Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 Good Morning Everyone My name is Sandie. I'm new to this list. I'm on another support list titled Alpha1 Antitrypisin Deficiency. For those of you who have never heard of this disorder it's genetic..liver/lung..chronic and progressive, unlike the run of the mill COPD or Emphysema. Some have compared us to those who suffer from CF generally speaking. I suffer from Bronchiactesis as a symptom of my ATATD. I have the vest. I don't use near as often as I should. I have a frequent cough too. I expel a lot of mucous in the mornings, after I first wake. It usually takes me anywhere from a good half hour to hour..it's rather ritualistic anymore..I wake..use my albut..cough, get water..sit at the puter desk and start my pulmonary ' cleansing '. After that I can breathe better and begin my day. I suffer from frequent, consistent infections as a result of my bronchiactasis..I'm soooooo sick of being sick and my colon is revolting from all the freekin anti's I nearly live on. Therefore, my ?? to the group is this. How many suffer from frequent infections as I do..( I'm talking 2/month, almost back to back ). What treatment are you using for your infections? Which anti's are you using? Have any of you or are any of you currently on maintenance meds to halt the infections? Dr. Brantley is on my support group em list for A1ATD. My alpha net coordinator suggested I write to him (which I'll do next ) to inquire what his method of treatment is. I was told he goes prophylatic ( sp )..Zythromax every other day long term. Thanks for your input Sandie Can't sleep?Try counting your blessings... Quote Link to comment Share on other sites More sharing options...
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