Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 Hello , Welcome to our group. I am sorry that you find yourself so sick. Have you gone to a good teaching hospital for transplant evaluation, yet? Are you on oxygen, yet? Has your doctor mentioned rehab to you yet? What is your actual diagnosis? , we all relate. We have all been through the same stages of denial and fear. We have all grieved the loss of our health. We all suffer. We all need each other. Ask us anything? There are many here who are professional medical people and many who have fought the fight for a long time. We are happy to help. You will be able to help us in return. You are among friends. Hugs, Joyce PF 1997>> Hello> I am new to this site. I guess I need to talk to other people who have breathing issues. I was just discharged from the hospital yesterday due to pulmonary hypertension due to my pulmonary fibrosing. I had a heart cath. Anyway, my heart is fine..lungs are terrible. Was told there was nothing else to be done for me. I have been told I should have beenput on the lung transplant list when first diagnosed but I didnt. Prognosis is not good. Does anyone have any positive news about this disease? I have so many questions. Can anyone relate? I am starting to get SOB even when not exerting. Guess I just needed to talk. If anyone listened to me....thanks.> Quote Link to comment Share on other sites More sharing options...
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