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Hi!

The instructions mean not to nebulize water water. Saline is OKAY.

I have used mine for several months and really think it helps. Even

took it on vacation because it is so compact and convenient.

Enjoy and good health!

Lee

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Well I am a new member with the new bronc diagnosis and am still

working with my pulmonary doctor for various methods to combat this

nasty disease. No nebulizer [yet] but I do have an Acapela devise;

broncal inhalers [albuterol]; a huge stash of antibiotics [Cipro

750] and even a stash of prednisone pills [for flareups]. I got

such a flareup prior to taking an overseas trip and I was feeling

fine at least for a few days then I got a bad cough with copious

amounts of nasty yellow mucus in the middle of my holiday to Costa

Rica! Luckily I brought with me my antibiotics and so just now a

week later I am feeling a little better. The weather was hot and

humid and I traveled through Costa Rica and Nicaragua, coughing my

way across these muggy countries. Didn't help when I went canopy-

zip riding through the rainforest, hee hee. Nothing was going to

stop me but oh boy am I now paying for it! Janet

>

> Hope everyone is okay and you are all out having a good time and

not

> too sick to get online.

> While I am here, has anyone got an Omron NE-U22 nebuliser? I am a

bit

> concerned that they say in the instruction booklet not to nebulise

> water, why is this so? The main reason I got it was to neb.

hypertonic

> saline which is just salty water right?

> Cleaning it is a bit of a pain as well, all of those delicate

little

> parts. It works really well though and is so quiet. Cheers Carole

>

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I am a new member as well and this is my first chat with any members. I

was diagnosed with this condition about 15 years ago. I had all kinds

of tests that were done to finally figure it out (lung biopsy, acid

reflux, etc.)I repeatedly get a case of bacterial pneumonia every 2-3

months. I have tried the jacket that helps loosen the mucus from the

bronchial tubes, but unfortunately it is not approved by insurance

companies...or at least mine. I use QVar 80 twice a day. I feel like I

am constantly having to take antibiotics and mostly use Levaquin. This

concerns me because I believe I will be resistant before long. I have

had prednisone once, but because I have osteoperosis, that is not good

for me and not suggested. My doctor is a pulmonary critical care

specialist and is a gem. My symptoms are always the same....perfectly

fine one minute and then the next thing you know I have a temp that has

escalated as high as 105. I would like to find out if others have these

same kinds of repeated symptoms and if there are some similarities that

we encounter and can learn from each other on how to best manage our

condition. I am looking forward to hearing more from others about their

condition and treatment, or other tips on coping with this terrible

disease.

Re: Where is everybody?

Well I am a new member with the new bronc diagnosis and am still

working with my pulmonary doctor for various methods to combat this

nasty disease. No nebulizer [yet] but I do have an Acapela devise;

broncal inhalers [albuterol]; a huge stash of antibiotics [Cipro

750] and even a stash of prednisone pills [for flareups]. I got

such a flareup prior to taking an overseas trip and I was feeling

fine at least for a few days then I got a bad cough with copious

amounts of nasty yellow mucus in the middle of my holiday to Costa

Rica! Luckily I brought with me my antibiotics and so just now a

week later I am feeling a little better. The weather was hot and

humid and I traveled through Costa Rica and Nicaragua, coughing my

way across these muggy countries. Didn't help when I went canopy-

zip riding through the rainforest, hee hee. Nothing was going to

stop me but oh boy am I now paying for it! Janet

>

> Hope everyone is okay and you are all out having a good time and

not

> too sick to get online.

> While I am here, has anyone got an Omron NE-U22 nebuliser? I am a

bit

> concerned that they say in the instruction booklet not to nebulise

> water, why is this so? The main reason I got it was to neb.

hypertonic

> saline which is just salty water right?

> Cleaning it is a bit of a pain as well, all of those delicate

little

> parts. It works really well though and is so quiet. Cheers Carole

>

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Hi, good to hear from you. Yes it really is a nasty disease to deal

with and on top of that I have heart valve disease and diabetes so

I'm really screwed! I had angioplasty a couple of years ago and

never thought I would have trouble with my lungs! I was interested

to learn that you take QVAR, I was on that 2x a day then the doctor

switched me to Advair 2x a day plus a nasal-steriod. He has taken

me off both for now. But I agree with you as far as the amount of

antibiotics we must take, hate to become immune to antibiotics! It

is a concern for me too. Doc asked me to stay on them until I see

him again in 2 weeks for another evaluation. Yes, like you, mine

comes on like a light-switch ... I cough up a lot of chunk, mostly

in the morning -- the acapela breathing devise helps clear the

lungs - ask you doc about it. And then of course when I lie down in

bed at night, the coughing starts. I sleep with 3 pillows! But as

always my mucus cough wakes me up from a sound sleep! I was also

advised to get a pneumonia vaccination every 6 years ... it is

usually given to patients over 65 but if you're younger like me, it

is highly recommended anyway. Plus of course your flu shot.

Haven't got mine yet but with winter around the corner I will

certainly will be in line for it. This support group offers advice

from all over the world, keep checking. I live in California where

it is relatively a nice dry climate which I think helps?

Janet

> >

> > Hope everyone is okay and you are all out having a good time and

> not

> > too sick to get online.

> > While I am here, has anyone got an Omron NE-U22 nebuliser? I am

a

> bit

> > concerned that they say in the instruction booklet not to

nebulise

> > water, why is this so? The main reason I got it was to neb.

> hypertonic

> > saline which is just salty water right?

> > Cleaning it is a bit of a pain as well, all of those delicate

> little

> > parts. It works really well though and is so quiet. Cheers Carole

> >

>

>

>

>

>

>

>

>

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The breathing device is nothing I have heard of. Can you help tell me what it

does. I live also in a very dry, relatively low humidity environment...Idaho.

I am not sure about a nasal steroid, but as of late my sinuses is where things

seem to start. I have a pocket of silia hairs in my left bronchial tube that

has been damaged from a very bad infection, or at least a possibility of the

cause according to my doctor, but we really don't know for sure because this can

be caused from inhaling toxic fumes, etc. When the air quality is red I stay

inside more from our burning fires in the northwest. We get inversions in the

winter that keeps the skies gray and thick. What I understand is the sinus

drainage and/or coughing (acid) may cause some to land and accumulate in the

area where the silia hairs are damaged, where eventually all standing liquids

grow bacteria, thus the bacterial pneumonia. I have been a smoker, but not

excessively (6/day) and not sure if that has had any bearing on this, but of

course my doctor has said to quit more than once to see if it helps. More of a

relaxing thing for me.

Robbs, L & D Admin.

â–ªTâ–ª â–ª â–ªMobile â–ª Meridian Call Center

Desk:

Mobile:

Fax:

e-mail: .Robbs@...

Re: Where is everybody?

Hi, good to hear from you. Yes it really is a nasty disease to deal

with and on top of that I have heart valve disease and diabetes so

I'm really screwed! I had angioplasty a couple of years ago and

never thought I would have trouble with my lungs! I was interested

to learn that you take QVAR, I was on that 2x a day then the doctor

switched me to Advair 2x a day plus a nasal-steriod. He has taken

me off both for now. But I agree with you as far as the amount of

antibiotics we must take, hate to become immune to antibiotics! It

is a concern for me too. Doc asked me to stay on them until I see

him again in 2 weeks for another evaluation. Yes, like you, mine

comes on like a light-switch ... I cough up a lot of chunk, mostly

in the morning -- the acapela breathing devise helps clear the

lungs - ask you doc about it. And then of course when I lie down in

bed at night, the coughing starts. I sleep with 3 pillows! But as

always my mucus cough wakes me up from a sound sleep! I was also

advised to get a pneumonia vaccination every 6 years ... it is

usually given to patients over 65 but if you're younger like me, it

is highly recommended anyway. Plus of course your flu shot.

Haven't got mine yet but with winter around the corner I will

certainly will be in line for it. This support group offers advice

from all over the world, keep checking. I live in California where

it is relatively a nice dry climate which I think helps?

Janet

> >

> > Hope everyone is okay and you are all out having a good time and

> not

> > too sick to get online.

> > While I am here, has anyone got an Omron NE-U22 nebuliser? I am

a

> bit

> > concerned that they say in the instruction booklet not to

nebulise

> > water, why is this so? The main reason I got it was to neb.

> hypertonic

> > saline which is just salty water right?

> > Cleaning it is a bit of a pain as well, all of those delicate

> little

> > parts. It works really well though and is so quiet. Cheers Carole

> >

>

>

>

>

>

>

>

>

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> > >

> > > Hope everyone is okay and you are all out having a good time

and

> > not

> > > too sick to get online.

> > > While I am here, has anyone got an Omron NE-U22 nebuliser? I

am

> a

> > bit

> > > concerned that they say in the instruction booklet not to

> nebulise

> > > water, why is this so? The main reason I got it was to neb.

> > hypertonic

> > > saline which is just salty water right?

> > > Cleaning it is a bit of a pain as well, all of those delicate

> > little

> > > parts. It works really well though and is so quiet. Cheers

Carole

> > >

> >

> >

> >

> >

> >

> >

> >

> >

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Hello,

Thanks for your suggestion on the devise. I am going to check on it with my

doctor asap. Congratulations on your 28 smoke free years. I am doing it and

hoping to stick with it. I wasn't sure from our previous discussion if it was

something like the flutter. That only made me cough more and I can do what I

guess may be called postural drainage from another member to cough up what I

can. My non smoking husband too, preaches it and I think it is just going to be

done. Thanks for your words of wisdom. Plenty of dogs (5) at my house so they

certainly provide some calm therapy. My air lung capacity is pretty good

according to my doctor. Has not declined in years but have another test in

November and will know more. What do you and your doctor think brought on your

disease?

Robbs, L & D Admin.

â–ªTâ–ª â–ª â–ªMobile â–ª Meridian Call Center

Desk:

Mobile:

Fax:

e-mail: .Robbs@...

Re: Where is everybody?

> > >

> > > Hope everyone is okay and you are all out having a good time

and

> > not

> > > too sick to get online.

> > > While I am here, has anyone got an Omron NE-U22 nebuliser? I

am

> a

> > bit

> > > concerned that they say in the instruction booklet not to

> nebulise

> > > water, why is this so? The main reason I got it was to neb.

> > hypertonic

> > > saline which is just salty water right?

> > > Cleaning it is a bit of a pain as well, all of those delicate

> > little

> > > parts. It works really well though and is so quiet. Cheers

Carole

> > >

> >

> >

> >

> >

> >

> >

> >

> >

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Hi ,

I cannot identify with smoking to relax beacuse I'm

not a smoker. When I want to relax I enjoy a nice

bubble bath, listen to favourite music, watch a funny

movie, get together with family or friends, read, hold

and cuddle my cat, do a craft, work on a puzzle, etc.

:0)

Second-hand or passive smoking from others causes my

lungs to fill up more and my sinuses to pound (develop

a bad sinus headache). Fortunately, many places in

Nova Scotia are now smoke-free. :o) This is a huge

help in allowing me and many others to get out and

about with no worry of inhaling second-hand smoke, and

enduring its side-effects.

Cigarettes damage the cilia in the lungs amongst

causing others problems in the lungs. We need healthy

little hairs or cilia in our lungs to help us raise

our secretions that build up with our bronchiectasis.

Normally, healthy cilia beat back and forth, helping

like an elevator to raise and clear screations. When

this “elevator” is not properly working this creates

further lung complications, and an ideal breeding

ground for bacteria to grow. I hope that you

stop smoking, because there is no safe amount of

cigarettes. Your lungs and the rest of your body will

thank you!

We had to stop using our wood stove a few years back.

It was very hard on my lungs. Some of the smoke from

the stove did come into the house despite having a

properly working and (cleaned out - once a year)

stove. We no longer burn wood, but have some kind of

combined oil and water heating system. I still must

confess to missing the wood stove, as it truly heated

the home better than our current heating system. There

is nothing like wood heat! However, it was not worth

harming my lungs.

Hugs:0)

Liz 33-year-old kid-at-heart with cystic fibrosis

(??), severe bilateral bronchiectasis, asthma, on 02

24/7, etc ...

e-mail:maryholt12@... or lungsformary@...

Pre-Lung Transplant Journey - For updates please visit my carepage and leave a

message. Thank you!:0)

carepages.com name:maryelizabethholt

:o) " Miracles happen with love..... " ..... Please support your local children's

hospital.... and " Give with all your might! "

http://iwkfoundation.org/

:o)Visit.... Children's Miracle Network.... http://www.cmn.org/ :o)

" I don't give in, I don't give up, and I don't take no for an answer. "

~Doris ~

__________________________________________________

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Thanks for your information . I am now 6 days smoke free and going to stick

with it. I have exactly what you are talking about with the silia hair and

bacterial growth, which is what turns my problem into pneumonia most every time.

I have the hairs in the left bronchial tube that have been damaged and now there

is nothing that can be done to fix it. I don't know if, with time, not smoking

will help them heal too. I live in Idaho and we have a lot of wild fires in the

summer and inversions of dirty air in the winter. Burning bans are in effect

here now but you just can't get away from the bad air in our environment.

Thanks to all for sharing words of wisdom.

Robbs, L & D Admin.

â–ªTâ–ª â–ª â–ªMobile â–ª Meridian Call Center

Desk:

Mobile:

Fax:

e-mail: .Robbs@...

Re: Re: Where is everybody?

Hi ,

I cannot identify with smoking to relax beacuse I'm

not a smoker. When I want to relax I enjoy a nice

bubble bath, listen to favourite music, watch a funny

movie, get together with family or friends, read, hold

and cuddle my cat, do a craft, work on a puzzle, etc.

:0)

Second-hand or passive smoking from others causes my

lungs to fill up more and my sinuses to pound (develop

a bad sinus headache). Fortunately, many places in

Nova Scotia are now smoke-free. :o) This is a huge

help in allowing me and many others to get out and

about with no worry of inhaling second-hand smoke, and

enduring its side-effects.

Cigarettes damage the cilia in the lungs amongst

causing others problems in the lungs. We need healthy

little hairs or cilia in our lungs to help us raise

our secretions that build up with our bronchiectasis.

Normally, healthy cilia beat back and forth, helping

like an elevator to raise and clear screations. When

this “elevator†is not properly working this creates

further lung complications, and an ideal breeding

ground for bacteria to grow. I hope that you

stop smoking, because there is no safe amount of

cigarettes. Your lungs and the rest of your body will

thank you!

We had to stop using our wood stove a few years back.

It was very hard on my lungs. Some of the smoke from

the stove did come into the house despite having a

properly working and (cleaned out - once a year)

stove. We no longer burn wood, but have some kind of

combined oil and water heating system. I still must

confess to missing the wood stove, as it truly heated

the home better than our current heating system. There

is nothing like wood heat! However, it was not worth

harming my lungs.

Hugs:0)

Liz 33-year-old kid-at-heart with cystic fibrosis

(??), severe bilateral bronchiectasis, asthma, on 02

24/7, etc ...

e-mail:maryholt12@... or lungsformary@...

Pre-Lung Transplant Journey - For updates please visit my carepage and leave a

message. Thank you!:0)

carepages.com name:maryelizabethholt

:o) " Miracles happen with love..... " ..... Please support your local children's

hospital.... and " Give with all your might! "

http://iwkfoundation.org/

:o)Visit.... Children's Miracle Network.... http://www.cmn.org/ :o)

" I don't give in, I don't give up, and I don't take no for an answer. "

~Doris ~

__________________________________________________

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MANY CONGRATULATIONS on your smoking cessation! I am so proud of

you! You CAN do it! Smoking is a nasty addiction/habit, I know

because I smoked for years a pack a day before I quite cold turkey

28 years ago! Mind you with my new diagnosis of bronc those old

smoking days have come back to haunt me! Along with all the other

nasty stuff in the air we breath, with already compromised lungs, it

is no wonder, eh? My daughter, always a non-smoker, has asthma,

although well controlled now [she's 21 and is planning to go on to

medical school next year after just graduating from Cal] although my

son still occasionally smokes [he tells me ha ha] I am warning him

loud and clear!! It is a very difficult thing to do so I am very

understanding of your situation! Keep it up. I just want to add

that I substituted food for smokes so I gained a few pounds but it

doesn't have to happen to you as long as you exercise, eh?

**Hey you guys have all had IV antibiotic treatment, that scares the

heck out of me, is that my future fate too? I have constantly been

on antibiotics, pill form, and seem to have constant cough-mucus

production. I can't continue like this, almost a year now! I see

my doc in 2 weeks and plan on taking 's lengthy email with me to

show him other possible treatments. Thanks for all your support!

Janet

>

> Thanks for your information . I am now 6 days smoke free and

going to stick with it. I have exactly what you are talking about

with the silia hair and bacterial growth, which is what turns my

problem into pneumonia most every time. I have the hairs in the left

bronchial tube that have been damaged and now there is nothing that

can be done to fix it. I don't know if, with time, not smoking will

help them heal too. I live in Idaho and we have a lot of wild fires

in the summer and inversions of dirty air in the winter. Burning

bans are in effect here now but you just can't get away from the bad

air in our environment. Thanks to all for sharing words of wisdom.

>

> Robbs, L & D Admin.

> â–ªTâ–ª â–ª â–ªMobile â–ª Meridian Call Center

> Desk:

> Mobile:

> Fax:

> e-mail: .Robbs@...

>

>

> Re: Re: Where is everybody?

>

> Hi ,

>

> I cannot identify with smoking to relax beacuse I'm

> not a smoker. When I want to relax I enjoy a nice

> bubble bath, listen to favourite music, watch a funny

> movie, get together with family or friends, read, hold

> and cuddle my cat, do a craft, work on a puzzle, etc.

> :0)

>

> Second-hand or passive smoking from others causes my

> lungs to fill up more and my sinuses to pound (develop

> a bad sinus headache). Fortunately, many places in

> Nova Scotia are now smoke-free. :o) This is a huge

> help in allowing me and many others to get out and

> about with no worry of inhaling second-hand smoke, and

> enduring its side-effects.

>

> Cigarettes damage the cilia in the lungs amongst

> causing others problems in the lungs. We need healthy

> little hairs or cilia in our lungs to help us raise

> our secretions that build up with our bronchiectasis.

> Normally, healthy cilia beat back and forth, helping

> like an elevator to raise and clear screations. When

> this “elevator†is not properly working this creates

> further lung complications, and an ideal breeding

> ground for bacteria to grow. I hope that you

> stop smoking, because there is no safe amount of

> cigarettes. Your lungs and the rest of your body will

> thank you!

>

> We had to stop using our wood stove a few years back.

> It was very hard on my lungs. Some of the smoke from

> the stove did come into the house despite having a

> properly working and (cleaned out - once a year)

> stove. We no longer burn wood, but have some kind of

> combined oil and water heating system. I still must

> confess to missing the wood stove, as it truly heated

> the home better than our current heating system. There

> is nothing like wood heat! However, it was not worth

> harming my lungs.

>

> Hugs:0)

> Liz 33-year-old kid-at-heart with cystic fibrosis

> (??), severe bilateral bronchiectasis, asthma, on 02

> 24/7, etc ...

>

>

>

>

> e-mail:maryholt12@... or lungsformary@...

>

> Pre-Lung Transplant Journey - For updates please visit my carepage

and leave a message. Thank you!:0)

> carepages.com name:maryelizabethholt

>

> :o) " Miracles happen with love..... " ..... Please support your

local children's hospital.... and " Give with all your might! "

> http://iwkfoundation.org/

> :o)Visit.... Children's Miracle Network.... http://www.cmn.org/ :o)

>

> " I don't give in, I don't give up, and I don't take no for an

answer. "

> ~Doris ~

>

> __________________________________________________

>

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Share on other sites

I love mine and don't seem to have any problems with the saline and in addition, I use a drop of TTO. has one also. It was great to bring along on my vacation. I hope the TTO will not damage it as it does leave a residue on the plastic parts of my larger nebulizer and it will not wash off. But, I feel the benefits outweight the $3.00 it costs to replace the vibrating cups.I love the fact that the Omron is so quiet. It definately is a factor in choosing a nebulizer for meyself.

Eileen-FL-- "Carole" wrote:Return-Path: <sentto-4056817-13473-1156916783-ecbauer954=juno.com@...>Received: from mx01.lax.untd.com (mx01.lax.untd.com [10.130.24.61])by maildeliver12.nyc.untd.com with SMTP id AABCRLPVUA7ZVTHAfor (sender <sentto-4056817-13473-1156916783-ecbauer954=juno.com@...>);Tue, 29 Aug 2006 23:55:47 -0700 (PDT)Received: from outbound20-2.nyc.untd.com (localhost [127.0.0.1])by mx01.lax.untd.com with SMTP id AABCRLPVUASEKD3Afor (sender <sentto-4056817-13473-1156916783-ecbauer954=juno.com@...>);Tue, 29 Aug 2006 23:55:46 -0700 (PDT)Received: from n15a.bullet.scd.yahoo.com (n15a.bullet.scd.yahoo.com [66.94.237.32])by mx01.lax.untd.com with SMTP id AABCRLKTSAKMWFKJfor (sender <sentto-4056817-13473-1156916783-ecbauer954=juno.com@...>);Tue, 29 Aug 2006 22:46:24 -0700 (PDT)Comment: DomainKeys? See http://antispam.yahoo.com/domainkeysDomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=lima; d=yahoogroups.com;b=vAH0opKnQtlNzvLG/jmrXtDWwhwHoEkAfrNUvAhAdwIA4W7e3JerV37iP0MARnvU3M8KagIe6JKGVzoTeWZm2gkMMDjlZWwESP0t84vP6eROnszmNF1BGJG2vYlYECWG;Received: from [66.218.69.5] by n15.bullet.scd.yahoo.com with NNFMP; 30 Aug 2006 05:46:24 -0000Received: from [66.218.67.95] by t5.bullet.scd.yahoo.com with NNFMP; 30 Aug 2006 05:46:24 -0000X-Yahoo-Newman-Property: groups-emailX-Yahoo-Newman-Id: 4056817-m13473X-Sender: buggylung@...X-Apparently-To: bronchiectasis Received: (qmail 91615 invoked from network); 30 Aug 2006 05:46:16 -0000Received: from unknown (66.218.67.35) by m38.grp.scd.yahoo.com with QMQP; 30 Aug 2006 05:46:16 -0000Received: from unknown (HELO n30.bullet.scd.yahoo.com) (66.94.237.23) by mta9.grp.scd.yahoo.com with SMTP; 30 Aug 2006 05:46:16 -0000Received: from [66.218.66.58] by n30.bullet.scd.yahoo.com with NNFMP; 30 Aug 2006 05:45:41 -0000Received: from [66.218.66.90] by t7.bullet.scd.yahoo.com with NNFMP; 30 Aug 2006 05:45:41 -0000To: bronchiectasis Message-ID: <ed38m4+6fu9eGroups>User-Agent: eGroups-EW/0.82X-Mailer: Yahoo Groups Message PosterX-Originating-IP: 66.94.237.23X-eGroups-Msg-Info: 1:6:0:0X-Yahoo-Post-IP: 220.253.70.99X-Yahoo-Profile: buggylungSender: bronchiectasis MIME-Version: 1.0Mailing-List: list bronchiectasis ; contact bronchiectasis-owner Delivered-To: mailing list bronchiectasis List-Id: <bronchiectasis.yahoogroups.com>Precedence: bulkList-Unsubscribe: <mailto:bronchiectasis-unsubscribe >Date: Wed, 30 Aug 2006 05:45:40 -0000Subject: Where is everybody?Reply-To: bronchiectasis Content-Type: text/plain; charset=ISO-8859-1Content-Transfer-Encoding: 7bitX-ContentStamp: 4:6:263305317X-MAIL-INFO:57018004d9d9f514f50d8005d505656d7d41385d388179d1413911104534b5e938c171b914e139a1808074c1d99d713d7144bd84202465759431d031999465b41dd584e02959546195e570f0ed208df145f06170c95524f124b1a4X-UNTD-Peer-Info: 66.94.237.32|n15a.bullet.scd.yahoo.com|n15a.bullet.scd.yahoo.com|sentto-4056817-13473-1156916783-ecbauer954=juno.com@...X-UNTD-UBE:-1Hope everyone is okay and you are all out having a good time and nottoo sick to get online. While I am here, has anyone got an Omron NE-U22 nebuliser? I am a bitconcerned that they say in the instruction booklet not to nebulisewater, why is this so? The main reason I got it was to neb. hypertonicsaline which is just salty water right?Cleaning it is a bit of a pain as well, all of those delicate littleparts. It works really well though and is so quiet. Cheers Carole Yahoo! Groups Links<*> To visit your group on the web, go to: http://groups.yahoo.com/group/bronchiectasis/<*> To unsubscribe from this group, send an email to: bronchiectasis-unsubscribe <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/

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