Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 , I hope this helps, also somone said that had hearing loss, that can be one of the symptoms of PCD. If someone could let him know that...... Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 DearVickie, Thanks again. I e-mailed Dr. Marcus Kennedy. He is reponsible for the adults in this study. As you say it can't hurt and my CF diagnosis is still in limbo. Hugs:0) e-mail:maryholt12@... or lungsformary@... Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you!:0) carepages.com name:maryelizabethholt ) " Miracles happen with love..... " ..... Please support your local children's hospital.... and " Give with all your might! " http://iwkfoundation.org/ )Visit.... Children's Miracle Network.... http://www.cmn.org/ ) " I don't give in, I don't give up, and I don't take no for an answer. " ~Doris ~ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 To Sandy from Australia, I would like to see your list of natural ways to boost the immune system. Am also curious as to how you get that much garlic in per day - with other foods? or do you eat it by itself?? , Portland, OR Reply-To: bronchiectasis To: bronchiectasis Subject: Re: New member, sunnies 550Date: Fri, 29 Sep 2006 00:55:02 -0000>--->Hi Sandie, welcome ,>My name is Sandy too.>I have 3 people I have cared for over the past 10 years with same>conditions as you.>I am not new here, have read most replies, and well, I am very much>into natural stuff, because i now am totally allergic to all medicines>( prescribed).>I live on Garlic ( boiled, steamed, roasted, raw) any which way.>I eat 2 bulbs a day when well, and 4 if I am around others who are>not well, or I am travelling.>I also eat tons of yoghurt,with acidophillis.>I could never use the pills etc either.>I have had no infections at all for well over 10 years now.>And we are totally sure its my natural ab,s that keep me well.>However I suffer dreadfully with chronic pain.>Another story all together.>Codiene is only good to take if you cough incessantly and are at risk>of harming self.>I had whooping cough around 8-9 yrs ago, fractured ribs etc from the>constant coughing, and was given 90% codienne, tint tabs, only needed>2 and stopped the cough, after 3 weeks of constant cough.>It is far better to get all the muck out really.>Codeine is good just as a quick stop cough measure.>Upper body excersise, saline or steam inhaled, potato water/ juice>etc with a little cayenne or tumeric, or even sage, too are all great>to assist immunity, as is ginger.>I am happy to send you a list of natural ways to get relief, and>build own immunity.>Just let me know if you wish me to post the list.>I work as an assistant to the dietician at our hospital, I work>primarily in mental health now, i am on a disabled pension, but just>must keep busy to keep mind off my pain etc.>I also am around lots of people that are not well, so my daily food>routine, is just that routine.>I am the only one at the hospital that hasn,t had colds flus etc, for>many years.>I am a chronic asthmatic, and do specific breathing techs for that.>I am 59 and had asthma sice 21.>Must go, again welcome .>Sandy --Australia.>>In bronchiectasis , Sunniesback55@... wrote:> >> > Good Morning Everyone> >> > My name is Sandie. I'm new to this list. I'm on another support>list titled> > Alpha1 Antitrypisin Deficiency. For those of you who have never>heard of this> > disorder it's genetic..liver/lung..chronic and progressive, unlike>the run> > of the mill COPD or Emphysema. Some have compared us to those who>suffer from> > CF generally speaking.> >> > I suffer from Bronchiactesis as a symptom of my ATATD.> > I have the vest. I don't use near as often as I should. I have a>frequent> > cough too. I expel a lot of mucous in the mornings, after I first>wake. It> > usually takes me anywhere from a good half hour to hour..it's>rather ritualistic> > anymore..I wake..use my albut..cough, get water..sit at the puter>desk and> > start my pulmonary ' cleansing '. After that I can breathe better>and begin my> > day.> >> > I suffer from frequent, consistent infections as a result of my> > bronchiactasis..I'm soooooo sick of being sick and my colon is>revolting from all the> > freekin anti's I nearly live on.> >> > Therefore, my ?? to the group is this. How many suffer from>frequent> > infections as I do..( I'm talking 2/month, almost back to back ).>What treatment are> > you using for your infections? Which anti's are you using? Have any>of you> > or are any of you currently on maintenance meds to halt the>infections?> >> > Dr. Brantley is on my support group em list for A1ATD. My alpha>net> > coordinator suggested I write to him (which I'll do next ) to>inquire what his method> > of treatment is. I was told he goes prophylatic ( sp )..Zythromax>every> > other day long term.> >> > Thanks for your input> > Sandie> >> >> > Can't sleep?> > Try counting your blessings...> >>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
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