Wound Care - Long Term Chronic Issues

[Guest guest]

I have to chime in on the wound care topic because we just had some great

success with something similar with our 7 year old daughter (Spina Bifida,

tethered cord). She tends to get sores below her waist very easily, and some

of them have been very difficult to heal. Sometimes they'll start with a

little sore from something rubbing such as a shoe, but sometimes they just

seem to appear in odd places for no reason. Recently she had two big sores

on her buttocks that lasted, literally, for months, and we thought we would

never get them to heal. Our physician prescribed two rounds of antibiotics,

different dressings, etc. to NO avail. In fact, they were getting worse!

Well, I have a sister in law who works as a pharmaceutical rep, and in

desperation I called her. She suggested a wound dressing that was originally

made for burns, but has been quite successful with other types of wounds,

too. She sent us some, and it was truly miraculous! Even our doctor was

amazed! It totally healed these sores that we had been working on for

months!!

My sister in law is currently out of the country, but is due back the first

of the week. At that time I'll call her and get the name of this wonder

dressing, as I don't have any left. When I do I'll post it here, and perhaps

you could ask your doctor about it, or he/she could order some. It's a patch

that adheres directly over the wound, and forms kind of a healing gel. It's

simply amazing.

Lori

Mom to 6, including Adi, 7, SB, Tsc (only 1 surgery so far, knock on wood),

no shunt, club feet repair, no bowel/bladder control, vesicostomy, and the

most verbal child I know!

[Guest guest]

Lori,

you may be thinking of Cavilon (which is what it is called in the UK) No

Sting Barrier Film, made by 3M Heath Care, St , MN 55144-1000 Tel:

1-

I had constant split skin on the balls of both my feet due to their

deformities and this went on for about 10 years, slightly healing up then

splitting again. Eventually last year, a dermatologist took a skin culture,

found an infection, gave me high-dose antibiotics and a prescription for

this Cavilon, and hey presto - my feet are healed up!! I still have to keep

an eye on them for splitting and the skin is very fragile, but at least

most of the time they are healed.

Hope this helps

REgards

Nina

--

> I have to chime in on the wound care topic because we just had some great

> success with something similar with our 7 year old daughter (Spina Bifida,

> tethered cord). She tends to get sores below her waist very easily, and

> some of them have been very difficult to heal. Sometimes they'll start

> with a little sore from something rubbing such as a shoe, but sometimes

> they just seem to appear in odd places for no reason. Recently she had

> two big sores on her buttocks that lasted, literally, for months, and we

> thought we would never get them to heal. Our physician prescribed two

> rounds of antibiotics, different dressings, etc. to NO avail. In fact,

> they were getting worse!

>

> Well, I have a sister in law who works as a pharmaceutical rep, and in

> desperation I called her. She suggested a wound dressing that was

> originally made for burns, but has been quite successful with other types

> of wounds, too. She sent us some, and it was truly miraculous! Even our

> doctor was amazed! It totally healed these sores that we had been working

> on for months!!

>

> My sister in law is currently out of the country, but is due back the

> first of the week. At that time I'll call her and get the name of this

> wonder dressing, as I don't have any left. When I do I'll post it here,

> and perhaps you could ask your doctor about it, or he/she could order

> some. It's a patch that adheres directly over the wound, and forms kind

> of a healing gel. It's simply amazing.

>

> Lori

> Mom to 6, including Adi, 7, SB, Tsc (only 1 surgery so far, knock on

> wood), no shunt, club feet repair, no bowel/bladder control, vesicostomy,

> and the most verbal child I know!

>

>

>

>

> Not Medical Advice. We Are Not Doctors.

> Need help with the list? Email

> kathy@...,michelle@..., rick@...

>

[Guest guest]

Hi Charnel

You wrote, " " have keratin issues " "

Just curious, are keratin problems something which can be tested for? ( skin

biopsy maybe?)

thnks

Lynn

Wound Care - Long Term Chronic Issues

>

>

> It has been awhile since my last post. (That almost sounds

> confessional, doesn't it?) Oh well, I need some help from you all.

>

> My daughter, 16, developed a blister on her right foot last August.

> Now, being a teenager, she decided that it was not important to let

> me know that she had this injury. I did not discover it until mid-

> October when we went to her orthopedic surgeon for a follow up. I

> was shocked to see this deep hole on the side of her big toe.

> Immediately we were referred to a podiatrist who tried

> several " usual " treatments to close the wound. The problem is that

> the lower level of skin does not form and she aggressively grows new

> callous skin - but a tiny hole remains open in the center and drains

> small amounts of liquid.

>

> Since October, she has had two podiatrists, two leg casts (to

> alleviate pressure on her toe), two rounds of wraps to reduce any

> swelling, a surgical intervention where it was sewn together. As

> soon as the stitches dissolved, the wound opened right up again.

> She has also had multiple rounds of antibiotics and is now using

> regranex to try to encourage skin, not callous, growth. She has

> also had multiple examinations by several physicians who all tell

> me " well, everything looks fine, no infection, no cancer, good blood

> flow to the area - it should have healed by now " .

>

> Now, she is normally ambulatory for most of her day and since

> January, she has been using her wheelchair to keep weight off the

> foot. Big problem with that is she has gained 18 pounds. Without

> swimming (her favorite) and regular exercise with walking, she is

> unable to get moving enough to keep the weight off.

>

> I was told today that this second podiatrist is out of options, he

> cannot recommend skin grafts because of the chronic wound and we are

> off to another wound/burn care facility.

>

> Has anyone ever had this kind of care issue? My daughter has

> lipomyelomeningeocele with her tethered cord at L4. I know the

> nerves in her right leg are severely compromised because of the

> lipoma and the tethered cord only worsens her nerve conductivity.

>

> Any advice? Is there something we have not done?

>

> Thanks in advance,

>

>

>

> Mom to a, 16, Lipomyelomeningeocele, Tethered Cord at L4, Right

> Leg compromised with ortho supports

>

>

>

>

>

>

[Guest guest]

Some types can be tested by biopsy but some types just have to be

evaluated by a specialist or tested for by a genetisist.

Charnel

> >

> > Hi,

> > I realize that this is not the same issue as diabetics, but for

> years have heard of wound healing problems with diabetics, and that

> there are special doctors who have " particular treatment strategies "

> to deal with poor wound healing. Could you get in contact with one of

> these and see if they could help/had suggestions.

> >

> > the other suggestion is, a few years ago, I saw advertised on t.v.,

> a " wound healing centre " for diabetics with particularyl severe

> problems in wound healing. I am sorry I don't know the name /

> locations, but possibly if someone on the board knows of it , you/your

> doctor could contact them for suggestions?

> >

> > Lynn

> >

> >

> > Wound Care - Long Term Chronic Issues

> >

> >

> > It has been awhile since my last post. (That almost sounds

> > confessional, doesn't it?) Oh well, I need some help from you all.

> >

> > My daughter, 16, developed a blister on her right foot last August.

> > Now, being a teenager, she decided that it was not important to let

> > me know that she had this injury. I did not discover it until mid-

> > October when we went to her orthopedic surgeon for a follow up. I

> > was shocked to see this deep hole on the side of her big toe.

> > Immediately we were referred to a podiatrist who tried

> > several " usual " treatments to close the wound. The problem is that

> > the lower level of skin does not form and she aggressively grows

new

> > callous skin - but a tiny hole remains open in the center and

drains

> > small amounts of liquid.

> >

> > Since October, she has had two podiatrists, two leg casts (to

> > alleviate pressure on her toe), two rounds of wraps to reduce any

> > swelling, a surgical intervention where it was sewn together. As

> > soon as the stitches dissolved, the wound opened right up again.

> > She has also had multiple rounds of antibiotics and is now using

> > regranex to try to encourage skin, not callous, growth. She has

> > also had multiple examinations by several physicians who all tell

> > me " well, everything looks fine, no infection, no cancer, good

blood

> > flow to the area - it should have healed by now " .

> >

> > Now, she is normally ambulatory for most of her day and since

> > January, she has been using her wheelchair to keep weight off the

> > foot. Big problem with that is she has gained 18 pounds. Without

> > swimming (her favorite) and regular exercise with walking, she is

> > unable to get moving enough to keep the weight off.

> >

> > I was told today that this second podiatrist is out of options, he

> > cannot recommend skin grafts because of the chronic wound and we

are

> > off to another wound/burn care facility.

> >

> > Has anyone ever had this kind of care issue? My daughter has

> > lipomyelomeningeocele with her tethered cord at L4. I know the

> > nerves in her right leg are severely compromised because of the

> > lipoma and the tethered cord only worsens her nerve conductivity.

> >

> > Any advice? Is there something we have not done?

> >

> > Thanks in advance,

> >

> >

> >

> > Mom to a, 16, Lipomyelomeningeocele, Tethered Cord at L4, Right

> > Leg compromised with ortho supports

> >

> >

> >

> >

> >

> >