Re: Donating money to prostate cancer associations

[Guest guest]

Hi: Let me join Skip and our good friends at the NPCC and suggest guidestar.org, along with charitynavigator.com. Also, let me also do some shameless plugging of our nine year old all-volunteer prostate cancer nonprofit, Malecare and our website, www.supportgroup.org (also reached at malecare.com and malecare.org ). I would be happy to speak with you (and everyone else reading this) about the great and life saving work we do. Cheers, Darryl

Darryl Mitteldorf, LCSWDirectorMalecare, Inc.www.malecare.comdarryl@...212 844 8369

Malecare recommends that all men, upon attaining adulthood,discuss prostate cancer and the latest prostate cancer screening tests, with their physician, annually.

I would consider using Charity Navigator (www.charitynavigator.com) and searching for “Prostate Cancer†to get an idea about how different charities are using their money and how they are ranked according to independent criteria. I am happy to speak with you offline about the varieties of giving opportunities at the NPCC. (Forgive the shameless plug but I really do believe we do some great things. <GRIN>)--Skip

[Guest guest]

That is a great idea. State coalitions could use the money or PCF would use it directly for research. Maybe you could spread it out to cover both awareness and research. In Virginia we get money like this for people who have died in Virginia.

Another thought is to donate your tissue. Depending upon where you live several universities that are doing research on prostate cancer are developing programs for fast biopsies that are set up to get tissue from metastasizes. These tissues are very valuable since it will help the researchers find out how the cancer is different from cancer found in the prostate.

The tissue from biopsies and from prostates that are surgically removed can also be donated for research. If you are interested ask your doctor if there is a program to do this that you can participate in.

Kathy

-----Original Message-----From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of artagnan47Sent: Monday, July 31, 2006 11:56 AMTo: ProstateCancerSupport Subject: Donating money to prostate cancer associations

Have any of you ever donated significant sums, or considered donating money to a prostate cancer foundation or association--in U.S.?I never have, but I have been thinking about donating money as my beneficiary, eventually. I had my prostate removed about 2 years ago(and by the way, I still use pads sometimes)Anyway, I have never done anything along those lines, and I would want a guarantee that the money is used wisely. I dont actually have a will or an executor and I am still in my fifties anyway.

[Guest guest]

I would consider using Charity Navigator (www.charitynavigator.com) and searching for “Prostate Cancer” to get an idea about how different charities are using their money and how they are ranked according to independent criteria. I am happy to speak with you offline about the varieties of giving opportunities at the NPCC. (Forgive the shameless plug but I really do believe we do some great things. <GRIN>)

--Skip

Skip Lockwood

Executive Vice President and COO

National Prostate Cancer Coalition

1154 15th St., N.W.

Washington, DC 20005

(main)

(fax)

www.fightprostatecancer.org

slockwood@...

All the breaking news about prostate cancer is available in Aware — NPCC’s free electronic newsletter. Subscribe today -- www.fightprostatecancer.org

Reply-To: " ProstateCancerSupport " <ProstateCancerSupport >

Date: Mon, 31 Jul 2006 15:56:00 -0000

To: " ProstateCancerSupport " <ProstateCancerSupport >

Subject: Donating money to prostate cancer associations

Have any of you ever donated significant sums, or considered

donating money to a prostate cancer foundation or association--in U.S.?

I never have, but I have been thinking about donating money as my

beneficiary, eventually. I had my prostate removed about 2 years ago

(and by the way, I still use pads sometimes)

Anyway, I have never done anything along those lines, and I would

want a guarantee that the money is used wisely. I dont actually have a

will or an executor and I am still in my fifties anyway.

[Guest guest]

Hi: Let me join Skip and our good friends at the NPCC

and suggest guidestar.org, along with

charitynavigator.com. Also, let me also do some

shameless plugging of our nine year old all-volunteer

prostate cancer nonprofit, Malecare and our website,

www.supportgroup.org (also reached at malecare.com

and malecare.org ). I would be happy to speak with

you (and everyone else reading this) about the great

and life saving work we do. Cheers, Darryl

Darryl Mitteldorf, LCSW

Director

Malecare, Inc.

www.malecare.com

darryl@...

Malecare recommends that all men, upon attaining

adulthood,

discuss prostate cancer and the latest prostate cancer

screening tests, with

their physician, annually.

I would consider using Charity Navigator

(www.charitynavigator.com) and searching for “Prostate

Cancer” to get an idea about how different charities

are using their money and how they are ranked

according to independent criteria. (Forgive the

shameless plug but I really do believe we do some

great things. <GRIN>)

--Skip

>

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> Reply-To: " ProstateCancerSupport "

> <ProstateCancerSupport >

> Date: Mon, 31 Jul 2006 15:56:00 -0000

> To: " ProstateCancerSupport "

> <ProstateCancerSupport >

> Subject: Donating money to

> prostate cancer

> associations

>

>

>

>

>

>

>

>

> Have any of you ever donated significant sums, or

> considered

> donating money to a prostate cancer foundation or

> association--in U.S.?

>

> I never have, but I have been thinking about

> donating money as my

> beneficiary, eventually. I had my prostate removed

> about 2 years ago

> (and by the way, I still use pads sometimes)

>

> Anyway, I have never done anything along those

> lines, and I would

> want a guarantee that the money is used wisely. I

> dont actually have a

> will or an executor and I am still in my fifties

> anyway.

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi Artagnan,

That is a wonderful idea. Prostate cancer needs all the help it can

get.

Milken set up CapCure and donated millions of dollars

to the foundation. It has now changed the name. Go to:

http://www.prostatecancerfoundation.org/

The donations to this organization are tax deductible.

Thank you very much

Aubrey Pilgrim, DC (Ret.)Author of A Revolutionary Approach to Prostate Cancer-Read the original book for free at: www.prostatepointers.org/prostate/lay/apilgrimRead the new edition for free at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revision

Have any of you ever donated significant sums, or considered donating money to a prostate cancer foundation or association--in U.S.?I never have, but I have been thinking about donating money as my beneficiary, eventually. I had my prostate removed about 2 years ago(and by the way, I still use pads sometimes)Anyway, I have never done anything along those lines, and I would want a guarantee that the money is used wisely. I dont actually have a will or an executor and I am still in my fifties anyway.

[Guest guest]

Kathy

Much of the research work done at York University by Prof Norman Maitland uses material from biopsies at our local hospital

B

[Guest guest]

Is he being followed by the people who got the original biopsy/surgicalmaterial? His generosity in donating this tissue has the potential tohelp many, many men. How quickly did his PSA rise to this level?

Thanks, Kathy for your kind words. The lady that we originally talked to told us that hubby would not be identified, completely anonymous. I feel sure that she has followed up with the hospital and doctors. I have paperwork from her here someplace with a lot of other papers that we received at the hospital.

His annual trip to the urologist was due in July and this was 2 1/2 months before that. We do not know what the PSA was in July 2005 but feel that it must have been elevated to warrant further testing at that time. When bad things begin to happen and he agreed to see a doctor, we couldn't get into the urologist for 2-3 weeks but our general doctor's office made room for him that day. Then after a blood test, they saw the PSA and started everything moving. He was in so much pain at that point that he would hold onto my shoulders and I would lead him from room to room. That pain was bad enough in early April that I took over all the chores - we have a mini farm. The urologist is seeing him in 3 months with a PSA at that time and will also do a scan or MRI to see what is happening with the bones.

Further complicating things was a couple days after the biopsy, he fell getting out of bed and broke a hip and had surgery to fix that the following day.

Midge

"Good friends are like stars...

You don't always see them, but you know they are always there."

[Guest guest]

I am new to this prostate cancer information and recently diagnosed with P.C. I don't think the reality of all this has hit me yet. But am I reading this post correctly that your husband had annual exams and they still found cancer outside of his prostate? Yes, that is correct. I usually have always had problems getting him to see a doctor but he has been very faithful with those annual exams. The next time we see our regular doctor, I want to ask him what the count was last July. If it was near normal a year ago, and it moved so fast, do we have a false good outlook? Or, should we have good reason to look forward to a few more years?

I think that we were in 'shock' for a couple weeks after everything started to happen. But, we have accepted it and I am always looking for information to help us on our way.

Midge

"Good friends are like stars...

You don't always see them, but you know they are always there."