually quit going to a rheumatologist because he was insisting that I go on disability. I have a career with considerable investment in education and training, and I love what I do. I have a 16-year old daughter and two stepkids who are 14 and 10, so I'm still taking care of kids at home. My attitude now is that I refuse to let something " disable " me. I have days when I don't want to get out of bed, and it's a huge effort to get through the day...but I do. I think the experiences of people who are still working and raising families are important. > > But also, it's important to look ahead and learn from others who are further down the road. How *do* you handle autoimmune issues as you age? Are there things we can do when younger to stave off later problems? Are there things some older people can share that they would have done differently, that can help younger people now? Older people with RA can offer a lot of information and support. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Ok, now I have to put my two cents in. I am 34, was diagnosed at 32. I also have a considerable amount fo time and money invested into my education, I also love my work. I have days where I don't want to get out of bed, but, I also have days where I CAN'T get out of bed. My rheumatologist had also suggested I go on disability, but I told him I wasn't ready. He was ok with that and left the offer of the table for me. I didn't stop going to him because of it, though. He has been a life savior for me. I don't know where I would be without him. I got lucky with him and I wouldn't trade him in for anything (except maybe a cure!!). The people in here have not " allowed " themselves to be disabled. It happens to be a potential part of this disease. It's not an issue of not " allowing " it to disable you, it's a point of " when " it iwll disable you. Experience accounts for a lot. I don't know HOW I could have coped with this disease if it weren't for the wonderful and beautiful people in this group. They have saved me, they have helped me to prepare for what may come. I haven't come across another support group like this one. I would like to give a great, big, prednisone fat, thank you to all....Marina/Ohio > > Right. I'm 46, and I actually quit going to a rheumatologist because he was insisting that I go on disability. I have a career with considerable investment in education and training, and I love what I do. I have a 16-year old daughter and two stepkids who are 14 and 10, so I'm still taking care of kids at home. My attitude now is that I refuse to let something " disable " me. I have days when I don't want to get out of bed, and it's a huge effort to get through the day...but I do. I think the experiences of people who are still working and raising families are important. > > But also, it's important to look ahead and learn from others who are further down the road. How *do* you handle autoimmune issues as you age? Are there things we can do when younger to stave off later problems? Are there things some older people can share that they would have done differently, that can help younger people now? Older people with RA can offer a lot of information and support. > > > > Quote Link to comment Share on other sites More sharing options...
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