Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 >I just wanted to say introduce myself and say it's my pleasure to be >here with all of you. Hi, Nova, Welcome to the Fire. Blissings, Sam Don't believe everything you think. ~ Bumper StickerMany of the truths we cling to depend greatly on our point of view. ~ Obi-Wan Kenobi Choose your illusion carefully. ~ UnknownWho looks outside, dreams; who looks inside, awakes. ~ C.G. Jung Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Dear Nova, Welcome. This a good time to be here. tell us a little about yourself if you are so inclined. It's easier to write to someone one knows just a little...at least for me Toni Hello I just wanted to say introduce myself and say it's my pleasure to be here with all of you.Thank you,Nova Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Dear in Los Angeles, Welcome to the list!!!! Hugs:0) Liz in Nova Scotia, Canada e-mail:maryholt12@... ) " Miracles happen with love..... " ..... Please support your local children's hospital.... and " Give with all your might! " http://iwkfoundation.org/ )Visit.... Children's Miracle Network.... http://www.cmn.org/ ) Pre-Lung Transplant Journey http://www2.caringbridge.org/canada/maryelizabeth/ " I don't give in, I don't give up, and I don't take no for an answer. " ~Doris ~ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Since April 2004, I have been nebulizing one drop TTO in a .09% saline solution 2 times a day along with Duo Nebs and Tobi Nebs (every other month). I have been free from pseudomonus and aspergillus infections. Since April, . I have contracted only one infection since and the sputum culture for that one came back negative. A coarse of Levaquin (sp.?) cleared it up. Eileen-FL-- "Debbie " wrote:Return-Path: <sentto-4056817-14816-1170135290-ecbauer954=juno.com@...>Received: from mx04.lax.untd.com (mx04.lax.untd.com [10.130.24.64])by maildeliver02.nyc.untd.com with SMTP id AABC57YH6AAVGNFAfor (sender <sentto-4056817-14816-1170135290-ecbauer954=juno.com@...>);Mon, 29 Jan 2007 21:34:52 -0800 (PST)Received: from n20b.bullet.sp1.yahoo.com (n20b.bullet.sp1.yahoo.com [69.147.64.134])by mx04.lax.untd.com with SMTP id AABC57YH5AJ8UMFSfor (sender <sentto-4056817-14816-1170135290-ecbauer954=juno.com@...>);Mon, 29 Jan 2007 21:34:51 -0800 (PST)Comment: DomainKeys? See http://antispam.yahoo.com/domainkeysDomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=lima; d=yahoogroups.com;b=i93u/hDcRhL0Flzt4awvjTCuo3hbh7KwBBp8FO/e18wmUZkFfa3v5ZKDUqv6EpvZkM4MPEEJsG0ymH6fRA4qbG1TY/326ZPxSxB1hFZ06oMVQypieq/oqZyOo77Y6oPy;Received: from [216.252.122.218] by n20.bullet.sp1.yahoo.com with NNFMP; 30 Jan 2007 05:34:51 -0000Received: from [209.73.164.83] by t3.bullet.sp1.yahoo.com with NNFMP; 30 Jan 2007 05:34:51 -0000Received: from [66.218.66.93] by t7.bullet.scd.yahoo.com with NNFMP; 30 Jan 2007 05:34:51 -0000X-Yahoo-Newman-Id: 4056817-m14816X-Sender: debres@...X-Apparently-To: bronchiectasis Received: (qmail 64328 invoked from network); 30 Jan 2007 05:30:51 -0000Received: from unknown (66.218.66.172) by m33.grp.scd.yahoo.com with QMQP; 30 Jan 2007 05:30:51 -0000Received: from unknown (HELO defout.telus.net) (199.185.220.240) by mta4.grp.scd.yahoo.com with SMTP; 30 Jan 2007 05:30:51 -0000Received: from priv-edtnaa12.telusplanet.net ([142.179.71.245]) by priv-edtnes87.telusplanet.net (InterMail vM.7.05.01.01 201-2174-0222) with ESMTP id <20070130053026.DVRJ9637.priv-edtnes87.telusplanet.net@...> for <bronchiectasis >; Mon, 29 Jan 2007 22:30:26 -0700Received: from dufus (s142-179-71-245.bc.hsia.telus.net [142.179.71.245])by priv-edtnaa12.telusplanet.net (BorderWare MXtreme Infinity Mail Firewall) with ESMTP id 1ALJ0VHU8Bfor <bronchiectasis >; Mon, 29 Jan 2007 22:30:24 -0700 (MST)To: <bronchiectasis >X-Mailer: Microsoft Office Outlook, Build 11.0.5510X-MimeOLE: Produced By Microsoft MimeOLE V6.00.2900.3028Thread-Index: AcdEL8uOfjANcn8sRu+B3Qx8dc/a7Q==Message-Id: X-Originating-IP: 199.185.220.240X-eGroups-Msg-Info: 1:0:0:0X-Yahoo-Profile: peppergal_111Sender: bronchiectasis MIME-Version: 1.0Mailing-List: list bronchiectasis ; contact bronchiectasis-owner Delivered-To: mailing list bronchiectasis List-Id: <bronchiectasis.yahoogroups.com>Precedence: bulkList-Unsubscribe: <mailto:bronchiectasis-unsubscribe >Date: Mon, 29 Jan 2007 21:30:47 -0800Subject: helloReply-To: bronchiectasis X-Yahoo-Newman-Property: groups-email-ffContent-Type: multipart/alternative; boundary="----=_NextPart_000_0064_01C743EC.BF574960"X-ContentStamp: 24:12:3649649599X-MAIL-INFO: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-UNTD-Peer-Info: 69.147.64.134|n20b.bullet.sp1.yahoo.com|n20b.bullet.sp1.yahoo.com|sentto-4056817-14816-1170135290-ecbauer954=juno.com@...X-UNTD-UBE:-1 hi all so those that use TTO ,, how are you using it??? I have used EO's in hot water beside my bed at nite. That is about all. In-takeing??? I personally would ask a expert ,, each to his own. But curious how people use it. SO Wed I go for my CF test. Had family over tonight and we tried to figure out a link. My mother has bronch. Grandma always had pneumonia, my Aunt after we told her the symptoms , she figures she has it too. Other Aunt is fine. Uncle... probably ,ex smoker always coughing and getting lung infections. Now I am going to my Grandmothers brothers family and asking them the question. I will be interested in the results of the CF test. Think someone said there is like 1400 varieties??? I'll let you know. take care all Debbie/Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 Hi Jen, I thought it was the other way around - but maybe it's tomatoes - tamatoes? I thought Chiari was common in tethered cord as the cord pulled the hindbrain downward, causing the herniation ... but as I said... Welcome to the list - we seen to be getting a lot of new members that are yet diagnosed and it's good that the word is getting out that there are some symptoms that may be seen with tethers. I have Lipomeningocele and Chiari (five untetherings, but thankfully, no decompression needed.) Hope you find some answers and support and that when you do have an MRI of your spine, that you are one of the lucky ones that is free and clear of this! Kathy Hello to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. [Non-text portions of this message have been removed] ------=_NextPart_000_0002_01C7634F.65E71E00 Content-Type: text/html; charset= " iso-8859-1 " Content-Transfer-Encoding: 7bit ~Just wanted to say hello... I'd like to learn as much as possible about this condition. I have Arnold Chiari malformation1 and was decompressed 2 years ago. I still have many problems and i'm concerned about TCS. I also worry for my children. ACM1 is familial and from what I understand TCS is a common occurance with ACM1. I look forward to reading your posts Jen --------------------------------- Need Mail bonding? Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 Hi I'm so sorry about your children. I can't even imagine - two of our four children have Spina Bifida Occulta and no problems at all from it. It was found incidentally after we them all MRI'd (from their head to their toes) to rule out Chiari and tethers. I'm curious - the worst my herniation ever got to was 10mm w/blockage, but the herniation receded and allowed flow again after one of my untetherings - did your MRI show a blockage of fluid prior to your decompression? Do you know how large/small the herniation was? Your children - I take it they haven't been MRI'd? I had tons of kidney and bladder problems as a child from the tether. I wasn't diagnosed until I was 36 though. Kathy Hello > > > to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 Hi Kathy- No, we never had the kids tested. I was told there was no reason unless they had serious signs/symptoms of Chiari. My cerebellar herniations were 5-6mm on MRI, but they were 13mm on one side and 10mm on the other upon opening me up in surgery. Dr. Bolognese of TCI said that MRIs are only as good as the angle they present, so my herniations were in fact much worse than my films ever showed. I had no CSF flow posteriorly or through the fourth ventrical. I still have diminished flow anteriorly. I'm happy to hear that your kids are asymptomatic! I hope mine kids troubles are just from other things and not TCS. > > > > Hi Jen, > > > > I thought it was the other way around - but maybe it's tomatoes - > tamatoes? I thought Chiari was common in tethered cord as the cord > pulled the hindbrain downward, causing the herniation ... but as I > said... > > > > Welcome to the list - we seen to be getting a lot of new members > that are yet diagnosed and it's good that the word is getting out > that there are some symptoms that may be seen with tethers. > > > > I have Lipomeningocele and Chiari (five untetherings, but > thankfully, no decompression needed.) > > > > Hope you find some answers and support and that when you do have an > MRI of your spine, that you are one of the lucky ones that is free > and clear of this! > > > > Kathy > > Hello > > > > > > to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. > Quote Link to comment Share on other sites More sharing options...
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